Anyone with flat epithelial atypia (FEA)?
Comments
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I have been looking for information on flat epithelial atypia (FEA) but have had a hard time finding much of anything. Most of what I have read lumps it in with ADH and ALH, but the dr. I sought for a 2nd opinion says that they are different and that the literature suggests that FEA has been overtreated. Just wondering if any of you out there have had this come up on your path report, and if you'd be willing to share what you have done for preventative measures, if anything.Thanks in advance!
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Just got dx with FEA and ADH. My dr. suggests Evista (raloxifene) once a day for 5 yrs. I had bc on other breast 8 yrs ago. Had "good" one reduced, and got this info. Still processing it myself!
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I had some FEA on my path report on the margins of my lumpectomy specimen, second opinion said ADH - thankfully both felt that a benign pathology did not warrant re-excision.
I would expect that the "over-treatment" they were referring was whether or not to perform an excisional biopsy? close monitoring would likely be another proposed "treatment", and it would really come down to what level of risk you would feel more comfortable with?
Breast abnormalities are so tricky. The imaging modalities used for watch-and-wait for breast abnormalities are scary and biopsies (even excisional) are actually so low risk that they are often the best solution for peace of mind. I contrast this to bone biopsy (I had a lesion on my hip that we did close monitoring by x-ray every 3-4 months -- this was preferred to an actual biopsy with risks of pain, damage, etc) and even prostate (where biopies/excision can cause permanent impotence).
For me, I was not worried about having FEA/ADH in the margins ... and I am completely without fear during my follow-up exams, but I know other women who have much lower tolerance than me, and they deserve peace of mind.
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Thanks for your responses. I'm sorry I wasn't being very clear - I actually had 3 biopsy procedures, the last one being an excisional biopsy, and the the FEA showed up on that path report. The overtreatment that the 2nd opinion doc was referring to was drugs like Tamoxifen, which my surgeon had recommended because I am premenopausal and have a family history (mom). But at the end of the conversation the 2nd opinion doc still recommended the Tamoxifen anyway. I am supposed to go for alternating MRIs and mammograms every six months regardless if I decide to take the Tamoxifen. My 3rd option is a double mastectomy. I feel almost guilty for writing about this when there are others with far more serious concerns, but I am feeling stuck, like whatever I decide is going to be the wrong decision.
I've gone on long enough. Thank you both again for posting about your experiences - wishing you the best.
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Anytime that an option is given that refers to a mastectomy it is beyond trivial. Furthermore, tamoxifen is not an easy choice either, and has a whole host of possible side effects. I am sorry you are going through this, your family history must be quite pronounced for either of these options to be given to you ... and 6 month MRI/mammograms as well. The only real advice I can give you is for you to find a doctor that you trust, one that listens to you, treats you with dignity, and one that gives you all the information you need to make the best decision for you.
You might want to look through the hormonal therapy threads to see if anyone there has been, or is, in the same situation as you.
Best of luck, stay healthy, be happy.
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I'm 35 and I had FEA show up on a biopsy last year. It was recommended that I have it excised, and from that surgery pathology it showed ADH, so slightly worse on the sliding scale. I met with 2 oncologists and both said they didn't find it necessary to take the tamoxifen and was just put on an alternating mammo and Mri schedule. Thank God for those alternating scans because it just caught DCIS in the other Breast and now I'm faced with mastecomy next month. Even though I don't think it had anything to do with the FEA/ADH since it was 2 different breasts, I can't help but wonder if I would be in this situation today if I had been given the tamoxifen
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it is doubtful that tamoxifen last year would helped your diagnosis this year, since DCIS is typically a slow occurring event it is much more likely that it was there last year and simply not caught. Was your current diagnosis found via MRI guided biopsy?
Sorry to hear about your diagnosis. Good luck to you.
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yes it was an MRI biopsy but didn't show up on 2 other MRI's that I've had in the past year
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Hi, and welcome to Breastcancer.org. It sounds as though your medical teams are being responsive and acting properly to assess what they've found, and that's great.
Please read What Mammograms Show: Calcifications, Cysts, Fibroadenomas. and Keeping an Eye on Benign Breast Lumps is Safe Alternative to ... from the main Breastcancer.org websie.
We wish you all the best and benign results on any biopsies.
The Mods
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I found FEA on my pathology report after my surgery last Tuesday. I don't quite understand it but will ask the surgeon on Monday when I have my post-op appt. And I don't understand the abbreviations used here, either
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FEA was found in my left breast, and since i have invasive ductal carcinoma in my right breast, my surgeon did an excisional biopsy last week. i'm waiting on the pathology results.
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