Winter rads 2014-2015

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  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    My surgeon is going to make me completely flat.  She did the simple mastectomy's, which has left me lumpy and with dog ears.  She has begged me to consider reconstruction since I am only 54, but I have no interest in it and am very happy wearing/not wearing prostheses.  The "clean up" will be my last surgery and hopefully the last ride on this rollercoaster. 

  • Reader425
    Reader425 Member Posts: 653
    edited January 2015

    Hello everyone, just stopping in to ask for thoughts and prayers for my rads start tomorrow. Actually looking forward to moving along now but I do get nervous. Since its the first time after the simulation I'm thinking it could take a little longer than the rest of the treatments (but not sure). I'm taking my little bottle of calendula lotion along as others have suggested.

    SmileHappy Friday!

  • Fionascottie
    Fionascottie Member Posts: 78
    edited January 2015

    Reader425, Good luck tomorrow! I'm not far behind you...I start on Monday.

    JustJean, I hope that things are getting somewhat easier with several more treatments checked off!

    Thanks to everyone who shared tips about lotions, etc. and the cotton tanks/chemises. I'm going to make sure I'm prepared. I'm also crossing my fingers that my surgical site finishes healing over the weekend. I had fluid buildup after a lumpectomy and my site had to be left open to heal from the inside out. It is almost totally healed now...but there is a spot about the diameter of a pencil that is still open. That area seems so tender I don't like to think what rads might do!

    Happy 2015 to everyone! Here's to a healthy year!

  • Pita119
    Pita119 Member Posts: 85
    edited January 2015

    Beachlady28,

    I finished rads last Monday & will now see the RO in 4 weeks, the BS in Feb & the MO in Feb. My MO told me to start the arimidex the day after finishing up rads...why after< I don't know. Techs told me that 2 of the MOs on staff prefer their pts to start after rad but the others have their pts start before rad...go figure. So, I am still a little sore & have some small blisters...the nurse told me to use the cocoa butter with vit. E lotion twice a day. My BS told me that I will have my first mammo in June...6 months after finishing rad and then every 6 months for a couple of years.

  • linzer
    linzer Member Posts: 164
    edited January 2015

    Good luck Reader and Fiona. I'm on 12 of 19 today. It's quick and easy for the most part. I did get a bit of fatigue about 1 week in, but nothing that a quick nap couldn't conquer. The drive to/from is the most difficult part. I've been fortunate not to have had any skin issues, and I hope the same for you. My thoughts go out to those who are having issues. I hope that you heal quickly. Congrats to those who've finished up. You are on to another chapter! I've started working out again, and it feels so good. It's going to be a slow recovery as I lost a lot of muscle mass and stamina, but I'm determined to do it. Happy New Year, everyone!!

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Good Morning Ladies, I have a appointment on 1/9 to discuss/schedule radiation. Any tips, comments, or suggestions would be greatly appreciated. My Oncologist wants to schedule more chemo to start 1/20. Since I just started feeling well from chemo and surgery, I cringe at the thought of here I go again!

    Thank You!

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    The nurse says the little red bumps are hair follicles - not itching at this point. She recommends wearing a cotton t-shirt under a loose bra to avoid skin on skin at the fold under the breast since I am a D cup. Apparently pulling on the muscles could hurt. She also recommends staying away from tops with colored dyes that could irritate he skin.

    I was sorry that my RO announced today that he is retiring very soon. My GYN is retiring in the spring. At least both have laid out plans and referrals for me.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    Good luck, Reader and Fiona. My early sessions were longer especially the 1st. Now 3 times a week they skip the cone beam and it takes less than 10 minutes on the table. You will do fine.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    linzer, your determination inspires me. Get fit and feel good.

  • labelle
    labelle Member Posts: 721
    edited January 2015

    10 down/ 20 to go! So far, so good.

    3 free tickets and a $5 winner on my radiation lottery scratch tickets.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited January 2015

    Meanmom, thanks for the tip about the tanks. I ordered some from The Gap, and some from Old Navy to see which ones are better if there is any difference except for price. Not enough energy to tackle the Mall, plus since I just finished chemo, I'm trying to stay away from crowds. Don't want to risk an infection at this point

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    For you ladies just starting, a suggestion--take old clothes.  I ruined a brand new mastectomy bra due to the blue sharpies and started wearing a t-shirt under my bra so the sharpie didn't rub off .  I have a couple of shirts that show some markings but they can be worn under a jacket.  It will be over before you know it. 

    Wnderwoman, when my skin started to hurt I put a sock under the breast to avoid the skin on skin problems.

    Boosts start Monday!!!!!  I can hardly wait. 

  • Cath57
    Cath57 Member Posts: 47
    edited January 2015

    thank you Nomatterwhat, for the tip! I'm just going to get into my paint clothes & go to work from there! I'm a decorative painter/muralist so my clothes are always a mess

  • Fionascottie
    Fionascottie Member Posts: 78
    edited January 2015

    Question about the Sharpie and marks on clothes....did that happen the day you got your tattoos and measurements? Or do you continue to get marked after that session? I went for my tattoos, etc. about two weeks ago and the tech covered them with waterproof stickers....so I'm still sporting my blue Sharpie. He told me not to pull them off, that they are easier to see than the purple tattoos I guess we all get.

    I hope I do get to get started on Monday as planned. The small unhealed spot from my lumpectomy is still there....it has come a long way since I had to pack it twice a day. It's almost closed! Crossing my fingers!

    Have a great weekend, all you BC fighters!

  • Pita119
    Pita119 Member Posts: 85
    edited January 2015

    Fionascottie,

    I got new sharpie markings when I had my sim and every time I had a rad treatment...so basically, I wore the same camis & bras during my 4 weeks of treatment. I had 2 sets of old clothes that I just alternated them. I got several tattoos and then when I had the planning for my boost treatments, I got the clear, waterproof stickers that they told me not to take off. Hoping that you'll start your treatment on Monday...you will do fine.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    I got my tattoos as well as sharpie markings during my sim.  I only have 4 tattoos, but everyday I would get sharpie markings above my breast and under my arm.  I went to Walmart and bought some over sized men sleeveless t-shirts (Hanes) and wore them under my bra to protect my clothes.  I always changed into my hat before I left work just to give my head a rest from my wig.  I had films every 5 rads to make sure things didn't change (that is what the tech told me) and "Mr Bolus" every other treatment.  I always made sure that when I was done, I had my wipes to clean most of the marks off and applied my aquaphor to calm down the heat.   Now I have the blue sharpie markings with the clear stickers for starting boosts on Monday.  I did not like rads on day one and I still don't like them, but I am so thankful they are almost done.  They do go fast once you get into the daily regimen and are much easier than chemo.  You can do this ladies!!!  I also wore the same bra and t-shirt for the last 30 days and will for the next five days.

  • Fionascottie
    Fionascottie Member Posts: 78
    edited January 2015

    thanks for the t shirt advice.....I'm going to get some cotton things to wear under my bra. Speaking of bras, I have been wearing a bra 24/7 since I had to start packing the wound from my lumpectomy , allowing it to heal from the inside out. I will be SO so glad to be able to sleep without one soon. After surgery, when the seroma was presenting itself my surgeon mentioned I should have worn a bra all the time right after surgery to cut down in swelling and fluid build up . I surely would have if someone had told me this or had listed it in my discharge instructions. A little frustrated.

    Thanks for the encouragement, Pita119 and Nomatterwhat! I'm ready to get going and get through this next phase of treatment.

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited January 2015

    Don't beat yourself up about the bra wearing - I wore one 24/7 from surgery and it made not a whit of difference to seroma production as I had lots of it from the axial incision which burst but perhaps that is different to your lumpectomy one.

    Thanks to all of you for good advice regarding RADS and clothes. Not sure when I am scheduled for this but sure to be soon.

    Best of luck to you all.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    Fiona, There have been variations in procedures depending on the rad center and your circumstances. I had sharpie markings before my tattoos but not during rads. Just three tattoos whereas some women have had as many as seven. No bolus so far and no breathing tube although it is my left breast. My surgeon gave me two tube tops to wear 24/7 after lumpectomy. Sorry you had to do the packing. A friend had to do that after a dog bite. Not fun. But glad you are almost healed.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Hi ladies. I just got my rad appointments. I see the RO on the 8th, Sim on the 21st. Rads start February 9th. I will get my last taxol on 1/19 God willing. I'm really looing forward to being done with chemo. Love, Jean

  • Bippy625
    Bippy625 Member Posts: 890
    edited January 2015

    hi all,

    I start on Monday x25 txs. Not lookin forward to it either, but at this point I will tolerate it too. At least my body is recovering nicely from surgery, no complications. I am reading all your experiences with interest, and will use all the tips. Hoping for good techs and minimal trauma. See you all soon.

  • Pita119
    Pita119 Member Posts: 85
    edited January 2015

    Hi all,

    I'm reading that so many of you only had to get a few tattoos. I have at least a dozen...not done all at one time. They are small, thank goodness but they are permanent.

  • SandyLovesLucy
    SandyLovesLucy Member Posts: 204
    edited January 2015

    fionascottie, Don't beat yourself up. I wore a bra 24/7 for months after my lumpectomy and developed a seroma three months after surgery. We do the best we can with the information we have.

    Thanks to all who have shared info on tanks and camis. I'm trying to get by with a few things i already own but don't know how long I'll have to ditch the bras.

    Each treatment center is different. I got four tattoos at my SIM appointment and have never had sharpie markings, and don't get the bolus. They'll start my five boosts on Tuesday was toldthey won't do any other tattoos for that.

    Bippy and Jean and everyone else just starting, welcome and good luck!

  • Lilactulip
    Lilactulip Member Posts: 6
    edited January 2015

    Good morning everyone! I have been lurking on here and reading about all of you incredibly strong women. I have learned about lotions and tank tops and trials and praises. Thank you all for sharing your stories so that people like myself know we aren't the only ones.

    I have just finished number 10 out 33 yesterday and now I get my weekend break. I'm sore at my incision site and I'm just getting over a stomach bug that my lovely daughter passed on to me, so to tell the truth, I'm feeling a bit fragile today. I'm thinking some extra rest might be in order. I start back to work at a middle school Monday after two weeks off for break.

    My doc gives out Miaderm cream while your in treatment and says not to use any thing else but I've read about putting aloe straight from the plant on every morning also. I'm an F cup now, but can't wait to see what I'll be a year from now.

    Hanging in there, one day at a time.


  • knittingPT
    knittingPT Member Posts: 156
    edited January 2015

    Hi Everybody! Y'all are farther into this than I am. I am still doing chemo (just finished A/C and start weekly Taxol this coming Friday). I will have surgery after chemo but don't know yet whether lumpectomy or mastectomy. For those of you that had a similar plan, when do you start your radiation? Is it right after the surgery or a few weeks out or what? I'm just trying to think ahead so I kind of know what to expect. Thanks!! I'll be lurking around hear "listening" to what you all talk about so I can prepare for radiation too.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited January 2015

    Lilactulip, I think I read not to use aloe straight from the plant. Not sure but you might want to check first.

  • eileenpg
    eileenpg Member Posts: 467
    edited January 2015


    FYI= My RO was dead set against aloe from plant. Stated NEVER USE. Too much bacteria to place on skin. Use aloe from store . Can buy at food store ,Walmart, Target. I carry in purse and put on right after radiation.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    My RO said not to use the aloe from the plant.  He advised to get the Fruit of the Earth Aloe from Walmart.  I think someone else said they bought the same Aloe from Amazon in a pump bottle.  The aquaphor and the Silverdene he prescribed have also been a skin saver. 

  • quiggy
    quiggy Member Posts: 315
    edited January 2015

    ILCmom, hi!  I'm doing the simulation on 1/9/15 then starting 35 rads.  Sounds like we're close to the same schedule.

     

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited January 2015

    Welcome to the Winter Rads Topic, gemmafromlondon, zjrosenthal,lilactulip, knittingPT, and quiggy.  The first of the year is starting out with lots of hope for good things to come.  There is certainly a lot of good help and support here for and from all of us.  I'll get you on the Warrior List. When you firm up the date that you get your first treatment, I'll make sure the list is revised to show it. 

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