DIEP 2014

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  • mary625
    mary625 Member Posts: 1,056
    edited January 2015

    What's weird about my situation is that my stomach does not swell visually as in looking pregnant but if I don't wear Spanx I feel like the area is contracting especially after activity. When I call the care coordinator, she just tells me that I need to be wearing compression--double Spanx or the surgical girdle. I'm already 3 months post surgery.

  • jmb5
    jmb5 Member Posts: 532
    edited January 2015

    Teacher, I have just started exercising again, and it's been almost a year since my stage 1. I really babied my body for a long time and didn't want to do anything physical. I'm starting off slow and not doing any hard core exercised. Have you done push-ups? I'm terrified to do push-ups. Lol!

    Mary, my tummy felt messed up for months. I had swelling, don't remember it contracting though. It was discouraging, but I feel like it's back to normal now.

  • Teacher64
    Teacher64 Member Posts: 840
    edited January 2015

    jmb5 - at first I did modified push ups using the bathroom counter, then the coffee table or a chair. Sit ups were modified, too. I was at a 45 degree angle until I could get all the way flat. It took a while since my trainer is so conservative.

  • caligirl3
    caligirl3 Member Posts: 86
    edited January 2015

    Thank you all so much for your replies and well wishes.

    LAstar: ((hugs)) right back. I wish you the best in your upcoming surgery. I hope you have a healthy easy recovery. Yes I had BMX with immediate DEIP. I'm happy with the results so far.

    Sassy01: I did start taking the stool softeners even before surgery, but apparently did not work for me. I've been working on standing straighter and that has helped with the back pain. I'm glad to hear you are doing well post stage 2. Thank you for your prayers.

    Saltyjack: Its so good to hear you are doing well. I see the MO on Friday. I'm nervous but ready to tackle whatever else is thrown my way. Wishing you continued speedy healing.

    mary625: Thank you for your reply. I see you had your surgery in September. I hope you are doing well. I have not been without the binder except to shower. I worry about the swelling I have been reading about.

    Julieho: Thank you for your reply. We had surgery on the same day, interesting how each person heals so differently. I wish you the best and continuing healthy healing. Sending you positive energy as well. Hopefully this will all be a distant memory soon. " slow and steady" is my new motto. LOL. I will ask the PS if I can start stretching. I've been doing some arm exercises but nothing for core.

    Teacher64: It's so good to read your positive outcome. It gives me hope. Yes, I was devastated by the DX. I went into this surgery as a prophylactic measure, to get the news after that I actually have cancer hit me hard. Wishing you the best in your continuing recovery.

    Have you ladies experienced lack of concentration after the surgery as well. I usually love to read but have not been interested in reading since the surgery.

    Jmb5, LiLi-RI and ALL you lovely ladies that come back and are willing to share your experiences and lend support. THANK YOU!

    Good luck to those who have upcoming surgeries. You will do great. It is totally worth it.


  • Teacher64
    Teacher64 Member Posts: 840
    edited January 2015

    caligirl - concentration will return. I called mine was anesthesia fog. It does go away

  • Geo
    Geo Member Posts: 21
    edited January 2015

    @caligirl, I have problems to fall sleep and eating...a LOT.



  • jmb5
    jmb5 Member Posts: 532
    edited January 2015

    caligirl, that is crazy! So sorry about the diagnosis, but wow! It's so good that you had the surgery when you did. Hope your score comes back and you're told no more treatment. Hugs!

  • rengeko
    rengeko Member Posts: 114
    edited January 2015

    LADY PARTS?? do i even want to know?

  • LAstar
    LAstar Member Posts: 1,574
    edited January 2015

    The words "Ken doll" will never be the same.

  • Geo
    Geo Member Posts: 21
    edited January 2015

    hmmm.... I don't understand, lady parts lift? What?

    I'm still swollen down there and feels really hard and tight just a few inches under them scar and I'm just 1 month and half after my diep. I can't imagine hoe much longer I need to wait to fully recover from my surgery. :/

  • Janet_M
    Janet_M Member Posts: 1,068
    edited January 2015

    Teacher - I laughed out loud when I read that your trainer is 'too conservative'. I have this cartoon vision of you doing a flurry of bathroom sink pushups, while the trainer's head is turned. I don't know if it was supposed to be funny or not - but I just love your attitude.

    Personally, my concentration took a very long time to return. I used to be a voracious reader, but now I only get through a few pages before I fall asleep, or find something to eat, dust, or play with. I don't know if this is entirely due to my surgeries. It can also be age, or menopause, or tamoxifen, or just a different mind set - but I'm very easily distracted. It used to really concern me, but I've reached a stage where I'm less quick to compare to my 'old self'. I still miss the old me, and even though the new one is more high maintenance (moody, creaky), I'm learning to love her too.

    Here's an idea for those with stubborn tortoise backs. Post Diep I couldn't stand up straight for about six weeks, but I could bend forward. So I got release by doing a 'child's pose'. That is - bum on heels, and the body collapsed over the knees. It was the only thing that eased my lower back.

  • wintersocks
    wintersocks Member Posts: 922
    edited January 2015

    I went to see my consultant for my 3 week post op check and was met with his registrar who advised me he had been called to urgent surgery. So I sat down and she says to me 'I hear you are interested in having the Diep' . I was temporarily stunned as I said 'I've had it'. She says 'you have?', so she looks in my notes and nothing is recorded....

    Moving on, she examines me and I tell her about these lumps about 11 on the recon. She has a feel (you really can't miss them) and she says it's likely a haematoma or fat necrosis, and that it will disperse in time. However she added she wants an ultrasound 'just to make sure nothing worrying is going on'. I went up to the department as told, but was informed that I couldn't be seen today. They will ring me.

    Not my best day and this is just 3 weeks post.

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited January 2015

    Just one recommendation for constipation after surgery, Swiss Kriss. It will work within one to two days. I have had at 15 surgeries since 2008. I have used it every time together with stool softeners. I purchased it at Whole Foods, but I am sure other natural food stores. It is the best potion after surgery. Lisa

  • jmb5
    jmb5 Member Posts: 532
    edited January 2015

    Oh, wintersocks, that's awful. That would be so irritating. Really? She didn't know you had surgery?  I had a follow up with my oncologist's PA a few months after surgery. She wanted to do a breast exam and I told her I didn't need one. She insisted, so I thought I'd humor her and let her do it. I told her my breasts were still sore and briefly explained the procedure I had done. My breasts had some hard areas from scar tissue, and she asked, "Have your breasts always been lumpy like this?" I said, "They aren't real breasts." She looked somewhat stunned. I again explained what I had done, and she still didn't seem to get it. I left there thinking that she was an idiot. Lol!

  • debiann
    debiann Member Posts: 1,200
    edited January 2015

    Wintersocks, I have some fat necrosis and 2 small bb size lumps in the skin. The fat necrosis doesn't concern me but the lumps in the skin do, especially the one that is not on a scar line.  My BS says they are undissolved stitches and nothing to worry about, but ordered an ultrasound to give me peace of mind. She explained that there were internal stitches that attached the flap to the skin. They are supposed to dissolve, but 2 of mine didn't and are "stuck" in the skin. They may eventually work their way out. Her explanation made me feel better, but still getting the ultrasound next Tuesday.

  • Teacher64
    Teacher64 Member Posts: 840
    edited January 2015

    "Lady parts" was mons area, which I've been told frequently gets lopsided and/or puffy. My PS did a little lifting of the area and it was no longer lopsided.surprised about remembering the "Ken doll" reference.

    Janet M - I do squats at the sink while I brush my teeth, so you weren't too far off. And my trainer actually suggested the sink push ups

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2015

    debian...I had a few spots like that on my hips....bumps that spit a stitch....other areas just oozed goo on the crop circles. All eventually cleared up...though lefty is back at it since she was cut again in stage 2

  • jmb5
    jmb5 Member Posts: 532
    edited January 2015

    I have a few bb sized spots that I thought might be stitches, but they're still there almost a year later. Two near my belly button and one about two inches left of my belly button. They feel weird, but aren't painful. Could it still be stitches that didn't dissolve?

  • Sassy01
    Sassy01 Member Posts: 61
    edited January 2015

    I had a couple of knots in my abdomen as well. They were just below the incision. My surgeon told me it was necrosis where he tied off the stitch and some fat got choked off in the knot. He removed both of them at Stage 2.

  • Rubiayat
    Rubiayat Member Posts: 144
    edited January 2015

    Wintersocks - I had several lumps in my reconstructed breast and was also told they were probably fat necrosis or seromas. They did not bruise, but they did hurt and I was concerned. PS and BS said we should wait and see. Three months after my MX I was due for my first MRI screening and the radiologist rated one of the areas as highly suspicious for malignancy. Of course I freaked out. My other doctors were sure it was nothing but went ahead with a biopsy to reassure me and sure enough it was just a seroma. The radiologist was from a different clinic than I normally go to and was not very familiar with my history. The radiologist at my clinic has a lot of experience he interpreted my MRI completely different and wasn't concerned about the lumps. Part of me wishes I hadn't had the biopsy - it was painful and my body had been through enough trauma. But I was really scared and wanted reassurance. The lesson I learned was to trust the doctors that know me.

    Now, 7 months post op the lumps are all gone and I am going in for stage 2 next Friday. They have been gone for about two months now, so give your body time.

    Saltyjack - my PS wouldn't do Stage 2 until my seromas were gone. It does take time to heal and you may not be ready for Stage 2 before your trip in May.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2015

    Hi all.  It's been a while since I have stopped in.  I hope everybody had a wonderful holiday and New Year.  I had my stage 2b the day after xmas, which included a revision of my abdominal scar (if you remember mine opened and I was packing it for weeks), lipo of my inner thighs, lower abdomen and ken doll, under arms where the excess fat from the mastectomy was left, and then had that all injected into the lower portion for my foobs for more fullness.  He put 150 cc's of fat into each breast.  This was by far the most intense pain I have had during this whole process, but not very long lived, thank goodness.  He told my husband I was going to feel like I got hit by a bus, and he was not kidding.  I was surprised how little bruising I had.  Now I am just waiting to see how much of the fat grafting sticks around.  Anybody who has any experience with this I would love to hear your results. If I have to have it done again I don't know where he is going to go find fat.  He took it from everywhere he could.  I would say the only place I see a nice difference is the ken doll,  It's gone...yah!!!! I am hoping to take a nice long hiatus from surgery.  I don't even want to mess with nipple tattoos for a while.  I want a complete break, and spend some quality time getting my stamina back. I want to open my eye's in the morning and be happy to get out of bed. 

     

  • wintersocks
    wintersocks Member Posts: 922
    edited January 2015

    Rubyiat,

    • Wow, that sounds really horrible to have to go through biopsies, I am pleased to hear that the lumps are now gone. It's disappointing to have them in the first place as I think most don't following recon. Mine are still there, but the bruising is less pronounced. I am having an ultrasound tomorrow, Monday, to see what they are.They are on the upper part of the recon only. I am also having my yearly mammo as apparently it is now due. So, I think it will be quite a stressful day, so I'd better start gearing up for it I guess,

    goldie4040, my that is a lot of procedures, you have had done there! no wonder you want a break for a while. I don't think here in the UK we get to have all these revisions. I now know what is meant by the 'Ken Doll effect'!

  • Sassy01
    Sassy01 Member Posts: 61
    edited January 2015

    Goldie4040, I just had Stage 2 on Dec 3. Lots and lots of lipo and fat grafting too. My surgeon pumped 200 cc of fat into each breast and got rid of the side boobs giving me more projection / cleavage. I'm quite pleased with them. I'm hoping they don't shrink after this stage. If they do I'm really okay with that as long as they are the same size! I appear to be slightly swollen still and have started wearing the full compression girdle at night again. It feels really good and I wake up not so puffy. I'm told this can stick around for awhile.






  • Teacher64
    Teacher64 Member Posts: 840
    edited January 2015

    All the fat grafting has "stuck" to the breasts. My PS put some fat over the tangle of leads by my pacemaker and it has begun to shift south. There is still enough so I don't see the leads but can now feel them. I just did muffin top and was bruised beyond belief. Lipo isn't for sissies

  • jmb5
    jmb5 Member Posts: 532
    edited January 2015

    I wouldn't say all my fat grafting has stuck., since they aren't as full as they were right after surgery, but they did fill out in some spots where it was needed.

  • wintersocks
    wintersocks Member Posts: 922
    edited January 2015

    Been to the hospital today to get these lumps checked out on my recon. I have a mixture of a small seroma, lipomas and fat necrosis. She did show me on the ultrasound, but to be honest I didn't know what I was looking at! All will resolve by itself apparently. She told me at one point they used to aspirate but they don't do that any more. So I am pleased. I also had a mammo on the left and that was reported on straight away and thankfully all is ok there.

    I have also been to the GP and have a dx of tonsillitis, I feel very unwell I have no appetite and have an rx of penicillin. This has been going on since the 2nd Jan. I wonder if I picked it up in the hospital at the time of recon? The pain I am having is far far worse than anything the Diep has thrown at me! honestly! I cannot even drink water without intense pain. I wish as we all do, I guess, for a period of good health to be on the horizon. It seems a long time since i have had that.

  • Cristinabelle
    Cristinabelle Member Posts: 15
    edited January 2015

    Hi ladies. I have been reading all these posts for the last six months. And I am extremely grateful for all the advice and experiences you've shared with each of us. I can't tell you how much it has helped me make my decisions and cope with this whole process.

    I am two weeks out from DIEP stage one and everything seems normal but I have a question that I couldn't find answered on this forum. I have this intense pain which seems to be coming from my sternum or ribs and it even hurts to take a breath. Does that sound like something normal? This is new as of yesterday, I have called my doctor's office twice and emailed the same question but haven't heard back. I'm starting to worry a bit because for two weeks I hadn't had this pain and now it's constant.

    A little about me: I'm from Rhode Island, 52 years old and had my procedure at Beth Israel Deaconess Medical Center in Boston. My doctor is great and the team treated me very well while in the hospital.

    I had breast cancer in 2002 with a lumpectomy, chemo and radiation, then 10 years later 2012 I had DCIS on my right side so I opted for a double mastectomy. I had tissue expanders and implants put in but it's been a miserable two years with that so we decided I was a good candidate for the DIEP procedure. So far so good with the recovery except for this horrible pain in my ribs and chest area.

    Any input from you ladies would be greatly appreciated. Thank you, Christine

  • wintersocks
    wintersocks Member Posts: 922
    edited January 2015

    christinabel,

    Hi there, I am four weeks post diep. I have had nothing like the pain that you are describing, I have been very stiff around the underarm/shoulder area only. Do you think it might be a muscular thing? I think you do right to keep on at the team, It sounds like they need at least to take a look at you.

  • LAstar
    LAstar Member Posts: 1,574
    edited January 2015

    Christinabelle, I had that intense sternum pain with my SGAP but it was more noticeable the first two weeks then abated. It seems that the surgeons sometimes need to remove a little cartilage from the sternum to access the blood vessels there. It was the first pain I noticed when I woke up and made it hard to take a breath or cough, so it seems unlikely that this would be the cause so far out (unless you were taking one heckuva pain killer and stopped recently). Have you noticed any changes to your flap (color, temperature)? I hope you hear back from your doctor soon.

  • Cristinabelle
    Cristinabelle Member Posts: 15
    edited January 2015

    Well I did hear back from my doc about this pain in my sternum area. He said the same thing you just mentioned, LAstar, that I had just stopped my Oxycodone and are feeling the affects of the surgery where a bit of cartilage was removed in that area. He also mentioned that the new flap tissue was sutured to cartilage and can be painful up to three weeks out. So it's back on Oxy until the pain is manageable.

    In regards to the flaps themselves, the coloring and softness is good and incisions are healing nicely. I never imagined how much I would appreciate the warmth of living flesh. It makes me tear up with gratitude that I am fortunate to be able to get this done and remove those horrible, cold implant/rocks that I've had to endure for two years.

    Thank you again for your responses.

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