What do you do to feel "normal"?

Options
What do you do to feel "normal"?

Comments

  • Plugging-through
    Plugging-through Member Posts: 3
    edited December 2014

    I'm so glad this community exists. And I'd love to hear what people do to feel normal while going through all of the treatments. I will have my last dense dose of AC this week and will then move on to 12 weekly taxol treatments. So far the chemo has knocked me out! I go to work about 1/2 time and don't feel as productive as I was because of the chemo fog and fatigue. I go out with friends for short periods of time and its not the same. I would love to hike in the woods but don't have the the energy. What do any of you do to feel some sense of "normal"?

    Thanks for your ideas!


  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited December 2014

    Hi there, plugging-through - glad to hear that you are doing just that!! I finished chemo in August...had the same regimen you did. Frankly, I don't remember what I did to feel normal. It was hard. I remember dragging my butt out one day to run, coming home and totally melting down because something "normal" was so hard. Maybe I shouldn't have answered this post, since it doesn't seem that I have much good to say. But maybe my advice will help anyway....embrace the "not normal". Once I gave up trying to feel normal it was easier to just get through each day. My husband kept telling me I'd have a new normal. I didn't want a new normal, I wanted my old normal, I liked it. Anyway, with each day, week and month that chemo gets into my past, my old normal is coming back. Keep on plugging....you are doing great!

    Big hugs,

    Jen

  • badger
    badger Member Posts: 34,614
    edited December 2014

    hi Plugging-through, welcome to BCO.  I'm with Jen, I didn't try to feel normal during chemo, just did what I could to get through each day.  I did try to walk a little every day, even if it was to the mailbox & back.  Started keeping track and have logged nearly 5,000 miles since dx five years ago.  You're welcome to join us on the Let's Post our Daily Exercise thread in the Fitness forum.  We're a diverse group at all ages, stages and levels of fitness.  Great place to find support! ♥

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Hi Plugging-throug, and welcome to Breastcancer.org! We're sorry for the circumstances that bring you here, but we're very glad you've joined our community.

    Besides the helpful support and advice from members here, you may find interesting to read through the Chemotherapy section of the main BC.org site, where you'll learn more about how chemotherapy works, what to expect, side effects and ways to manage them, etc.

    We hope this helps!

    The Mods

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited December 2014

    Plugging-through,

    I had the same chemo regimen as you did, and I also worked through it. No, I wasn't as productive, but I liked the fact that it kept my mind off of cancer. I felt more energetic on Taxol than AC, though Taxol gave me mild diarrhea. I also felt more mentally-alert on Taxol, which is important to me because I teach.

    Even though I had my last chemo infusion on December 3, I don't feel "normal" as I'm getting ready for surgery and rads. I'm not sure I will ever go back to the old "normal," but will have to adjust to a new "normal." I do try to do some of the same things, like swimming and scootering with my kids. But, I'm pretty slow and take things easy.

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited December 2014

    who gets to say what "normal" is anyway!    I use the word typical -just feels less heavy or judgemental to me.  I know word play.  I am defining my typical day now, some days are better than others

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited December 2014

    I was mostly in a chemo haze too and there was no normal. I normally like to garden and walk trails and bike in nature. For me, I sat on my deck a lot. We also have a forest preserve where it is a short walk to a lake and a dock where i could sit. Think about if there is a similar place for you, where you could walk a short distance to a bench or sitting place. I also went out to eat because it was some socialization and yet, no cooking! The other thing I love is music so I took the time to listen to music, which I can explore on youtube. Plan a trip if you like to travel, even if its just daydreaming now. Whatever interests you have, think of a low energy way to do it.

    Come join us on the exercise thread Badger mentions if you just want to do a few minutes here and there. We have a lot of fun and one day you'll be able to work back to normal.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited December 2014

    I cycled through 6 dose dense rounds of both AC and Taxol and have to say that Taxol was much easier. I made sure I got out and walked days I didn't cycle. That was important as got me out of the house and with people. When I cycled, I got oxygen into my system and felt a lot more "normal". So I am a major believer in exercise.

    It does take a while to recover fully...I was back to about 98% six months following radiation, with the other 2% taking another year or so. Now, I am stronger and fitter than ever. I still did all my normal cycling events that summer....just needed ibuprofen and a lot more energy potions. I also needed (and think I still need) more protein.

    I have emerged from all this into the most rewarding and productive time of my life. About a year ago, I reshaped my life to fit what had transpired, and that opened other opportunities for me. I am learning to be a much better nonprofit support and grants person, and I am doing Toastmasters to polish up my ability to talk to people one-on-one and in groups. Extremely energizing and rewarding.

    I am also dating a much younger guy who thinks I am terrific. So fun, not to mention a major ego boost. We met doing a cycling event.

    As to "how did I exercise?", I took the position that I would be better off exercised and dragging as opposed to just dragging. You don't have energy reserves, so I made sure I ate something prior to heading out to do a minimum one mile walk. I always felt better by the time I returned. I also rested between reps of lifting weights, sometimes being able to only do 6-8 lifts at a time (as opposed to 30-40). But I always finished them. I didn't have any major loss in strength. (My oncologist would turn pale when I told him what I was doing, because he couldn't do this!)

    So I would say that I lived a relatively normal life, but "dialed it down". That was important. And finally, I planned a global celebration for when I was finished. So something to look forward to.

    Good luck. You will get there. And do join us on the exercise board. - Claire

  • Plugging-through
    Plugging-through Member Posts: 3
    edited December 2014

    Thank you to everyone!  Your responses were both validating and inspiring and I got something from each one.  I have walked (short distances and at a much slower pace than I used to do) and was frustrated because I couldn't keep up with what I did before.  What I would love to do is go hiking.  I clearly can't hike mountains so i'll just have to scale it down.  I liked my life "before" and I liked my normal then too.  It sounds like I'll have to accept that there will be a new normal.  Since that is a mystery at this point, it's a little unsettling but perhaps things will just fall into place. 

    I'm also grateful to the people who responded that they got through the chemo.  Right now, it seems like forever before i'll be done.  It helps to know people actually get through it!  I then have radiation for 5 weeks but I understand that isn't as tough as chemo.  Then my final surgery and finally the trip I've planned for when everything is done and healed! 

    I'm so glad you are here.  You've been a great help.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited December 2014

    Its more than 4 months since I finished rads but I have not really bounced back energy wise. I think part of it is that I was very stressed out and tired before dx which did not help. I decided that my stressful job was not worth it and fortunately my boss made an arrangement for me to work 3 days a week with the most stressful elements removed altogether. I am very grateful.

    I strive to go to the gym and exercise seriously 3 times a week but one thing that helps me is photography. I find that on a nice day, just wandering around taking photos, especially of nature gives me a sense of peace. Yesterday I felt tired but went to a local zoo which I have not done for a long while and must have looked like an eccentric old lady wandering around with my camera and backpack, taking pictures of, and talking to the animals, but I don't care. Its therapy!

    I hope to be able to get back to my photography course soon. I have found reading and studying impossible since treatment, like many others I have found, but just this week I was able to read most of a book (OK it was about cancer) but hopefully my ability to read more will come back in time and I can go from there.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2014

    During chemo I tried, and was mostly able, to keep up with my usual schedule; but no way did I feel 'normal'....bluck, I felt totally creepy! But, since I could physically, I felt  if I was out doing 'normal' things it was better for me mentally than sitting home at all the time thinking about the horrible, rotten, scary situation I was in. I did exercise as much as I was able (which some days meant walking around & around in a circle in the living room), and I think any level of activity you can manage will help you bounce back quicker & better once you are done (I'm on the Lets Post Our Daily Exercise thread too. Come join us!). I did radiation as well and could actually feel my energy returning during it; so for me radiation was much, much easier.  What I read was that for however long you were in active treatment, expect it will take that long again to feel 'normal'. I would say to double that amount of time (and it is definitely a gradual process). It seems like FOREVER when you are in the middle of it, but you really can get it back and not only feel okay again, but feel great.  Hang in there. You will absolutely be back out hiking again!!!!

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2014

    Plugging,

    Congrats on your last A/C.....aka the red devil......I hated it.. Taxol was much easier for me. I had that dose dense also, so I was done with that in 8 weeks. After the chemo, radiation is a walk in the park. That was my experience.

    Getting back to our old carefree selves takes time. I wish the process was faster. I started rads one year ago. Still working on the mental/emotional part. Physically I have always been active, like you I love to hike. Posting helps, knowing that we are not alone.

Categories