Just diagnosed I don't know what this means

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Lucyfish747
Lucyfish747 Member Posts: 14
edited December 2014 in Just Diagnosed

My biopsy results came in and the doctor said I have Infiltrating Ductal Carcinoma. I have a 9 mm mass in left breast. I have to see a surgeon within a week to have it removed and have my lymph nodes tested to see if it's spread. I am terrified - what are the chances of it spreading? Is this real bad?? I am really scared. Has anyone else had this?

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  • Nel138281
    Nel138281 Member Posts: 2,124
    edited December 2014


    Lucy,

    Hate that you have to join us and others will post that know more about this type of BC.  You will get lots of support from everyone here.  The initial dx is the most difficult.  Once you have a plan in place and more information - it does ease a bit.  Find one or two friends or family you can talk to and who can "be" there for you, tolerate your fears and not dismiss them.  Someone who can just be present for you.

    Nel

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Dear Lucy, We are sending you cyber hugs. We are sorry to hear of your results. You may want to take a look at the BCO section on IDC to read more information or check out the IDC forums to connect with others. Keep us posted. The Mods

  • ml143333
    ml143333 Member Posts: 658
    edited December 2014

    Lucy - I also hate that you have joined us because that means you were diagnosed with breast cancer.  Truly, the initial diagnosis and all the waiting are the worse.  Once you have a treatment plan in place, you do feel a bit better.

    Make sure to write down a list of questions to ask your doctor as you will likely forget some or all of them when you go.  Take someone with you that can help with questions and remember answers as you will likely forget some of what is said. 

    We are all here to help.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014

    Dear Lucy: I'm sorry that you're here and have been diagnosed with cancer. I'm sure you're pretty shell-shocked and scared.

    A 9mm mass isn't overly large, so please don't panic over that. You'll get a lot more information in the next few days that will help you get a handle on the specifics of your particular cancer but in the meantime, try to take some deep breaths. You'll feel better for getting some oxygen in your system!

    Taking someone to your meeting with your doctors is CRITICAL. It's also a great idea to have them use your smart phone (if you have one) or a small recorder to record meetings with your surgeon, oncologist, radiologist, etc. I've found it very, very helpful to be able to listen to those discussions again later on to pick up details I missed originally.

    Take your time choosing your medical team; if you don't like someone you've been referred to, try to put your finger on what's bothering you. If the MD doesn't suit you, go to someone else. You do have the time to do your research, get a couple of opinions, etc. Most insurers will pay for a second or 3rd opinion. Always call your insurance co. first, however, to check on what is or is not covered. Cancer is hard enough without unpleasant financial surprises as well.

    Call your doctor's office back and ask for a copy of your pathology report; you are entitled to it and it contains valuable information. If they give you grief about it, ask for it at the facility that read your mammogram or did your biopsy.

    Then start a file - there will be lots of paperwork you'll want to keep handy. You don't need to spend too much time organizing it right now; just put everything relating to this illness in one place. You can organize it as you go along and figure out what works for you.

    There is a LOT of useful information on the main breastcancer.org site. Don't neglect that resource.

    Breast cancer is a terrifying diagnosis - don't feel like you have to pretend everything's rosy. On the other hand, you don't have a huge tumor and we'll hope it hasn't spread to your nodes yet. Come back here anytime you need support, information, a place to vent, etc. We're all going through it (or have been through it) and we care and understand. Good luck to you.


  • trying2staypositive7
    trying2staypositive7 Member Posts: 96
    edited December 2014

    Hi Lucy, i too am so sorry that you had to join the breast cancer club. Just know that you came to the right place for answers. I want to echo what the others said...the beginning is so HARD but once you get a treatment plan together you feel a little better. You will get through this (just keep saying that to yourself). I had to constantly listen to Katy Perry's Roar to help me! Make sure that you either take someone with you to appointments or record them because you won't remember what the doctor has said (at least i didn't. I was in a haze). More people will come along. Sending you gentle hugs and prayers 

  • daisylover
    daisylover Member Posts: 310
    edited December 2014

    Lucy, You should definitely try to have someone accompany you to any appointments that you have in these early stages. Do you have a friend that could be there? Maybe your daughter would be more empathetic if she were involved? The shock of a new diagnosis can get in the way of you hearing accurately what the doctor/surgeon has to say. And, the other person can take notes while you concentrate on asking questions and getting answers that you need to make informed decisions. You only have the beginning of a diagnosis - your pathology report from the surgery, which you will schedule when you see the surgeon, will give you and your medical oncologist a much clearer picture of what treatment options will be. Once you have been through the surgery, you will feel more confident. Just know that there are many others here on these boards that have been through the same fear and confusion. Your situation is unique because you are unique. However, many others have been through similar experiences. And, they have shared their concerns on these boards. When I was first diagnosed, I learned a lot from reading about others' experiences. Check out the threads for similar diagnoses - that can give you really helpful information... It is good that you know how to post already - you will find lots of support at BCO!

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