help with the pathology report

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shaz101
shaz101 Member Posts: 718
edited December 2014 in Just Diagnosed

Hi, I was told yesterday I have a malignant mass in my left breast. Apart from the Dr is referring me on to the oncology ward for surgery I don't remember much else. I have the mammogram, ultrasound and biopsy reports. What does it mean? 

The imaging says 

A stellate mass with speculated margins...hypoechoic multilobulated mass

Sonographically and mammographically malignant lesion

The biopsy

Some pleomorphism and hyperchromasia and a bunch of other words.

Due to Xmas apparently I may not have surgery until January. Not sure what to do now 😣

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Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Hi shaz101, we're so sorry you got this unwelcome news... We understand all this new information can be very confusing and overwhelming, so we hope it will help you a bit to read through the articles Your Diagnosis and Getting Your Pathology Report from our main site. In these sections you'll learn more about what your pathology report means, and will help you be better prepared to talk with your doctor on your next appointment.

    We are all here for you, and sending warm cyber ((HUGS))!!

    The Mods

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Thankyou. I've read and downloaded a heap of stuff. My heads reeling. I have an appointment with the surgeon on Wednesday morning. Boy that was quick. So hopefully I will know more then. My mum is going to come with me, so hopefully she will be able to help me make more sense from it all.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2014

    Shan, sorry to hear of your diagnosis.

    You learn as you go. Try to take things a step at a time. Take deep breaths. You will get another piece of the puzzle when you visit the surgeon. Best wishes as you figure out your best course of action

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Thank you. Time goes so slow sometimes.

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Well it's the night before my appointment with the surgeon. Stress is starting to build up. I hope the surgery isn't too far away. This waiting is horrid.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited December 2014

    The waiting is the worst part. the beginning is the worst. I'm so glad they are moving quickly.

    You'll see, the surgery will be a breeze and this will be nothing but a horrid memory before you know it.

    Hang in there and try to get by moment by moment. Remind yourself that in this moment you are ok. Try not to think about the next moment and before you know it will all be past. Good luck!

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014
    • Thank you timbuktu. I feel so alone at the moment. To scared to really talk about it because no one really understands. Friends say things they think will help. Like they have nice bras and implants now I'm sure no one will ever notice and your hair will grow back really healthy!!!
  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hello Shaz, so sorry you're feeling so alone right now, but so glad you found this place, because everyone here really understands how you feel. When you have more information, you'll find women with the same Dx, will come to share their experiences with you. This is the worst part, while you wait for all the pieces to fit. We don't do fear of the unknown very well!

    We have all experienced the things people say, when they don't know what to say, Unless someone has felt this fear and heard the Dx, they truly are clueless as to how we feel.

    I wish you all the best for tomorrow, try to have a good rest tonight. It is great that your Mother is going with you, it is important to have another set of ears, when there is a lot of information and just having that support makes it easier.

    Let us know how you get on! Hugs to you!

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2014

    Even we don't understand what is going on with u cause we r all different,  get where u r but it is different 4 everyone

    Friends n family mean well

    Good luck

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Thank you ariom and blondiex46 I'm so glad I found this site. I can share my thoughts with people who really understand the process. I know by reading yours and a lot of other people's forums that this is the worst part and that when I get a plan I will gain control of my life. I'm so nervous about my appointment in 3 hours time, but at the same time it can't come soon enough. I feel stuck in limbo. I'm not sure about Xmas or work. I've already had a number of days off testing and getting results. I Worry about my finances. How am I Going To pay the mortgage. Silly know I'm sure it'll be OK.

    Thank you all xxx

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2014

    Shsz let us know what happened 

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hi Shaz, I guess you are at the Doctor's office right now. I was wondering how you were getting on. Where in Aus are you? Do you have a McGrath breast Nurse in your area? I am in a small coastal town and we have one who is fantastic. They have all kinds of contacts and are a great support.

    Try not to jump ahead too much, with your fears, I know it is hard, but we have a pretty good system in place in Australia. Let us know how you get on. Hugs!

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    When you get back from your appointment know that there are (((HUGS))) for you.

    Now you should have your results and can take control instead of being in 'limbo' and we wish you all the best.

    The Mods

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Hi. I'm still in limbo land. The fine needle biopsy didn't give them enough info about the type of cancer so they repeated it . But again not enough info so they took 3 core samples. I'm sore but OK. Tomorrow they do a bone scan and xrays to find out if is is anywhere else. Follow up appointment next Tuesday. I feel so sad.



  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Hi axiom, I'm in a small town in south Australia -mount compass. I have no idea if they do. How do I find out?

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hi Shaz, I am so sorry about how you're feeling, it is an awful shock and being left in limbo is just brutal. Another wait now, till Tuesday. I know how frustrating it is. I knew that Christmas was fast approaching, when I was first tested and was waiting for my surgery.

    Use the little cold pack today for the biopsy site, I think I did 20 mins on and 20 off with it wrapped in a paper towel. If you are sore a Panadol will help. I had 8 cores taken with my Stereotactic and got quite bruised from that.

    I just looked up the Mcgrath Foundation website to see if you have a Nurse near you, but I am not familiar with where you are, so I am unsure of the closest Nurse to you. Take a look, it is worth it. I had just moved here when I was Dx and the Nurse in our area contacted me and directed me to a support group before I had even had my surgery. I didn't really know anyone here, but have stayed with the group and have actually become one of the organizers. We had 10members when I first started going in Dec 2012 and we now have 23 members. We meet once a month and have outings, speakers and just give support to each other.

    I know it all seems bleak and scary right now, but it will feel better when you know more. There is an Australian thread here, I am not sure if you have posted there, but they are a great group of women. Chrissy is in SA and is extremely knowledgeable and friendly, as are all the ladies on there.

    Stay in touch and let us know how you are getting on, there will usually be someone around. Obviously we are a different time zone to the US so it can be a bit quiet at times, when those ladies are sleeping. Feel free to PM me if you want to! Hugs to you!

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hi Shaz, just did a little research on where you are and found there is a Breast Care Nurse, Cheryl Baxter at the Coast Hospital in Victor Harbor, so not too far from you, there may even be one closer. Good Luck!

    Edited to say "Australian sisters" is the other thread.

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014
    1. You are wonderful. Thank you so much. I'll have a look for the aussie thread in a minute. I've just got home from bone density, CT scans and X rays. I'm felling OK. Just a bit exhausted, I'll also find out about the beast nurse any help is much appreciated.
    2. Hopefully I can have a good day at work tomorrow and then I'm on leave for 3 weeks. A bit of a waste of my leave now this has happened but at least I'll have everything sorted by the time I get back.
    3. I have no idea why my post is numbered lol. I must have hit the button by mistake.


  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hello Shaz, I was wondering how you got on. Not surprised you're exhausted all that stuff takes it out of you. You should sleep well tonight!

    I know it feels like a waste of leave time, but not having to go to work, will be a good thing. One thing at a time!

    Let us know how your getting on!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014

    Dear Shaz - Just wanted to send a bit of support from the West Coast of the US. Don't worry about taking leave now - if you're like most of us you won't be able to concentrate well anyway for a while (although some do fine work a welcome distraction from their own thoughts). I know I was useless when first diagnosed. Between all the hours of appointments, the stress of waiting for results and the emotional bodyblow of diagnosis, I was exhausted, run off my feet, distracted and heaven knows what else. All I can say is that, bit by bit, it DOES get better.

    A couple pieces of advice - if you can record your meetings with your surgeon and other doctors, you'll find it very helpful. Many cell phones have the capacity to do this. It's SO much better than trying to take notes.

    Second, don't rush into anything unless you completely understand and accept the plan of action. It's easy to be stampeded by surgeons and surgery schedules but rushing into things isn't helpful in this situation. You have to make the decision that is best for YOU. Not for your surgeon or even your family.

    Good luck as you go on. It's surreal dealing with this over the holidays, I know. Just take one step at a time and ask your GP for something to help you sleep if you need it.


  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Thank you ariom and hopeful,

    My head is giving me a hard time again. I'm pleased now that I don't have to go to work for the next 3 weeks. You're both right, I wouldn't be able to concentrate anyway.

    Hopeful, I have downloaded an app on my phone so I can record the next appointment. Both mum and I couldn't remember everything and it was only a first appointment!

    My head is telling me to get it started as soon as possible, but yes I should think about what they say before I agree to treatment.

    I'm not sure why they did a ct scan on Thursday. I wasn't told I was having one. So now I'm scared t at they have found something else :-(

    Thank you so much for your support and advice. Xxx hugs to both of you.

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hi Shaz, great to see you back and the taping Hopeful suggested is a great idea. I had my Husband with me and he is far better at remembering medical stuff than I am. I was a mess, I just heard BC and then it was all Blah, blah, blah after that. I did manage to snap out of it and be more proactive with my appointments after the initial stuff. Don't read too much into the tests and stuff they are doing, a lot is just standard of care stuff here in Australia and is protocol. You have a good, pro active Doctor!

    I know how you feel about wanting to get started, I was just the same. My 2 year anniversary of my surgery was yesterday and I know how hard it is to be trying to get stuff like this organized before Christmas. I had to wait a month, even though I was in the urgent category, of my surgeon's list, but I got into surgery by the skin of my teeth, because the surgical ward of the Hospital closed for Christmas, the day after my surgery. Too bad, so sad, if I had needed to stay longer! LOL

    I would suggest, once you know what you're dealing with and have options, try doing some reading here, forget DR Google, it isn't reliable, but the info here, is always updated. Knowledge is power and it helps you to feel like you have some control. Ask questions here, once you have a full Dx, others here will come and give you support and answer any questions you may have. You can ask anything here, so don't be afraid if you want to just let off some steam, everyone here "Gets It".

    Hugs to you!


  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Thanks ariom.

    Are you still having treatment? It's a horrible time of year for a few reasons. But having family around at Xmas will be nice. I haven't done my shopping yet and everyone is coming to my place for Xmas. Oh well it'll keep me busy once I get started.

    The breast clinic I'm going to is supposed to be very good. So I will put my faith in them. It's nice to know that they are being thorough. I've already searched on Google and scared the crap out of myself, so I won't be doing that again. :-)

    Best I get my butt out of bed.

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hi Shaz, no, I am one of the incredibly fortunate ones who doesn't have to have more treatment after my surgery. I was given the option of a lumpectomy and Rads or a Umx and Sentinel Node Biopsy. I opted to have a Umx (single mstectomy) because I preferred to avoid radiotherapy, if at all possible. I had a couple of reasons for that. One being, that my husband is a quadriplegic and also, we live in a small coastal town in Victoria, so I would have had to stay down, in another town during the week for 6 weeks to get that treatment. Although we have good carers here, I just didn't feel comfortable with leaving my Husband like that. I knew there could still be a possibility of needing Rads, if anything else was found in the final pathology of that surgery, but I took the chance and it came out OK. I had DCIS which never requires chemo, so I managed to dodge that too. I decided not to take Tamox because for me, the cons outweighed the pros.

    There are many options and many decisions to make,they don't call this a "journey" for nothing! The one piece of advice I would give you, is to weigh them all up and go with what feels right for you, don't be swayed by what others think you "should" do. I think it is easier to adjust, when the decisions have been yours.

    Gosh, you have quite a bit to do before Thursday, I wish you all the best, hopefully it will keep you distracted from thinking about this stuff for a bit. Yep! step away from Google, we have all been scared by bad information on Google, stick with this site.

    Have a lovely Christmas!

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    Thanks. I'm feeling very overwhelmed ... again. My emotions are all over the place and I feel quite angry.

    That must have been a difficult decision. You're a very brave woman. How has you're husband been through all of this?

    It's really good hearing about your options and decisions. How did you feel about losing a breast? Did you get a reconstruction? I'm not sure that I would. But I guess until I make my decisions I won't know.

    I hope you have a lovely Christmas and I really appreciate your help X

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    Hi shaz, of course you're overwhelmed, it is a lot to process. We all understand.

    My Husband has been a rock for me, he went to every appointment with me, read all he could, to familiarize himself with my diagnosis and supported me and helped me make my decision, to have a mastectomy.

    I should say, I am 61 and I assume you are much younger, so your reasons for your decisions, will possibly be very different to mine.

    I have to be honest with you, I had no emotional issues at all, with losing my breast, in fact, I couldn't wait to get it off, after I received the Dx. I had to spend the night before surgery, in a Hotel near the Hospital which was over an hour drive from where I live. I was scared out of my mind and had an early appointment, for the Sentinel Node mapping. The night before I felt I had to disengage with my breast and as weird as this may sound, I spoke to it, I said "You've let me down, you have to go!" I felt much better after that and actually slept for a few hours. I breezed through the sentinel node tracer and then the mastectomy. I spent the night walking the halls chatting and drinking tea with the Nurses. I went home early the next morning.

    I have to be truthful, I was nervous about showing the scar to my Husband, I don't know why. I had even bought Pj's to wear in bed, even though I have always been a knickers in bed kind of gal. Well, he took a look and said " Wow, that will heal really well and you don't need 2 boobs to be gorgeous!" That was it, the Pj's went to the opp shop and we have never looked back.

    I didn't reconstruct, I knew it wasn't for me and I haven't had a moments regret about that I actually felt empowered after the surgery and I have no problem with the scar at all . I have a huge wardrobe of boobs, Foobs and all kinds of mastectomy clothing, camisoles and bras. I have a real interest in researching and finding clothing that suits us, after Mx and post on those threads all the time.

    I have to say, for me, the surgery and recovery, was nothing like I had worked up in my imagination, it was much easier than I could ever imagine. I didn't need any pain medication in the Hospital, or after I went home. The drain was a real nuisance, but it wasn't there for long. I had a few hiccups along the way, but nothing serious.

    You will find there are many women who will be very happy to share their stories with you to help you while you digest your options. Don't hesitate to ask anything, here.

    All the best for Christmas! let us know how you are getting on!


  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014

    Shaz, just wanted to send you a bit more support as we go into Christmas week.

    I think it's very healthy to be angry, so don't give yourself any grief over that. You will probably run into people (even within the treatment community and others further along this trek) who may sound judgmental about anger or may advise you to change your attitude, etc. Don't let that bother you anymore than you help. Cancer is NOT a gift, it's not a "journey" that we want to be on and it's not something any of us could have avoided by doing anything differently. It's a random, life-shifting, involuntary event. You have a right to be angry. It doesn't necessarily last forever. However, it's YOUR emotion, your life, and as long as you don't hurt anyone else (or break something treasured) because of it, you're entitled to let it run its course. Sometimes it's better than despair, which may also creep in.

    I hope that by now you have at least verbal results from your CT scan and that it all looks good. Don't fuss if a few oddities are found - that's just about a universal experience. Just chalk it up to learning more about your body. Sometimes they'll find little hemangiomas, little bits of scar tissue or nodules, etc. We all have them, more or less. Don't hesitate to ask your doctors to explain anything and everything, and do get copies of the reports. It's useful info to have in your file.

    I also hope that having your family with you at Christmas will be very helpful. All these holidays can be so hard when you've been recently diagnosed, so don't be surprised at anything you feel - good or bad. Let everyone pour their love over you in their various ways, soak it all up and let it be healing.

    I wish you and yours a very happy Christmas despite all of this, and good news, strength and happiness in 2015.

    Ariom, I wish you the same. You're a treasured voice here on BCO and I'm glad to have you in my life.


  • Ariom
    Ariom Member Posts: 6,197
    edited December 2014

    And to you Hopeful! Thank you so much for the kind words. I am so pleased to know you too!

    All the very best for 2015 and I look forward to seeing you here. (((((Hugs)))))

  • shaz101
    shaz101 Member Posts: 718
    edited December 2014

    I think I've just seen the worst surgeon! I was there to get my results and walked out not much better informed and very annoyed. It was a different person to last time. Which I knew would expect the case as it is Xmas. But you'd think an appointment to get results would be standard. He started off saying that i have surgery on the 20th of january. I said 'do I?' And it went downhill from there. He just shuffled paper around. So at the end I said. 'So I have surgery on 20th' he said 'oh I DON'T know, it's tentative! '

    I've rang up my Dr and they are chasing up my results and I have an appointment tonight. I'm very peed off!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited December 2014
    GRRRRR!!! I'm appalled on your behalf, Shaz. I hope you get some answers PDQ!

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