Scared and worried

JustDiagnosedToday
JustDiagnosedToday Member Posts: 24
edited December 2014 in Just Diagnosed

I'm new to this site. I'm 36 and I was diagnosed today with Ductal carcinoma grade 2 in my left breast. I don't see the surgeon for 2 weeks. I'm confused and numb all over. I have not been able to think straight today. I appreciate any advice that can prepare me for this.

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Welcome to Breastcancer.org. We're sorry you have to be here, but glad you found us! Yes, it is a shock and we appreciate that.

    Besides sharing your experiences and learning from other members here at the boards, you may also want to take a look at the Breast Cancer 101section from the main site, which is designed to help you sort through all of the information on our site to find what is more relevant to you right now.

    Also reliable information on DCIS — Ductal Carcinoma In Situ, Diagnosis of DCIS where you'll learn about symptoms, diagnosis, treatment, etc.

    Possibly of interest too is the Oncotype DX Test

    We hope this helps!

    The Mods

  • placid44
    placid44 Member Posts: 497
    edited December 2014

    Sorry to hear the news. Where are you located? that might help people offer advice. Two weeks seems like a long time for you to have to wait for consult with surgeon

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2014

    JustDxtoday,

    SORRY, not fair.....you are young, should not have to deal with the horror of breast cancer. It is a scary roller coaster. Being dx & making the next decisions.

    I hope you like your surgeon. Hopefully they caught it early & you won't need chemo. Until the surgeon gets in there & removes it, it's somewhat of a guessing game. I went into surgery stage 2, came out stage 3.

    My surgeon was pro lumpectomy. I went with it, it was fairly easy. Chemo was a nightmare, but it is not for everyone. Take someone with you to your first few appts. Have them take notes, or record the appt., if allowed.

    Be kind to yourself. You did nothing to cause this, it happens, sadly.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2014

    I remember when I was first diagnosed-I couldn't sleep/eat or think straight. I was so scared and felt alone. I didn't know about this site until after surgery. I'm glad you have found this community because you will find support here. It is hard not to worry but worrying is mentally torturing and physically draining and it robs you of peace. I found exercise helped.Hang in there my dear. I'm praying that you will have good outcome.

  • hrf
    hrf Member Posts: 3,225
    edited December 2014

    So sorry about your dx. But there is a lot of support on these boards. The women here helped me more than I could have ever imagined. Gather as much information as you can about your own dx. It helps to be knowledgeable as you will feel more in control and you will learn what your options are.

  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2014

    So sorry you have been diagnosed..and at such a young age. I was diagnosed end of August, and know how scarey it is in the beginning.. but like others have said, this site will be a tower of strength for you..and although it's hard to believe you will start to feel better when you get your path report, and your treatment plan is decided.. There are many wonderful women on this site, so know you are among friends here..Sending you calming thoughts and hugs.

  • jarris77
    jarris77 Member Posts: 100
    edited December 2014

    Hi Just diagnosed today,

    Sorry to hear about your diagnosis. Just wanted to let you know that a lot of us have been in your shoes and we know exactly how you feel. I also wanted to let you know that if you do find out that you have to have chemo, it's not ALWAYS that bad. I was one of the lucky ones that had hardly any side effects. It sounds crazy, but I was actually relieved when I was told that I needed chemo. I wanted to know that I had done everything that I could to fight my breast cancer. I'm not saying that chemo is fun, just don't want you to have any extra worries right now, you have enough on your plate as it is.

    Wishing you the best

  • RobertaL
    RobertaL Member Posts: 6
    edited December 2014

    I also am new to being diagnosed with BC this past October. I had my surgery last month and I'm now waiting for my Oncotype score to come back. I had a nightmare last night that it was 63. I too am suffering from extreme anxiety and scared that I'm going to die from my BC. I just want to feel my old-self again and not worry about my BC 24/7.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited December 2014

    One of my dear friends who is over 8 years out, said after about 5 yrs. you quit thinking about it daily! That is not much encouragement...but what I really want to say is that maybe you should call your PCP for something to help you sleep at night...both of you newly diagnosed ladies above need to sleep to keep up your strength. Many, many ladies have needed a sleep aide or something for anxiety during this time.

    Once you have a plan in place, things will seem a little easier, because you are doing what is needed to get better.

    Come to these boards, there us so much support here.

  • JustDiagnosedToday
    JustDiagnosedToday Member Posts: 24
    edited December 2014

    Thank you very much for the support and comfort. This site has eased my anxiety a LITTLE bit :(. I survived invasive malignant melanoma in 2007. I have a horrible scar on my leg that I'm embarrased of. Now that I have been diagnosed with BC, every possibility is running through my mind. I called the surgeon office today an she's not in the office next week. So I'm really going to wait and stress on the (what if's). As I'm reading other stories of everyone's journey on here, I feel like I have hope. But I can't stop thinking what if it's worst than what my report is saying. When the surgeon removed the cancer from my leg, it was more than they thought it was. I literally feel like I have the flu from the stress and worry. All I can do is pray!! I have a loving support team from my family and friends!!

  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2014

    justdx.. Oh.so sorry you have such a long wait to speak to the surgeon.. Waiting is the worst oars.. As hard (impossible) as it is, try to not ponder the "what it's " too much for the next week... and gain comfort from your wonderful family and friends, and your prayers.




  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited December 2014

    Waiting was the worse part for me. It is wonderful you have a loving support team from friends and family. Praying and keeping my focus on the Savior rather than myself has helped me tremendously. With this journey, I am reminded that we are not immortals and thatwe are only here temporary. Hugs to you. May He grant you hope and peace.

    Thuy

  • Mchelle5520z
    Mchelle5520z Member Posts: 4
    edited December 2014

    Hello. I really feel your anxiety. I am 37 and was diagnosed last week with stage II , grade I , invasive ductal carcinoma. At first I knew it was cancer, but not what kind. There are so many variables. After you get a pathology report and talk to doctors, you really do not know what to think. But it is good to write things down, so you can recall it later. Hope the best for you.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited December 2014

    I was diagnosed in November.. Lost my appetite and lost sleep. So sorry you have to deal with this. This is the worst time they say when you feel like everything is falling apart and you don't know what is happening. You couldn't be in a better place. I am an information junkie and have gotten everything I need and then some plus more importantly the support I needed from this site. My cancer was a different type and I ultimately opted for bilateral mastectomy and so have gotten wonderful support from the face book page Flat and Fabulous mentioned in one of the forums. Gentle hugs!

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2014

    jdt, sorry you found yourself here...my best advice is to take one day at a time, try to stay busy doing things you enjoy and BREATHE! Waiting is the worst part. Take something to help you sleep if you need to. Take someone with you to your appt. that can jot down notes for you. It's hard to remember everything when your brain is in a fog!:). For me, once I had all of the pieces of the puzzle and a plan in place, things got considerably easier, mentally. Look what you have been through already! You've got this. Wishing you the best.

  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2014
    1. Michelle and Chloesmon.. Hugs to both of you too.. The only good part of this is meeting so many wonderful ladies on this site.. Some of the " happy threads " make me laugh every day 😃

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