Pain Management w/ Hx of Addiction/ Alcoholism?
I've been a recovering alcoholic and sober for 8 years. I am currently in pain from the painful BC. I know that there will likely be more pain in my future with treatment. My doc has offered me pain meds, but I decline. I do not want to relapse. I know that taking pain meds could be a huge trigger for me to drink again or use them not as prescribed. Feeling particularly vulnerable right now.
Comments
-
Speaking of pain, my neck and hip are bbothering me right now. I have tried Voltaren gel it seems to help. What kind of pain do you have? Maybe heating pad?
-
Speaking of pain, my neck and hip are bbothering me right now. I have tried Voltaren gel it seems to help. What kind of pain do you have? Maybe heating pad?
-
Hello Llizz, we're so sorry to hear you're in such a vulnerable position right now. It sound like you are very aware that pain meds could be a trigger for a relapse. Did you speak with your doctor about any alternative way to ease your pain?
Warm thoughts,
From the mods.
-
I have to remember to mention it to my medical oncologist tomorrow.
I do take Tramadol for very bad headaches, but I use it sparingly as it makes me feel loopy.
Warm compress hasn't helped much.
-
Hi LLizz, I am too a recovering alcoholic and addict to pain pills. Been clean and sober for 5 years thanks to me attending meetings. I am stage 4 bc with mets to the bones so I do have pain, I'm currently taking 800mg of Ibuprofin. My daughter dispenses the one pill a day for me and since my right hand is disabled I cannot open the baby proof bottle from the pharmacy. I take it once a day in the morning when the pain is worse. I also take 400 mg of neurontin (gabapentin) and 60 mg of Cymbalta (anti depressant) The neurontin and the cymbalta have shown to help with neuropathic pain. I focus on taking them STRICTLY as prescribed. Before I got clean I used to swallow tons of Excedrin PM or Excedrin Migraine whether I had pain or not. Now I only take them when it's absolutely necessary. After my surgery last year I was in the hospital for 3 and a half months and was given dilaudid and I was afraid I would become hooked. After I left the hospital they gave me an rx for oxycodin but I only took it for a couple of weeks and only for break thru pain. It is a delicate balance but suffering through pain at least in my case also exacerbates my depression so no good. If you would like to talk more you may feel free to pm me.
Aurora
-
I'm just now finding this thread and thought I'd say hello. I'm clean 11 years and I was terrified to take pain meds. for the obvious reasons. However, I've had 5 surgeries (with more planned) including a BMX. I chose to use the pain meds. for each surgery. This meant that when it was time to discontinue use I did feel a nagging pull that I was fortunately able to walk away from each time. I'm having LD Flap surgery soon and I'll have to do this again. These aren't surgeries that aspirin can manage. I have not been offered better solutions. During my 1st colonoscopy I began to plot my relapse. Fortunately, I felt differently by the time I got home. I don't have any great advice to offer and unfortunately my docs don't either.
-
WarriorWoman, I too have had to accept pain killers, when I spent 3 and half months in the hospital last year. I've been sober/ clean for 5 years now. As soon as I left the hospital I left the pain killers too. Right now I only take Ibuprofin ( I have mets to the bones plus the medication I'm on (Arimidex) one of the se's is joint pain so I take it but I only do it in the a.m when I wake up and I am stiff and in the evening before going to bed. At least is not a narcotic. But yeah it's something to keep in mind. Here;s wishing everyone 24 hrs of sobriety!
auroaya
-
LLizz, Aurora and WarriorWoman, I too relate to being vigilant to keep dos (24 years) intact and addressing stinking thinking, that I can take pain pills whenever I desire. Like Aurora did with her daughter, my husband dispensed the meds to me and also used a timer on my ipod for the intervals to take them (only as prescribed). Having said all this, I did stay on pain meds longer than many after mx/recon, because recovery hurt a lot (perhaps a low pain threshold?) - it was very painful. At nearly 6 weeks out I was able to start reduction. Cheers to odaat!
-
I acknowledge seeing my old addictive behaviors resurface. I manage my own pain meds. No chance would I turn them over. I have many more surgeries to come and one is really major - bilateral LD flaps. Cripes. On the positive side, despite the worst year of my life, I am extremely happy with my life and have no desire to destroy it.
-
Was so touched by what I read and wanted to share with like minded women, click this.
-
LilacBlue
I read the blog post, it is true life is still hard even after becoming sober, but there are also happy moments. Either way nowadays whether I am having a sad moment or a happy one, without alcohol/drugs I am free to either: enjoy the happy one, or: face the sad one with the knowledge that "this too shall pass" (even if it means death). It is touching to read about others facing Stage IV AND alcoholism/addiction at the same time, I often feel I am not understood at AA meetings because of this. I don't know how many more of "us" are here in BCO but I sure wish we would "talk" more often.
Aurora
-
I'm so pleased you responded Aurora. I agree in how it feels to face life clean and sober - it's very real not to change the channel so to speak. I can understand not being understood by members in a meeting. When I told my homegroup back in 2012, a older struggling newcomer woman burst into tears. She knew, she had been through it and I felt awful having stated it and bringing her down. I received support yet I could not tow the party line or well known clichés that one can apply. A year later, I went down the same road with my husband was was diagnosed with stage 2 throat cancer. I was baffled and did not intuitively know how to handle the situation we were in. With the amount of years I have in the program, I might well have that all sussed. Well I did not nor was I the well sober poster woman - not by a long shot. It was all I could do to stay the course, get my husband to and from treatment daily for 7 weeks, keep our son on track with school (no family help) and try to keep said husband, around the clock out of pain, fed and hydrated via his stomach tube. I brought the meeting down or to a long paused halt with my shares - for months on end (when I could get to a meeting, I also attend online AA, that was and is a godsend)~sigh.
When Uppity Cancer said she was feeling like an outlier in AA - that gave me pause. Do you feel the same or does it come and go or..?
I too have wondered how many of us there are here either posting or lurking and often thought of starting a friend of bill w thread or something like that. I outed my AA membership once on the daily exercise - somewhat awkward and oddly exacerbated the situation to have a regular poster romance the love of drinking - ad nauseum for awhile - so I stay off all alcohol discussion treads. I'm with you on wanting to talk with others like us. Thanks again for reaching out.
-
Lilac, I agree, it is a difficult thin line to walk between sharing too much and not sharing for fear of being misunderstood. I have kept my discussions here specific to cancer, but in my AA meetings I have brought up some of the emotional issues and death confronting issues we deal with and feel ostricized. I tried for a while the online AA but I find the chats don't focus enough on the program and the meetings, I don't have a camera on my computer so I can only watch. I would love to continue talking with you privately if you'd like. My email is auroaya1960@hotmail.com and I'm on facebook as Aurora Ayala from Orlando, FL if you would like to add me to your friends and we could chat over there. I can't wait until BCO actually gets the chats going that would be awesome. Once we connect on a facebook chat I can also give you my phone# if you would like. We can actually start a thread like the one you propose and maybe others would join, and we could discuss how a diagnosis of cancer has affected our outlook on life and how has the program helped us deal with it. And viceversa we could also discuss how a cancer diagnosis has affected our sobriety. We could make it inclusive so that other 12 steppers could join? I don't think it would offend anyone anymore than a thread by/for catholics offends protestants on BCO.
Let me know if you want to do any or none of the above, I won't be offended if you don't.
Aurora
-
Hey can I join in this discussion? Or if you start another thread? I have been in recovery for 27 years. I am from a small area and our meeting are small, we all get to know each other really well. I always say to my home group, well I gotta drag you guys through another situation with me. They've been through a lot with me. My divorce, raising two kids alone, my ex husband dying, my sister passing, then taking care of my parents and then my parents passing and now this dx. I have kept going to meetings. When I was first on this board I started a post about this subject but it did not catch on. I was really scared that I would relapse. Well that hasn't happened but I am on medication that I wish I didn't have to take. I work very closely with my PCP and all my docs know my addict status. I agree that sometimes on some of the threads the talk of drinking etc gets on my nerves.
Lately I have had issues with my teeth and I did take some opiate pain relievers a couple of weeks ago after a tooth extraction. I soon realized that I liked them too much and stopped. I shared with the group that I use to prefer oblivion, but now I want to live and I enjoy my life and want to be as present for it as I can. I sometimes struggle with how can I be clean when I take pills. But they are prescribed for a medical reason. I manage my everyday pain with naproxen and tylenol. But it's the anti depressant that makes me think I am taking a mood altering drug. lol But I would not be able to function without it.
-
macatacmv, welcome to the thread and thank you for the detailed intro - great to get to know you and yay to 27 years! Aurora, I sent you a email! Got so much from what you expressed as well. I guess what we need to do is open a thread for, I don't know, umm, 12 Steppers or, hmmm, recovery to addictions, I not sure on either of those. Let's kick it around and take action and perhaps more will appear.
I'm back from the gym and feel dead - well, not exactly that, just in need of a hot shower. I'll come back in later.
Cheers! LB, x
Edited to add: Aurora, the email address above was unable to be delivered. I PM'd you so please check your BCO private messages.
-
thanks for the welcome, lilacblue.
Well, the root canal I had today was one of the most painful things ever. I made it thru, but he had to give Novocain directly into the nerve. I am trying to see how it feels when the Novocain wears off without jumping the gun and taking some pain killers besides Tylenol. Thanks for letting me share. I feel better about the situation.
-
macatacmv welcome and like lilac said wow! 27 years! that's awesome! I, too try to be careful with the pills, I refused the hydrocodone and only take ibuprofen the 800 mgs. I also take cymbalta 60 mgs (antidepressant) I don't feel I am falling off the wagon when I take those as I only take them as prescribed. The cymbalta has the added benefit of helping with pain. I've been diagnosed with bipolar disorder so I also take a mood stabilizer Risperidone which as an added benefit it helps with the hot flashes I get from my cancer pill which is a hormone blocker (Arimidex). A lot of pills! But each one serves a purpose and is not like before I was diagnosed with bipolar I used to take a bunch of Excedrin and Excedrim PM whether I had a headache or not -- that to me was abusing-- what I do now is getting treatment; that's just my opinion though.
I think maybe we should stick to this thread and see if it attracts more people, I think we have to keep the focus in the comorbidity of addiction and cancer (again just my opinion).
Lilac, I read your PM and sent you an e-mail.
Hope you guys are doing well.
Aurora
-
auroaya, thanks for the welcome. I've only gotten here by not using one day at a time like everyone else. These last 3 years have been pretty hard. After dx of BC, I was found to have high blood pressure, so we added two meds for that, then I had trouble breathing during rads so got put on too many steroids. Finally weaned myself off them with the help of my PCP. Then I started the Arimidex. The joint pain was awful and I got so depressed. So another 2 meds, napoxen 2x a day, I tried eflexor but couldn't take it so am on Pristiq (a brand name of almost the same drug), then I switched to tamoxifen. Now I have been dx with fibromyalgia. So I have started getting trigger point injections to help with the pain in my neck and upper back. What fun.
On a different note, I am drinking a glass of cold milk for the first time in over a month. The cold is not bothering my teeth. Yahooo!!!
-
Hi ladies, I just picked up my 30 year chip in July. I'll always remember what my boss, who was an Addiction Medicine doc, told me when I was going to be having surgery some years ago. He said, 'full stregth meds for ACUTE pain'--he said this 3 times and then I got what he meant about acute pain and not just for having a feeling. I also had a little advice from one of my coworkers (who was sober) and she shared with me that when she had surgery, she gave her pain meds to her sister who then gave them to her according to the schedule. Of course when I heard this I really got angry! I ended up giving my neighbor my pain pills and telling him not to give more than was prescribed. Fortunately the pain wasn't that bad and I never needed the meds. I was willing to go to any lengths.
I'll check in again.
Liz
-
Cowgirl, welcome and 30 years - fantastic! Like the 3x's reminder of: "full
strength meds for ACUTE pain". Before moving abroad, I lived on a houseboat in Sausalito and work over the bridge in SF - the city by the bay that I love.
macatacmv, I jumped ship on letrozole, as the SE's were very strong for me and life
impacting. For the 1.5% offered, it was not worth it and oncs blessings
that forgo it. I hope you feel better mouth wise today.Aurora, lovely to chat today and although I'm not on them, antidepressants are fine by me. I know there are some in the program who counter that and thankfully, are a small minority.
I'm so on board with all of you regarding willing to go to any lengths. I'm also happy this thread is taking off and no need to fix what isn't broken. Off to get dinner going and afterwards taking myself and 15 year old son to yoga. Ciao!
-
I am feeling much better today, thank you, blue. I am relishing drinking iced tea and chewing my food.
I just finished my yoga class this noon. It has helped so much in stretching my muscles and loosening my body.
-
It was wonderful to chat with you Lilac thanks for making contact. Macatacmv I'm glad you're feeling better. Tonight I go to my Livestrong exercise class at the YMCA. I haven't done any exercise in weeks because I went on a trip to Mexico to visit my elderly parents. Have to catch up now. Also hoping I can attend a meeting this week.
Aurora
-
Lilac, I love Sausalito. What a great place to have lived and especially on a houseboat. I live in San Francisco and have lived here for years. Where do you live in the UK?
-
Cowgirl, I live in Kent, a rural area between Ashford and Maidstone. Not all that far from the white cliffs of Dover. Been out here for 7 years and for this urban woman, it was a huge shift and really like it. Not crazy about the UK weather yet, when it's sunny, it's gorgeous. I lived in SF, did undergraduate at SFSU and MFA at SFAI . You must have known or at least heard of Frank B. who was a solid AA fixture until his dead in 2003. Friday Night Live (Union and Steiner) was my homegroup and Frank was always there and I'd see him at the Dry Dock too.
We perhaps all know of someone in the program who makes such a positive impact on the fellowship.
-
Lilac, yes I sure do remember Frank and Friday Night Live was such a good meeting and so many old timers and new comers. I sometime miss the old meetings, as they were, but I am very lucky to have a wonderful home meeting where you can talk about anything--not just strictly a 'looking good meeting'. Last month a woman picked up her 49th chip.
I have a great fascination for all things British...have for quite a while. Someday I hope to be able to travel to England. In the meantime, I have watched countless English mysteries on Netflix...Foyle's War, Midsomer Mysteries, Inspector Lewis, Inspector George Gently, and many more.
Nice to touch base with you.
Liz
-
I am thankful for this thread and I appreciate the wide range of feelings and experiences expressed. I am glad it is not restrictive in philosophy. I am grateful that through this freakin' ordeal that drinking or using has not been an option I've yet considered. I believe that using medication as prescribed is not a relapse for me. Yet, it is a worry because the risk is real.
-
warrior woman I tota hear you as long as I dont abuse them and follow doctor s orders it's not a relapse here's sending you wishes of pain free recovery
Auro
-
WarriorWoman, I too hope all goes smooth for your recovery. Aurora, pleased to see you posting.
-
Hey! Tis the season! It is so hard keeping the happy face on. I have no energy and am so frigging tired all the time.
I had a sponsee relapse last week. I only have one sponsee. It is all I can handle. I gave up my service positions right after dx, but have added some service work back in. This woman has been struggling for years. She almost got a year once, but mainly it is one or two weeks, one or two months. Her co workers took her a little Christmas tree because she had not been to work for 2 days. They found her smashed and one called me on her cell phone. I took another person with me and went over there. Boy, did that keep me clean for a few more days. She was a wreck. I lost it at one point and yelled at her. She doesn't remember that. She was willing to do what ever it took, but when she sobered up the next day, she doesn't want to do detox or any treatment. Makes me wish I could wrap surrender up in pretty paper and give it as a gift.
I am going for my mammo tomorrow and a visit to my BS. I am debating taking a .5 lorazapam. I get so nervous.
I am also thinking about starting a new med. Low Dose Naltrexone. It is a very low dose of an opioid blocker. One of my docs wants me to try it. It is suppose to boost my immune system and increase my endorphin production while lessening my pain. She likes her patients that are fighting cancer to be on it. Anyone here heard of it?
-
Macatacmv, I looked up your drug and found this:
naltrexone
nalˈtrɛksəʊn/nounMedicinenoun: naltrexone
- a synthetic drug, similar to morphine, which blocks opiate receptors in the nervous system and is used chiefly in the treatment of heroin addiction.
I'd never heard of the drug, yet from your profile see no bc treatment listed - are you fighting cancer? I understand fear, although I don't have full understanding of your diagnosis and lack of treatment. As far as the sponsee, she seems self willed and not reached a bottom. Reads as someone who enjoys early sobriety - too much. Personally, I'd stop the rescuing.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team