Please tell me this gets easier

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Can someone please tell me this gets better? I was diagnosed on 12/1/14 at 35 yrs old. My lumpectomy is 1/12/14. I do not know if I need chemo or not yet until surgery. I am terrified everyday when I wake up of what's next to come. The Xanax helps me sleep, but I wake up around 5-6 AM and cannot go back to sleep. The morning anxiety is horrible. I am so emotionally drained. I can't get past the fact that this thing is in my body for the next few weeks. I have read so much stuff online that I should not have read. It seems like every story out there is a bad one and few are positive. I can't believe I went from thinking I was going to live to be an old lady, to being excited at hearing stories of people that live 10 years after diagnosis. I think wow, if I can make it 10 years! Every ache and pain I have I wonder, has it spread? I need someone to tell me that yes I have a shot of living a long life after this because right now I cannot see past the doom and gloom. I try to do something "normal" and my mind goes - you have cancer, you can't be normal. How do live my life with this uncertainty.

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Comments

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    yes, it gets easier. You are at the worst of it right now. Once your treatment plan is in place, things happen faster, and you WILL feel better! The waiting is the worst.

    Remember to breathe, and enjoy the holidays. You can do this!!!!

    Best wishes

  • 208sandy
    208sandy Member Posts: 2,610
    edited December 2014

    Breathe!!! Yes, you can get through this and no, please don't read anymore Dr. Google - the stuff out there is old and lots of it isn't true - until you have your path reports in hand everything is on hold. Try to put this "up on a shelf" and enjoy the holidays to the best of your ability - I can tell you from first hand experience that keeping busy is the best tranquilizer of all and at this time of year there is more than plenty to do - get lots of exercise - long walks are good, eat a healthy diet and if you find the anxiety getting to be too much talk to your PCP about an anti-anxiety drug to see you through - and stay here at BCO because we're here to listen and to hopefully help.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Hang in there Shelley,

    As you can already tell, our wonderful Community is super supportive and will help you along the way. It's scary right now, but the other members here have lots of experience and will surely be a great resource of knowledge, support and advice as you navigate your treatment. Take a deep breath and continue to ask questions, rant, and share. We're all here for you!

    --The Mods

  • ml143333
    ml143333 Member Posts: 658
    edited December 2014

    Shelley - yes, it really does get easier to deal with.  Once you get your pathology report back, you and your physicians will know better what you are dealing with and come up with a firm treatment plan.  I found that once I had a treatment plan in place, I felt more at ease.

    You will always have some doubts and fears, but they do get more manageable.

    I agree with Sandy, please stay away from Dr. Google.  He won't make you feel any better.

  • MagicalBean
    MagicalBean Member Posts: 362
    edited December 2014

    Shelly, we have all been right where you are. It gets better, believe me. There are so many positive stories out there. Check out the forums here and you'll find so much help and comfort.



  • MaxineO
    MaxineO Member Posts: 555
    edited December 2014

    Yes. It gets better. I got my diagnosis the same day as you...4 years earlier. I tell people the month of tests, etc. prior to surgery was a complete blur; I hardly remember it I was so overwhelmed with anxiety. Eventually, you will accept that everyone lives with uncertainty, and you will feel stronger for it.

    Until then, we are here to support you. There is a lot of wisdom on these boards and a lot of shoulders if you need to cry. It will get better. I promise.

  • shelleym1
    shelleym1 Member Posts: 298
    edited December 2014

    Thank you all so much. It is such an incredible shock to go from never needing surgery, hospitalization, etc to this. I have cried every single day. My mother tells me this is just going to be a bump in the road and I will be OK. I just can't see the light at the end of the tunnel right now.

  • NatsFan
    NatsFan Member Posts: 3,745
    edited December 2014

    Oh Shelly - as you can hear, all of here understand completely what you're going through. Like everyone else has said, the absolutely worst time of all for me was that first month or so right after I was diagnosed until I finally had my surgery. Once you have your surgery and your pathology report on the tumor, you'll get a game plan in place. With that, you regain some control, and it really does get better.

    My suggestion would be to crank up your workouts during this waiting time. Exercise is a fabulous stress reliever; also the extra fitness you gain with a couple of weeks of workouts will be invaluable in helping you recover from surgery and treatment. If you're not an exerciser now, do some simple things to start. Even walking would help - set aside 30 minutes a day to walk - make it a priority. You may want to do some core-strengthening exercises as you won't have good use of your upper body for a while after surgery. Pilates, yoga, or even some crunches will help build some core strength - there are all kinds of videos on YouTube if you don't know where to start. Even small things can help build some core strength - for instance, practice getting up from a chair or the couch without using your arms to push off - get up using just your legs and core. You'll find that's an invaluable skill to have after surgery. If you want some support or just want to read about active survivors, check out the Fitness section's Let's Post Our Daily Exercise thread. You'll find postings from a supportive group of women who are active, exercising, and feeling great after cancer.

    It will be 7 years on New Year's Eve since I was diagnosed and I'm here to tell you there really can be a life after cancer. And yes, there's more than a shot at living a long life after cancer - I have no intention of going anywhere any time soon!

    Hang in there, do your best to take care of yourself and enjoy the season. Stay off the internet except for this website. And make time for yourself - treat yourself to a mani-pedi, buy a new pair of shoes, splurge on some outrageously expensive chocolate, or maybe buy some cheerful neon colored tech fabric workout clothes to jumpstart that exercise program! Check back here as much as you need - we're all here to support you.

  • Cuetang
    Cuetang Member Posts: 575
    edited December 2014

    shelley-- another voice to the it gets better crowd. Until I had my surgery and treatment plan, i learned to use what i could to get sleep and relief from thinking about cancer 24/7 (xanex, ambien..). You're absolutely right-- like you, before BC, I took absolutely for granted about living to be an old grandmother enjoying her grandkids to being slapped in the face with mortality issues. You can't see it yet just now, but even in a few months, you'll be in a spot to share advice and guidance to others that are newly diagnosed. Hang in there and post your questions, chat with us. There's a BC sister here that will be here to support you every step of the way. For now, remember, life goes on. Your dishes and laundry will need to be done, you'll still have to continue your daily activities. Don't let BC take away any more than it already has from the joy of life. Kick it in the @$$! We're here for you on your journey...

  • jwood
    jwood Member Posts: 2
    edited December 2014

    I was diagnosed with her2 positive on my 60th birthday! almost 3 yrs now. and still cancer free. had lumpectomy and all 13 nodes in rt arm pit removed. lost 17 lbs tween 2nd and 3rd chemo. not so sick with rest . most issues are after.. hair loss was not so bad as the eyelashes and eyebrows.. dont know why but it was for me. steroids put 50lbs on me ugh.. still trying to lose. no one in family has had breast cancer.. lucky me. I was very angry.. but found friends to support me when family could not. I battle anemia now and food taste.. but other wise doing good! STAY OFF INTERNET.. best advice dr gave me.. news is either old or worse case scenerio.. here always to chat and support

  • Ridley
    Ridley Member Posts: 634
    edited December 2014

    I agree with others who have said you are in the worst stage -- you know you have cancer, but don't know all the specs re: how bad it is (or how bad it isn't) and you don't have a treatment plan.  This part of the process sucks plain and simple.  But it does get better. 

    I haven't read all of the other responses, so this may be a repeat, but here is my advice -- do things to distract you -- go to a funny movie (yes you will still think of cancer, but you will also laugh at the jokes), walk with a friend, listen to loud music that you love, do something to help someone else (volunteer), try to meditate or do some yoga if you like that kind of thing, sleep when you need to.   Try to limit your time on the internet (except for this thread) -- you can spend days researching stuff that will never apply to you (been there and done that!).  Talk to your doctor about what else might help chemically.

    All the best with your path ahead -- Ridley

     


     

  • bobogirl
    bobogirl Member Posts: 2,777
    edited December 2014

    Shelley: It gets better! Our Natsfan has really great advice -- all of these sisters do. Rant on, Shelley, we can hear you!

    Excellent advice, repeated:

    1. Step away from Dr. Google! Really. You may have to make this a permanent rule, if possible..

    2. Workout advice. Natsfan is right on. Pilates a perfect idea. I love yoga too. I started running after dx. I was diagnosed at 38, with 2 two-year-olds. Running was great for my 'fight-or-flight' instinct.

    3. Get a cute sweatpants outfit for doctor's appts. This is the time to splash out on a juicy couture one, if you've always wanted it, but I didn't need that and just did... they were like basketball player's pants, so I could step into them easily, and then I had a comfy fleece jacket, and I saved them for appts. No deciding what to wear. Easy on and off. Easy to wash. And then, when you're completely done with appts, you can burn them and never have to see them again.

    4. Better living through chemicals. This is the one thing I wish I had done differently. Am super-organic, runner, vegetarian, etc. etc. But oh, how I wish I had taken some Ativan. There were whole years in which I never took anything. I would go in to testing and appts terrified. Take some Ativan, or some Xanax, or whatever. In fact, see an Onc Psychiatrist and do the whole thing properly. No one should have to walk around in terror like that.

    5. Nutrition. Nats fan is spot-on again. Can you juice? Or go to the juice bar? Can you get CRAZY SEXY CANCER by Kris Carr? She has great veg juice recipes. Can you add a protein smoothie to your daily food intake? You've got to keep your vitamins and protein up. Even with a lumpectomy, you'll need lots of protein to help you to heal.

    6. We love you already! You can do it!

    XXX

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited December 2014

    Yes you can do this. Stay busy. Bad thoughts in the am. Get up! Clean, bake, sing, dance. Try to stay in the present. We've all been in your shoes. Yes it's difficult. Xanax is my friend too:)

    You'll feel better once you have a plan. Not knowing is the worst. It's easier to fight when you know what you're fighting. Surgery, chemo, rads are all doable.

    Eat good stuff. Eat and drink regularly. Everything is worse when you're stressed. Hang in there. There's always someone around 24/7 on these boards.

    Candy crush was my secret addiction.

  • shelleym1
    shelleym1 Member Posts: 298
    edited December 2014

    You all have no idea how much your kind words mean to me.

  • glennie19
    glennie19 Member Posts: 6,398
    edited December 2014


    You can do this, Shelley.  The waiting is the hard part.  It will get better when you have a plan.  Listen to all the above advice. Lots of smart ladies here.  And someone is always around to talk to.  When the US is asleep,  Australia is awake!!  You gotta love time zones!!

    Stay busy.  What do you like to do?  Read, bake, sew, run, bike?  Exercise is great help. Funny movies also good distraction.  Xanax is a good friend. Hang in there, and keep us posted.

  • ldesim
    ldesim Member Posts: 1,333
    edited December 2014

    Shelley, we've all been where you are now and yes, it is so very scary at first.... but trust us, it will get easier as your treatment plan is put into place.. and you are going to meet some amazingly incredible ladies during your journey on this site.. we are all here for you. It does and it will get better. Listen to the ladies and do not Google. Bring somebody with you to your appointments because it can be very hard to absorb all the information that will be thrown at you.. everything will happen very fast. Keep us posted on how you are doing and lean on us to help you through the bad times!


  • Rose0766
    Rose0766 Member Posts: 92
    edited December 2014

    I too, like you, was terrified of this whole process. I am 48, was getting ready to make a move to Florida with my retired husband to start life together as empty nesters. Went thru the whole variety of emotions. I was pissed off, scared, sad, and couldn't believe I was diagnosed with cancer. How could that be? I'm a nurse, I take care of people with cancer, I don't get cancer. As you move thru this journey as some people call it, ask many questions, don't assume anything, once you have surgery, you will be informed of your plan of treatment, you will have many questions, bring paper and pen and someone with you for that appointment. It's good to see the big picture, but taking this one day at a time was the way I handled it and continue to do. Cry when you need to, accept help when it's offered, you are not superhuman aand you're going to have good days and bad. You will get thru this! It will be one of the hardest things you ever do. I'm calling it the hardest job I've ever had and never wanted. You will become a warrior then a survivor just like the rest of us. We are here to listen and offer support. Good and positive thoughts as you begin this process!

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2014

    Shelley right now you're in the worse of stages just being diagnosed......

    Yes it will get better once you start your treatment and you know where you stand

    I'm almost a 10 year Survivor......There is hope and treatment options are growing....

    I wish you well and sending calming hugs

    Sheila

  • Rose0766
    Rose0766 Member Posts: 92
    edited December 2014

    sheila888- WOW you give me hope, Thankyou for sharing, I have at least two nodes positive, but I'm hoping all the chemo is doing its job and killing those little floating buggers! Longevity is what we all hope for

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited December 2014

    Shelley....once you have an active treatment plan in place it will get easier. Since you have excellent prognostics, you have many choices ahead! While you are waiting, take some time and register at the NCCN'S website and read the professional version (red logo) of the 2014 breast cancer treatment guidelines. Take special note of page 100 and beyond where it discusses endocrine therapy.


    Knowledge is power. Your situation now is just one bump in the road on the journey through life. Hang in there! Better days are ahead!

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2014

    Shelly,

    It all sucks ! Sorry, you are too young to have to deal with this chit. Yes, it does get easier after surgery & you have the pathology report in hand. But it is still a scary roller coaster that you want off, NOW.

    What I hated the most, when I was first dx, was everyone chirping at me " just stay positive". I realize they meant well, but I wanted to smack them upside the head.

    Hopefully, you will not need chemo. My lumpectomy was really easy. Radiation, not bad, just time consuming. Chemo comes with more challenges, time off work, fatigue, baldness.

    Posting on BCO is a great way to relieve the stress & anxiety. We get it.

    Also, sorry you have to wait so long. I was dx on Tues, surgery the following Monday...

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited December 2014

    Shelley big big hugs to you. I was exactly the same way when I was diagnosed 6 months ago. The beginning is just awful. It's like somebody pulled the rug out from under you. Before BC I too was thinking I would live to 90 like my mother. Who knows I still might. In the beginning I too would wake up at 5 in the morning and that dreadful cancer diagnosis just hit me smack in the face. It still does but not like before and lots of times during the day I forget about it. It is true once you have the full picture you will feel so much better. I had to do chemo and was freaked about it but it hasn't been as horrible as I thought. Hang in there and feel free to PM me. We all understand your feelings.

    You will get through this. Heck if wimpy little old me can anybody can.

    Hugs

    Nancy

  • agapornis
    agapornis Member Posts: 67
    edited December 2014

    Shelley, hang in there. I was just like you when I was diagnosed 18 years ago. Years pass and I'm still here. I wish you many many healthy years and merry Christmas.

  • shelleym1
    shelleym1 Member Posts: 298
    edited December 2014

    It really stinks to be diagnosed around the holidays because now I'm wondering if I'll always associate Christmas with this diagnosis. I am an over analytical thinker so my mind always has to know what the worst case scenario is going to be, what the chances are it will happen, how to cope with it, etc. I am trying to be positive for my family on Christmas, but it's hard. I receive a pair of new shoes or sweater and think to myself, what's the point of getting a gift. Who knows if I'll be around long enough to even wear it. Don't waste your money. I've convinced myself it's in my bones, etc.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    As we like to say, better living through meds. Sounds like there is some depression going on, it's common. Your docs can help you if you tell them. Nothing to be afraid or ashamed about. As for gifts, unwrap and enjoy them! We don't have a visible expiration date stamped on us. Enjoy today! Make plans for the future! You can.

    I guess just about all of us make some plan for when treatment is OVER. Some plan a cruise, a vacation, or some really nice self treat. I spent the day in Orlando at a dog show. Maybe not for everyone, was extra special for me.

    Start planning now, get your mind off the present

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2014

    ah Shelly, our minds go into super overdrive...flight or fight...

    I still, 18 months later would like a day off, mentally & emotionally. My dx is scary. Then I feel guilty, cause so many ladies have it worst, at a much younger age.

    What I have learned, is if I keep busy with certain tasks, it takes the edge off my worry. Working in my flower garden, painting, golfing, helps. Of course it's winter now, I live in a cold climate, so I am painting the doors in my home.

    I thought when I was done with active treatment my obsessive worry ( anxiety ) would get easier. It escalated, but slowly, I am becoming more relaxed. I do not feel confident that it won't come back, but it is what it is...

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    And I think, at least in the beginning, and a few years after, we all worry about every ache, pain, twinge, you name it. OMD!!! Has "it" come back! Probably not, but that too goes with the rest of this chit. If a concern lasts 2 weeks, get it checked out

  • AndreaJ50
    AndreaJ50 Member Posts: 889
    edited December 2014
    We have all been where you are: at the horrible beginning. Filled with fear and anxiety and sadness. But it really does get better, or at the very least easier to accept and handle. No shame in taking whatever meds you need to get through the stress. No awards for going "Meds free".
    My DX was similar to yours. . It went from every minute, to hourly, to daily....And now a year later I seldom think of the cancer anymore. Fill your time with whatever brings you joy. I watched a lot of Netflix originally, and did crafts. Whatever keeps you busy and distracts you. I had my surgery a week before Xmas, but don't associate it with the season at all.
    My neighbor had breast cancer and even had it in her lymph nodes....over twenty years ago!!!! She is still alive and kicking and enjoying life. I kept thinking of her in my down times. I hope this helps you.
  • shelleym1
    shelleym1 Member Posts: 298
    edited December 2014

    Thank you ladies. Christmas was good despite my diagnosis. My husband just took down the tree. It was so big and heavy he had a hard time getting it out. He got fed up and threw the Christmas tree out the front door. I said that pretty much sums up this month. lol.

  • Bcky
    Bcky Member Posts: 167
    edited December 2014

    Christmas was very hard for me. My family lives thousands of miles away. I am alone in the city living off money I have saved. I am in occupational therapy for my left arm that has lymphodema from my SNL. I had a left breast lumpectomy. I am due to start rads on Monday. I am scared to death. I was brave my first measuring on the rad table. I wept on the second measuring visit and could hardly let go of the rad therapist. I am terrified of rads as 10% of my heart will get radiation and 20% of my lungs. I am thinking and have discussed having my left breast removed. I don't know I can do rads for 6 weeks without a total breakdown. My parents are coming soon. Ativan has helped but I think I need a stronger tranquilizer. I have not slept in my bed since surgery 10/31. My oncotype is 13 and I am lucky I will not need chemo. I have read many medical journal reports and worry about the conequences of rads as I was a smoker for 30 years. I worry insurance will not cover a uni mastectomy and I may be forced to do rads. Most of my friends were my coworkers and clients at my new job. I left my new job when I got sick long before I knew it was BC.All my other friends live hundreds miles away. I moved to the city and started a new life and then found I had BC. I wake at 430 and 5 am terrified still. I have to wash my pjs at some point. I wear the same ones over and over. I have not showered in two days. I am exhausted emotionally and mentally.

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