For those starting chemo in June

Options
18081838586129

Comments

  • mary1220
    mary1220 Member Posts: 1,246
    edited September 2006

    Hey Girls, I don't get to go with hubby to Washington because I have an awful cold and feel crappy. I am dissapointed!!!! When he gets back I will go where ever he goes. I have had this sinus crap for a wk. and now its a caugh and chest kinda hurts. I better stay home this time. I will check in later. Have a great Sunday, it is raining and cool here. Mary

  • PJB
    PJB Member Posts: 2,615
    edited September 2006
    Aw, Mary, so sorry you're sick and can't go on the big adventure. Hope the weather and your cold improve tomorrow. Got some chicken soup?

    Paula
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited September 2006
    OK-----I got busier than heck last week and didn't even turn on my computer--Other people PM me, Mary, and it works just fine. I'm not sure what's going on with your computer. Maybe yours and mine aren't compatible. You're lucky that you didn't feel like coming to my neck of the woods anyway. It's downright miserable here. It's alternately raining and snowing. It's only 34 degrees so it's mostly turning to snow right now. My basement has been leaking again all day and I've been tending to my sump pumps. I wish the ground would freeze so that the basement would stop seeping. But the thing that's really bugging me is that the wind is blowing so hard that it has pushed water up under the roof edges and my ceiling in the living room has been leaking for the past 2 hours. I have bowls and pans set all over the place catching drips. SIGH!!! I twisted my ankle this morning stepping in a hole by the barn door and it's swelling nicely. Hey, The Amazing Race is coming on for the new season. I really like this show best of all the reality shows. I could never leave my house long enough to do the show because it would fall apart before I ever got back with my luck. OH, before BC one of my co-workers at the daycare got hand foot and mouth disease from one of the little girls who came there and then she (the coworker) gave HFM to her sister!!! I thought she was making it up, but she actually got a note from the doctor that said she had it. Weird, huh. People are getting so paranoid these days, aren't they Janie. They started locking all but one door at the schools here now so that everyone has to go to the main office and you can't just bop in the end doors anymore. It's kinda stupid because I doubt that terrorists are going to bother with us, but whatever..... I'm gonna quit and watch the race--Hope you all had a wonderful weekend--Mary, hope you feel better. Life is Good Smiles NancyLee
  • ktz123r
    ktz123r Member Posts: 4
    edited September 2006
    I only just discovered this board. Wow - wish I had found this earlier. It's so helpful to see what others are going through that's kind-a in the same phase.
    I was diagnosed at age 43 with ILC (3.5 cm, 1 positive nodes, ER/PR+) on May 30 2006. I'm pre-menopause. I had a mast. I am doing #7 of 8 chemo sessions this Thursday, then radiation and then Tamoxifen.
  • PJB
    PJB Member Posts: 2,615
    edited September 2006
    ktz, welcome to the boards. they ARE a wonderful place, full of support, good humor and lots of information. congratulations on being nearly done with chemo! you'll be done before you know it.

    you've run into a group of old friends here: we started chemo together in june 2004. and here we are, a core group of us, still checking on one another nearly daily. that's the kind of wonderful community you've joined.

    how is chemo treating you? if you've one left, then you're just a couple of months from feeling a whole lot better. ooh, and those taste buds will be coming back to normal soon, too. (for me, chocolate was about the only thing that tasted normal on taxol or taxotere. at least it wasn't something like, well, beets or brussel sprouts)

    and for me, anyway, rads was a breeze, altho not for everyone. i hope you're one of the lucky ones.

    i'm 43 now, too. 40 going on 41 when i was first diagnosed. (i also had a recurrence that's been taken care of with more chemo) that chemo sure can age a person, huh? i hope you're having a great week and soon see #8 in your rearview mirror. glad to have you here with us.

    paula
  • mary1220
    mary1220 Member Posts: 1,246
    edited September 2006

    Good evening girls, hope all is well. Nancy, your probably right about the computers not being compatible. Gotta get. Good night ladies, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited September 2006
    Nancy, I think it is more fear of losing a couple of minutes if someone's late than fear of an intruder. Never mind how many of the staff take work home.

    Welcome KTZ, several of us on this thread are HER2 positive and went through another year of infusions after chemo, and others, like you and Paula do the hormone gig .. but no matter what the profile, we all like to talk ... about anything and everything ... welcome aboard and ask any questions or share anything you please.

    Mary, Hope you feel better soon. You sure are having lots of illnesses.

    Going to the neurologist Friday. Hope he can calm this tremor down some. It is getting on my nerves. Do you need anything shook up really well? Just put it in my hand. I don't even have to try to move, it just does its own thing.

    Have a good evening ladies,
  • PJB
    PJB Member Posts: 2,615
    edited September 2006
    Janie, maybe you could get a job at starbucks as a frother? you know, froth up the cream or whatever? (i don't drink coffee, so i am out of my element) you could get free lattes in exchange.

    but seriously, i hope they find a way to calm that tremor. it must be VERY frustrating.

    ugh, have to go to a four and a half hour training session tomorrow on managing change. i work at a daily newspaper; we do change every freaking day! i've pretty much got the concept down.

    mary, you need to get down to arizona quick so you quit catching so many bugs.

    hey to nancy (snow? already?) and renee and everyone else out there.

    now, time for me to do some serious online shopping for nathan's bday.

    later girls,
    paula
  • janie44
    janie44 Member Posts: 1,460
    edited September 2006
    Nathan's birthday again already!? My, time does fly!

    Feeling any better Mary?

    Nancy, I hope you didn't drown in the basement.
  • mary1220
    mary1220 Member Posts: 1,246
    edited September 2006

    Hi, Yea I think this is just allergies now. I had a little sinusitis(head cold) but it went away and now it is sneezing, runny nose, caugh and watery eyes. The farmers are in the fields harvesting so this is a bad time of year. Later, Mary

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited September 2006
    Janie, bless your heart for asking about the basement. It rained for a long time today and then it turned into snow and when I was driving home from work I remembered that I should check my basement. But my chemo brain apparently kicked in the moment I entered the front door and I didn't give it another thought until I saw your statement. I just went and looked and turned the pumps on. It isn't bad, but there is a little water around the east and south sides. SO--you saved me major work tomorrow. You're also right about the taking work home thing. If teachers got paid for the hours they put in after school, before school and on weekends, we'd all be able to pay our bills for a change!! It's the fringe benefits of teaching that I love. Like--there's this one little girl that has taken to calling me Aunt Nancy. I asked her mother yesterday if she had a sister named Nancy. She told me, No, if Madison really likes a person, she adopts them into the family so she must really like you!! Sweet, huh. Hi everyone else & YES, it is snowing already in Montana!!!! HO,HO,HO and all that merry stuff!! I'm going to bed--Nite nite!! Life is Good Smiles NancyLee
  • janie44
    janie44 Member Posts: 1,460
    edited September 2006
    Hi All,

    Hope this finds you all healthy and happy and dry.

    Re: neuro visit
    The news sounds bad at first, but actually it is not. It is good. He is pretty sure I have Parkinson's. However, not the really bad dehabilitating kind like Michael J Fox has. He said I should live to a ripe old age and be able to control it with medication. He does not think I have a central tremor like the other docs do. Meds for that have done nothing to help. I asked about the surgery since the tremor showed up immediately afterwards. He said that no injury causes a tremor, only something in the brain (that explains a lot). Anyway, he said he thinks I would have gotten this anyway, but that all the anti-nausea drugs and chemo works on dopamine and Parkinsons is a lack of dopamine, and therefore, my treatment brought it on faster. He feels like the meds he prescribed will control it. All this time I thought something was severed in surgery and that there would be no way to fix it, so this is good news. I usually do not think about it, but it is very aggravating, so I am happy that there may be a way to stop shaking after two and a half years. The neuro guy said that I am in good shape otherwise (neurologically speaking), pretty agile for a 60 year old, and he expects me to do very well. He said if I had come in all humped over and barely moving he would have thought differently (prognosis-wise).

    So I guess once again time will tell.

    Have a great day girls.
  • PJB
    PJB Member Posts: 2,615
    edited September 2006
    Well, Janie, I guess that is good news. More medicine = no fun, but if it works, it makes your life better. So, hurray for modern medicine! Thank goodness it's not the really bad kind.

    Another slow weekend here. And that's good by me.

    Hope Mary's better, Nancy thaws out and Renee is off having fun.

    Paula
  • janie44
    janie44 Member Posts: 1,460
    edited September 2006
    Good morning,

    I can tell a difference already! Also, sleeping better and was up at the crack of dawn this morning. I am going to research the effects of dopamine on sleep.

    PJ, I agree, sometimes slow is good. Shucks, sometimes boring is good.

    Mary, feeling better I hope.

    Nancy, yes, the kids are what keeps most of us in the profession.

    Later,
  • mary1220
    mary1220 Member Posts: 1,246
    edited September 2006

    Hey Good Morn Girls, Janie sorry to hear the news but glad it is controllable, finally getting to the root of whats going on has to make you feel better. I took care of a woman that had the slow kind of Park. and she lived 12 years with the only symptom of the left arm shook. Rubbing it seemed to calm it down. (She died of other things)so it seems to be a very slow acting desease. I am sorry for you to put up with that after all you have had to deal with. I am over my sinusitis and dealing with the allergies. Everyone have a great Sunday. Mary

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited September 2006
    Well, crapola, Janie--but at least you know there's a reason for your shakin'. There's a nurse where I had my infusions who has had Parkinson's for the past 5 years and she only has problems when she's really tired. She has a mild form of it also. What the heck were you doing awake at 5:53 am?? I only wake up that early when I take my Ambien at 8 pm and fall right to sleep. My stupid phone rang at 3 on Saturday morning and there was nobody there. Turns out my phone is on the fritz and it just rings once and goes to static. I reported it on Saturday afternoon from the phone at the daycare and they will look into it tomorrow. Nobody works for the phone company on the weekend apparently. I think it has water in the lines somewhere probably where it crosses the creek over in my pasture. We had almost 2 inches of rain on Thursday and Friday so the dams and creeks are FULL not to mention my basement. But I got that all pumped out on Friday and Saturday and did some mop up today. It was actually nice out today. I went in to the daycare and defrosted the freezer because it was so frosty that it was hard to get much food in or out. Somebody didn't shut the door tight enough recently. When I came home, there was a big snake sunning on the road in my lane. I stopped to check and see what he was and it was just a bull snake so I drove around him and let him enjoy the day. Well, I gotta cut out some tigers, turtles, etc. We're working on the letter T in preschool tomorrow and I ran off some papers while the freezer was defrosting. Hope everyone's Sunday was restful. Life is Good Smiles NancyLee
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited September 2006
    I'm talking to myself!!!! I just got back from town. I went out to supper with my "almost sister-in-law" and her 10 year old daughter. We had some catching up to do because she has been in Idaho all summer and we hadn't had a chat time since they got back and school started. We actually sat at a picnic table at the local drive up joint. It got kinda cold near the end and we had to put on coats. All of the coats were out of my jeep. It's a traveling closet of sorts. There were 2 funerals today so we had a bazillion drop-in kids at daycare and there are 2 more funerals tomorrow so I actually had to tell some people on the phone today that we just couldn't take their kids and they'd have to find some place else. There are only so many square inches of space at my daycare and only 5 people working there so there actually is a 40 child cap on the number of little bodies that can be there at a time. Well, I'm a little tired, but it's a good tired because I got to rock 2 babies to sleep today and taught one little girl how to spell and write BAT. Life is Good Smiles NancyLee
  • PJB
    PJB Member Posts: 2,615
    edited September 2006
    Nancy, your daycare sounds like a warm and wonderful place. Those kids are very lucky to have you.

    Nothing much up here. Just counting down the days to the weekend again! Hope all's well with you guys.

    Paula
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited September 2006
    PJ--PJ--Glad that there's somebody else here. I was getting spooked talking to myself!! Gosh, we had a ton of kids at daycare today. Thanks for the compliment--I had to be a wall between 2 "almost 2 year olds" today. There was something going on in their little lives and every time they got near each other today, they hauled off and either pushed, pinched or poked each other. Man, they were like oil and water--The two of them are just a few weeks apart in age, but Rory has Parker outsized by at least 2 inches and probably 12 pounds--So none of their confrontations were fair--Poor Parker always came out on the short end of the stick, but I kinda think he was the one in the really crummy mood and he started everything. It was kinda funny, but I really did spend part of the afternoon sitting between them so that they couldn't get to each other. I think there are worse jobs so I think I'm pretty lucky too!! Well, I'm gonna go take a hot shower because it's kinda chilly in my house. It's been raining most of the afternoon and as the temperature drops, I think it'll probably be all white again when I wake up in the morning. Hope everyone else is having a great last week of September. Life is Good Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited September 2006

    Hi all, I told hubby I would go with him when he came in for a Dr. apt. on Fri. morn. He spends so much time in Texas and I thought theres a good climate right now. He always is in Texas!!!!NNNOOOTTT this time!!!! He says well guess where we are most likely going? Washington again, won't that be great? Not really, in a 17 wheeler!!! He says not to worry we will be in a 18 wheeler. Well that one more wheel makes me feel safe in the giant mountains. Now the last trip to Wash. he was in the big high mountains(last wk.) on a steep grade and all the power went out on his truck and his air brake alarm was going off but...he had brakes. He had no dash power or computer device that hooks him up to the truck co. until he got back to WI.4 days later. Now I get to go this time around, how fun. Wheres a good virus when ya need one. I have painted the outside of my house for the last 2 days and I am so down in the back but that wont fly as all I do is sit in the truck or lay in the bed. We will no doubt take the South Rt. up there but we will no doubt take 90/94 back to WI. so I will get plenty of cold weather. Why do I have such bad luck? A trip to Calif. would be great!!!Fla. Texas, no not me I get the North. I have to pack, leaving Fri. Mary

  • PJB
    PJB Member Posts: 2,615
    edited September 2006
    Mary, COME TO TEXAS! We'll meet at a truck stop. But for now, have fun in Washington. Bundle up.... take an umbrella.

    Hey, Janie, what ever happened to dateman?

    Do you guys see that new thread "Growing our friendships" or something? Do you think they are trying to get us to leave "Going through chemo"? Are we being asked to move along? Should we? I dunno. I'm pretty comfy here.

    Oh, and by the way Mary, the weather IS lovely down here.... Head down this way. Does he travel Interstate 35?

    Paula
  • mary1220
    mary1220 Member Posts: 1,246
    edited September 2006

    P.J. He goes to Dalas a lot, San Antonio and Houston. He goes back and forth between the 3 for a few days then back North. I have no desire to view the Grand Tetons in an 18 wheeler. I will go on a Texas run soon P.J. Mary

  • janie44
    janie44 Member Posts: 1,460
    edited September 2006
    Rollin' Rollin' Rollin' keep them trucks arollin'
    I know, it doggies not trucks and it's the Rawhide theme, but it seems to fit. You kids DO be careful in the big rig gadabatin' around the country.

    Nancy, "ain't" life fun in the fast lane?

    PJ, is the kitchen completely done yet?

    Behave you all, or not.
  • PJB
    PJB Member Posts: 2,615
    edited September 2006

    Hey, Janie, kitchen's just about done. We'll put in new lighting, but not till it cools off enough for someone to spend extended time up in the attic (and, I presume, until dove season is over). I'll try to figure out a way to send some pics.

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited October 2006
    How's October treating you so far? It's HOT here in Montana. I started cleaning out my porch yesterday and finished a little while ago. I hauled a whole pickup load of junk over to my junk pits. I also cleaned off the little chest type freezer out there and got all the stuff out of it and defrosted it. It didn't take very long because I hadn't opened it in a long time so it was not very frosty. It did on the other hand have lots of really old stuff that I put in black trash bags and hauled out. There were actually sirloin steaks, pork roasts and t-bone steaks from 1994 way down at the bottom under the new stuff like frozen fruits and veggies from the Schwan man. It was actually my mom's freezer so I wonder if she knew at one point that all that meat was in there???? We'll never know now. My brother called yesterday and wanted me to come up there and see her because she keeps saying that I'm dead again. I couldn't go because I have a really bad sore throat and I don't want to give that to her or the rest of the family. It's accompanied by a fever and runny nose so I think it's some sort of virus. Probably got it from those goofy preschoolers of mine. I gotta go change the channel on my tv. I've been watching NASCAR, but Jeff G. just ran out of fuel and so I've lost interest--SIGH. Well, better get busy and do my end of the month bills for the daycare and my payroll. Hope everyone had a lovely Sunday. Life is Good Smiles NancyLee
  • janie44
    janie44 Member Posts: 1,460
    edited October 2006
    PJ, the kitchen is beautiful.

    Nancy Lee, Wasn't it snowing there last week? Does the weather fluctuate a lot from one week to the next? What is a junk Pit, somewhere you take junk and burn it?

    Mary, if you get online somewhere, have a good time and stay safe.
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited October 2006
    Janie--Yes, yes, and Yes. It was snowing here last week and the ground was all white. Today it was 78 degrees and slightly windy. My father always said, "If you don't like the weather in eastern Montana, Wait an hour". It fluctuates in an hour--a day--not a week. No wonder we all run around with colds--you never know how to dress. This morning it was cold so I put on a sweater and had changed into a T-shirt by 10:30 when I went outside with the preschool class. My junk pit is actually 3 big rectangles dug out of the side of a ridge. I can back the pickup right up to the end and push the junk in. Then when the wind goes down and it rains or snows so that the fire danger is not an issue--I can burn the pits. I just call the fire marshall and tell him that I'm burning my pits because otherwise some caring or snoopy neighbor will call in and send out the rural fire department thinking my place is burning down. After the pits get all filled up--we cover them over and dig new ones. These three have been there for years. They're pretty big and it'll take a long time to fill them up. I've gotta get my payroll done. I went to bed last night early and didn't get done. I'm also watching the new Bachelor show--He's a prince. The girls are pretty much ga-ga over him and already acting pretty stupid over a guy they barely know. It's a pretty mindless show that I can have on while I type in figures for the timesheets and payroll. Fun--Bye for now-Life is Good Smiles NancyLee
  • PJB
    PJB Member Posts: 2,615
    edited October 2006
    Nancy, that's funny, that "wait an hour it'll change" thing is something they say about Texas, too. Of course, it DOESN'T really change. pretty much most of the year it's just hot and sunny, with occasional chance of thunderstorm or tornado.

    Nothing much up here. I hope Mary's having fun in the big rig. Janie, how's the medicine working for you? Are all these school shootings in the past week just scary, or what?

    Later girls,
    Paula
  • janie44
    janie44 Member Posts: 1,460
    edited October 2006
    Nancy, Thanks for the info. I saw about the last 5 minutes of the Bachelor. Andrea is a real piece of work.

    PJ, I can tell a big difference. I was actually able to hold still most of the time when I had my nails done yesterday. If I wait to take my first 1/2 pill until after I eat something....like at school sometimes...I shake like crazy until then. We are being reviewed on crisis situations and protocol at all our schools, as I am sure all schools in the country are. I hope this is not another series in shootings. One of the ones a few years ago was just a few miles from us.
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited October 2006
    Hi ladies--BRRRRRRRRRR!! It never got over 40 today and rained like the dickens. I have of course spent the day sump pumping my basement again!! I did go over at about 10 am and set the junk pits on fire. It burned for a good while, but then the rain put it out. I had to stay home today because I have good ole pinkeye. I went for years and years of teaching and never got it and I've had it three times in the last 2 years with this immune system I seem to have acquired. Oh, well, I got lots of things done around the house--vacuuming, dusting, washing clothes, etc. I have medicine for the eyes left from the last bout so I didn't go to the doctor. They look better tonight. This morning they were glued shut. That's just as scary to me as an adult as it was when I was a kid. Yuck!!!! Janie--we had drills at our school last time too and the police came and showed us how to disarm someone with a gun. Thankfully, I've never had to use that skill, but it was kinda fun practicing. I watched the whole Bachelor show. I think that Prince Lorenzo or whatever his name is has a rather large skinny nose. He's kinda goofy looking, but maybe his looks grow on you. He made some strange choices if you ask me--which he didn't!!! PJ--my niece and nephew both live in Texas. I know that you have changeable weather too, but not so much of the snow stuff that we put up with up North. Well, better go check my basement and feed my dog. He's WET. I let him come into the house this morning and dry off in front of the heaters. Nothing like that wet dog smell to make your house perfect!!!!! Life is Good Smiles NancyLee

Categories