Winter rads 2014-2015

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Welcome! Attitude is everything, and you are on it! Positive and moving on, I hope to move on soon also. I see the RO on 1/9, the sooner in, the sooner out! Lots of great info here, and very helpful. Good Luck!

  • Gongshow16
    Gongshow16 Member Posts: 26
    edited January 2015

    Well, tomorrow is #30/30 for me! Then it's on to Tamoxifen ... Happy to be done this part but feeling very anxious about the future...getting ready to head back to work. I'm excited to get back to my classroom but scared to death of having a recurrence ... Every ache or pain has me thinking cancer!! I know I have to learn to live with it but it's not going to be easy. I'm finding it hard to make plans for the future- so used to making everything fit around surgery/chemo/ rad schedule ...

    Anybody have advice for me?? Congrats to those finished and finishing up soon and to those starting- good luck!


  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi Gongshow16, Celebrate your victory! I am very happy for you, this is not a easy path to follow, and you did it. Awesome!! I hope to follow you soon and bring everyone here with me. My advice, enjoy Life!

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited January 2015

    Saltygirl, bellegirl, and lescover, welcome to our Winter Warrior group. There is a lot of support here from women who are walking in shoes that are a lot like yours.  It has truly amazed me how much it has helped me. 

  • Birdgirl11
    Birdgirl11 Member Posts: 51
    edited January 2015

    Gongshow - I'm right there with you. Today is my last day! I'm very much looking forward to it, but getting back to normal life will feel weird. And I am dreading the tamoxifen, too. It's just another "who knows what to expect" kind of thing. Hope everything goes well as you return to the classroom. Hopefully the busyness of each day will keep your mind off things and you will get to just feel normal and healthy

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    Welcome lescover AND Good journey.

    Carynbrit, you are keeping your sense of humor so your mental health seems okay. We all have discouraging moments for sure. I have hesitated to go to the pool because of the chlorine. The Vaseline is a good idea.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    Good going Gongshow. My center has a 6 week survivors group. Do you have anything like that which is a transition program? Checked on Livestrong which is a Y program to recover fitness and sanity.

    I figure if I don't have a mammogram for so many months, I will at least be able to plan something fun in that time period.

  • Bippy625
    Bippy625 Member Posts: 890
    edited January 2015

    hi everyone! Off to my first rad appt shortly. Already met with rad doc berofre surgery, so i guess it will be a prep meeting today, scans, tats, etc.

    Knitting, hi! I had bmx on 12/17 and just starting rads today. Was supposed to start 12/29 but was too sore....maybe if you do a lump, You could begin rads sooner, i know you may need drains and staples to be out first.......Hugs for chemo, it sucks. You will get thru it!

    Goin to drug store after appt, will get pure aloe and whatever else doc says is okay. Maybe some wine too, more importantly :)

    Hi my chemo peeps from august!!!!

  • Lulubelle1
    Lulubelle1 Member Posts: 9
    edited January 2015

    Hi Everyone,


    I had my Radiation treatment planning session today. Four tattoos and lots of green sharpie marks all over my boob. I start my treatment sessions on Thursday the 8th. 19 days of treatments. 15 days of whole breast radiation and then 4 days of targeted radiation to the area where they removed the mass. After the planning session the nurse game me a thermometer chart to rank my level of stress for the social worker. I laughed when she handed it to me, I guess that is better than crying.

  • Carynbrit
    Carynbrit Member Posts: 51
    edited January 2015

    Lulubelle.... sharpie marks are great arent they? The rad techs are constantly drawing on me and re marking.. (im not washing them off, they just wear off)..but it's okay. Good luck for Thursday!

    Ugh on the chart... you need a red sharpie to fill that one in LOL.


  • Lulubelle1
    Lulubelle1 Member Posts: 9
    edited January 2015

    Carynbrit, good one. I wish I would of thought to ask for a red sharpie for the thermometer chart! I think I am still like a deer in the headlights with all of this stuff.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015
    • Saw my chemo doc today before the infusion and it seems they want me to get the axillary lymph node surgery which will delay rads for at least 6 weeks. I am feeling a bit anxious about this because of the drains and risk of lymphedema. Chemo doc is going to speak to the surgeon so I am praying a clear answer. Thanks. Love, Jean
  • Birdgirl11
    Birdgirl11 Member Posts: 51
    edited January 2015

    Fiinally finished! What a huge relief - I can't wait until all of you get to the finish line with me. Celebrated with the family and a special dinner. Doc said to be aware that symptoms can continue to get worse for the first week, but then will get better from there. So I'm not completely done with the sticky clothes yet. But soon......

    Encouragment from the finish line (imagine me yelling back to you 'keep going! you can do it! you got this!').


  • perfectlyimperfect39
    perfectlyimperfect39 Member Posts: 25
    edited January 2015

    woo hoo done 👍 Hi to all the new warriors joining. I literally cried in the shower this morning thanking God this was my last treatment. I don't know how much more I could take. My skin has not liked radiation. I am burnt to a crisp. So much that it hurts to move my right side. I wonder if having a tissue expander makes it worse since the skin is so thin. As I laid on the table my last time the songs on the stereo were I'm so excited, celebration time, and walking on sunshine. I think they have these special songs set up but I didn't ask because I wanted to believe it was a special omen. Lol They all signed my certificate of completion with some special words of congrats. For those of you just starting I just want to say You got this!!!! 😀👍👊🎉🎊🎈

  • quiggy
    quiggy Member Posts: 315
    edited January 2015

    Birdgirl11 and Perfectlyimperfect39;

    Congrats to you sisters!  Truly happy you're done with the worst of this.  Your messages were wonderful!  Made me cry but it's ok, these are tears of hope.  I can totally imagine you both at the finish line cheering us on!

    I love that they played special music and made the last treatment memorable.

    Giant hugs to you both!  Go get your life back.  I'll join the club in 8 weeks!

    (((💓)))


  • Pita119
    Pita119 Member Posts: 85
    edited January 2015

    Birdgirl11 and Perfectlyimperfect39,

    Congrats on finishing your rad treatments. I know the feeling. The RO is right when he said the symptoms will get worse before better right after finishing treatment. I finished 1 week ago & while I didn't really burn, just got a little pink, I am now blistering and am pretty sore. So...keep putting your lotion on and wearing loose fitting clothes...it definately helps!!

  • Beachbaby65
    Beachbaby65 Member Posts: 68
    edited January 2015

    Hi old and new warriors, I am 3 wks out of rads and I healed very quickly. The one piece of advice I can give is limit your showering( it dries your skin out and makes it worse) and use lots of your creams. Nothing is too much. I had a bad burn in my armpit the last two wks of rads and every time I showered it would open and start all over, so I finally decided not to shower more than 3xs a week. I just took sponge baths the other days and my skin immediately started healing. It looks awesome now! I had my MO appt to talk tomaxafin and we decided to start efexor first for two weeks as I am getting zero sleep due to hot flashes. If they seem to lessen by two wks then I will start tomaxafin. I have the beginnings of Barrett syndrome from acid re f lux and this has gotten worse since rads so I'm on a higher dose of meds for that too. Tomorrow I will do a chest ct w/ contrast to check on the nodule they saw on my right lung in late October during my SIM. I will be switching insurance and getting married and permanently moving to washington by the end of the month . I didn't want to worry (during my inevitable lapse in medical coverage) about that nodule so he ordered the ct to hopefully put my mind at ease for the next few months. My follow up with RO is right after ct and then hopefully no more doctors, labs, or anything having to do with this damn disease till June and my next mamo. I desperately need to feel normal again and to just be happy. I have the most wonderful man and the best daughters! My baby comes home from her semester abroad(4 months), and I have missed her terribly. I can't wait to see her Friday! I want the fear to go away for awhile and hopefully the ct comes out good and I can rest easy. This is such a damn hard journey we are all on but we're on it together and we can all get through it! The support I find here has saved me in so many ways! Thank you all my sister's new, old, and ones yet to meet! F*ck Cancer!

  • Jlynn13
    Jlynn13 Member Posts: 21
    edited January 2015

    Pita119

    I also go to md Anderson for my treatment. I got my chemo in Camden and love the building and all the drs. I am getting radiation in the voorhees office bc that is where they have the breath hold machine. Apparently they don't have it in Camden. My RO is dr. Hughes. I really like her.

  • windgirl
    windgirl Member Posts: 340
    edited January 2015

    Congrats to everyone who is done with radiation!! How exciting to meet this milestone.

  • Jlynn13
    Jlynn13 Member Posts: 21
    edited January 2015

    Birdgirl11

    Congrats on being finished. I have 24 out of 30 left before I get to that finish line but I know it will come eventually

  • Jlynn13
    Jlynn13 Member Posts: 21
    edited January 2015

    Perfectlyimperfect39

    Congrats on finishing. They are awesome songs to here on your last day. I would take it as a special sign. Good luck healing.

  • JustJean
    JustJean Member Posts: 327
    edited January 2015

    A certificate of completion?

    I sure hope my place doesn't do that... all they'll need to do that last day is the same thing I need them to do every day -- get out of my way so I can leave, lol!



  • JustJean
    JustJean Member Posts: 327
    edited January 2015

    (Absolutely no disrespect intended to those who think certificates of completion are a great idea. Really!)

  • perfectlyimperfect39
    perfectlyimperfect39 Member Posts: 25
    edited January 2015

    Just Jean I love the certificate. It shows I made it through this chapter. I have also had a hard time through this and have shed many tears. I really liked all my rad staff and love having a memento from them. Its just a paper to some but to me it means so much more. I hope you get to a peaceful place in your journey. Sorry it has been tough on you. Although, I might seem cheerful and upbeat I have had many deep thoughts through this monster.

  • quiggy
    quiggy Member Posts: 315
    edited January 2015

    Hi Beachbaby65;

    Ditto on the f@#k cancer!  

    Congrats on all the wonderful things in your life.  Enjoy the visit with your daughter.

     BTW, we're neighbors; I'm in Oregon.

    Thank you all for the heads-up and the advice regarding the immediate aftermath of rads.  Those of us following you appreciate the information. 

  • windgirl
    windgirl Member Posts: 340
    edited January 2015

    a certificate of completion would be meaningful to me if I completed something I wanted, not forced to complete as in cancer therapies, so I would not want one but I will be very very happy when done

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Good evening Ladies, When I finished my chemo I was presented with a Graduation Certificate and I got to ring the bell. I rang it as hard as I could. I wanted everyone in the building to know that I did it! And my chemo nurses gave me a stuffed Everready bunny, because we keep going, and going, and going! Not for everyone, but I worked oh so hard to reach that day, and I was going for it. Then I ran, as far and as fast as I could.......and stopped at the liquor store on the way home! I deserved that too!

    Have a great night!

  • Cavalier
    Cavalier Member Posts: 9
    edited January 2015

    Hello all. I have been reading posts and appreciate all the information and support. I was diagnosed in early December and had surgery December 17. I see my BS in follow up Jan 8. I anticipate starting radiation soon. My concern is I was scheduled to retire at the end of January so would need to change insurance. Would it be better to wait for radiation until the new insurance takes effect? Is it better to get started sooner rather than later? How long is long enough to heal after lumpy? I am interested in talking with the RO about the Canadian method of 15 treatments. How receptive do you think the RO will be to this discussion? A recent article in JAMA supports the shorter treatment protocol. Thanks for being such a wonderful support system during this difficult time.

  • Cavalier
    Cavalier Member Posts: 9
    edited January 2015

    I have been reading posts and appreciate the information. I was diagnosed in early December and had surgery December 17. I meet with BS Jan 8 for follow up and assume we will start radiation soon. I am scheduled to retire end of January and will need to change insurance. Should I wait to start radiation until I am on the new insurance? Is it better to heal more after the lumpy before beginning rads? Thanks for the support.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Hi Cavalier, and welcome to Breastcancer.org. We're sorry that you have to be here for this reason, but glad you found us and decided to join this wonderful community!

    We're sure you'll get responses from other members soon. Until then you may want to take a look at the sections of our main site related to Radiation Therapy and Managing Your Health Insurance.

    We hope this helps!

    The Mods

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