Implants--no mastectomy, DCIS, Lumpectomy + Rads

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MariannaLaFrance
MariannaLaFrance Member Posts: 777
edited January 2015 in Breast Reconstruction

Hello ladies,

I had very low grade DCIS, stage 0, 2.2mm (yes that is mm,not cm) ductal carcinoma.

I was treated with lumpectomy and rads for 6.5 weeks.

I am coming up on my 5 year mark, and recently had lipo/fat grafting from my abdomen to reshape the distortion on my BC breast, and had a slight scare on the other side--team found fibrocystic changes on my healthy side and we did stereotactic biopsy-- was benign fibro changes.

The fat grafting went well, and it straightened out the scar and helped achieve more symmetry in my breasts. However, I wanted to increase the fat on my upper pole, but we were not able to extract enough fat (and could not treat the biopsied side due to the bruising from the biopsy). I am hoping to get some more of my previous size back, approximately a C cup, as I am an A cup at the moment.

My question is: Have any of you had implants done after DCIS, without mastectomy?

Comments

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    Hi Marianna

    I too am wondering the same. I had a lumpectomy x2 on my right breast I am now 3 weeks into 6 weeks of rads & I'm already lopsided. Met w/ a PS he said implants are not recommended for radiated skin recommended lat-flap. I'm continuing to research implant possibilities post radiation. Please post any info you may learn.




  • Dogsneverlie
    Dogsneverlie Member Posts: 278
    edited January 2015

    Hi!

    I have been thru the gamut on this! 

    After two stereotactics, two lumpectomies and rads my BC breast is half the size of my healthy breast (I would say BC side is a distorted A cup size and healthy is a very non-full B cup size - my breasts are also a little tuberous in shape). 

    I did a lot of research on fat grafting and really wanted to go this way but insurance would not cover it.  When I had my check up with my surgeon, she asked how it was all going and I told her after several appeals it was declined again so I was lost, only 50 years old and did not want to be like this for another 30 years, did not want to fuss with mastectomy bras and fillers, etc.  She was furious about the whole thing and set me up with Lahey's reconstruction PS who specializes in cancer breast reconstruction (he is also a micro-surgeon).

    In his opinion, he did not think I would have been happy with just fat grafting because of the size and asymetry - they are way off and the radiated side is not pretty - nipple even tucked under.  He is doing a breast lift and implants (silicone, under the muscle) on February 24 and I personally cannot wait.  I feel like I wake up every morning - take my shower and am constantly reminded of my journey..........I don't think I or anyone else should forget the BC journey but I don't need to look at my poor breast like that every day!  LOL

    I have complete faith in him - he is highly recommended by my surgeon (she said he is the only one she would personally go to or refer her family/friends to), my radiologist (not from Lahey but he knows of him) and my hematology oncologist.

    I would love to be fuller and larger but he said I most likely will walk away with 100-150ccs (because of the damage done by radiation he will not go large) - should bring me back to my B cup but I think it will be fuller due to the implant and lift.

    I will keep you all posted as to how it goes.  Hope possibly others who have had this done will respond to this thread. 

    Thank you for posting!

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    Thanks for your post. My situation is pretty much identical to yours, except I was IDC & on my right.

    I also had 2 lumpies, one for the IDC & the 2nd to clean up the hematoma & necrosis the stereotatic bx caused. For me the stereotatic bx was worse than the BCS. Now that I'm 3 weeks into my rads I'm seeing shrinkage & the inkling of a nipple fold :( I'd be ok w/ a small amount of asymmetry but any nipple deformity would be too much. I'm 45 & like you don't want to be reminded of the BC all the time.

    You know, a lumpectomy is actually a partial mastectomy that should qualify for reconstruction

    Good luck.

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    I found this PS group looks very promising.

    Miami Breast Center

    If you've had a lumpectomy, a wedge resection or a quadrantectomy, we can reconstruct your breast with no incisions and no scars. We understand that you've been through an emotional roller coaster, so we are here to do what we can to bring balance, harmony and comfort into your life. In most cases, lumpectomy patients will need to receive radiation as prescribed by her oncologist. Using traditional methods, a radiated breast is difficult to reconstruct.

    However, our method of fat grafting, together with the use of our external expander BRAVA, has proven to be uniquely successful. The results are as close to perfect as possible. We make our reconstruction decisions based on the individual patient needs, but it is our goal to help you reclaim what you lost to cancer….your natural looking and feeling breast.


    Breast Reconstruction Insurance Coverage

    By law, insurance companies are required to cover the costs of breast reconstruction at any time after mastectomy. This includes any surgery required for symmetry of the opposite breast as well. We are very in experienced in working with all the major insurance companies. We will work closely with you in order to keep your out of pocket expenses to a minimum. Please contact our office for assistance. Please include your health insurance information.


  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2015

    jedimom - to my knowledge BRAVA is not covered by insurance, it is not currently FDA approved and is considered "experimental" by most insurance companies.  

    http://womenshealth.about.com/cs/breastenlargement/a/bravanonsurenla.htm

    https://community.breastcancer.org/forum/44/topic/805462

    Lumpectomy patients do not have federal regulation approval for mandatory insurance covered reconstruction under the WHCRA.  Some states have enacted their own legislation for lumpectomy but it is not universal. 


     

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    Thanks SpecialK -

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    hi ladies...i too had a lumpectomy and rads on my right side. The radiation caused the nipple to shrink and retract. The lump. left my already not fiull upper pole dented and even more flattened. I am wanting a lift and a small implant to round things back out. The first surgeon i saw didnt recommend the implant on the rads side due to tissue damage in thereand whether or not the implant would stay or be rejected. He said he could do it but there would be no guarantee on how well it would possibly heal. Its almost 4 yr post op from my lumpectomy and i still want to give this a try. So im curious to hear from anyone who has had a lift/implant done on a radiated breast...

    i knowof a woman who had ALL her radiated tissues removed down to her ribs and they were able to rebuild her a proper breast. If that can be done then shouldnt putting in a small (half cup or one full cupsize implant) be do-able?

    My only real concern is that i have a small papilloma on the left good breast and I am wondering about if i could get an implant on that side at all ??? they said most of it was removed during the biopsy already....my 6 months 3D mammgram is coming up on February 10th...so if that is clear then i will consider the lift/implants...

  • Dogsneverlie
    Dogsneverlie Member Posts: 278
    edited January 2015

    Hi Bluewillowsky:  My surgeon specializes in breast reconstruction after cancer/radiation.  I THINK there may be a difference in going to a regular PS and one that specializes in reconstruction but I could be wrong there.  I know that he plans to dissect a lot of muscle/tissue, my implants will be under the muscle and I need a lift as well.  He has never once expressed concern using a silicone implant in the radiated breast and thinks it will be fine but this is his expertise. 

    I know what you mean about the deformity.....my nipple is turned under and my actual breast is probably now more than half the size of my healthy breast.  I don't feel very good about myself right now, very sad.

    I go in Feb 24 and will make sure to post so everyone who wants to can follow and see how it goes.

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    dogsneverlie...thanks for the info...i will keep watch here to see how it goes for you...best of luck !

  • jedimom
    jedimom Member Posts: 34
    edited January 2015


    Bluewillowskys & Dogsneverlie,

    Thanks for sharing your stories. I will be finishing my rads next Tues. (yippee!). Feeling pretty tired but overall I'm good. Definite shrinkage on rad breast, I'll have to wait and see if there will be any other changes, someone told me some that the breast can continue to change over time.

    Good luck to both of you and please post any new info you may have.





  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    yes my shrinkage/hardening happened over time too. That area is still painful and feels bruised most of the time. its like a C shape around the outer right side of my right breast. which is strange because the area of my dcis was on the opposite side of that C in the upper left side of the right breast near the 2 o clock position. SO not sure why the right side got so much rads :/ I sure wish they had goven me the full path report and the option to due an immediate recon rather then leave me with this hard tissue that may complicate recon now.

  • Dogsneverlie
    Dogsneverlie Member Posts: 278
    edited January 2015

    Sometimes I think mine is still shrinking too!  I'm like "really, how much smaller can you get girl"!!!!!!!!

    If I lift both arms above my head, the rad side pulls big time...........I will be honest with you girls, inside I am afraid the implant won't work.........like it will be rejected or something but I truly feel my surgeon would have said as much.....just me being afraid....

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    Hi Dogsneverlie,

    I believe with rad tissue the risk of complications is 48%. Talk in depth w/ your PS about the possibilities & have a plan. Take good care of yourself, work extra hard at eating right & exercising prior to your surgery. And most importantly stay positive, visualize the outcome you desire.


    Mark 11:23

    Whosoever shall say unto this mountain "Be removed and cast unto the sea", and shall not doubt in his heart but shall believe, he shall have whatever he saith.


  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    Wow 48%!!!!! Thats seems way higher then I may want to risk. I know some have rejectionsor infections but have not heard of anyone left without a reconstructed breast at all. Where did that statistic come from ?

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    It does seem high, the PS I saw told me the complication risks were about 50%. He said he preferred the flap surgeries post rads.

    Here's a link to an article on The American Society of Plastic Surgeons (ASPS) which references a study done on both radiated and non-radiated patients.

    http://www.plasticsurgery.org/news/past-press-rele...

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    in my case i had lumpectomy, then rads and now would like the mastectomy and implant ....if my radiated tissue is removed would then my implant have less complication then that 50 % do you think? My skin didnt have much damage on the exterior from the rads other than a nice tan...lol Its been 4 years since then and the only damage i notice is the hardened C shape of tissue around my breast from the rads and my nipple/areola have thickened some. I want the mastectomy/implant because after the lump/rads I was left pretty deflated and sagging and the hard tissue feels painful. Im still angry that i wasnt told the effects rads would leave on me when they said i needed it and that it may compromise my future ability for recon. I did physical therapy for the muscle tightness after my treatment asmy range of motion was affected too.

  • jedimom
    jedimom Member Posts: 34
    edited January 2015

    bluewillowskys,

    I wish I had been made aware of the effects of radiation too, I might have done things differently. It sounds like you did really well w/ the rads. I'm not sure about your specific risk factor being lower, it may or may not be. I think even if the the surface is in good shape there is vessel damage below the surface that causes healing to be slow. Have you considered one of the flap procedures? It sounds like the flaps have a good success rate although they are more complicated & expensive.

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2015

    the flaps surgery really scare me...i know of several people who had them and they failed and they had massive infections, loss of tissues/skin, etc.....one gal has a big lawsuit pending against her surgeons...she has to have a huge amount of surgery to repair the damage they caused to her. I thought about the DIEP but my tummy skin is covered with stretch marks and the length of the surgery could cause prob with my heart condition...i would rather stick to the implant route because its been done for far longer.

  • Dogsneverlie
    Dogsneverlie Member Posts: 278
    edited January 2015

    I agree, I wish I had been more aware of what the rads did.....I cannot say 100% that I would have gone that way - I probably would have because I trust my team of doctors but I just think the ramifications were very vague.  They use the reasoning "everybody reacts differently" which to some extent is true but they have a good idea that our breast will shrink and then I was told about the arthritis feel from the AI but NO mention of the dryness.

    I will make sure to post as much info as I can before and after the procedure. 

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