January 2015 Surgery Sisters
Comments
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Carriek30 -- I'm not sure being ER/PR+ is a great thing, but it does mean that your doctor will probably recommend that you do hormonal therapy so that you can prevent recurrence. Being ER/PR+ means that your BC feeds off of ER/PR, and that you can try to block those hormones through drugs like Tamoxifen (if you're like me and you're pre-menopausal). For some ladies, hormonal therapy is a breeze; for others, it comes will all sorts of side-effects that they would rather do without (hot flashes, mood swings, achy bones, etc.). I will be starting Tamoxifen after I do radiation; I'm a little worried because hormone changes have always hit me hard. But, my medical oncologist says that she'll be happy to prescribe me meds to deal with the side effects. As many ladies say on BreastCancer.org, "Better living through chemistry."
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Just wanted to say good luck to ya! Your surgery is around the corner and hope you are staying positive!!
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hi, I was diagnosed on 12-1 and will have a lumpectomy on 1-12. Very nervous as I have never had surgery before.
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shelleym1! We'll be having a lumpectomy on the same day. Yay for us! I'm not really nervous, as it's a procedure that will take about an hour and doesn't even require a hospital stay. I'm more concerned about what happens afterwards. My radiation oncologist wants the surgeon to take out all of the Level 1 and 2 lymph nodes, which could lead to lymphedema. But, I understand about the nerves. All operations -- especially when they involve anesthesia -- are serious affairs and shouldn't be taken lightly.
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Elaine, I know what you mean. They are doing a sentinel node biopsy at the same time. They may take a few more nodes depending on the first one. It's all very nerve racking. I have no idea if l need chemo or not until the biopsy and oncotype. I hope your surgery goes smoothly. Please let me know how you're doing afterward.
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shelleym1 -- Hope your surgery goes smoothly as well! At least I don't have to worry about chemo -- I finished five months of that on December 3. I'll find out, though, how well chemo worked from the biopsy of the tissue/nodes collected. Either way, I've got six weeks of radiation coming up and then ten years of hormone therapy. It's a LONG slog.
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hi ladies i updated all of the surgery dates on the intro tab, lmk if I missed anyone.
Praying for you all, we can get through this!!!
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Hey CassieCat, Bicoastal surgeries (I'm in MA), hopefully with quick recoveries!
Carriek30- Thanks for the kind thoughts. As ElaineThere indicated, there tend to be more treatment options for ER/PR+ tumors. They are sometimes more aggressive but respond well to chemo and hormone blockers like Tamoxifen.
Jmo06, Thanks for updating the list!
To all, Good luck in January and beyond.
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my mastectomy is scheduled for January 15th
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May I re-insert my name? I fell into a funk and deleted all my posts. My surgery is set for 1/14/15 and post op for 1/26/15. Then meet w/radiologist on 2/4/15. At some point I'll begin aromatase inhibitor meds for the ILC. I'm not frightened about the surgery but am still enraged with my traitorous body. I was hoping to have "my brilliant career" after supporting and surviving two husbands and raising a lovely but handicapped son. At 65 my mind, hands and eyes are my most important tools as I was trained as an artist but due to family obligations didn't get to use my gifts. I had hoped that it would be my turn and now I'm worried about med. side effects of osteoporosis and heart problems. Whew! What a whiner I am today. Just grumpy. Yes, a grumpy old lady on the outside and a terrible teenager on the inside. Please bear with me--I do have much better moments.
~Hygeia
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Hygeia-
We all need to rage sometimes and this is a safe place to come to vent. Personally, I'm pissed that I'm dealing with this bullshit for the second time in 3 years. I feel like I can take it, but don't my kids deserve a break? I know the news is going to rock their worlds, and not in a good way.
I'm also irritated that I feel like I'm finally emerging from the fog of chemo brain only to face the possibility having to go back to putting the sludge in my veins every two weeks. My first go around I apparently earned a reputation in my community for always being upbeat. Perhaps that will change this time. Grumpy old lady on the outside, terrible teenager on the inside sounds about right to me!
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Hygeia and Lulu -- sure doesn't seem like life is fair, eh? Hygeia, I know what it's like to have a child with disabilities as I'm raising twins with autism. It's definitely a challenge. One of them has been really hit hard by puberty, and DH and I are distressed to see the changes in him. (We're seriously considering putting him on meds for the first time in his life.) It's been doubly challenging because I haven't had the energy to deal with him effectively because I was doing chemo for five months.
Lulu -- definitely sucks to have to go through BC twice, though I can't say I know how that feels as this is my first rodeo. Hope this is the last time for you and your family. Sorry to hear that chemo is in your future (AGAIN). I feel like I'm just coming out of my chemo fog now, but of course there's surgery, rads, more Herceptin and hormonal therapy in my future. So, cancer is a Long Slog for many of us.
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ElaineTherese and Lulu, thanks for acknowledging my storm. And Elaine I have watched my son suffer for 27 years. It is my great hope that he can successfully live independently before I am no longer here. Mental illness (in his case, schizophrenia) robs our loved ones of so much.
I shall be sending healing thoughts your (and Shelleym1's) way on Jan.12 and to everyone else as well.
Cimvee, you and I share the same day so here's my hand. You can hold it squeeze it, shake it, wring it or whatever you need to help you ace this speed bump.
Good wishes to all and I am pleased to be among you.
Healing hugs,
~ Hygeia
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Hygeia --
There's actually supposed to be some genetic connections between autism and schizophrenia -- DH and I have it in both of our families -- we each have aunts with schizophrenia, and DH also has a first cousin as well. It does rob our loved ones of so much. My aunt was able to hold down a job for many years, but that was only when my grandfather was alive and he insisted that she take her meds. His aunt raised two children, but one (the cousin) ended up with schizophrenia as well. (Her son is an awesome guy, though -- successful attorney, lovely wife, and young daughter.) Yes, I hear you about the living independently thing. I hope that my sons will be able to live independently and hold down jobs, even if they are menial.
Anyway, healing hugs to everyone on this board -- January (and surgery) is coming soon! Another step forward for all of us, I hope.
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Hygeia, welcome to the group. Vent away all you need to.
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Hi everyone! I am having surgery sometime in late January. I don't know if it will be a BMX or uni. My MO seems to think a BMX would be best because I have calcifications in my "good" breast. I won't see my surgeon until Jan 16th though. I agree with MO and hope for BMX, but the BS was weird about it the first time I saw him....All I know is that I just finished chemo Friday and I don't want to do that again if I can help it. I'm glad I found you guys as these boards helped me tremendously through chemo...We all do better together. Hugs Amy
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Thank you for the helpful info, ElaineTherese. I didn't know about the genetic connection between autism and schizophrenia. My son' s father was adopted and we could find nothing about his birth parents. As for my side, cystic fibrosis was my reason for waiting so long to decide to have a child. Two of my elder sisters died from it but DH and I took our chances and were blessed (yes, blessed) with this amazing individual. He's intelligent, funny, a bit too self-conscious and all I had hoped for in one not-so-little package.
We've been on our own for 2-1/2 decades now and will keep working on his stability and independence.
Wow! So nice not to think about breasts for the moment.
More hugs to all.
~Hygeia
PS: Welcome, justamy!
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Jan.14 lumpectomy
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Morning to all, well here we go I have a pre-op appointment on January 5th.....just wondering what happens there?? Hopefully I can take my list of questions for that....not sure what all I am going to need after surgery. Then to the scarier part the appointment on January 14th for a "Nuclear Medicine Lymphoscint Sentinel Node Injection" at 3 pm, then at 6 pm the paperwork says "Nuclear Medicine Lymphoscint Sentinel Node Breast". I'm sure this was all explained to me but as the time gets closer to each one makes me sick. And then of course the Mastectomy on January 15th. (the day before my 60th birthday). After just loosing my husband suddenly on November 7th and 3 weeks later being told "you have breast cancer" is about all I can take. I'm just really ticked off and just needed to vent some sorry. I pray for all of you for yur surgeries sceduled this month as I guess we are all sisters thru this terrible cancer.
Is there a list or something on tips for after surgery? Oh well, I'm sure I will get all that on the 5th (maybe), I just hate surprises and this was a hell of a surprise!!
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hi everyone. Unfortunately I've joined the club too and my surgery date is January 20. I think I'm having a lumpectomy, not 100% sure though. Good luck everyone.
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Mary I'm so sorry for your loss. Vent away, I'm sure we can all take it. Much love to you.
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Mary, I'm so sorry. What a terrible thing to have to go through. I read through other surgery threads for tips, but I like your idea of having them all in one place. Maybe that is out there? I'll take a look later and see what I can find.
Hi shaz, and welcome to the group (that no one wants to join!).
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Oh Mary, I am so sorry. That sure is a lot for anyone to deal with!!! I hope we can provide a small amount of comfort and that you know that you can come here to vent, whine and know that we understand.
Hygeia, 2 weeks from tomorrow. Getting very nervous!!!!!!
Great question about the pre-op appointment. Mine is this Friday. I was told that the appointment could last anywhere from 2 - 4 hours. Not sure what to expect.
Thanks for the sisterhood ladies.
Cinvee
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Oh Mary, my thoughts are with you too. So many losses. You've come to the right place for, as a group, think of the tremendous positive energy we're generating.
I'm in the waiting room for my pre-op. I arrived one hour early as it takes 2-1/2 hours to get here and the appt. is now 20 minutes late. Deep breaths, slowly inhale, slowly exhale.
Gosh, I need to pee but if they need a sample I won't be very helpful if I go now.
Showtime! I've just been called. Fill you in later.
Hugs (and cimvee, I'm a bit nervous, too).
~Hygeia
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Happy New Year, Sisters!
It's now after 2am on 1 January 2015.We are all moving forward so I hope for the best of outcomes to all.
The pre-op went well. First I met w/a nurse practioner who took my vital signs and explained what to prepare for the night before, what to expect on the morning of surgery. I am to arrive at 8am, will receive the dye and the wires will be inserted at 10am and my surgery is at noon. She explained the period of recovery from the anesthesia. Since we live 2 hr's drive away, I' ll spend the night before and the night of the surgery at a nearby hotel.
After I met with the nurse I was sent to another dept where two vials of blood were taken and an EKG was done. That's it--it took not much longer than a half hour.
I've never had high blood pressure but I had consumed so much coffee and was so anxious that my BP was skewed. I can laugh now but it wasn't so funny at the time.
Anyway, dear ladies, I made it through another hoop and cheer all of you through, too.
Now for a long winter's nap.
Hugs to all,
~Hygeia
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Hi all, and thanks for sharing on the January 2015 thread!
Here's some good information for you and future posters to help prepare for your surgeries:
Check out some good info from the main Breastcancer.org site on Surgery, including:
- What to Expect with Any Surgery
- Lumpectomy: what to expect, side effects, and questions to ask
- Mastectomy: what to expect, side effects, and questions to ask
- Lymph Node Removal: what to expect, side effects, and questions to ask
- Reconstruction: all types of reconstruction, what to expect, side effects, and questions to ask
Also, the Treatment Side Effects section is a great resource for tips to help manage any side effects you may experience.
Also, you may find it helpful to chat with ladies from past months' surgery threads, to get first-hand stories of their experience; see the December 2014 Surgery thread.
Hope this helps and good luck with all of your surgeries!
--Your Mods
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Hygeia, I'm a bit late, but good luck and take some slow deep breathes. I'm looking forward to reading about how you went.
Mods, thanks for the links. There is power (and comfort) in knowledge. I feel out of control at the moment. I just wish I knew more 😞.
It's so nice that we can all wait together and support each other through this.
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Mary, I'm not a doctor, so I can't say for sure, but it sounds like you may be having a sentinel node biopsy on the 14th. They inject a radioactive dye into the breast which helps them to identify the sentinel node, the first lymph node into which the breast drains and the one most likely to have cancer if it's gotten outside the breast.
http://www.cancer.gov/cancertopics/factsheet/detec...
Good luck on the 14th/15th. So sorry you won't have your husband beside you on this journey
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Mary, I went to pre-op today. I will have injections like you, they will do four, and then right to hospital for sugery were they will inject the dye that will highlight the injections to identify the Sentinel Node . I was given cream to put on my nipple to deadned the area before I have the injections. I had blood draws. ekg, urine today. My surgery is Jan 6th and this is my second time. I had cancer in 1995, so it has been 20 yrs. I will be having a double mastectomy with no reconsrution. I will tell you it is not any easier the second time around. We all have the right to be angry, this whole thing warents one ? WHY! But we all are here because we are in the same boat, and it helps having support if not critical to dealing with all this. Insensitive medical care is the worst in my oppintion. I will be sending positive thoughts to you my sisters.
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Mary59G I am so sorry for your loss and diagnosis. I'm glad you found us here come and vent away, you deserve it!!
I found this very helpful
https://community.breastcancer.org/forum/91/topic/...
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Lulu22, thank you so much for the article that helps alot. I'm sure the surgeon told me all that but with everything going on my mind couldn't wrap itself around and hold much. Thanks for the prayers and I'm sure my husband will be beside me in spirit during all of this.
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