Just diagnosed

Leighrh
Leighrh Member Posts: 317
edited January 2015 in Just Diagnosed

Hi all,

I have been reading reading reading and I am so very overwhelmed. I was diagnosed with IDC on Wed dec 30 th. Have a 2.5 cm tumor in my rt breast. The local surgeon here says my treatment will involve mastectomy and chemo. I don't have hormone test back so I don't know all the negative and positive stuff or the HER. I've decided to go to MD Anderson and have an appointment Tues andWed of next week I am 42, mommy of 2 boys and an avid Crossfitter. The not knowing all the specs is killing me. I just want surgery and I want it now. Lol. I'm afraid it's spreading and that makes me nuts! I'm hoping We'd I will have a plan.

Can anyone tell me if the theory that sugar fuels cancer cells is true? The only comfort I'm finding since the diagnosis is sugary Popsicles ... Not sure why but they are practically the only thing I'm eating.

I'm so glad I found you ladies and I hope to get through this with your help!!

Comments

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited January 2015

    Can anyone tell me if the theory that sugar fuels cancer cells is true? It'. s not.

    I'm so sorry you're now one of us. It is overwhelming but here is something to think about that may help you. You've had your cancer for years already based on the size of your tumor and the cell division time it would take to create it. So a few days or weeks is not going to do much to change things. It's probably more important now to get the appropriate tests done and meet with your surgeon and oncologist and radiation oncologist to get a treatment plan in place. That will take a couple of weeks I would think.

    I'm sorry about the anxiety--we've all been through it. I've been through it twice.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited January 2015

    Leighrh, I know how you feel. After I was diagnosed, all I could do is imagine the Cancer cells spreading. WinningSoFar is right, it doesn't happen that fast, a few weeks won't make any difference. Some younger women undergo fertility treatments to harvest eggs before Cancer treatment. If time was so critical, they wouldn't do that. I'm Sorry to welcome you to the club that you never wanted to join, but you'll find that the best people are in it. Good luck with your doctor appointments. Definitely take someone with you or take a recorder so that you don't miss anything, it is so overwhelming

  • formydaughter
    formydaughter Member Posts: 213
    edited January 2015

    leighrh, I am so sorry you've been diagnosed too. I was 40 at my diagnosis with a young daughter at home. I understand. Not yet having the specs or a set plan is really tough. The BC data is like drinking from a firehouse even when you limit it to only your own type. You will know soon. And you have no control over what the results will be. Try to breathe and consider anxiety meds - they've helped a bunch of us on here. Know that once you know what type you are, you'll be able to research lots and develop your treatment plan with your medical team,. when I was going through the mammogram callback phase, and told my mom, she wanted me to have surgery immediately, fearing that cancer was spreading. She actually called a surgeon to make me an appt., for me before we even knew it was cancer. It made me mad she assumed the worst and was interfering, but glad she cared so much. and I was just plain scared. But the ladies here are right. It took a long time to grow and taking time now to devise the best team and best plan for you is very important. It's a journey and if Popsicles help, have them

  • Blondie7
    Blondie7 Member Posts: 12
    edited January 2015

    Leighrh:

    Sorry that you have joined the club no one wants to belong to.

    The initial shock and fear with this diagnosis really knocks you off your feet. While you wait for the specifics of your diagnosis, researching this topic is overwhelming because of all the possibilities. I was like you too, thinking that every day that passed, my cancer was spreading. But as has already been mentioned, it doesn't happen that quickly. Instead try to use some positive imagery and imagine your immune system (kicka** soldiers) building a wall around your tumor.:). Take a deep breath and take it one day at a time.

    There will be a lot of information coming at you over the next few weeks. Having someone to accompany you to appts is so helpful for the support and for the extra set of ears to take in the information. Something that I found helpful to keep myself organized was to take a binder and start filling it with copies of my tests/procedures/surgeries, resources, business cards of all the different medical specialists I saw etc. This way I had all my info in one place for future reference, and I could add and update this information as I needed. Once you start to get more information from your tests etc.. you will be able to formulate a plan and this will hopefully give you more of a sense of control over what is happening.

    There are so many wonderful women on this site who have been where you are and are here to help give you support. I'm with formydaughter, eat Popsicles if it makes you feel better

  • SoccerMom20
    SoccerMom20 Member Posts: 20
    edited January 2015

    Leighrh, I know how you feel. I was diagnosed on 12/9 and I just want it out. I'm 41 with 2 kids and I think about the spreading every day. Some days will be good and others will be harder. Some days you can be strong and others you just want to cry. Do what feels right. It's time to take care of you.

    My doctor gave me very little information so I asked for my pathology report from my biopsy. I was then able to research and educate myself the best I could.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited January 2015

    Leigh

    sorry that you find yourself here-but you will get great advice and guidance.

    I was dx around the holidays 6 years ago--2 kids, full time job--- it felt like a dream-I could not believe it was happening. Lots of things were delayed due to the holidays-- and no one on my medical team was overly concerned (meanwhile I was going out of my mind). I ended up with a lumpectomy, chemo, radiation and 5 years of hormonal drugs. I am off the drugs now and doing just fine and consider myself cured.

    Some things that helped in those early, "hurry up and wait" days. Ativan (for anxiety--didn't take it much, but loved having it), Ambien (for sleep--I took a half of one every night for a while--I found I really needed my sleep to cope with the days and the information), digital voice recorder (for all dr. visits--I still use this--it was suggested by my surgeon and it has made all the difference-- I just turn it on and then we can have a discussion-- so if I go to the visit alone- no problem (I never went alone, but now I do!) Exercise (just always helps) and meditation (another thing that always helps).


    Good luck-- when you have all of your information, you will definitely feel more in control and once you start making decisions, things will move along.


  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Hi Leighrh, welcome to BC.org! We're glad you found this community for great information and support.

    Related to your concern about sugar, we need more research in order to know for sure its relation with cancer, but the article Sugar: Should You Worry About It? from our main site may help you better understand it as well as tips to reduce the amount of sugar you eat, etc.

    We hope this helps!

    The Mods

  • hersheypassion
    hersheypassion Member Posts: 8
    edited January 2015
    Hello Leigh! I understand your angst...I was just diagnosed with Stage1IDC on Nov. 21st, and had a lumpectomy a month ago. My radiation starts next week for 6 weeks. I did have clean margins and the one sentinel node removed was also clean. I am 57 years old and retired from teaching special education 1 1/2 years ago. This diagnosis took me for loop! I felt sorry for myself for the first 2 weeks and then snapped out of it! I realized it wasn't going to help, so I changed my emotional attitude to one that could assist in my healing. I will tell you what I do know.
    1) avoid sugar!!!!!! It feeds cancer!
    2) we are in a health crisis and thus we need to elevate our immune systems by increasing our anti-oxidants, let food and supplements be your medicine to assist in your treatment (not to take the place of)
    3) green tea with tumeric is my morning beverage-no coffee, it's acidic
    4) buy these 2 books: Crazy, Sexy Diet by Kris Carr -cancer survivor and Waking the Warrior Goddess by Christine Horner, M.D.-I promise, it will change your world!
    5) Do you juice or make green smoothies? A must!
    6) Only buy organic produce
    7) Eat a salad everyday-(try Dr. Bragg's organic berry dressing!)
    8) Need to keep your ph in an alkaline state-cancer thrives in an acidic state-make or buy alkaline water and look up foods that fall in this category
    9) You can beat this!
    10) Looking forward to our next chat!:)
  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited January 2015

    I understand about the Popsicles. I lost weight between the Dx and surgery. The ladies here said please try to eat, but is had no appetite. Forced myself to eat chicken breasts to get protein needed for healing. This time - waiting and trying to get a plan together is the worst part of all. I thought I'd lose my mind. It gets better. Gentle hugs!

  • Leighrh
    Leighrh Member Posts: 317
    edited January 2015

    thank you all for the supporting words!! I'm trying to be calm untill at least I have more info!! I will def keep you all posted this week!!


  • msphil
    msphil Member Posts: 1,536
    edited January 2015


    Hello  sweetie, we all have been where u are, take a deep breath and know that we are here for you, to support and to inspire, once all treatment plan is in place and started u will feel better, I know that overwhelming feelin, was diagnose while making wedding plans to my now hubby. Hang in there from a 21 yr Survivor(Hope and Positive thinkin got me thru. msphil(idc,stage2, 0/3 nodes, L mast, chemo and rads and 5 yrs on tamoxifen)

  • kris1114
    kris1114 Member Posts: 82
    edited January 2015

    Waiting really is brutal. I was diagnosed on Dec.3rd 2014 and went through a battery of tests, and felt like each time I was shoved back into that perpetual waiting room. Now, I had my mastectomy on the 30th and waiting once again on the final pathology report. I can say though, after surgery, I did not feel depressed by how I looked and although a smidge bummed, I still feel confident. I saw it as a hurdle and an acheivement. Each hurdle you leap over, the more confident you feel. Keep your sense of humor up, it is SO important and lean on your support system. Your family and friends are itching to help you. I try not to lean too much, because independence is important too, but allow yourself to "trust fall" into your supportive wall of love when you need it, every time. Body surf over your support and feel the waves of comfort wash over you.

  • Leighrh
    Leighrh Member Posts: 317
    edited January 2015


    Just a little update on me.  Got back last night from Houston.....MD Anderson.  Here is what I know so far.  It's fairly small 2cm. Stage 2a Doc said 1mm from Stage 1. It does not appear to have spread to any lymph nodes.  Still do not have the pathology of the tumor with the hormone receptors and such.  Go back Wednesday to meet with the surgeon again and hopefully she will have the slides by then.  Also meeting with Plastic Surgeon and the genetics team.  Do not know the after surgery options yet until the pathology comes in but so far on the surgery side my options are:

    1.  Lumpectomy with reconstruction and with Radiation

    2.  Mastectomy of Rt Breast/ reconstruction

    3. Mastectomy of both breast( having the genetic test to see if I have the gene)/ reconstruction

    I really have no idea which one to do.  I will discuss all options next week.

    Feeling a little better about it all.  The Docs at MD Anderson are wonderful and this is all they do, so I feel like I am in the best care. 

    Has anyone every heard of not having to do chemo with this kind of diagnosis?  I know without the hormone receptor test it's impossible to know but I can't help but hope for no chemo. I don't know why but that seems to be the most horrible thing about all of this.   I know I can handle the surgery.  I just really could do with out the chemo  :(  I should just expect the chemo so I won't be disappointed I guess.  I work full time, I have 2 active boys that play travel ball, I love to workout at the gym, I just can't see where chemo fits into all that.  LOL  Plus it's POISON!!! I just can't wrap my brain around it.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2015

    Leigh, I am stage 3, lots of stinkin cancer in my nodes. So, of course had the aggressive treatment of chemo. Some ladies, with your dx, get what is referred too as chemo lite. I would assume it is still a hurdle, but easier on the body. Less infusions, no Adriamcyin. That is called the "red devil". It is red, and makes most sick.

    I have 2 friends with your dx. One chose chemo lite, the other did Tamoxifien. Both are healthy & happy.

    My lumpectomy was easy, I did not have any reconstruction ( tumor 1.1 cm ) I am 25 lbs thinner than when I was dx. Chemo & radiation did a number on me, still cannot eat like I used too.

  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited January 2015

    Welcome Leigh!  I know you've gotten lots of great advice already, but I thought I would chime in because I understand your fears.  I too was petrified of chemo.  It sounds like your tumor is very small.  Chemo was on the table for me for a while because one of my tumors (although small) was a grade 3 after final pathology but my onco ordered the oncotype test and because it came back in the low risk category, they did not recommend chemo for me.  I would have done whatever I needed to but I was really afraid of chemo.  I know it's so hard but you just have to take it one day and one hurdle at a time.  I hope your treatment plan becomes clear very soon.

  • greenae
    greenae Member Posts: 540
    edited January 2015

    Hi All. Thought I could join in? I was just diagnosed today after a core biopsy 3 days ago. My breast surgeon appt is in 13 days. Am dreading the MRI, because I tried to climb out of the neck MRI I had last year. Crazy, right? I am so happy so many are on here full of good thoughts, knowledge and advice. I cannot seem to get this off my mind for more than 10 minutes. Don't feel like sleeping or eating. And I know better. So, I plan to get some strength from all of you, if that's ok? The lack of control over this is second only to the waiting. Several times a day since this "detour in my life" began 2 weeks ago, I feel on the edge of a panic attack. Trying to keep it together in front of family, friends and co-workers. AND I FEEL FINE! just scared.


  • angelia50
    angelia50 Member Posts: 381
    edited January 2015

    totally understand the fear. I had a valium for the MRI. They said well, how was it, did that help. I was like well, it was no picnic but I never had one without a valium, so who knows. Reminded me of bad steel drum music.

  • greenae
    greenae Member Posts: 540
    edited January 2015

    So I think I am going to ask for some help with the MRI. And hopefully I will be stronger as this journey plays out. How long are we in the MRI?


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