Drains, oh how I loathe thee!

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XenainCT
XenainCT Member Posts: 4
edited May 2015 in Breast Reconstruction
Drains, oh how I loathe thee!

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  • XenainCT
    XenainCT Member Posts: 4
    edited January 2015

    When I had drains in I wanted a place to vent about how they suck, see how others were doing with them. They are extremely uncomfortable aren't they? Even though you know they are performing a serve it's still annoying to have stuff hanging out your body. So here you can ask questions, share stories (if you have some funny ones that'd be nice), or just state how annoyed you are with them today and how you are counting down the day 'til they are removed from your body. Your choice!

  • XenainCT
    XenainCT Member Posts: 4
    edited January 2015

    I got my drains out yesterday and I feel so much better. I had them in for 25 days, yes I was counting. The most annoying thing is trying to figure out how to sleep with them. I thought I would be able to sleep the way I had before the drains but unfortunately that is not the case. I am a right side sleeper, and my right breast is the one that was removed and has a TE. I still can't sleep on that side. Booo!

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited January 2015

    Drains definitely are a pain in the patootie, but isn't it great that we feel well enough for drains to be the biggest problem. I just had mine removed and booyah!

  • Geo
    Geo Member Posts: 21
    edited January 2015

    I had them for 2-3 weeks. Right now it looks like a distant mememory. I hardly remember. I had 4 drains, 2 each side of the breasts and 2 on my hips. It didn't bother me too much, but I wore only t shirts, and sweatpants and if you add that I coudnt take a real shower for more than 3 weeks (waiting 4 days after my dr. Removed My babies) it was a nightmare and my hair was like Medusa.

    A mini heart attack moment? Wearing a binder, sleeping on the recliner and trying to get up quickly to use the bathroom. I forgot to pin the drains to the binder and when I got up... It fell. Thank god I had stiches everywhere. I was expecting a LOT. of pain when my Dr. was removing them, but it just felt really weird

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2015

    I just had one, stonking, big one. It was on a very long piece of tubing. I could throw it around my neck, or carry it in a cloth shoulder bag. I hated that thing and occasionally, at home, I would just let the darn thing, drag behind me. I would pin it to a lanyard in the shower and sometimes I would wake up with it wound around me, because I had turned over in my sleep. It was definitely the most irritating part, of that surgery, especially, if it got caught on anything.

    Fortunately, I didn't have it for long, but It was very weird, it came out of a circular hole in my side, but the interior drain tubing, was square and covered, in small drain holes. It really wasn't that easy to remove, but the relief when it was out, was just amazing!

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2015

    I got a drain on January 12 with my lumpectomy because the surgeon removed 20 lymph nodes from my right side. (They were all clear, thanks to neoadjuvant chemo, but one had tested positive back in July.) I still have said drain because the nurse won't remove it until its daily fluid output is less than .25 ml. Ugh. It's not so much that it's a huge inconvenience (fits nicely in the pocket of my pants), but that it prevents me from doing the usual things with my kids like swimming and scootering. Thankfully, the fluid output is beginning to slow. My hopeful drain removal date: January 26!

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    I just had TE placement surgery Jan. 29 and I have the drains too. Hate them with a passion at this point!!!!!!!!!!!!!! Can't wait to get them out, miss sleeping on my side! At first the fluid levels looked like they were dropping but had 2 days filled with stress and the drainage output numbers went up. Is this normal when dealing with stress?

  • Ariom
    Ariom Member Posts: 6,197
    edited February 2015

    Hi MOmmyof2 sorry you have to put up with these nasty things, they are awful. I found the output went up considerably when I overdid things. I am guessing you are probably running around after 2 children, which will do it. I think quite a lot of us slowed right down, where possible, to reduce output so the drains could be removed. I can't say if stress itself would increase the output, but anything's possible. I wish you all the best and hope you can be rid of those things soon.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    No kids to chase but a dog and kitten. Output total is down almost 20 cc's from last night. Was just wondering about if stress was causing it because we had to deal with a major problem with our car.

  • Shelly74
    Shelly74 Member Posts: 24
    edited February 2015

    Question... Are you all changing the dressing at the exit site? My written drain instructions said to take bandage off and change... But the nurses did not tell me to do that during verbal instructions and did not change the bandage while I was in the hospital. Thanks for your input!

  • KiliIsMe
    KiliIsMe Member Posts: 3
    edited February 2015

    I had both removed and 4 drains (2 for the reconstructed foobs and 2 abdominal from the DIEP flap). I slept in a recliner for a couple of months in order to not turn in any direction I shouldn't. I also had considerable pain in my right arm related to the removal of 24 lymphnodes on that side..... propping that arm up on pillows helped quite a bit. Unfortunately, I suspect my left breast drain was removed too soon, after round 1 of chemo I developed a serious infection in the left DIEP flap and ended up in the hospital for almost a week after they drained 500cc of infected seroma on that side with 2 antibiotics being pumped in via IV to kill the dual infections (I'd developed cellulitis with the internal fluid)...... so as big a pain in the foob as the drains are, don't push for their quick removal -- let them do their job. I ended up with a drain again for a few more weeks, and had they been in another week initially, I might not have needed a new one and the ER and 6 days stuck in the hospital.

  • KiliIsMe
    KiliIsMe Member Posts: 3
    edited February 2015

    Have you talked to your surgeon about the increase? More fluid could be your body trying to flush things out.... make sure you're not developing an infection... it's not fun.

  • KiliIsMe
    KiliIsMe Member Posts: 3
    edited February 2015

    I dealt with mine by buying a couple of inexpensive house dresses that snapped up the front with patch pockets and then just cut slits on the inside of the top edge of the pockets pockets, then dropped the drains through the slits into the pockets and safety pinned the slit so that the tube was inside the safety pin (being careful not to stick the pin through the tube), that kept them in place and not bouncing around, then I just snapped the dress closed -- it worked very well. They weren't exactly attractive, but they weren't the ugliest dresses I've seen either and to alternate washing one while wearing the other for a few weeks was not a big deal -- and you don't even have to mess with them when you go to the bathroom.

  • Ruth7733
    Ruth7733 Member Posts: 68
    edited May 2015

    bumping this up. I am on my second week of having drains but it feels like they've been in at least a month. And I don't think they are coming out anytime soon as the output is almost exactly the same as it was on day one Praying they don't get infected as I've been there, done that in the past.

    So how long have you had yours or how long DID you have yours? Was it really painful to have them removed (I dealt with drains years ago but can't remember if it hurt to have them removed)? Not that it matters, I would deal with the pain RIGHT NOW if it meant I could have them out!

  • Char66
    Char66 Member Posts: 65
    edited May 2015


    Ruth-don't worry about the removal-I've had them a couple of times and truly never felt them pulled out. I was all prepare for the pain and looked and she had them out! 4 drains at BMX  but only one couple weeks ago for revision-and PS didn't happen to mention I would be waking up with one-hummm. I really do like to know EVERYTHING before hand and PS doesn't share well.

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