Recurrence Rates by Stage - 5 and 10 years ??

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Katarina
Katarina Member Posts: 386
edited December 2014 in Just Diagnosed With a Recurrence or Metastasis

Does anyone know of a study that provides recurrence rates by stage? I saw one from 2008 in an Oncology journal but it didn't break down by stage and it was ambiguous.

Anyone know recurrence rates for stage III ladies?

Hugs,

Katarina

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited December 2014

    Hi Katarina - Here are a couple of tools to check out.

    http://www.predict.nhs.uk/

    http://www.lifemath.net/cancer/

    I also used https://www.adjuvantonline.com/index.jsp

    Take care!




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  • She
    She Member Posts: 503
    edited December 2014


    Katarina, I'm not exactly answering your question, but these are important statistics.

    Approximately 30% of people diagnosed with breast cancer will progress to Stage 4 during the course of their disease.

    Approximately 6% are initially diagnosed at Stage 4.

    So, roughly 36% will ultimately end up Stage 4.

    Approximately 3% of funds allocated to BC Research are targeted to Stage 4 research.

    Stage 4 folks need help from the lower stages to disseminate this information and help us advocate for a higher level of research for Stage 4. Advocating today may help you save your own life years from now!

    I think we'd all prefer to be on the side of Stage 4 longevity statistics rather than on the mortality side...

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  • Katarina
    Katarina Member Posts: 386
    edited December 2014

    Thank you FarmerLucy and She!!

    This is just what I was looking for. I appreciate the help.

    Hugs,

    Katarina

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  • wintersocks
    wintersocks Member Posts: 922
    edited December 2014

    I'm too scared to look at recurrence rates. I wish I wasn't but I am.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2014

    There is nothing wrong with censoring the information you read. The first thing my gynecologist said after my diagnosis was don't go on line and look up a bunch of stuff or you'll scare yourself. Good advice. I'm very careful what I expose myself to.

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  • Hortense
    Hortense Member Posts: 982
    edited December 2014

    "Stage 4 folks need help from the lower stages to disseminate this information and help us advocate for a higher level of research for Stage 4. Advocating today may help you save your own life years from now!"

    I agree. How is the best way to do this?

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  • Katarina
    Katarina Member Posts: 386
    edited December 2014

    Only 3% of BC reasearch funds are spent to help stage 4 survivors!!!

    This industry shame should be a forum unto itself. This is so unacceptable.

    Why is this?

    Katarina


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  • Hortense
    Hortense Member Posts: 982
    edited December 2014

    I wonder if those of us who have been treated for Breast Cancer start writing the various foundations and asking for them to fund research for stage 3 and 4 cancers, if they might redirect funds to do that? I get so frustrated when I am asked for money to help raise "awareness" about breast cancer when nearly every woman alive is very aware of it already. In my opinion, money used for awareness campaigns ought to be used for research.

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  • pajim
    pajim Member Posts: 2,785
    edited December 2014

    Katarina, the numbers are never really up to date.

    The latest big breast cancer trials are known as SOFT and TEXT, done in younger women.  They actually had trouble finishing the studies as women did not recur often enough!

    You might be able to extrapolate [more current] numbers you are looking for from SOFT.  They broke the women into subgroups of "had chemo", "didn't have chemo"

    http://www.nejm.org/doi/full/10.1056/NEJMoa1412379

    Recurrence rates in these premenopausal women were 9% over 6 years.  Most of those were local recurrences.  1.5% metastases rate [total] over 6 years.  That's if you were advanced enough stage to need chemotherapy (if I read the figure right).

    All that said, the rates would be different for older women.  Lower, actually.

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