DIEP 2015

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Morwenna
Morwenna Member Posts: 1,063

OK, following on the very successful model set by the DIEP 2014 thread, here's one for 2015!

In 2014, Nihahi wrote: Welcome to the 2014 thread. Started as a "home-base" for w9omen considering or undergoing DIEP surgery in 2014, this has become a place of questions, answers, support, courage, tears and smiles. We are from various countries, and are having our consults and surgeries in different locations, and are at different time lines in our breast cancer journeys. We plan to be here in years to come, for women who may find themselves on the same road.

IF you wish your name and surgery to be added to the timeline, please Private Message me with your dates (and locations) for your surgery in 2015. I might miss this info buried in the thread! ;)

Please also note: there is NO OBLIGATION to put your info on the timeline! ANYBODY can join in on this thread if you have something to ask or to say!!

I will include any surgery involving breast reconstruction "with tissue from abdomen", i.e. TRAM free flap. or pedicle flap (if that's still done), Muscle sparing TRAM free flap as well as DIEP and SIEP procedures. Also "stage 2" and nipple recon/tattoos etc

January 6 ..... Annieb4 ..... Stage 1 DIEP ...... Mayo Clinic (Dr Valerie Lemaine)

January 6 .....Morwenna ...... Right Prophylactic Mx + bilateral Muscle-sparing TRAM ... Calgary, AB (Dr Schrag)

January 9 ... Emusmummy .... Bilateral DIEP stage 1 at the Hospital at UPenn (Dr. Serletti)

January 13 .....MichelleLg ....Left Mx and immediate DIEP flap ... Ontario

January 15..... goodrhue............ unilateral DIEP ......Charleston (Dr. Craigie)

January 15 .... OVienna ...... DIEPo

January 16 ..... Violetphisch .... Bilat Mx with immediate DIEP ...... Hospital University of Pennsylvania - SO Dr Czerniecki, PS Dr Liza Wu, MO Dr Kevin Fox

January 26..... LAstar............ stage I unilateral DIEP ...... Charleston

January 29 .... Study411 .... Prophylactic left Mx, and bilateral DIEP

February 2 ....... five_cents

February 4 ........ Neta69 .......delayed bilateral DIEP with Dr DellaCroce in NOLA

February 6 ....... missygirl .... delayed unilateral DIEP (failed tissue expander)

February 12 .... mefromcc .... Bilat DIEP Stage I........ UMC, (Dr. Larson)

February 13 ... nmh35 ... bilateral mastectomy with immediate DIEP...... Dr. DeRisi and Dr. Kornin Long Island

February 23 .... Rangerwife74..... Unilateral DIEP ...... Univ of Colorado in Aurora (Dr Joyce Aycock)

March 4 ...... JLB4 .... Bilateral Prophylactic Mx with immediate DIEP .... university of IA Hospital

March 10 ....... slv58 ....... Unilateral Mx & immediate DIEP ... Sunnybrook Hospital, Toronto - (Dr. Lipa)

March 13 ........ WalleGator ..... Moffit Cancer Centre, Tampa

March 16 ....... DeeCee ..... Bilateral DIEP post implants

March 20 ..... Hopkins2015 ..... Uni-mastectomy with DIEP flap reconstruction

March 25 ...... Blossom40..... Bilateral DIEP : Stage 1...... Charlotte, NC .... Drs Robinson and LeFaive

March 25 .... Ridley ...... Nipple reconstruction and fat grafting

March 27 ..... Alycallie ..... bilateral DIEP and prophylactic mx .....MD Anderson in Houston, TX.

April 3 ............ jmb5 ..... tattoos with Trent at Little Vinnie's Tattoos

April. ... dogbiscuit. .... bilat. Mx and SGAP

April 6 ........ Scwilly ...... Right MX & Bilateral Diep, .... Kaiser, Woodland Hills, CA. (Dr Kim)

April 7 .... MelissaMcD .... bilat DIEP (failed implant) Dr. Richard Kline - Charleston, SC

April 8 ........ Bestgigigirl61 ..... Bilat DIEP post implants .......Nola with Dr. W.

April 9 .......... Mary625 ..... Stage II DIEP ....., Dr. W..... , NOLA.

April 13 .... SheriCola .... Right prophylactic Mx and bilateral DIEP ......Baltimore (Bernard Chang)

April 13 .... mefromcc .... excision neuroma left breast.

April 16 .......... Blessed 15 ..... Bilat DIEP (post- implants)

April 16 ..... hartrish ....... BMX with DIEP reconstruction ...... Dr Theresa Wang

April 30 ...... Melissa86 ..... Bilateral DIEP

April 30 ...... Cloudynight .... unilateral mx with immediate DIEP reconstruction ..... (Dr. John R. Griffin, PS; Dr. Jane Woo, BS)

May 6 ..... kitkat72 .... Stage 2 ...... milwaukee at froedert

May 7 ...... AnnBR .... stage II surgery ...... at the Mayo Clinic in Rochester

May 7 ....... mefromcc ...... Excision fat necrosis from left DIEP flap

May 13 ...... Brandi999 ..... bilateral DIEP ... Austin, TX (Dr. Eggleston and Breast & Body)

May 13 .... Catm0m......bilat Mx with Diep; Dr G. Fuhrman & Dr Ali Sadeghiin, New Orleans.

May 21 ........ Susanella ....... BMx with immediate DIEP ...... Long Island, NY

May 21 .... Mimi87nyc ... Right MX w/ immediate DIEP.... NYU Langone Tisch Hospital

May 22 .......... Websister ....... Prophylactic Umx and bilateral DIEP ...... Calgary, (Dr DeHaas)

May 28 ...... Goodrhue ...... Stage 2 ...... Mount Pleasant, SC (Dr Craigie)

June 1 ..... rlynn76248 ....... DIEP ...... PRMA in SanAntonio with Dr. Ochoa and Dr Ledoux.

June 1 .... jbdayton ...... Stage 2 ..... Houston, TX

June 3 .... DCIStimes2 .. Bilat Mx and DIEP ...Brigham & Women's Hospital in Boston, MA

June 3 ...... BlueBelle ....., UMX with immediate DIEP, Hospital of the University of Pennsylvania, Dr. Tchou (SO) and Dr. Wu (PS).

June 4 ........ GraceB1 ....... Unilateral delayed DIEP

June 10 ..... Bogie ...... Bilat DIEP ... The center for restorative breast surgery (NOLA)with Dr. Sullivan

June 15 .....Andrea623 ..... unilateral diep.... Intermountain Medical Center - Dr. Rob Ferguson

June 19 ..... cmclean....Bilat Mx with immediate DIEP ...at UAB in Birmingham, AL

June 22 ...... Martie1228 ..... delayed bilateral DIEP ....... Knoxville, TN ... (Drs Stephenson & Herbig)

June 29 ..... lynn85 ........ Bilateral Mx and DIEP at md anderson in houston

June 29 ... jenine...... delayed unilateral DIEP.....St. Agnes Hospital in Baltimore MD

June 29 ... trying2staypositive7 ... DIEP ... Miami, Florida ( Dr. Jaime Flores).

June 29 ..... mardea15...... BMX & DIEP .... Dr's Vargas & Venturi .... VA

July ..... dogbiscuit. ..... revision failed SGAP to unilateral stacked DIEP

July 15 ... pritydaizy .... prophylactic right Mx, bilateral Extended DIEP ... Dr. Sullivan, NOLA

July 20 .... Bunnybumps .... bmx with immediate DIEP, IDC left, prophylactic right, ...... North Shore LIJ-Manhasset.

July 27 ....... Yeg9525 ......- BMX - Dr Cocilovo & Dr Nahabidian - Fairfax, VA

July 31 .... dismay15....... BMX with immediate DEIP ....... Connecticut

August 12 ...... Outdoorswoman...... DIEP .... Huntsman Cancer Centre, SLC, Utah

August 17 ..... Ruuthieann ...... delayed bilateral DIEP with Dr. Chevray at Methodist Hospital

August 17 ....... Carolynanne ... Right Mx with DIEP flap and SLNB - UPMC Magee-Women's Hospital, Pittsburgh, PA

August 20 ....... Phoebe58..... Bilateral mastectomy and DIEP .... Vancouver BC

August 25 .....Js5 ....... DIEP .... Brigham and women's in Boston

August 26 .... indyaskye .... Stage 1 DIEP.... Cleveland Clinic. Dr. Djohan.

August 27 ..... Angelsareeverywhere ..... Diep Flap .... University Of Michigan ... Dr.Momoh

September 1........ Trvler ..... DIEP .... NOLA

September 2 ..... mefromcc ..... Fat grafting

September 8 ...... 39andhip. ... unilateral DIEP .... University of Colorado hospital ... Dr. Tae Chong

September 14th.... Laninha..... Bilateral DIEP ...... Dr. Jaime Flores (Doctor's Hospital)

September 16 ....... retrochick .... Bilateral delayed DIEP

September 16 .... TRINEG .... bilateral DIEP flap .... NOLA

October 6th ..... Tmgilbert1071 ......Stage 1 DIEP ..... NOLA. Dr. M Whitten Wis

October 21 .... Uniboobie .... delayed Right DIEP Flap ...... Dr Gabriel in Vancouver, WA.

October 21 ... Kathy744 ... delayed Left DIEP Flap .... Brigham & Women's Faulkner Hospital, Boston, MA

October 26 ...... Evegibb .... Delayed Right DIEP

October 28 ...... Websister ..... Stage 2 ... Calgary.

October 28 ...... mrsnation..... DIEP ... UCLA Ronald Reagan Medical Center ... Dr. Chang (mastectomy) and Dr. Festekjian (plastics).

November 4 ...... beergirl63 ....unilateral delayed DIEP .... Medical Center in Kansas City, Kansas

November 6 ....... Cloudynight. .... Stage 2

November 13 ..... cassylou ..... bilat. Mx with immediate diep, plus ovary and Fallopian tube removal ...... Sydney

November 26 .... spookisgirl ...... Right Mx and prophylactic Left Mx, with bilateral DIEP... Victoria, BC

December 2 .... icmmommy. ... Bi-lateral Mx and DIEP. ..... Froedterdt Hospital & Medical College in Milwaukee, WI.

December 3 ...... daboysMumma .... bilat Mx with Immediate DIEP ... Drs. Juress and Momoh @ U of M - Ann Arbor, MI

December 9 ... SA8PG ..... bilat delayed DIEP ..... PRMA, Dr C.

December 10 ..... TRINEG ..... Revision surgery after DIEP - NOLA

December 10....Bigsister2015....bilateral DIEP (post infected TE x2 + sepsis).....IU in Indianapolis (Dr. Chu)

December 16 ..... NotAgain2015 ..... bilat Mx with immediate DIEP ...... Charlotte NC

December 21 ....... Sablanut58 ...... Right delayed DIEP

December 21 ....... Blossom40. .... Stage 2 DIEP ........ Charlotte,NC

December 22 ..... trying2staypositive7 ...... stage two DIEP in Miami, Florida with surgeon Jaime Flores.

December 28 .... Tmgilbert1071 .... Stage 2 DIEP. ..... NOLA ..... Dr Wise



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Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Great idea Morwenna! Incredible how fast time flies, 2015 is almost here. Thank you starting this thread.

    The Mods

  • SheriCola
    SheriCola Member Posts: 21
    edited December 2014

    Hopefully I will have a DIEP date after my consult tomorrow . I have a back-up consult on the 19th as well. This surgery has been put off for two years so I'm excited!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Let us know when you know, SheriCola :)

    I've swiped the 2015 names from the 2014 thread as well, hope that's OK :)

  • WalleGator
    WalleGator Member Posts: 102
    edited December 2014

    Hi SheriCola! I've got a surgery date scheduled for March. Pretty nervous, but been reading the 2014 boards and that has helped a lot. Knowing what to expect makes all the difference. I'm excited for you that you're moving ahead on your surgery. Looks like you've been waiting a while. I also see you're TN, like me. Sucky, for sure, but you've already got a couple years under your belt! Good luck on your consult!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    I'm triple negative as well. Yay us! :)

  • annieb4
    annieb4 Member Posts: 106
    edited December 2014

    Norwenna.

    Looks like you and I are going at the same time..I can't believe how fast the time is going. Am looking forward to this being all over with.

    I had my pre-appointment CT scan , everythink looks good. My PS did tell me she was concerned about how thin my skin is on my radiated side and that it could break open. It won't change anything as far as the surgery is concerned but if it does happen I will need the dang expander removed. Oh how I hate these things..

    If I only would have known back then I was going this route, I would never have had to have them.

    Anyway, I have been ordered to take it very easy and not do anything that would cause it to bust open, so yes I am using it as an excuse to not have to vacuum or shovel or anything else that might put some pressure on my chest.


     

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    What time zone is Mayo Clinic Annie? You might technically be before me! Calgary is Mountain Time :)

  • annieb4
    annieb4 Member Posts: 106
    edited December 2014


    haha...I am in Central time Morwenna, as this is the Mayo Cinic in MN, so I think you are an hour ahead of me. I don't know what time my surgery is yet, I call the night before to see what time I need to be there. I am the only surgery she will be doing that day, and since it is such a long procedure, I am hoping it will start quite early.. I know I am not supposed to eat anything after midnight, but I can drink up to two hours before surgery.

     

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Same here. I have to call as well, but preparing myself for crack of stupid o clock as there's always admission stuff to get through, and I imagine they'll want to crack on with the surgery.

    Mountain time is just east of Pacific coastal time btw, so I think you must be ahead of me time zone wise :)


  • nihahi
    nihahi Member Posts: 3,841
    edited December 2014

    Hi gang....I heard Mo had started the 2015 "class of tummy recon", so just popping in to say "safe surgeries and gentle healing to you all". I'm betting you'll make some amazing, life long friends on this journey....Be patient, celebrate the small stuff....it's a hell of a ride, but can be sooooo worth it. Hugs!!!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Bumping and updating :)

  • SheriCola
    SheriCola Member Posts: 21
    edited December 2014

    Hi Ladies,

    So I haven't scheduled anything yet. The 1st PS gave me the go ahead to get the surgery whenever I decide to do so, but personally I want to lose some weight beforehand. I'm not exactly confident when it comes to completing that goal. I gained 55 lbs due to treatment/depression and I've only lost 5 lbs - but I can't say that I've really tried . Anywho, I have a 2nd consult in a few days. I'll be deciding between Dr. Chang in Baltimore and Dr. Nahabedian in VA/DC. I will probably shoot for surgery between March and May.

  • Survivor_and_tattooist
    Survivor_and_tattooist Member Posts: 1
    edited December 2014

    Hi Shericola, it is my first time on this forum. As for the DIEP and wanting to lose weight. I had my DIEP one year ago tomorrow!Yay! I also gained a lot of weight while on chemotherapy. I did NOT lose the weight like I wanted and was upset about it. Thankfully, the weight gain provided me with enough fat and skin for two beautiful small D cup breasts! In retrospect, losing the weight may have not given me the size I was hoping for. I lost around 12 lbs after the surgery and I lost about 6 lbs after stage 2. If you want to lose weight for safety reasons, I completely understand. The surgery is long (12.5 hours for me) and the recovery is doable, but trying. I would do it over and over if I had to! I love my results! The best advice I can give is to exercise and tighten your leg and back muscles. Good luck and congratulations on being close to the end of your journey! <3

  • mefromcc
    mefromcc Member Posts: 188
    edited December 2014

    Howdy fellow diep sisters. Got my surgery date in February (only 8 weeks away). My CT showed small, but acceptable vessels. My PS said my larger ones were too high or too low, but he can work with what I have.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    I think if you are trying to lose weight Sheri, the best approach is something not too drastic.

    The last time I saw my PS I admitted that I had hoped to lose weight over the summer, with dragon boat race training twice a week, but I was ashamed to admit the weight had crept ON if anything.

    This, to be honest, was all down to allowing "the occasional treat", to become a habit! Anyway, he gently pointed out that if I could "get a handle on" my weight, it would present less of a risk as regards my history of blood clots.

    Yes, I thought, not to mention that being overweight made my indigestion/GERD worse, and exacerbated my lymphedema, as well as increasing my risk of cancer recurrence.

    I just gave myself a mental shake and decided well I had less than 2 months to be firm with myself and get some weight off. And so I'm eating breakfast of cereal or oatmeal with berries and Greek yogurt, then unlimited fruit and veg, nuts, maybe a small piece of cheese at lunch-time, and a nice supper of an appropriate portion size. I'm avoiding bread, cakes and cookies or candies, oh and alcohol (sob), and I have lost about 7-8 lb in 3 weeks, so if I don't go crazy (arghhhh CHRISTMAS!!!) over the next few weeks I should be able to drop some more before Jan 6.

    I know its not easy to make changes, and if you are suffering from stress or depression it is even harder! But its like quitting smoking. Nobody can make you do it. The motivation has to come from inside, and then you just decide to do it. It's easy to fall off the wagon along the way, and we are all here to encourage each other! There's even a weight loss thread ..... the Wednesday Weigh-in, or something! :)

    And if things slip a bit, don't beat yourself up or feel that you failed. Just be kind to yourself, and say "OK I ate 3 Twixes in a row yesterday, and felt really sick, but hey-Ho, that's my blow out for the week, so back to the salads today!!"

    Many find various weight loss programs are helpful, and I think that's mostly the accountability aspect, but in the end, you have to do it for yourself eh?!

    One thing to consider, so I'm told, is that if you lose weight post surgery, your new boobs will also lose weight! So I think that has to be balanced against making sure you have enough "spare tire" to fashion your new body parts!

    Here's to us all *raises a cup of herbal tea*

  • LAstar
    LAstar Member Posts: 1,574
    edited December 2014

    Thanks for moving my date over, Morweena. I'm just over 5 weeks away from my uni-DIEP to correct necrosis from my SGAP back in 2012. It feels like it is just around the corner, but there is plenty to keep me distracted like cramming extra work hours in, getting ready for the holidays, and making travel arrangements. I'd hoped to be 12 lbs down by now instead of another 10 lbs up, but as they say too often on the West Coast, "it is what it is."

    I hope you are all getting ready for a wonderful holiday! 2015 will be interesting! I hope it will be a year of successful surgeries and moving past this nonsense for us all!

  • study411
    study411 Member Posts: 17
    edited December 2014


    Morwenna, please add me in, my surgery will be 1/29/15, left prophylactic mastectomy + bilateral DIEP flap.  Learn alot from the DIEP 2014 but still very nervous about the surgery.... will see PS again day before surgery.. BS still want me to do a mammogram & MRI with contrast on left breast before the surgery.  Not crazy about the MRI still can't raise my right arm too high after the right Mx a year ago..... Anyone have advice on how to get in & out of bed the 1st couple weeks after surgery ? and when should I start PT after the surgery ?  thanks

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Done!

    I hear you on the MRI! My left shoulder had a very minor restriction since my Mx, but 45 minutes prone with my arms above my head near killed me in October when I had my MRI!

    Since then I have had ongoing rotator cuff issues, and since shovelling snow a couple of weeks back I've had tennis elbow symptoms too!

    See if they'll let you adopt a modified position to accommodate your stiff shoulder! They must be used to it. Just don't grit your teeth and bear it, as I did, if you have a choice. It's not worth it!

    Following flap surgery arm raising is limited to shoulder height for the first 3 weeks or so, so I feel we are sitting ducks to develop frozen shoulder coming out of this!

    Get to physio as soon as you are allowed to do range of motion exercises, especially if you don't feel you are progressing on your own!

  • mefromcc
    mefromcc Member Posts: 188
    edited December 2014

    I was an athlete and after shreading my rotator cuff at age 54, ending up having extensive shoulder repair surgery. My shoulder must be supported a certain way or it'll be incompacitated and require PT. So far, the OR RN and Anesthesiologists have made sure we place it correctly supported by padding from a folded pillow case. Because I was going to be sat up during the BMX, the nurse had me sit up and lie back to make sure it was positioned okay before I went to sleep. I did fine.

    So let them know what your problem is and they will work with you.

  • rangerwife74
    rangerwife74 Member Posts: 6
    edited December 2014

    Hello all,

    I have been reading this site since my diagnosis in June 2012. I had a L Mastectomey. I am due to have my recon on Monday Feb 23 2015 at the Univof Colorado in Aurora by Dr Joyce Aycock. I am planning on a DIEP. I need the left reconstructed the right will be a prop with reduction. Even after speaking with the doctor twice, I still second guess my choice. I am just so confused. I know they will never look normalagain. But what are the scars going to be like. I am young, and tired of wearing high neck shirts. Please help.

    Thankyou

    V

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Hi V,

    Just wanted to check which month your surgery is to be, as you told me January .....

    As for scars, if you google DIEP (images) you can find photos to get an idea how the scars go.

    There is also a photo gallery here, but its not part of the discussion board and is private, so you need to "apply" for access. If I get time I will post the link, but I think it is a "sticky thread" in the breast reconstruction forum.

    I think the scarring on the breast/s is rather dependent on how much skin was taken in the mastectomy, but you have a circular or elliptical area or "island" of transplanted skin and tissue from the donor site (tummy in our case).

    The "lift and tuck" side has different scarring again, but again you should be able to find images. Then you have a scar right across your lower abdomen, roughly bikini line, and an incision around your belly button as they have to cut that out to move the skin over it, then pop it out in the right place!

    I've seen photos of ladies looking stunning in bikinis, although I think my bikini days are long gone, even with a "tummy tuck"!! :)

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014
  • websister
    websister Member Posts: 1,092
    edited December 2014

    Hi everyone

    I would like to join this group. Morwenna was gracious to add my DIEP surgery date, I will also be having a prophylactic mastectomy for my left breast at the same time. I haven't read the posts on this thread yet but I look forward to getting to know all of you as we go through this year together.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    I hadn't realized it was such an auspicious date Websister! How very apt! :)

  • websister
    websister Member Posts: 1,092
    edited December 2014

    Something about the date was niggling at the back of my mind when they gave it to me and then I realized yesterday afternoon why. Seems to be fitting that three years after the biopsy I will have the surgery that will help to bring some closure. Still a very sobering decision to go forward with this as Rangerwife74 indicates with her post


  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    I was reading around and discovered this little website which some of you may be interested to look at ....... http://www.breastreconstruction.org/index.htm

    It has some nice succinct advice. All grist to the mill, as we say in Old Blighty :)

  • goodrhue
    goodrhue Member Posts: 60
    edited December 2014

    January 15..... goodrhue............ unilateral DIEP ......Charleston (Dr. Craigie)

    so ready to get this done!!!!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Thanks goodrhue, I've added you to the timeline.

    Does everyone plan on getting much equipment in place, or are you just going to wing it?

    I purchased a little stool for the shower (Walmart) and I have reserved a powered lift chair to rent, as I want to be independent asap at home and let dh get back to earning his keep!

    I have looked into where I can get a raised toilet seat, and also considered changing the shower head to a hand-held, but decided to wait and see if I need these things. A friend said she used a walker for the first little while, but again, I think I'll wait and see how I am ..... I did invest in one of those "reading pillows" with little extensions for the arms .....

  • annieb4
    annieb4 Member Posts: 106
    edited December 2014

    Just two weeks away Morweena. The time is coming up fast. I am getting a  little anxious. I know next month is going to suck but I just keep telling myself, it is only a month.

    I am bringing my recliner down to MN with me since I will be down there for 3 weeks. Might as well try to be as comfortable as I can. The rest, I am just going to wing it. I will have my daughters down there taking turns so if I need anything they run get it for me.

    I think I will just sleep for 3 weeks !!!! Wake up and feel 100% !!!!!!


     

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2014

    Sounds like a plan Annie! Good luck with that!!! :)

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