Trying to find a common cause. Please help!
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ShazzaKelly - Don't forget that men can (and do) also get Breast Cancer! It is definately less common in men than womwn but it does exist unfortunately for them too.
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I think reading "The Emperor of all Maladies: A Biography of Cancer" was a turning point for me because I realized that cancer had been around for centuries and I was just lucky enough to live in a time where there were actually treatments and solutions to my type of cancer. After that, I just stopped wondering "why me" with no genetic predisposition, did all the right things---- the question then became, well, why not me? What would make me so special that I could not get cancer. Then it just made sense to get on with the living... everyone gets something-- people will get all sorts of illnesses in their lives-- through no fault of their own in many cases.... and it could make me crazy trying to figure out why--better and smarter minds than mine are working on that. In the 6 years since I was dx, amazing things have happened-- genetic things, treatments that are even more focused... it does keep getting better.
Cancer is a wide range of diseases, so preventing it will have to be a very wide ranging approach-just think about the over 20 different types of breast cancer-each with its own biology, its own solutions--- it is an interesting puzzle and there are lots of people working to solve it.....
I actually found my most peace when I stopped asking why.....
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oh I know men can get it too, I have a male friendwith Stage 4 Breast cancer. But really the biggest risk for getting breast cancer is being a woman.
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I, too, found The Emperor of All Maladies to be a very eye-opening book - and I read it long before being dx. I strongly recommend it.
I've never asked 'why me?' but I do wonder why - what set off the cascade of processes that culminated in this? I know I'll never know but it's a question that intrigues me and I don't think there's any reason not to ponder it from time to time. It's certainly better than letting the mind stray to some of darker places it's tempted to explore some days.
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Sunny8 - As a pharmaceutical scientist who has dedicated 13 years to discovering both treatment and causes for diseases ranging from the rarest of the rare to the most common illnesses, I want to encourage you that we ARE looking at the big question of WHY. Since we mapped the human genome in the late 90's, we have embarked upon a very exciting journey of individualized analysis, care and treatment. For example, we have a lot of knowledge now about the BRCA1/BRCA2 gene and the effects that mutations of such have on bodies. We also found the P53 and the PTEN mutation (which I have) and are still discovering what happens when these genes become mutated. We are also asking the question of WHY genes get mutated and how far up the chain of reaction can we move to prevent these mutations from ever occurring.
The other point that we all agree upon, is that our bodies do interact on several different levels with our environment. There is a lot of research going on to try and determine why one family member escapes the morbidities that all of the other family members have, whilst they still have the same genome pattern. For example, my paternal great-grandfather, grandfather, grandmother, uncle, father, both cousins and brother all suffer(d) from alcoholism and mental illness. Both of my cousins are dead from alcohol/drug abuse and lifestyle choices, my brother has schizophrenia, has abused all sorts of chemicals and lives in a halfway house. Yet, for some reason, I have none of these psych issues and live a very healthy and blessed life. Now, as a Christian, this is where my faith comes in and I realize that we are not all dealing with just atoms and cells, but with human spirit and our ability for freedom of choice. That is a whole separate conversation...but a fascinating twist on how and why things happen on this planet.
Bottom line - it's good to ask the questions. I personally believe that it is not healthy to ask "what did I do wrong", but instead, ask yourself "how should I now respond". How can I make a difference in not just my own life, but in others lives as well. We can leave a legacy of positive improvement, of showing grace and strength, of making a difference for our future generations. That gives me a sense of purpose and actually, in a very strange way, it gives me joy to know that we CAN make a difference. For me personally, my dream is to meet my Father in heaven and have Him say to me, "well done, my good and faithful servant. Well done".
Regardless of your beliefs - know that you can make a difference, we can pay it forward and we can get through this together as a sisterhood of strength. I will be thinking of you and hoping for the best!
With my true appreciation and understanding,
Akitagirl
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Dear Akitagirl,
Thank you so much for your post. What you say is so profound. "how should I respond" and How can I make a difference not in my own life but in other's lives as well. In a way I wanted to reach out to everyone hoping to spark a thought process. This discussion board is so powerful because it gathers us all together from all walks of lives and around the world with the same disease. If by pouring our hearts out here in a frank manner will trigger scientists and researchers to think outside the box then perhaps one day there will be a cure. We can't just say oh! it's been researched for years and therefore there is no solution.
In going through this process, I have an immense appreciation for the medical field and all that they have provided us so far. There were so many diseases in the past that were thought to be incurable but one day, some scientist or team of scientist will bring about change.
I realize the problem is that Breast cancer and many cancers in general pose a problem because there are so many aspects and so the researchers are going in multiple directions to find a solution. It's like going through a maze with a million doors and they keep opening but it leads to another door endlessly. But... I am hopeful that if we all pitch together and voice our opinions, it will be heard one day. If not this generation then perhaps in the generation of our children.
Look at how far we have come within the last decade? Of course there is no cure but I am so thankful some doctor out there was able to come up with a way to save the skin and offer nipple sparing mastectomy. Then for HER2 + the new drugs are truly life savers. I just hope that the scientist are looking at every possible angle . Sometimes, they are told to focus on a certain thesis and prove that specific theory but maybe we can bring up new ideas for them to examine. After all, we are the ones living with the disease.
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Hi sunny8. I certainly don't have anything as interesting and informative to write as Akitagirl. Her post was loaded with fascinating information! Your post prompted me to dig out a book I have titled "The China Study." Based on what you've written I believe you may find it interesting. There is a companion documentary to it titled "Forks over Knives." Another interesting documentary is "The Ghost in Our Genes," it's by Nova and is available on youtube. I plan on re-watching it this weekend, I remember it being very compelling. There's always another side of the story and I've seen negative comments about The China Study, but nonetheless it is interesting. It's always a good to research the opposing opinion of any idea.
Best wishes going out to everyone, the strength and positive outlook of people here are inspiring. This community has actually made me decide to live life a bit differently - do something good for my physical and mental health each day that I wouldn't have normally done. Even if it's as simple as trying to actually get those 9 servings of vegetables and fruit a day, having a smoothie, spending more time with our pets, passing on that last glass of wine I'd normally have, going for a walk and marveling at nature instead of being in a perpetual hurry, obsessing about a clean house, worrying about what other people think of me or being overly concerned about work! It snowed yesterday and last night and it's beautiful. I'm home from work, we live steps away from a stunning park so a walk is definitely in the cards today. Time to stop and smell the roses. Our dog will be thrilled!
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Well said Akitagirl and Amen!!!
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I posted this on another thread, it was related to birth control use and breast cancer. It explains my history a little, and that I cannot think of a "cause"
I am Cari
I was DX 3 weeks before my 32nd birthday, July 9th.
I always had a Non hormonal IUD. I never wanted children, and had an unwated pregnancy at 18 for which I had an abortion, so I wanted the BEST and most effective BC around. My OBGYN, who was trained in Europe and married a US solider, said that IUD's in other countries were readily given to women without children. So I have never used hormonal BC. I also eat a grassfed meat/chicken diet, mostly organic, etc. I would be considered highly healthy, with ZERO risk factors.
IDK what caused my breast cancer, other than crappy luck. -
Mistakes happen when cells divide all the time. The problem is when the mistakes don't include a way to stop the cell line or if you body isn't able to correct the mistake.
From what I have learned over the past year excess stress causes liver dysfunction as far as insulin regulation, general metabolism and detoxification of our hormones and other toxins we come across. Nutritional deficiencies can occur as well, starting with perhaps food choices, but also from antibiotics and not enough probiotics in our gut --- these deficiencies start to compound. Maybe you don't eat much red meat and are a big vegetarian and fitness buff, then you have depleted your zinc stores and your copper levels go up and lowered zinc impairs digestive enzyme production by the pancreas so you aren't able to digest all the food you are eating as well.
Then there is the range of detoxification abilities which varies somewhat from person to person. Some folks can't handle coffee and alcohol well and this overwhelms one of their liver's detoxification pathways when they try to keep up with the crowd... or use the substances to cope with life's stresses. Or you are trying to eat well but not quite enough leafy greens and besides soil depletion and modern farming methods result in foods with reduced magnesium levels -- and your poor liver doesn't have the building blocks to neutralize and metabolize properly.
The greatest risk factors for developing are being a woman and growing older -- but you can see how the longer you live the more life accumulates and the less able your body is to be manage all the stresses we throw at it.
I've been working with a naturopathic oncologist, doctor of Oriental Medicine (acupuncture and traditional Chinese medicine) and an energetic healer in parallel to my conventional cancer treatment. The additional information I have gained, as well as the additional treatment of my cancer and support of my body has been invaluable during this difficult period. There are additional support folks you can add to your team -- and if you cancer team isn't agreeable to this then you might want to shop around for more adaptive docs as it is your body. Regular oncology treatment is fairly one dimensional in its approach -- only looking at treating the cancer but not looking correcting the conditions that allowed it to develop in your body.I'm happy to chat more if you want to send me a private message.
Hugs,Ann
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There is a book called Healing Spices by Bharat Aggarwal. He is at MD Anderson Cancer center in Houston. He is currently professor of cancer research, biochemistry, immunology and experimental therapeutics.
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There is no rhyme or reason to a BC dx............whatever you do......you can't prevent it.
I'm over 6 years out from dx and I've seen the whole gambut of people dx..........
There's those who eat only fruit , veg, no meat, no dairy etc etc but they still succumb to this horrid disease..........so don't beat yourself up about it.
I know when you're first dx you look for a reason...........for me it was stress......my Dad died 6 months before..............but we all have different reasons........
Please don't google too much, or look at statistics etc........they're not you...........I was given a poor prognosis but I'm still here enjoying life...........
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It's easy to fall into wondering about "why" we get cancer. The truth is there's no way to figure it out. If the experts knew what caused it then there would be a cure by now, according to the doctors. It it were food everyone would have it. If it were from not exercising enough fitness guru's wouldn't have it. If it were from alcohol a lot more folks would have it. Sure, we need to eat right, exercise, not overdo alcohol, etc to improve our overall health but it's not going to stop cancer, if it wants to invade our bodies. That's just how it goes. It's a tough pill to swallow and it sucks but all we can do is try to better our health and live each day. That goes for anyone. Nobody deserves this damn disease, but it happens.
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I read the Emperor of all Maladies. Thank you for recommending it. This must have been the best book I have ever read! Especially for people with Breast Cancer!
I'm hopeful that finally the scientists are on the right path to find a cure for cancer... which is to take many paths.
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Brettsie, if those things caused cancer everyone would have cancer. There are many carcinogens out there that "contribute" to poor healthbut there but there is more to the story.
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You lost me at "For example, we've got a generation of gutless & weak feminine androgonous so-called males, the kind of mama's boys who hung onto teacher's hemlines back in school, the type who snitch, kiss-up and brown-nose their way up the ladder."
The sexism is offensive.
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Brettsie, while we're all entitled to our opinions some of your stuff is offensive like what Wrenn points out. Blame Cancer on what you want but honestly when you say things like the chemicals, food, etc., it's like saying getting Cancer is our fault for eating certain things or using certain products. I'm sure that's not your intent but a lot of people who eat "healthy" and use organic products DO get Cancer! They also get other illnesses. We appreciate input but sometimes we need to think before we say things and take our foot off the gas. Peace!
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There isn't a "common cause" for cancer because there isn't a common cancer - cancer is multiple diseases grouped under the umbrella we call "cancer" - I don't like the "blame the victim" model either nor do I understand the anger towards the opposite sex.
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"You lost me at "For example, we've got a generation of gutless & weak feminine androgonous so-called males, the kind of mama's boys who hung onto teacher's hemlines back in school, the type who snitch, kiss-up and brown-nose their way up the ladder."
You've lost me as well and I find that to be quite untrue as well as an offensive generalization. I am a long time teacher and have yet to witness this phenomena. You are entitled to your opinion, but cancer is an umbrella term with lots variations under it.
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Sorry but anyone who brings up chemtrails in anything more than a tongue in cheek manner is not someone I can take seriously. Chemtrail is NOT a common term outside of conspiracy theorists. And the comments about "androgynous so-called males"? No words that have not already been said. I am a Canadian woman but am going to borrow that lovely saying from my sisters much further South: "bless your heart".
That is even too kind for someone expressing such sexist attitudes
Breast cancer - and other cancers - predates airplanes, trains, cars, hormonal birth control, vaccines, hormone-injected meat, fluoridated water, plastics, x-Ray machines, and on and on. The biggest risk factors are being a woman and getting older. Period. 90% of breast cancers are sporadic, meaning there is no known genetic or hereditary cause. Certain things are supposed to increase risk, certain things to decrease risk, but nothing can eliminate risk. I've know lifelong vegans to get breast or other cancers, and decades of pack a day smokers and heavy drinkers to die cancer-free.
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Ah DiveCat - I am also a Canadian and I spent 25 years living in the south and your "bless your heart" comment gave me a good giggle (and I needed that today). Thanks, S.
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I just downloaded The Emperor of All Maladies. It looks very interesting. As for me, I suspect its genetic. I would hazard a guess at CDH1 given my grandma and aunt died from cancers in their digestive systems in their 80s but who knows. I am not going to lose sleep (which I don't have anyway LOL) over it. Finding my ILC so early was a fluke so I feel fortunate and am not too concerned about why. If it should return I will worry about it then. For now I am just trying to eat reasonably healthy, exercise more and worry over my Patriots that are currently in a close game with the Jets.
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The Emperor of All Maladies is a very good read. Yesterday, I received Bathsheba's Breast by James S.Olson and it is very good so far as well.
Edited to remove comments related to posts that have been completely removed from this thread as well as references to a member who apparently no longer exists
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Brettsie, this could very well be my chemo brain but I am not understanding where you are seeing the dissonance here. Your inclusion of the definition of the word follows the theme in your posts...condescension. Your posts have a scolding tone as if we are all stupid or not 'getting it'. I think the unhealthy attitudes and behaviours are when someone refuses to be open to anything that might be considered "conventional". It is like me stubbing my toe and blaming Obama.
BTW, men get breast cancer...even the sissys.
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Amen to inclusion and diversity, and just letting everyone be who they are. Cancer does not care for sure.
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Your husband, male friends, and male relatives sound delightful if they believe there is a certain way that a "man" must be, and take delight in pointing out out men (and boys) who do not fit that mold. I feel for their sons, nephews, and so on who will grow up with those attitudes. I am fortunate to live amongst men who are far more diverse, open-minded, and secure enough in their sense of self not to feel a need to attack the individuality or personhood of other men or boys.
No cognitive dissonance here. I also do not see how your use of the term applies to the posts here. You will note that I actually do not have cancer. I am (was) however at high risk for breast cancer due to genetics. What I am against is victim blaming and conspiracy theorists coming on here to raise false alarms.
As for the chemtrails, please provide me minutes and details of those alleged meetings. The common term for those trail clouds is contrails (condensation trails), not chemtrails, so I would want to actually see discussions of CHEMtrails, and not just discussions on high air traffic, noise pollution from air traffic, visual pollution by contrails, and the like.
The idea that the government is secretly releasing other substances into the environment through chemtrails is indeed nothing BUT conspiracy theory. I challenge you to provide any non-conspiracy theorist sources for otherwise.Maybe you should do your own due diligence before attacking others?
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Well said DiveCat!
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Hello ladies:
Lets try to stick to the original topic of this thread which was sunny8 wondering why she got BC and trying to see if there are common causes among people with BC. As a recent inductee to the club ( member since May 2014), I too wondered why with no family history, life long non-smoker, I got BC. I think it is normal to wonder at first. So like many people do, I researched everything I could find. The only thing I found that pertained to me was studies finding people with M.S are more likely to get cancer, especially breast cancer. The major study was done in England. I don't know if this finding applies to all autoimmune diseases, or just MS. Makes since if your immune system is already battling another illness, you may be more likely to develop cancer. However, no one knows for sure. Even if medical science could tell us each one why we got breast cancer, we would still have it.
We should all support each other in our fight against cancer. Isn't that why we visit these sites in the first place?
Holiday hugs to all.🐱
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Caryn, I found Bathsheba's Breast to be a very interesting read. I'll be interested to hear what you think of it.
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