DIEP 2014

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  • LAstar
    LAstar Member Posts: 1,574
    edited December 2014

    Lovely, Teacher! So much to be thankful for.

  • jbdayton
    jbdayton Member Posts: 700
    edited December 2014

    Bev, it is so good to see you posting. You sound great and healing is around the corner. Don't over do it though. Some of my soreness didn't really appear until after a few days. Maybe you will be an exceptional patient HUGS!!!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited December 2014

    Teacher - Fabulous post! Feeling whole again is what we all strive for. And by that I mean all us ladies, as well as our surgeons. It's all about about running the marathon that is DIEP (falling down, crying, and napping allowed) and feeling complete. Its never back to normal, but sometimes when you rebuild it's better and stronger than before.

    If i could go back and do it all over again, the one thing I would change is my level of patience. Before going into surgery I had a mental timetable, and certain expectations of how my recovery should proceed. I even took a whole 12 weeks off, and got a lot of rest, but my mind was still buzzing with the comparisons of 'where I should be'. It was hard to completely let go and allow myself to give my mind and body over to total healing. But still - everything turned out great

  • annieb4
    annieb4 Member Posts: 106
    edited December 2014


    Teacher, It sounds like you are doing fantastic. It is nice to hear there is a light at the end of this very long twisted journey.

    You are an inspiration that things will and do get better. I am looking forward to next Christmas when this is all behind me and I can hopefully not think about this lousy disease  every day of my life.

     

  • J1971
    J1971 Member Posts: 18
    edited December 2014

    I am with you Teacher! I just had a revision on my right side of the DIEP. Such a easy procedure compared to my bilateral DIEP. I am so excited for nipples.....just a couple months away. I am back at my activity level with good energy. The recovery took longer that I thought....but love my new healthy breasts!


  • georgiagator
    georgiagator Member Posts: 12
    edited December 2014

    Catherine2,

    I didn't read that anyone had answered you so far. I am 61 and three weeks ago went through PBM with diep reconstruction. My guess is that many, if not most, on this message board are fairly young. I had very little trouble with the surgery and recovery. That's not to say it wasn't a big deal as it is major surgery. Most of my pain was due to the abdominal incision, but it was well managed with medication. Getting out of a chair or bed was tricky, but you can use recliners or pillows to make it easier. My health is generally good, i.e. I don't take any medications regularly, don't smoke, drink alcohol moderately, and I exercise regularly. If your health is reasonably good that will certainly help in surgery and recovery. Hope that helps.

  • Kb33
    Kb33 Member Posts: 88
    edited December 2014

    well it's done! 4 hours for stage 2. Ended up with moving tissue around, lypo to fat injections and then had to do an implant. My c-free breast was raised and given a small implant to make them match. Sigh. I was prepared for this as an option.... But really did not want to have to take it. I was not prepared for all the incisions. 3 in each breast. This is bringing me to tears... But I'm blaming the anesthesia..not self pity at this point.

    I think I even had two Drs with different opinions on how to address my issues. I've been out of surgery 7 hours and can't shake the feeling of passing out and sleeping forever. Lol

  • LAstar
    LAstar Member Posts: 1,574
    edited December 2014

    KB33, I hope you end up loving your results. Rest well!

  • mefromcc
    mefromcc Member Posts: 188
    edited December 2014

    Georgia gato,

    I am happy to hear that you did well in spite of being in your 60s. I am 64 1/2 and have been cleared by my cardiologist to have a DIEP. I survived my abdominal CT scan Tuesday (no allergic reaction to the dye). I see my PS tomorrow morning to see if my vessels are OK so we can schedule surgery for February.

    DH and I went out to our neighborhood Chinese restaurant today. I got a fortune that said "it's not the end yet. Let's stay with it." How appropriate. I should make it my mantra until the end of this detour in my life is over.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited December 2014

    kb33

    How are you doing? I'm having my stage 2 next Weds. I hope you are pleased with your results, it will take a little while to see exactly how they will look. Keep us updated please.

  • mefromcc
    mefromcc Member Posts: 188
    edited December 2014

    Yippee! My vessels are Okay for the surgery. Now I need to be contacted by the scheduler to set a date in February!

  • lovesroses
    lovesroses Member Posts: 14
    edited December 2014

    Hello friends! I haven't been on in a while but I'm catching up on your stories and it is enlightening to me. I am 3 months out of stage 1. I have been on the fence about nipples and tattooing. I'm 53 and I agree with some of you in that I don't want "headlights" anymore. I would just settle for looking halfway normal again. This whole process seems to have drained me emotionally. For much longer than I anticipated.

    I enjoy the "not so nice" emotions that some of you describe. Because it definitely does hit you in the gut some days and I appreciate the honesty. This has been a great place for being uplifted and has meant the world to me. But just to have a forum to gripe and complain a little is therapeutic for me also. You gals give me a lot of hope for next year and what it brings. Thank you from the bottom of my heart:)

    Beverly

  • ChrisInPA
    ChrisInPA Member Posts: 38
    edited December 2014

    SaltyJack - I hear you on coughing. Even worse, wait until the first time someone cracks you up and you burst out laughing. :-) I had to stick to dramas on TV - standup comedy (or any comedy) had to stay in the queue a few weeks!


    mefromcc - I have anaphalactic reactions as well. It is terrifying and the panic can make the reaction even worse (cruel joke, that). Glad it went well!


    Teacher64 - Thank you for the one year update earlier this week. I keep telling myself that I will be past this next year at this time and happy I did it. Your post was just what I needed to read!


    Janet_M - You just summed me up on the patience issue. Thank you.


    All, My wound vac was removed this week (2 weeks total) and the Wound Care place has me on collagen now. My experience has been extremely rare - my surgeon is the head of Plastic Surgery at UPenn Medical. He told me it happens but VERY rarely. I may just have weird genes (and knowing my extended family - that would not surprise me. LOL!) I was told today that I can't go back to work until my re-evaluation January 5th (!!) which has me on thee edge of my chair tonight. How much Law & Order can a person watch in 3 months, right?

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Don't you just love being "unusual"!!??? :p

  • trish01254
    trish01254 Member Posts: 128
    edited December 2014

    hey ladies. I haven't been on much anymore either. I feel great heading in to stage 2. My date was moved up to Tuesday. I'm not stressing at all. Wishing everyone smooth healing.

  • debiann
    debiann Member Posts: 1,200
    edited December 2014

    Chris on PA, its so good to hear you're doing better! Law and Order is what I watched too, lol.

    I saw the PS today & discussed stage 2 which will include fixing a divot, a lift to both sides and of course nipples! Also getting the now pointy muffin top removed. I'm holding off till June, after herceptin is finished, but really can't wait to get it done. The PS is very pleased with how much volume he was able to get. At first I kept telling him they were too big, but now when he asked it I still wanted them reduced the answer was heck no, I like them now. 

    While I'm under he's also removing my port (thank God cause I didn't want it out in the office). He's also removing two yellowish spots under my eyes (xynolathomus, totally spelled wrong I'm sure). I hate these spots, makes me so happy.

    After the surgery there will be some laser hair removal (got some fuzzies in the crop circles) then the tats. Seems like it takes forvever to reach the finish line, but its good to have a plan.

  • SaltyJack
    SaltyJack Member Posts: 420
    edited December 2014

    Hi ladies - well, I came home from the hospital today and am trying to get back into the old routine. So far, so good! I have to admit, when I took off the bra and checked out the results of the surgery, I can see why the PS had told me that there will be more surgeries. It's a start.....

    I'll see him Monday morning and he'll remove the four drains - yay! My husband suggested (and I wholeheartedly agree but want to see what y'all think) that I should ask the PS what's next and as my husband perhaps inelegantly put it, ask him to take his best shot the next time around....as opposed to a number of surgeries with ever-refined tweaks. I'm 56 years old and don't see any need to be one of the pictures on the website showing off the perfect results. I'll be happy if I look good in a low-cut top or at most, a conservative bathing suit. What do you all think?

    Good luck to all the upcoming surgeries - and thanks for being there!

    Saltyjack/Bev

  • Kb33
    Kb33 Member Posts: 88
    edited December 2014

    well, I guess my stage 2 is actually harder on me than stage 1 was. I think it is because of the implants. They could not make up for the lack of volume and had to use them. I was very disappointed going into surgery but I am hoping I will be happy later. I have more pain and soreness than expected. The back of my legs are black and blue... Which is making it very hard to sit stand, lay, etc. and then the breasts are swollen and very tender. BF says I look good and thinks once swelling goes down the girls will be very nice. So... I remain hopefully and will just take it one day at a time ;-)

    Good luck gram of 2 boys next week!

  • MerrellGirl
    MerrellGirl Member Posts: 67
    edited December 2014

    gentle hugs kb33. As others have said before, the first couple of days post op can be full of mixed emotions so don't put too much stock in them. Odds are you will like the results after all. But you're in the very thick of it right now. Mind-numbing TV, sleep and pain meds were my best friends during those first days after stage 1. This is such a process. . .again, gentle hugs and prayers for ur healing.

  • Teacher64
    Teacher64 Member Posts: 840
    edited December 2014

    Catherine2, Georgiagator, and mefromcc - I must have missed the original question but I was 64 1/2 when I had my DIEP and 65 when I got my tattoos. I love be a "senior" with two lovely tattoos! I have heart issues and was able to manage and move on after DIEP. It took work to get back in shape but I can do anything I did before DIEP. The best thing is that my new breasts are me. Best decision for me

    Kb33 - yeah for having stage 2 on your backside. Keep moving forward. Just rest and let the anesthesia get out of your system.

    Yesterday I took treats to my PS and his staff. He asked if I would take a few minutes so he could see my tattoos. I said I had an appointment in early January but he said he didn't want to wait that long. Then he and his med asst, who did the artwork, critiqued her work. They decided I need a bit of touch up work.

    I'm not the same person I was a year ago so I don't have to look the same, but I will say I look pretty darn good! My breasts are a bit smaller, don't sag, my belly is flat, and I have a well defined waist. We are all strong and can get to the other side. We all do it our own way, but being complete is totally worth the journey. Seeing my "nekked" self when I get out of the shower, fading scars and all, reminds me to stand tall and proud

  • wintersocks
    wintersocks Member Posts: 922
    edited December 2014

    Hello Dieppers. 

    Well Monday the 15th is nearly here and I will be on the op table. Having difficulty sleeping so at 2.23 am here I am. I have to be in the hosp Sunday @ 4, to get settled. Then blood drawn from the hand in case of a blood transfusion needed. I hate that but all my veins have collapsed from chemo. I won't be able to check in for a while as The NHS in Britain does not allow use of internet on the wards. Please think of me as I am just a little scared, hate that bit where the anaesthetist gets you before you go in to theatre. 

  • norita19
    norita19 Member Posts: 49
    edited December 2014

    Wow, the time got here quickly Wintersocks! Good luck to you, we will be thinking about you!

  • Teacher64
    Teacher64 Member Posts: 840
    edited December 2014

    wintersocks - it's normal to be scared and sleepless prior to going in for DIEP. I slept 2 hours both nights prior. I went to surgery at 7:30 in the morning and woke up at 10 pm, so I caught up on my beauty sleep. You will do great. Just show up and let everyone take care of you. Ask for something to help you relax if you need it so the sticks won't be so bothersome

  • debiann
    debiann Member Posts: 1,200
    edited December 2014

    Good luck Wintersocks! I hate the anesthesia part too. They tricked me this time, put the meds in my IV before I even left the holding room. I dropped off in mid sentence, lol. We'll be thinking and waiting for you to report back in a few days.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2014

    lovesroses- "not so nice"...that would be me Bawling. I don't believe in sugar-coating and am a strong advocate for venting. I still have two surgeries to go, cause my PS does not do nipples at the same time as lipo and fat-grafting. I am one month out from my first stage 2 and still in need of more revision on my unradiated foob...it sags more than the radiated side. Everyone says I look fantastic, blah, blah, blah. I constantly remind myself this is a marathon and not a sprint, but my Type A personality keeps driving me on to get back to my normal routine. My horses think they are on permanent holiday! We have several trips planned around my procedures, along with the required retail therapy. Works for me!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited December 2014

    Wintersocks - You'll have plenty of time to catch up on your sleep next week. And, if you're like many of us, it will be a sweet sleep sweet that comes with the relief of having it all behind you. No more fear of the unknown. Just rest & recovery

    Remind yourself that once you're in the hospital - your medical team will take over - and you don't have to do anything. They're skilled at what they do, and they are equally committed to giving you a strong, healthy body. So all you have to do is show up, and put yourself in their hands while you rest. Try to give your brain a break - your body will know what to do. I listened to some Guided Meditation prior to my surgery, and she said that our bodies are highly intelligent, and even as we sleep, our bodies have started the process of healing. So between your body and the docs - you're covered.

    Also, try to get a sedative - the more relaxed you are, the better. (And the lack of internet is a pain in the arse, but maybe as compensation there'll be some hot doctors)

    Will be thinking of you on Monday. You've waited a long time for this -

    Janet


  • Rubiayat
    Rubiayat Member Posts: 144
    edited December 2014

    Hello Ladies. I didn't have a DIEP, but I did have a TUG flap reconstruction and I am hoping to get some advice or hear from other women with a flap. My mastectomy was six months ago and it was my 5th surgery in a six month period (had several lumpectomies first). Overall I have healed well and am doing good, but I am still really sore around where the incision is (same incision spot was used for all surgeries) and under my arm. A lot of tissue was moved from my side under my armpit during my first few surgeries to replace the tissue that had been removed. And it is still a little hard at the top of my chest where the blood vessel were reconnected. Is it normal to still be sore six months later? A couple of days ago I did an activity that really worked my pectorals and compressed my reconstructed breast and I am especially sore now. I did a little physical therapy and some massaging of the area, is there something more I should be doing? I guess I thought I would feel normal at this point. Do you ever feel normal again?

  • debiann
    debiann Member Posts: 1,200
    edited December 2014

    I'm about 10 weeks post diep. I have two small bb size bumps under the skin, one on my lumpectomy scar (8 months ago) and one a couple inches away. I wasn't worried, thinking scar tissue or something, but had a follow up with the ps and he said "we'll watch them". Not what I wanted to hear, now I'm freaking out. Anyone get anything like this?

  • LAstar
    LAstar Member Posts: 1,574
    edited December 2014

    Yes, a lot of us have them. They show up nearly a year after reconstruction and are almost always oil cysts. Anyone who has an injury to the breast might get them. My BS identified them as oil cysts after examining an MRI. They can be a little sore sometimes and mine are noticeable through the skin. I hope that's all it is!

  • Lilyn
    Lilyn Member Posts: 282
    edited December 2014

    Thoughts are with you tomorrow wintersocks. I have followed this thread for some time. I finally have decided to go ahead after many years (6) and a few consultations. I met with Dr. Anne O'Neil who works with Dr. Hofer at PMH in Toronto. For some reason this time I said yes. Cant actually believe it. I will be having abdominal CT at Toronto General on December 29th to start process. Arghh I am so excited but dont know when surgery will be she said probably five to six months. That is fine with me will take me time to get used to idea.

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