Fibroadenoma removal help??

Options
Em_ox
Em_ox Member Posts: 5
edited December 2015 in Benign Breast Conditions

Hi all. I'm Emily and I am 18 years old. About two months ago I discovered a lump in my breast whilst showering, which naturally concerned me, so I went to the doctors the next day. Since then I have had follow up appointments with my regular doctor, and I also was referred to see a specialist doctor at a breast clinic, where I had an ultrasound and they told me that the lump was a fibroadenoma. They gave me the option of having surgery, but I'm unsure of what to do. They told me that I could leave it, but then there is the chance of it getting bigger, and they also told me that if I get it removed it could grow back, and there is also the chance that I could have an inverted nipple? The lump is around 3-4cm, and it's just under my right nipple. So and ladies who have been in my situation, I would love to hear about your experiences, to help me decide on what I want to do, because at the moment there seems to be pros and cons both ways! What would you recommend? Would the inverted nipple be permanent? How is it to recover? The thought of surgery makes me kind of nervous, as the closest thing I've ever had to surgery was having a tooth pulled out lol. Please help, thanks!

Comments

  • flaviarose
    flaviarose Member Posts: 442
    edited January 2015

    Hello Emily,

    I had my first fibroadenoma at age 23. I was told it needed to be biopsied (taken out) - and so I had it taken out. Left breast. Because I was told I was high risk for cancer, I had annual mammograms (exposing me to a lot of radiation over the years.) I had another fibroadenoma removed also from the left breast at age 46. I did have an inverted nipple on that side, but did breastfeed 2 children, so it wasn't a big deal. Fast forward to age 59, I was found to have breast cancer on the right. The fibroadenoma surgeries were very easy - very little pain, quick recovery. The lumpectomy was a bigger deal, also because they took out some nodes. I can't tell you what to do. I personally would have them out so that they could do a good diagnostic biopsy on it. Have you had a needle biopsy? You just want to make sure it is only a fibroadenoma. Good luck whatever you decide.

  • Em_ox
    Em_ox Member Posts: 5
    edited January 2015

    Thank you for taking the time to respond. I haven't had a needle biopsy, they said an ultrasound was just as affective, although I thought it was the other way round. I have to go back to the breast clinic in a few weeks, so I'll be able to ask more questions then, I just want to begin to get an idea of what would be best to do in the meantime though. Thanks

  • doxie
    doxie Member Posts: 1,455
    edited January 2015

    I found a fibroadenoma when I was 17. I didn't have it removed until the breast surgeon took it with my tumor at age 55. It caused no problems in those nearly 40 years, but was not near the nipple. It was only about 2 cm. I didn't have early mammograms because of it.

    The problem with surgery is that scar tissue may obscure other tissue during mammograms. You should do what you feel comfortable doing. If you don't know, there is time to make a decision.

  • snoop79
    snoop79 Member Posts: 9
    edited January 2015

    Hi Emily. In Sept I was also diagnosed with a fibroidenoma tumor and was told I could leave it in. After a few weeks I made the decision to have it removed because it just didn't belong there. When I had it removed the recovery from the surgery was not bad. Some discomfort for a couple days but not a lot of pain. I did receive a call from the breast surgeon a few days after who told me they had found dcis inside the fibroidenoma tumor. I have been told by 3 different surgeons that it is extremely rare for that to happen but I am thankful that I went with my gut instinct and had it removed. I hope this helps

  • didette2006
    didette2006 Member Posts: 18
    edited January 2015

    hi

    You're a little bit young to start doing chirirugical interventions. If you have fibroadenoma after 35 you may have to have it out. You may follow with ultrasound and see if it grows than you ll have to remove it any way.

    I am having a lot of them and I am pregnant and surveillance is a little bit stressful but if doctor suggests removal I think I will do it because they are just poping around; any time I touch my breat i feel a new one

  • Em_ox
    Em_ox Member Posts: 5
    edited January 2015

    Thank you all for responding. Your answers have helped me get a clearer view on things. When I go back to the breast clinic I have a few questions I would like to ask, so hopefully I'll soon be able to make a decision on what would be best to do

  • leaf
    leaf Member Posts: 8,188
    edited January 2015

    I have also heard that some doctors freeze fibroadenomas (cryoablation). http://www.ncbi.nlm.nih.gov/pubmed/16174156 I don't know the current opinion about this, or whether or not it would be appropriate for you.

  • DocBabs
    DocBabs Member Posts: 775
    edited January 2015

    I had my first fibroadenoma at 18, some 52 years ago. Back then they did no ultrasounds or mammos just removal. Never labeled high risk.At age 24 I found another lump but this time it right between my breasts . Also removed and diagnosed as fibroadenoma. If my daughter were to come to me and relate the scenario that you give I would urge her to have it removed, if only to have a definitive diagnosis.The surgery is generally day surgery and recovery is generally quick. Little pain, a couple of stitches.They can grow and become uncomfortable.


    Barbara

  • Em_ox
    Em_ox Member Posts: 5
    edited January 2015

    Thankyou everyone for your answers. I have a few questions to ask the specialist when I return to the clinic, but I'm leaning towards having it removed.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Just remember to WRITE all your questions out as it is so easy to forget some of then once in the meeting and so frustrating to realise you forgot one later. It also makes it easier if you have someone else writing down answers or if Doctor agrees, to record the meeting on your phone. There are so many things going through your mind in appointments that it is very easy to forget a term or comment.

    All the best

    The Mods

  • Em_ox
    Em_ox Member Posts: 5
    edited January 2015

    Thanks everyone. I'm definitely going to have it removed because it's causing me a lot of pain. The past week or so it's been hurting every now and again, but the past few days I've been in agony. Has anyone else experienced this? Is this normal? I read somewhere that a fibroadenoma isn't supposed to cause pain like this, so I'm beginning to get slightly worried?

  • Lizzy67
    Lizzy67 Member Posts: 1
    edited January 2015

    Hi Em,

    I had a fibroadenoma removed on Tuesday, and so far so good. I'm 47 so got the "at your age" reason for removal, as well as it being 4.3 cm. It was in the upper outer quadrant of my left breast. I was really nervous about the surgery, but so far everything has been fine. The worst problem has been that the wound is quite itchy since I took the dressings off this morning (as instructed - it seemed very soon to me, but I guess it gives everything a chance to breathe.) There was a lot of pain immediately after surgery while I was in the recovery room, but I was given morphine to sort that out, and I haven't taken anything stronger than over the counter pain killers since. I was surprised not to need pain killers at all most of the time - I just get an occasional twinge. I've slept in a really good sports bra which has helped, since the pain seems to be there more at night than in the day - I probably roll over in my sleep or move about oddly or something that wakes me up with a bit of pain.

    The surgeon said that because the fibroadenoma was compressing other tissue, it would probably just all spring back into shape, and that seems to have happened. The cut isn't too obtrusive - she kept it inside the bra line so it won't show in a swimming costume or bra - and I guess the scar will fade with time.

    I see the surgeon again in a couple of weeks to get the lab report, which I'm assuming will be fine. I'm so glad to be rid of it - it didn't hurt much, but I was always aware of it and not knowing for sure what it was stressed me out. I wish I'd known how simple the surgery is. Of course, there's still time for complications and infections, but I don't see why that would happen as it's a neat little wound and practically pain free!

    All the very best with your op, if that's what you go ahead with. It's really not so bad!


    Liz

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Thanks, Lizzy, for sharing your experience! It is so helpful to others!
    Warmly,

    The Mods

  • gapeach79
    gapeach79 Member Posts: 21
    edited January 2015


    Em,

    I had a fibroadenoma 10 years ago, at age 25.  When I first noticed it, it was about the size of a pea.  Within 4 months, it had grown to the size of a pistachio still in its shell.  Mine was located on the underside of my left breast and was very close to the skin.  I made the decision to have it removed.  The procedure didn't take long and wasn't too painful.  The adenoma was down deeper than the doctor thought, so I did feel some discomfort as he was cutting and tugging, but he gave me another numbing shot and it quickly went away.

    Recovery was fast, as I went back to work the next day and had no problems thereafter.  Although it was a benign adenoma, the doctor did tell me that because of how fast it was growing, he felt removing it was the best course of action.  Though not typical, adenomas can sometimes lead to cancer, so if yours is bothering you, removing is probably a good idea, as it will give you peace of mind that it's not in your body trying to cause more problems.  Of course, the decision is ultimately yours.  You know your body better than anyone else, and you know what you're comfortable with.  I wish you the best of luck and hope everything goes well for you.

  • Alexandra23
    Alexandra23 Member Posts: 3
    edited December 2015

    Hi Em,

    Any update on this? If you did get it removed, could I ask how bad the scarring was?

    I am considering getting a fibroadenoma removed, but am concerned about the scar that might result. Like yours, my fibroadenoma is near the nipple, so the scar would be along the side of the areola.

    Thanks!

Categories