November 2014 Starting Chemo Crew

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  • Dee4C
    Dee4C Member Posts: 27
    edited December 2014

    Chris, love and hugs to you! So sorry this is a really rough one. Hope you start getting some relief soon!

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Metta you're in my prayers too, am praying for continued effective shrinking rumors and the others behave on this round! Thinking of you on Wednesday and hoping your worst expectations just don't happen. So glad for all you here, hugs to all

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Dee thank you so much for the love and hugs, much needed and much appreciated, this one a rough one :p

    I'll gladly wait for the improvements. Love and hugs back to you, how are you doing?

  • Dee4C
    Dee4C Member Posts: 27
    edited December 2014

    Chris, I'm doing really well physically, thanks for asking! I feel totally back to normal, maybe just a little tired at times. The trauma now is the hair. It seems to be ok as long as I don't comb it but I made the mistake of combing it this morning and got gobs of hair. You all know this drill. I'm not to the point of cutting or shaving it yet. I have to be in a state of half bald before I can do that, I know myself. Wish I was stronger about it. Only my chemo sisters understand this!

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Dee, good you're doing well, I found myself tired just before this chemo, view with the territory I guess, rest, don't push it :)

    My every empathy on your hair, I didn't want to shave either (still haven't)' I am mostly balding with a few bits left that I can comb over, I'm keeping them as long as they stay. I did gets gobs of hair on the 2/3r4 days then it's eased up, I got so itxhy I gave in and brushed for relief (that and pain), what we dove for the hair we love right?

    You are strong, strong enough to stand by the self you know :)

    Many hugs and much love, and yes I cried during hair loss stags, then would rearrange and have what fun I could find ;)

  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited December 2014

    Chris I really hope things ease up on you, I hate to hear you're having a rough time. mostly I'm feeling really REALLY tired, went to sleep early left my DH to care for the babies. It's 2am here, woke up to take my meds now back to sleep I go (((HUGS) ) )

  • thrifty1
    thrifty1 Member Posts: 67
    edited December 2014

    Hi All :) it's been awhile since on here. Not to scare anyone, but I had a horrible 1st round with my chemo. Ended up in hospital for 4 days. Doctor said I am one of 2 patients that has had every single side effect you get. :-( I don't want to scare anyone with details, just know its unusual to have such bad side effects and every one of them. I go in for my 2nd round chemo tomorrow morning. I am very nervous and scared of going through it all over again. He doesn't want to change the strength of the chemo yet because of being so close to triple negative. So we shall see how it goes this round. Still waiting on my BRCA results to come back. Hoping and praying for negative results. If it comes back positive doctor wants to remove both breast and possibly ovaries. If so, 2nd opinion here we come.

  • readytorock
    readytorock Member Posts: 199
    edited December 2014


    sheeba102 -

    Sorry to hear your first round was awful.  I hope round two goes much better for you.  I sure do understand why you would be nervous about it.

    Hugs.

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Erica thank you so much, I was in bad shape yesterday but slept til noon and am gently easing into the day, so far not horrible... How are you feeling today??? Hugs and love to you!!!

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Sheeba102, so sorry about your 1st chemo experience, it's got to be hard to contemplate round 2, but at least they're prepared this time. It will take nerves of steel to walk back in, don your superwoman costume. I am praying for you Sheeba102, I'm thinking of you! Hug

  • enlm20Erica
    enlm20Erica Member Posts: 216
    edited December 2014

    Chris, I hate you had a tough day hoping is much better . I slept till noon myself, took my meds nausea and dex pill, I should be up and moving soon. So far so good. (Hugs)

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Hi Erica, I do too but it's behind me, ever so thankful for that! And praise for us both getting much needed rest :)

    I too got my nausea MEDS in and am easing into the day, had Campbell's cheddar soup with dry toast and so far so good, hoping you have a good day too, hugs right back to you my friend ! Thank you for the love and hugs, it means a lot

  • quiggy
    quiggy Member Posts: 315
    edited December 2014

    Hi sheeba102;

    Sorry you're having an awful time with treatment.  Sending you positive thoughts and wishes that next round is easier and thereafter.

     Same wishes for all my BC sisters.  Hugs to you all.

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    proof am looking better today vs last night

    image

    image

  • bonnied
    bonnied Member Posts: 74
    edited December 2014

    Chris, I am thinking about you and sending warm thoughts and healing prayers your way. May all the pain go away now. I don't want any of our chemo peeps to be in any pain through this journey and know that they are with others here who love and care for them too. xoxo

    Sheeba, Hugs and prayers for no pain or SE's from here on out. We are feeling for you now and hope all gets better soon.

    Dee, Sounds like you and I are on the same track. Still have my hair on day 9 but feeling some hair hurting…just an early sign, but i have felt that before, especially when i wear hats all day like this time of year. I stopped at a cute shop this afternoon, kind of a women's cozy boutique set up in an old house and I bought a lovely hat and scarf. Thought a treat would be nice today. I think it will be nice for when the hair goes away. (building the options now..)

    thinking about all my chemo ladies every day. xoxo


    bonnie

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Bonnie, thank you for warm thoughts and healing prayers, they are very much appreciated, I am sending war m thoughts and healing prayers you way too. My hair tingled a bit in the days before it hurt then itched, but as you can see in the top pic above I'm still hanging onto some, there's enough to pull the com over trick ;) lol! Yay for finding time to treat yourself, that sounds wonderful, I keep stocking up on hats as I find them, gives us fun options :)

  • sashield
    sashield Member Posts: 5
    edited December 2014

    I've only posted once on here, but I read through often, especially when I am depressed about chemotherapy, and am constantly re-inspired by everyone's strength and resilience. Then, of course, it reminds me of my own strength and I go back to taking one day at a time. It's funny how all these cliches suddenly became so real for me.

    I had my second round last Monday, and although the SE's were not as bad as the first, I felt bleh for much longer than the first round. That being said, I also had a nice bout of strep throat halfway through my first round, and now I have a nice cold/cough that won't go away!

    I'm a bit frustrated that I will have chemo three days before Christmas, but it also gives me the perfect opportunity to pull the cancer card. Christmas chemo??? My family will just loveeee me ;)

    I must say, to all those ladies who are afraid of losing their hair. I cried for days at the prospect, but it got so painful to HAVE hair that I was like shave it the f*** off (excuse the language, but I have cancer!). Now, I'm not going to lie, I look in the mirror and I think to myself "I might always buzz my hair, I love my bald head" and I can get ready to go out in about 15 minutes. What could be better than that? So all I have to say is, you might surprise yourself, and you might love your beautiful, bald head!!!

    I can empathize with all the women who are losing their "woman parts," I'm only 27, and I got married two weeks after my diagnosis. So needless to say, there will be no biological children here. But it definitely gets me off the hook with the mother-in-law, especially since I always wanted to adopt and she never understood why!

    So I wish everyone luck with their next rounds! Get out, live life, enjoy all the things that make this fight worth it :)

  • sashield
    sashield Member Posts: 5
    edited December 2014

    Oh, and the best purchase I've made - a cashmere toque (as we say in Canada). Can even sleep with it on!

  • Redhead01
    Redhead01 Member Posts: 47
    edited December 2014

    sashield....love your attitude....LMAO at mother-in-law comment !

  • sashield
    sashield Member Posts: 5
    edited December 2014

    Haha, Redhead, it's funny because it's true!

  • TallyLassie
    TallyLassie Member Posts: 56
    edited December 2014

    Sashield: You and me 3 days before Christmas...kind of bummed, so I'll celebrate the solstice on the 21st instead. Sorry you have to go through this so young, but I'm with ya!

    cc: Thinking of you with sympathy.

    My second round was about as bad as the first. A week into it, I started getting a burning, itching hot red rash and blotches on both hands and arms just like last time. Today I went to the Doctors and he said it was a reaction to the Taxotere. He gave me additional steroids, some steroid cream, acid reflux medicine for heartburn, and I'm taking Benadryl and ibuprophin. I got a second week slump as my immune system bottomed out. I just am not used to feeling sick, but glad I called the doctor so they can adjust things.

    I'm reading everything but can't keep up to comment on each one. I like the Facebook format but want to stay engaged here.

    Hang in there, everyone! Keep posting...T


  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Tallylassie

    Thank you so much, it's very much appreciated. I am thinking of you too, such a nasty reaction, ugh, I had had some bouts of heartburn too but have been able to tame them with Tums, so I'm thinking of you there too. I'm hoping the meds kick in soon and knock out the bad SEs for you. Hanging in there with you and hugs to you :)

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    sashield, why not rock the bald look even after if you love it, I never shaved, most is gone but have a tiny tail left and enough for a decent "comb over", which I've stolen from balding dudes ;)

    If you do lose your ability to have children it's not lost adoption sounds fantastic :) and it definitely does get your mother in law out of pressuring you for that! 3 days before Christmas is bad, mines 4 before New Years, but at 53 I don't go out, I feel like I should take your week and swap you mine as you're young enough to enjoy it :) that bring said I hope you get your Christmas despite chemo coming before it. Praying it's an easy round this time for you and you feel better from that stupid cold, hugs :)

  • Metta
    Metta Member Posts: 84
    edited December 2014

    sashield, I'm so sorry you have to deal with this sh-t at such a young age. I hope during your wedding that you were able to forget about it for a little while and live in the moment (speaking of cliches).

    Erica, Chris, Astarte, and all who had chemo on Monday, I'm hoping you guys are okay, but day two is rough. Hope you are almost out of the woods. I had round three of A/C today and feel pretty dizzy and nauseated, but I'm still able to type. My kids are freaked out and just want to be in bed with me. This is misery, no two ways about it. But now I'll only have one more ... on Christmas Eve, ho ho. Sashield, I agree, it's kind of a relief to get out of certain annoying activities, especially those dictated by my mother-in-law!

    Good vibes to everyone and thank you for being here.

  • thrifty1
    thrifty1 Member Posts: 67
    edited December 2014

    Thank you all for your prayers and positive vibes and hug :):) darn steroids are keeping me awake. Lol been up since 3am. I too have been doing the comb over lol. Seriously considering shaving in next day or two. Finding hair everywhere is getting annoying. I did get it cut off short last week. Just coming out in clumps. I will try to post a pic...hopefully it will work haha. I will continue to fight through this journey. I have a wonderful hubby, 6 yr old and 2 teenage daughters that need their momma :):) prayers to all you who just had chemo and are struggling :-)

    image

  • MarcelaBR
    MarcelaBR Member Posts: 34
    edited December 2014

    Hi Ladies... I had my 3rd chemo on Monday and unfortunately I think chemo brain took the best of me for the past few days.. Barely keeping up with the posts here but I promise that as soon as I get less light headed I'll right some more. It really helps me after all...

    Last weekend was a little hard for me..I think we all have ups and downs and my lowest might have been on Saturday (mentally speaking...). I wrote a long and angry post about it but I'm not sure yet I wan't to post it, I just try to keep positive all the time but sometimes it is so hard...

    I actually had a bad reaction with my veins on monday so I'll need to get the Port after all...I'm scheduled for surgery the 22nd, hoping it goes smoothly. Keeping you all in my thoughts and really REALLY glad to be halfway done!

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Sheeba you look beautiful :) lol on our comb overs, it got rough with the pain and itching but I just kept gently brushing and that relieved it for me, the hair did get all over but for me I just couldn't shave (stubborn!). Will continue to keep you in my prayers, hoping you can get some sleep, you definitely have many wonderful reasons to fight - sending you more hugs and love :)

  • cc3373
    cc3373 Member Posts: 100
    edited December 2014

    Hey Marcella, sending you hugs and love - and hoping you feel better. I understand ups and lows, I've been feeling like quitting this gig and having some angry moments over all that is part of this process, yesterday was an emotional bugger of a day for me, I think PMS is factoring in on top of post chemo crumminess :p

    Go with your feelings, but it's ok on my vote to post those feelings, cause I'm betting all of us here can relate, it's ok to feel those feelings, they need to come out, it's part of healing. Let's face it the process is not conducive to forming positive thoughts, it's ok to vent :)

    So sorry to hear of the issue for you vein Monday, the port is not totally terrible, I am thinking of you and will keep you in prayer for you port surgery on the 22nd, sending you gentle hugs and much love

    And when it gets back think ahead to your marvelous trip coming up :)

  • Dee4C
    Dee4C Member Posts: 27
    edited December 2014

    Sheeba, beautiful pic! I'm with you on the hair issue, mine just started shedding this week and scalp is painful. But I'm still not able to shave it. I have a Christmas party on Sat and am wondering how to wear what's left of my hair or should I tuck it into a wig? It's a small neighborhood party and they all know my situation but I'm still finding it hard to be out in public with a wig. Guess I better get used to it!

    Chris, wonder if we will both continue to hold out on the shaving? I just want to keep what I can as long as possible, even though it's getting everywhere and scalp is hurting. Hope you are doing better now that it's been a few days since chemo?

    Marcela, so sorry you are struggling! And had issues with your veins. This process is so overwhelming, you have every right to vent and even be negative if you feel like it. I have gone there too in my mind many a time. I think we all try to stay positive but veer off that path sometimes. It's ok. Allowing yourself that I think can help you move on from it and pick yourself back up again. We are here for you too!

    Sending love and hugs to all! We are getting through this one day at a time.

  • Dee4C
    Dee4C Member Posts: 27
    edited December 2014

    Awww, I just received a little package from my Chemo Angel!!! A few chocolates and a Choc cake recipe and a really nice letter. Have any of you signed up to have a Chemo Angel? I've got to say it did brighten my day! I would recommend it to all, you deserve it!

    www.chemoangels.com

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