age 45, just diagnosed, Philadelphia
Hi,
I had a routine mammogram that showed two areas of microcalcifications, which were determined after further images to warrant biopsy. The biopsies came back yesterday with DCIS/ ICS stage 1 (one area is within the duct walls, the other area has breached the duct walls). The receptor info is not back yet. The two area are about 3cms apart in a line under my nipple heading toward the chest wall. At this point, that is all I know...and that I need to choose between a lumpectomy and mastectomy ... and that I have appointments with the chemo and the radiation and the genetic testing people...I have no family history of BC though some other cancers in older adults in my extended family ... I have no other health problems.
My overarching question at this point is whether I stick with the team I was assigned when my mammogram came back funky - Dr. Aggon at DCMH/Drexel Hill, PA - who I have really liked and has a good reputation I think - or do I get in line at Penn (the best-know cancer hospital in the area) for treatment there? And how do I make that decision? I just want to get going on treatment - but I don't want to regret anything either....
Thanks for any insights!
Comments
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hello sweetie, i also live in philly, i too was diagnosed in my forties, 42, and making wedding plans when i found the lump, i had all my treatment at graduate hosp but they are now closed, i staued with the team i started with, i dont have history of breast cancer either. i had idc,stage2,L mast, chemo and rads and 5 yrs on tamoxifen, and Praise God i,m now 20 yrs cancer free. msphil
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Hi Jarpsyd!
Welcome to Breastcancer.org. We hate that you're here, but really happy you've found us. As you can already see from msphil's post, our Community is amazing source of support, knowledge, and advice. You're sure to get lots of answers and tips from others here.
Just wanted to say Hi and please keep us posted on your progress!
--The Mods
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Jarpsd - so sorry you find yourself here, but glad you found this site! Great info and these threads are amazing.
Selecting the right team for you is very important...but a lot of it is what feels right to you. There is nothing wrong with seeking a second opinion at another facility.
But it comes down to who do you feel hears you, has your best interest at heart, understands your concerns and your trust...what your gut says. Attend a support group at both facilities and visit and make appointments...than follow what your heart says. And consider that if you need RO can you drive there easily...for the 6 weeks of treatment. You will know in your heart which team is best for you.
In your pocket {{{squeeze}}} sending calm confident thoughts&prayers
Cindy
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Thank you - I am glad I found this space as well. It helps to be here. :-)
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Hey there jarpsyd. I think a second opinion is in order. Penn is good, and so is Jefferson, but don't forget about... well, now I've forgotten since I've moved from the area. There is an excellent doctor in the suburbs. Beth Dupree. That's who I'd go to if I were in your shoes. Start there with your second opinion.
Does your ins work in NJ? There's an excellent breast center there as well -- Kristin Brill runs it. I like her a lot.
You can do this! XXX
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Thanks bobgirl! So much to digest and my MO with hard stuff is just to get moving - I want to be "doing something"....need to remember its one step at a time! Thanks again!
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Jarspyd - waiting is a great time to set up your file, get all your reports and discs so you have them with you, select an appointment buddy...our minds go on overload, ask if you may tape appts so you have record too., make your lists of questions for each appt and take 3 copies dr, appointment buddy, and you. Visit the facilities, ask what services they provide and check them out, attend a support group share your story and get feed back from others, and Breathe!
It's all very surreal...moves slowly&quickly...so breathe....focus on today...don't get ahead of yourself...and focus on what you do know in your preparations....and do things that make your heart smile!
You got this
good reads, the breast cancer husband, Susan Loves breast cancer book.
(((Hugs)))
Cindy
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Not sure if you can drive to Baltimore MD, but Johns Hopkins is amazing. They can get you in within a week after you meet with the surgeon. They are really accomodating to out of state and they are TOP NOTCH! Highly recommend.
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I was diagnosed stage 3 at 47 and had my treatment at Penn. I absolutely loved my oncologist, but she moved to Annapolis. Loved both my breast surgeon and plastic surgeon as well, and they are still there. One thing I like about Penn compared to the other hospitals are the private chemo rooms. They are really nice with big windows overlooking downtown. Most of the other hospitals have one big room with lots of chairs. I also liked that it is easier for me to get to penn than to get downtown. It's all about where you feel most comfortable though. If you have any questions for me about penn, let me know. Best of luck with everything.
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Lankenau Hospital has a breast center, and the breast rad onc there is BCO's own Marisa Weiss. I for one can tell you that knowing she was in charge of my rads gave me total peace of mind about an otherwise inherently scary process. And being in the care of a woman who is one of our bc "sisters" also added a dimension of caring that my other doctors just couldn't provide. I actually had my surgery at Paoli, also in the Main Line Health system and also like Lankenau tied in with Fox Chase CC--but happily opted to take add 15 minutes of driving time to get to Lankenau because of her. And my husband (a retired Penn faculty member) and I both find the atmosphere and staff in MLH hospitals are much more patient-friendly than at UPenn on the whole. Can't speak for chemo services anywhere, though, as I was lucky enough not to need it. Wishing you the best, tgtg
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sweetie, i forgot to say that Hup(hospital of university of penna has a great cancer team there, i,m now go to Pennsylvania hospital in center city which i now have my doctor team, I was Inspirating you with previous Post, HUGS!!!!!!!!!!!!!!!!!!!!!!, continue to come back with questions we,re here forsupport. msphil
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I can only speak for my own experiences, but I found all the doctors and nurses at UPenn to be very patient friendly. They explained everything thoroughly and made sure I understood everything that was going on. All my doctors were women, which I liked. I'm sure everyone's experiences are different, but I am very glad I chose Penn.
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Hi Jarspyd.. I am in Philly too and I go to Beth Dupree as bobogirl had mentioned. She is absolutely wonderful and don't know where i would be without her. She is affiliated with Holy Redeemer and St. Mary's. I have a friend who is a plastic surgeon who tokd me she is the best in the area. Her resume is beyond amazing. I also have almost the same diagnosis as you. However, I opted for lumpectomy and didn't get clear margins so i had second. I was just told last Monday that they found 2 more primary tumors and need a mastectomy. These are not showing up on any tests. Therefore I will get a double since we don't know if they are hiding in the other breast as well. I will have chemo first right after Christmas. PM me if you want to talk. Its a tough time for us all.
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I too, found that everyone I saw at PENN treated me with the utmost care and respect. Each dr took the time to make certain that I understood what was going on and what my options were. I also had access to all the different departments in one building. I saw a geneticist, a dermatologist, as well as an MO, BS, PS, and RO. All of my imaging and scans are done there as well. My BS and PS worked well together and my MO and RO also communicated when necessary. The chemo suite was very comfortable and private. It is located on the same floor and wing as my MO. This was great since both departments worked together to help me get through each chemo day. I had a reaction from one of my chemo drugs and my MO came right away to check on me. There is even a little shop that sells wigs, scarves/hats and mastectomy camisoles as well as other supplies one might need. Parking was easy and there are a few options for refreshments during those long chemo days. -
I forgot to add that I also saw a micro-pigmentation specialist (tattoo artist) there as well! She finished the job my plastic surgeon began. -
Also from the area, West Chester. The good news is in our area, (Philly), There is a ton of great docs. I think DCMH would not be my on my list though and I agree at a minimum, given where you live, you have easy access to MLH (Lankenau, Bryn Mawr, Paoli) Penn or Jeff. Can't go wrong with any of them. Penn and Jeff are a bit more of a hassel if you have to go downtown but that would depend on whether that bothers you. MLH is excellent and certainly much more convenient for you and your family.
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I to am in the area, i go to crozer chester medical center, got my 2nd opinion at fox chase. I didnt want 2 go downtown, not sure i believe they given better care. Crozer it is like a community, like a little town. . I am here if u want 2 talk.
Ducky kn here, went to dc, u may want to speak with her, whatrver u are comfortable with
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Thanks everyone!
I do really like Dr. Aggon at DCMH - she was at Fox-Chase and now heads up the Breast Health Center at DCMH and the program seems very coordinated and friendly and knowledgeable - they already set up appts for me with genetics, radiation and oncology for the next week. I did go ahead and get a appt with Penn for a second surgical opinion....though they can't see me for almost 2 weeks....bc it seems like there is no reason not to...but sometimes I think being a big fish in a small pond is better, KWIM!?! I have found this site and community so helpful already - lots of huge thank yous and hugs! -
A little late to this conversation, but I'm another satisified Penn patient. I live in Downingtown (Chester County). Originally diagnosed at Paoli, I went to Penn for a second opinion and ended up enrolling in a clinical trial at Penn that wouldn't have been available to me had I remained at Paoli. Had my surgery at HUP in the city and had chemo and radiation at Penn's Valley Forge facility. It was very convenient and I love the oncologist in Valley Forge- Tracy D'Entremonte. She's also a supporter of cold caps if anyone's considering using them. We're lucky to live in an area with such an abundance of high quality medical facilities.
I think it's always a good idea to get a second opinion, even if it just confirms the original findings and treatment recommendations.
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Dr Beth Dupree was my breast surgeon. Wonderful doctor! I was diagnosed at age 40- routine mammogram. HER2+, had a double mastectomy and reconstruction. Also, 6 rounds of chemo (TCH) and still taking tamoxifen. Feel free to pm me with anything (Hugs)
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