Are you worried about recurrence ?

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I am approaching the end of my radiation therapy. I thought I would be so happy that the treatments were over. But, I'm finding myself worried about the BC coming back! I'm very depressed . My family and friends don't get it! I am taking tamoxifen and I thank god for it. I just want to live. I find myself worried about death a lot . Anyone in the same boat

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2014

    Pink, I crashed emotionally about half way through rads. I was so worn out from aggressive chemo, surgery, low blood counts.

    I should of gotten anti-anxiety meds when I was first dx. No, I waited 6 months....Big mistake. PCP put me on a antidepressant & lorazepam. I finished rads in Feb. of this year. Still worry obsessively. I am active, I play tennis, golf, travel. I am not depressed, but the worry, & occasional anxiety is always there. I hope it gets easier, it can not be healthy to be always thinking the what if or when.... I am truly thank-ful, that my dx is not worse, knowing it could be. I assume it is a time thing. My PCP said it is because my stage 3 status is scary.

    My advice, get on meds, try to stay busy & active. No one thinks this is easy...

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Pinkbee-

    First, we want to extend a warm welcome to you from all of us here at Breastcancer.org. We're so very glad you've found our community.

    Like Holeinone said, no one thinks this is easy. And many people believe it all ends when treatment is over. For some, that may be the case; but for lots of other survivors, the mental fight against breast cancer doesn't stop when they get a clean bill of health. It's normal to worry about recurrence, but if you find that it's making it hard for you to live normally and enjoy your life, it may be in your best interest to speak with your doctor about starting antidepressants, or speaking with someone about your anxiety. It will also help to talk about it with people who know exactly what you're going through, which we hope you find here.

    Please keep posting, you're among friends and allies here, and we're here to support you.

    The Mods

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    As Holeinone said, it is really not uncommon, there are interventions that can be done, and you are most definitely not alone with these thoughts!

    You may find this section helpful on Managing breast cancer fears.

    We're all here for you, and completely understand.


  • badger
    badger Member Posts: 34,614
    edited December 2014

    hi Pinkbee, welcome to BCO.  I had BMX, chemo but no rads, and have been on tamox since July 2010.  As someone dx five years ago, I will tell you I never really stop worrying but the fear is less now.  Maybe I'm rationalizing but it's like driving - there are bad roads and drunk drivers and sleepy truckers - all of which could take me out but I still get in my car, buckle up and go. 

    Exercise is known to reduce the risk of recurrence and also helps fight depression.  Please join us on the Let's Post our Daily Exercise thread in the fitness forum.  We have people of all ages, stages, and levels of fitness.  It's a great place for support. ♥

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    Do I worry? Well, yes. But I dont/won't let it consume my days. I'm busy and happy with my life. There is the occasional time when my mind is running, and the thoughts come. I allow a small amount, then force my mind to other thoughts.

    My MO said if I could make it 2-3 years, ihad a pretty good chance. I'm in the 3rd year, and keep reminding myself what he said.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited January 2015

    I do worry, I did worry after my one breast was removed. 18 months later my worry saved me from having radiation and chemo because I insisted on a MRI on my non-cancer side. I have dense breasts and I was going to demand what I now learned was the right screening for cancer for me. The MRI found 3 places, and I have to say I was positive it would find nothing.

    it all sounds scary, but I was proactive and avoided huge issues like chemo and radiation. We can't allow worry to consume us, but if we are told something like I was told, mammograms don't work for dense breasts, to get a MRI instead, and the doctor was ignoring this fact, then I really gave myself a special gift by being proactive.

    I am taking meds, Lexapro and Xanax as needed, getting hit twice with breast cancer and my husband inbetween with prostate cancer, I have learned a harsh lesson that worry does not help anything at all, it is a waste of emotion. Taking action and education is my best bet. I am disappointed my doctor never suggested a MRI for my remaining breast, but I am glad I finally insisted.

  • kris1114
    kris1114 Member Posts: 82
    edited January 2015

    Yes I worry about reoccurence cuz it would be stage 4 right? Then I feel the constant feeling of terminal hanging over my head. But worry one day at a time. Unless local reoccurence is possible?

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2015

    Local recurrence is certainly possible. Recurrence is not the equivalent of Stage 4.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015

    Crystal - Thanks for sharing your experience. I think we need to be reminded over and over again to advocate for what we need and not expect our MDs to look out for our best interests, unfortunately.

    I know you and your husband have been through a lot together. I hope it all works out o.k.

  • TuffMama
    TuffMama Member Posts: 22
    edited February 2015

    I'm new here. Had a bilateral Dec. 2013. Both breasts contained malignant tumors, but the largest and most worrisome was Her2pos, stage three b, with 12 lymph nodes positive. I've spent the year taking chemo and radiation. Now, I don't know what to expect. In the middle of things, my husband died, and I have moved to my daughter's home 800 miles from where I've lived all my life. As a consequence, I have all new doctors . In fact, the oncologist I started out with in this new location has moved on, and I was handed off to an associate. When I asked him if I was in remission, he was hesitant and essentially said it's a waiting game. From my perspective, it's like waiting for the other shoe to fall. I don't know what to think. BTW, I've completed chemo - I think; they can't find my records and don't know how many treatments I've had! I'm currently taking Arimidex. I'd appreciate some input.

  • Lucy55
    Lucy55 Member Posts: 3,044
    edited February 2015

    TuffMama.. Sorry you have been through so much. So awful to loose you husband at any time, but in the middle of treatment.. so hard.It's lovely though that you have your daughter to move to..

    Stay with us on these boards.. You will find lots and lots of lovely ladies, with the same diagnosis as yourself , that have been here for many, many years.. (Hugs)





  • Meow13
    Meow13 Member Posts: 4,859
    edited February 2015

    Yes I worry about it.

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited February 2015

    Hi TuffMama,

    That's really upsetting that your records have been lost. Does your original treating hospital still have them on file, so at least you can know what your original oncologist's recommendations were? Also, I wonder why you are not remaining on Herceptin even though you've completed your basic chemo, since your tumor was Her2+. I would definitely ask your oncologist about that.

    Have you checked out the Stage III Breast Cancer forum? You will get lots of support and advice there from women who are also dealing with Stage III cancer.

  • TuffMama
    TuffMama Member Posts: 22
    edited February 2015

    Thank you for responding. I'm not sure how to navigate among the forums, and I couldn't find my way back to here. I have asked my old hospital to forward my records. I think the problem is on this end. I may seek another group, but that, too, can be problematic. I will visit the Stage III forum. Thanks for your help.

  • TuffMama
    TuffMama Member Posts: 22
    edited February 2015

    Thank you, Lucy. I appreciate your kind words. :-)

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2015

    1TuffMama-I just wanted to extend my hope that you can get your records situation figured out a.s.a.p.

    You might want your old hospital to provide a copy for your own personal files so that you don't have to ever face this kind of paper circus again. hat you are dealing with is stressful enough without that.

    Good luck to you.

  • Avrenim156513
    Avrenim156513 Member Posts: 47
    edited April 2015

    I also find that family and friends also do not get it. I think that unless someone has gone through a life threatening illness, that person CANNOT imagine the stress and constant vigilance under we live. Yes, I worry about recurrence, but luckily as more time passes, I worry less. Usually it comes in force when I go for a follow up visit with the oncologist. What you are feeling is natural. The forums here are excellent and you will be able to share with people that understand exactly how you feel. I feel a lot better when I see that I am not strange or abnormally fearful. I hope that the same will be true for you

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited April 2015

    hello everyone, I think worry is a natural occurrence after a BC diagnosis, and that sent me into a tizzy, I am 64 and thought I had the death thing all straight in my mind, but nope, I am too young to go. Well after praying and processing it some more, , we really are not given a choice, but I decided not to worry continually about it, I believe we must stay positive, and will yourself not to worry, the moderators are right, if it consumes you, go see your DR and he can help you get thri this, we will all help you, be happy you are here today, and everyday you get. We will survive.

  • LM070917
    LM070917 Member Posts: 323
    edited May 2016
    I'm a month out of rads and I do think about recurrence esp because of my stats and young age, but as people have said I try to not let it consume me.

    I do try to minimise my risks of it coming back, I exercise 3-4 times a week, I don't drink alcohol anymore, I watch what I eat (no sugar or processed) and I try to destress with yoga. I find now that I'm healthier than ever before and I'm happy. I try to push negative thoughts away and just try to live a happy life.

    None of us are guaranteed tomorrow, so I live everyday as best I can. I joined a young women's support group (I'm 35 years old) and found it to be emotionally and mentally very good to let things out.
  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited May 2016

    lottiemarine, good attitude, we have to keep going, most of us are driven by family, so if we have family, use them, otherwise, maybe a little therapy always helps.


  • wallycat
    wallycat Member Posts: 3,227
    edited May 2016

    I think it is natural to think about recurrence. What some people call "worry" others may call "diligent" and others may say "obsessed." It really (to my mind) depends on how it defines your life.

    When we are going through treatment, we feel watched and cared for and that it is so early in the game, recurrence odds are less for us. As we complete treatment, many of us feel like we are flying without a net. Many docs do not do screenings, labs, tests, etc. and only go by symptoms. For me, that is a can of worms. THe poisons we took to help us live cause some of the very symptoms that we are told to "watch for." It means that every ache and pain becomes an "oh no" in my head. I give it the 2 week window before I totally flake out, but sometimes it takes 3 or 4 weeks and that's when the mental jostle of "should I go in? is this old age? is this nothing?" starts to dance in my head.

    I don't think there is anyone here wishing it would come back or waiting for death, but breast cancer is the only cancer that is incurable. Since we can always get a recurrence, we have to wait till we are dead of something else to know BC is not our killer...and for some people, that is a heavy toll emotionally and psychologically.

    For me, some days are filled with thoughts about it and then I can go months and months without so much as giving it a passing concern.

    Each day, I hope we are closer to a cure/vaccine/treatment so that those of us who are weighted heavily with this can let it go.


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