Winter rads 2014-2015

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  • Beachbaby65
    Beachbaby65 Member Posts: 68
    edited December 2014

    Today apparently is the day that I finally break down and cry. I haven't cried once through this whole hellish journey but last night and today were just so hard. I am bright red from my armpit to my right breast and from my collar bone to halfway down my ribs. The underside of my breast is so burned and has to small areas that are open. I also have the beginnings of a rash on my back ,which the Dr says is dry skin and has nothing to do with radiation. I call bull on that. I've started the boosts to give the wounds time to heal(one week) next Tuesday I'll start the whole breast rads ( 5) back up. I probably wouldn't have broken down at all if it wasn't conning up on the anniversary of my best friend and soul sisters suicide . She died 8 yrs ago and I spent the last 7and a half years being angry with her. It's just been the last year that I've been able to forgive her and truly mourn her. But I got to say it's this kind of life crap we were supposed to help each other through. I could have shown my fear, my anger, and I could have cried with her. I wouldn't have had to be the strong stoic woman my fiance and kids see. I was supposed to have my last rads on Dec. 22nd.her anniversary and my fiancee birthday. The wonderful techs gave up they're Sunday.and now will be done 12/21, I miss her and it just got to me. Cancer is a damn'lonely and sometimes isolating disease and I am so tired. Well I'm now going to slather on the antibiotic cream( Silverdine) and see if the lorazepam will actually let me stay asleep. Today just sucked. This is my one and only pity party thanks for conning.

  • Hope50
    Hope50 Member Posts: 103
    edited December 2014

    today was rough. So very red and burned. Had to take bra off at work, kept putting gel on. Under ny arm painful. My back hurts bad. Boob is very very red. Chest itching and rashy. Looks a mess and not a hot mess!!

    I left work early in tears because it all hurt so bad. I'm tired slow. I've done 23, got 11 more to go. You think the burning will continue to get worse? Doesn't the boosts burn worse?

    Jean, glad you stood your ground and bring heard now and action taken.

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited December 2014

    The bra wall is stupid, thoughtless, ill-conceived, inconsiderate and pointless and...and...and...  I am truly surprised that a clinic that is so personally involved with women who are in the throws of dealing with breast cancer would think that it had any redeeming qualities.  The humor? escapes me.

  • Bippy625
    Bippy625 Member Posts: 890
    edited December 2014

    jean..that photo...WHAT.THE.HELL. i am beyond astonished and disgusted. Why not put up a bunch of dildos for men with prostate cancer too! Can I say dildo here? My god. At least the dildos could be useful, for hangin coats! Another attempt to trivialize/sexualize bc. And they look like crap no matter what. I am confused, am I gettin rads today or a lap dance in the strippers dressing room?!

    You have my sincere sympathy for having to deal with these morons.

  • Birdgirl11
    Birdgirl11 Member Posts: 51
    edited December 2014

    Oh my - how I love reading all your posts. Justjean, I am so sorry to read about your experiences. And that bra wall is absolutely distasteful. Not professional at all! Bippy, you made me laugh so hard this morning, I love to see how so many of us are able to augh despite all of this.

    Hope, the pain and itching sucks! I am just starting with it and I'm fearful for what is to come.

    Only 11 down and 17 more to go for me. I was hoping to be one of those women who breezes through with few side effects. Nope. Yesterday I got hit with fatigue like a bad cold coming on. Got worse through the day, even with caffiene. Starting to get red and a slight purple color that makes my poor pigmy boob look a little sick. I work in a school, so I'm hoping I can hold out until Christmas break. Not so sure now

  • Pita119
    Pita119 Member Posts: 85
    edited December 2014

    Jean,

    Enjoying chippie's annoyance sounds like something I would do lol. The wall is horrible, coming from someone who chose not to have mastectomies, I think decorating walls with those bras is in very poor taste. Good luck with your continued rads...I'm doing #8 today with 12 more to go.

  • KatieC12
    KatieC12 Member Posts: 19
    edited December 2014

    I did it - finished the last rads and after all the talk here about cookies, I took a tin of homemade shortbread and a tin of nuts and bolts in to the techs to celebrate. My favourite techs were there today, which made it especially nice. They did however shift me right left and centre - I told them the next generation of radiation machines should be able to shift like a goose neck lamp, to avoid the techs having to shift the patient.

    I'm very grateful my cancer was caught so early - in fact, last year the breast screening clinic told me I could drop back to once every two years, but I asked to stay at once a year given my family history. My great-grandmother, my grandmother, my great aunt, my aunt, several second cousins and now me. If I'd not asked to stay on the once a year schedule, who knows what could have happened by next summer.

    I know I was lucky to have fewer treatments than so many here. I just think we should forgive ourselves our meltdowns and allow ourselves the very occasional pity party. I found myself a bit snarly last week, this week is better, I'm starting to get out the Christmas decorations.

    Blessings to all.

  • labelle
    labelle Member Posts: 721
    edited December 2014

    Unreal. The wall of bras is in such bad taste IMO. Hopefully they will take it down soon.

    I wouldn't worry about breaking down and crying, beachbaby. I did that every single day for the 1st week after being diagnosed-I'm a bit better now-but sooner or later, I think we all need it. Tears can be cathartic and you no doubt needed to release some of what you've had bottled up inside of you.

    I met w RO on Monday, had practice/got new tattoos today and begin radiation on Wed.12/17. 30 total (24/6 boost). I'm not very excited about this. Seems my lumpectomy is healing well and the swelling is going down a bit. Now we are going to hit the poor thing with radiation. Yikes! I did opt out of having the supraclavical area done. Monday the RO recommended it but said there was no way to keep it from hitting my thyroid (and my thyroid is a cranky monster), he also said we could not do radiation in the prone position (which I want to hopefully decrease damage to heart w left breast being the target) and still do the supraclavical area. So today, I told him I'd pass on having that part done and he said, "Okay, it really isn't that important in your case." So, why the hell did he want to do it in the first place? Crazy. Having radiation in the prone position now, no problem. Sometimes I swear they just make up my treatment as I go along.


  • MarieBernice6234
    MarieBernice6234 Member Posts: 202
    edited December 2014

    Hi CoyoteNV - I like all your Christmas decorations - especially the one of the cat on the living room. I have to get into the spirit a bit.


    MarieBernice6234

  • MarieBernice6234
    MarieBernice6234 Member Posts: 202
    edited December 2014

    Hi Hope50 -

    I am so sorry that you are having such a difficult time with the treatment. I understand about the redness and itchiness/soreness. I wouldn't waste anytime in telling your treatment team. It could be radiation dermatitis and the radiation oncologists are reluctant to recognize this if it appears on places other than the breasts. If the specific doctor hasn't seen it then certainly it doesn't exist.


    MarieBernice6234

  • MarieBernice6234
    MarieBernice6234 Member Posts: 202
    edited December 2014

    Hi BeachBaby -

    Well today was my day for a "melt down" also. I have Boost day #2 tomorrow and end on the 19th. I spoke with my oncology nurse today about my weekly visit with my radiation oncologist yesterday. Long story somewhat short is that despite the fact I told her that something was wrong and she was slow in giving me the referral for the dermatology. She (RO) stated that it certainly wasn't radiation dermatitis which pissed me off. My anger carried over to today.The RO came by the room where my radiation nurse was discussing this (cue the waterworks) and she responded and didn't like when I told her that I felt like she wasn't listening or hearing me. She said with disbelief in her voice " What do you mean I don't listen - I always listen to my patients". She was forced by me to state that she originally didn't agree with me was BECAUSE she hadn't seen radiation dermatitis in that way before. She stated that if I wanted to say it was radiation reaction then she would call it that. It represented to me some arrogance, but back- pedaling all the same. I don't think she will challenge me like that again. Doctors may try to cross me once but never again. The doctors don't have anything if they don't have my cooperation and my body. You can vote with your feet!

    MarieBernice6234

  • MagicalBean
    MagicalBean Member Posts: 362
    edited December 2014

    Katie: Yea for you! I had # 2 boost today and should be done Monday, unless the weather keeps me away. I have a 30 mile drive on country roads and a storm is brewing tonight. How are you celebrating your milestone? My RO said I was required to go out for a steak dinner on my last day. Sure looking forward to that.

    Hope: I know how you feel with the itching and burning. I have a couple of areas that started to peel and have been super-sensitive and painful. My boosts are in a different spot so these areas are no longer being "hit", and the healing has been very fast.

    I have no words for the bra wall. Did I miss the sequined jock straps with eye lashes?

  • KatieC12
    KatieC12 Member Posts: 19
    edited December 2014

    MagicalBean, I celebrated by taking the rest of the day off work and taking a nap! But I do have a very nice dinner in the oven, just waiting for everything to cook. The chest hasn't been too itchy at all today - yay. Hope the weather co-operates. We're supposed to get snow tonight too.

    JustJean, you can do it too. Just keep on doing what you're doing, and avoid that crazy wall. Thanks for showing the rest of us.

  • LMVerna
    LMVerna Member Posts: 19
    edited December 2014

    Hi All,

    Finished #16 today. I am red and tan/brown especially under my arm. Feeling a lot of burning there too. Itchy rash on my chest. I also had to do my Herceptin infusion today so it was a long day at the hospital. Feeling really fatigued and down today too. I guess it is also my day for a pity party but this too shall pass. Looking forward to being done before the new year!

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited December 2014

    Hooray to you Katie!  What a great Christmas present - to be done and have this behind you.


     

  • mmtagirl
    mmtagirl Member Posts: 509
    edited December 2014

    congrats, Katie! Enjoy that dinner and you deserve the nap!

  • Carynbrit
    Carynbrit Member Posts: 51
    edited December 2014

    The walls of bras ticks me off.


    Ugh..well here I am.. yesterday I spent most of the day on the phone because nobody could check the pre insurance /authoriation thing.... so i didnt find out till this morning if i was really going to start my rads (actual rads.. the sim was done on Monday). 2 hours before I was due to go.. i finally got an answer...so off I went. Its surreal.. really is.

    Got set up.. arm hurt like hell and my seroma was protesting. I have one on my breast too (which stopped leaking about 2 weeks ago). Got my rads..and (i read the posts!!!) i put my lotion on , on day 1. My breast though this evening..where the seroma was..is already hard..and red.. I figured it would fire up like that.. it wasnt happy about being prodded I'm hoping this isnt going to be the massive problem area already.. I've only been ONCE... I am looking at my drawings on myself.. as well as the tats wondering how in the heck they know which marks are what!!! Im overwhelmed.. got in the changing room and had a few tears roll already.. and im not one who crys much at all. ..stress really coming out then...

    Well that was a lot of venting from me!



    Congrats to you Katie!!!!


  • ForHisGlory
    ForHisGlory Member Posts: 64
    edited December 2014

    so I started day 1 of 36 treatments today. (28/8) I must admit I've been living the past few weeks like I was healed and done with this whole cancer thing so when I went last week and got all marked up, I did get a little emotional. I felt like I was actually starting to feel/look normal again so it's hard to start this journey. Just looking down at all the markings made me wanna cry!

    Today was very uneventful. ..they said don't put anything on until they tell me to. I am going to try to work everyday from 730 to 2 and then drive 30 minutes to treatment. I am a nurse manager at a busy skilled nursing rehab...hoping I will not battle fatigue too bad with this schedule.

    I will read this board to catch up....my last scheduled day of treatment is January 30, and I'm hoping to go on a vacation to Florida Feb 1. ..will I feel like going? Guess I'll have one tanned boob by then huh? :-)

  • davida58
    davida58 Member Posts: 23
    edited December 2014

    I guess I am a winter rad? Had first treatment yesterday. By the time I got home, affected breast was angry red and swollen. Um, that is after ONE treatment. Second treatment today. Is this normal after ONE treatment???

    15 treatments to go.

  • KatieC12
    KatieC12 Member Posts: 19
    edited December 2014

    Hi Davida58, welcome to the winter rads group. I don't know if it's normal, but did they tell you to get cream to put on everyday? You can also ask the nurses about reactions. Good luck on the rest of the journey.

    I'm feeling a little out of sorts today, and didn't have a good night. It didn't help that I burned the rice last night! Not sure if I can get the pot clean, it's a very old pot, but also the top to the double boiler.

  • Beachbaby65
    Beachbaby65 Member Posts: 68
    edited December 2014

    katiec12 put water, lots of salt, and vinegar in your pot and simmer it at a low boil. Do this for 15 to 20 mins and then try to clean it. Hope it works. I have peeling all under my breast and its quite painful. I have to reapply the antibiotic cream they prescribed me constantly because it rubs off. My nipple is also incredibly painful and not wearing a bra doesn't help. Lol it constantly hard like I took viagra for my nipple! 8 , more to go woo hoo!

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited December 2014

    ForHisGlory and Davida58 -  I added your names to our Winter Warrior Roster and wish you an easy time over the next few weeks.  The reaction to the treatments really does seem to vary between each of us.  Even the doctors don't have a good answer to that.  My RO did tell me that it appears that women who have a larger area treated seem to have a worse overall skin reaction.   I guess that makes sense when you think about the issue of radiation scatter. 

    To all: I'll move the roster over to the top of the next page. It's near the top of page 10 right now.   Do we want to add ended dates?

  • Carynbrit
    Carynbrit Member Posts: 51
    edited December 2014


    davida58...I had my first treatment yesterday and had the same thing..I was like what? already?.. but after the second lumpectomy I was left with a sermona under there (that stopped leaking out a few weeks prior) and it seems like that puffed up again.. nice and annoyed looking but by the morning it wasn't as bad. I started with aloe straight away.


    2nd treatment done this morning.. early days I know. But todays was nice and short and I was in a better mind frame too. It'll become routine before I know it (ugh). Just keeping an eye on that swelling from yesterday.


  • yikes1
    yikes1 Member Posts: 120
    edited December 2014

    Hi Davida58

    Just so you know, the radiation treatment seems to be different for each of us.

    But, as far as I can tell, you are the first person I have seen on this forum that wrote Internal for your therapy, as opposed to external.

    And, you are getting less treatments than most of us.

    So, perhaps you are having a shorter, but more intense course of treatment, which I know is used in certain situations, and may explain why you experienced some side effects after the 1st day?

  • runningcello
    runningcello Member Posts: 110
    edited December 2014

    I'm 24 years old and just started radiation this week, 4th treatment completed today. As of now, it's not so bad. I have been lotioning everyday. I completed my last dosage of chemotherapy on September 30th, had herceptin, perjeta, taxotere, and carboplatin. I felt tired the last month and a half and now I am regaining my energy, I was worried it was from radiation but I think it was from chemo effects.

  • mmtagirl
    mmtagirl Member Posts: 509
    edited December 2014

    I finished today. All the best to all of you as you finish up.

    Tired and a bit emotional. I will save that for another day-- it's all good!

  • PoppyK
    PoppyK Member Posts: 1,805
    edited December 2014

    Mmtagirl, Congratulations! Happy dance time!

    I found out my start date: Dec 29. End date Jan 30. My RO is giving me a little more time to recover from chemo... plus I got sick and am on antibiotics. I also found out they won't be doing any boosts (as was previously planned) because my clips ended up being scattered when the plastic surgeon rearranged my remaining breast tissue to make my new breast.

    Don't usually cry much, but I cried a bit when I got the start date. I just wanted to be a "normal" person for a few weeks.

  • Carynbrit
    Carynbrit Member Posts: 51
    edited December 2014

    Hugs to you Poppy.

  • MarieBernice6234
    MarieBernice6234 Member Posts: 202
    edited December 2014

    Congratulations Mmtagirl!!!!!

  • mmtagirl
    mmtagirl Member Posts: 509
    edited December 2014

    thanks, all. Poppy, I can relate....I have been crying all day today and I am not even sad!

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