43 YEARS OLD AND JUST FOUND OUT I HAVE BC.
HI EVERYONE I AM NEW TO THIS. I JUST FOUND OUT I WAS DIAGNOSED WITH BC. I STILL CAN'T BELIEVE I HAVE IT.THIS ALL I KNOW THAT I HAVE IDC STAGE 2 GRADE 3. I'VE BEEN THROUGH A MAMMOGRAM, ULTRASOUND, 2 BIOPSIES AND TOOK OUT 13 LYMPTH NODES AND 4 WAS POSITIVE FOR CANCER. I GO SEE MY CANCER DR. AGAIN TUESDAY TO SEE MY RESULTS FROM MY LUMP TO SEE IF IT IS A FAST GROWING OR A SLOW GROWING. I STILL HAVE TO GET MY GENETIC TEST YET. WHAT I WANT TO HOW SOON DO THE TREATMENT OR TREATMENTS GET STARTED? I AM TRYING TO BE VERY STRONG AND KEEP MY MIND BUSY, BUT I AM ONE TERRIFIED PERSON. I KNOW EVERYONE ELSE IS OR WAS.
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OK,OK, KAREN, QUIT YELLING! IS YOUR CAPS LOCK ON??? Kidding aside, You are processing a lot right now. Your doctor will probably be telling you the plan of action for you the next time you see him. And don't feel bad about feling terrified, each and every one of us was. I hope that he does have good news for you when you do see him, but meanwhile you can read around here on BCO, and i am sure it will help you feel better, to see that others have made it too. There is a drop down menu to the left, where you can search out forums for newbies, or any other thing you are interested in, and when you find a topic you like, you can add it to your favorites, so when you log in, you will see if someone has posted there. Welcome, Sorry you have found yourself here, you will meet a buncha great people, and you will get through this, ok?
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(((Karen))) hang in there…I am so sorry you have to join us, this is the toughest time because there are more questions than answers, YES it is terrifying to hear the words "breast cancer" and realize that this beast was lurking in your body without any warning that it was there…when you see your oncologist on Tuesday you will find out what the recommendations for treatment are and hopefully that will give you a sense of control again. Until I got a treatment plan my mind was racing, I couldn't sleep and was nervous all the time so my doctor gave me some meds to calm me down and help me sleep - it's okay to ask for meds if you need them. As for treatment, usually they give you a little time to heal so I started chemo about 5 weeks after surgery. I'll keep you in my thoughts and prayers, let us know how you're doing, I hope you get the answers you need soon…(((Hugs))) Maureen
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Karen, sorry you have to join this group - but also glad you found us, there is a lot of support on this site. I started treatment just short of 2 weeks after diagnosis, I found out the day before the 4th of July holiday so there were a few days in which the Docs were vacationing.....
At any rate, I had to do a PET/CT scan and heart scan to confirm 1. that the cancer had not spread to other parts of my body and 2. that my heart could handle the chemo regimen that was planned. I also had a port inserted via an outpatient procedure to make chemo and blood draws easier. So be prepared for some additional testing depending on the pathology and treatment plan which you will discuss when you speak with the BS. Take a note pad to the appointment with you or a friend/spouse who can write down/remember what is said, jot down some questions you might want to ask. The unknown is very scary...once you have some more information from the Docs your fears will calm a bit and you will focus on treatment and fighting the cancer. My BS told me to "stay off the internet", the breast cancer stats and information can be overwhelming until you really know what you are dealing with, it will just increase your anxiety. And, in many cases the information is out-dated or wrong and not worth your energy at this time. Things do get better.
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Karen, This is the worst time the not knowing and haven't been fully diagnosed. I remember how terrified I was about the surgery and treatment. In the beginning I had to take anti anxiety meds. Praying for you.
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Karen,
It all sucks. I would assume with 4 positive nodes you will have chemo & then radiation. I started chemo about 4 weeks after my lumpectomy. They put a port in after I had the lumpectomy. Did you get a port?
There are different chemo regimens. It seems the most common are A/C ( 2 chemos combined together) and Taxol or Taxotere.
You have a fair amount of info already. Your Dr. Will tell you your ER, PR, & Her status. You can ask for your pathology report. Go to the records dept. where you had your surgery & request it. I got mine, the day of my the last chemo treatment, because I did not know I could ask for it. Hard to digest all the information, it's a new language. Sadly, we all "know" more than we wanted too.
BCO is a great spot for support & bonding with ladies going through treatment at the same time. The anxiety does get better, but it is a SLOW process. Be kind to yourself.
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thanks everyone for your support and prayers. i am on med before this every happened, i take lorazepam twice a day, but my mind still wants to keep on going like the engerizer bunny.lol
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Hey Karen1971. Welcome to a club nobody wants to join. I was diagnosed with BC in both breast in June and had a double mastectomy on July 15th. When you are in the middle of it your head is swimming and you are in a fog. Just remember that everyone's BC is different. Gather as much information as possible and make the decision that feels right to you. When you meet with your breast surgeon, take someone with you to take notes. You can do.this! Sending HAPPY thoughts your way.
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Hugs to you, Karen. You have come to the right place for support. Private message anyone whose diagnosis or circumstances seem similar to yours. Initially I reached out to a woman from here and she told me all about her treatment path - she told me that chemo wasn't really that bad because of the meds they give to counter the side effects, and how to enlist/accept help from your loved ones as you navigate surgery and treatment. I found her tips very comforting since my oncologist recommended chemo before surgery (we already knew the cancer was in the node). If your oncologist suggests "neoadjuvant chemo" you may want to consider it because it gives you time to process your surgical options beforehand. I was also glad to see the chemo was shrinking my tumors. I had surgery one month after I finished chemo.
I was 45 at diagnosis in 2013, and my daughter was 5. I am coming up on reconstruction surgery next week. You will handle this, believe all of us here. It's daunting at first, but the support here will be of comfort in the days ahead. Just lean on us. (((hugs)))
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Karen, I too am 43 and was just diagnosed on 10/27/14 with Ductal Carcinoma in Situ Stage 0 (near stage 1). The affected area spans 3"x1" area approx so I am considering mastectomy with flap reconstruction. I can relate to the disbelief. I feel like its someone else. I am scared and hope i can make the right decision regarding surgery etc.
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Karen1971 and Contrary-
Hello to you both, and welcome to Breastcancer.org. We're so sorry for what brings you here, but glad you found us nonetheless. This is a really amazing community that offers support and advice and a place to feel like you're not alone. The beginning is so scary and uncertain and confusing, it's easy to feel overwhelmed and unsure of how to proceed. Hopefully you both find support and advice here. Please keep posting, we'll be thinking of you!
The Mods
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Hi all
I too am 43 and recently found out I have BC. My mind is racing! Curious on what my treatment may be. If anyone has similar dx plz feel free to share your experience. I'm Grade 3, receptors positive, HER2 negative, margins clear, no lymph nodes involvement, 8mm. My 1st oncologist appointment is Monday the 10th. Being grade 3 has me concerned.
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Hello Karen, Contrary, and Sheeba,
I totally relate to you. I too just found out in October 2014 that I have ILC. I just turned 44 in September. I think there is an epidemic going around. But hey, I have been reading the support these wonderful ladies have for each other on this website and believe it or not they have some of the same fears, thoughts and issues I have and with their experiences I have learned a few things I wouldn't otherwise have thought of.
Thank you ladies for sharing and caring. I hope I too will one day be able to encourage a young woman facing all these same fears. I am frightened of the unknown. I am terrified of how my kids will react. My son is 13, He's my youngest and my only boy. He is bi-polar and ADHD diagnosed not to mention very emotionally sensitive. My 15 year old daughter is mildly autistic and in many cases does not show emotion so it is difficult to know what might be bothering her or not. These two constantly argue and that stresses me out on a normal day. I have 2 older daughters as well, one 18 and one 21. Both going through college and trying to get their lives started. My husband works nights, sleeps days... enough said there. He is trying to be as supportive as possible.
One question I have is should I try to get council for my children?
Please, if anyone has had to get assistance for their children please share your experiences. Thank you.
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Hi mommacat,
The school they attend should have a social worker or if you attend church, perhaps the pastor? If not, google support for children of parents with cancer in your area and you will likely find some resources. Wishing you the best! Hugs!
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Thank you for your advise april485. I will check into that.
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i went to my cancer doctor today. i also have to chemotherapy too. here my statics: IDC, size 2.5cm, STAGE 2,grade 3, lymphatic/vascular involvement absent, margarine-negative,hormones receptors- ER-64% POSITIVE, PRO-22%POSITIVE, HER2 NEGATIVE. LYMPH NODE 4-13 RECURRENCE SCORE 25----10-YEAR RECURRENCE RISK: 16%.
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Hi Karen! I'm sorry that you had to join this club but you are going to make it through this! I promise you! All of the other people who have posted have given you fantastic and accurate advice. The beginning part is the scariest but once you start treatment time goes by at warp speed. Find a song or mantra that you can repeat/listen to when you're down and feeling hopeless. I was diagnosed a year ago at 42 and like everyone i was scared but i made it and you can too! I must have listened to Katy Perry's Roar a million times! Come here when you're feeling down. There are plenty of AMAZING women here who will lift yo. Up!
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Hi ladies, I am wondering when and/or how you get all the specifics of your stats. I read my path report from my biopsy and the only measurements on it are explaining where the biopsies were taken from. My oncologist explained the different levels and HER numbers buy I don't know which one I have. I was told I have grade 1 but that is different from the stages of cancer so I don't know my stage either. My surgery for bi-lateral mastectomy is Monday the 17th. I am very scared, anxious, nervous, and a bit depressed I think. I don't eat because I don't feel hungry. I can't sleep. The doctor prescribed a sleeping pill but I hesitate to take it because the 2 times I have taken it I couldn't wake up in the morning. I do drink water but I feel dehydrated all the time. My skin is getting dry and flakey.
Any advise? I know I said a lot here but I am looking for answers to concerns. Thank you all for being here. Reading these posts does give me hope.
God bless!
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you will find out your stage after your surgery and will get more pathology results. The surgery isn't as bad as you probably fear it is. I was worried sick too but it is not nearly as bad as I feared. They will make sure you are comfortable.
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Hi Mommacat!
I think that the worst is waiting. I had a mastectomy (right side) and i was terrified! But, at the end of the day have faith in God and trust your surgeon. When i woke up it wasnt nearly as bad as i thought it was going to be. If you have a chance, go over to the surgery board and read some if the posts over there (that's what helped me! Knowing what to expect and hearing from people who had been through it really helped). You will be fine (keep repeating that). Just remember this too shall pass. If you need anything or have more questions let me know!
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Thank you both for your support and encouragement. I will check out the surgery board. I have an appointment with my recon surgeon tomorrow. I have several questions for him. Thank you again.
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I am overwhelmed by so many people in such similar situations. I am also 43, just diagnosed. Biopsy said very diffuse DCIS but there is strong suspicion of invasion on MRI so surgeon wants to do mastectomy with sentinel node removal. I haven't had the genetic testing done yet, but my mother was 33 when she was diagnosed and I've been fearful most of my adult life (my first biopsies were done in my 30s) I am considering getting bilateral mastectomy. Not sure about reconstruction. Haven't even talked to the plastic surgeon yet. I'm not so much scared as overwhelmed with decisions. Reading everybody's situation makes my condition seem so minor. You are all in my thoughts and prayers. I hope for as enjoyable a Thanksgiving as possible for everyone.
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Hello Karidh! Take a deep breath and slow down, it is totally overwhelming and what you're feeling, although uncomfortable is totally normal. We all understand just what you're feeling and no Dx is minor.
You will have more information soon and things will have more perspective.
Let us know how you are getting on.
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Welcome to BCO Karidh, we're sorry you ned to be here but so glad you found this group of knowledgable and supportive women. Please do not consider your DX as minor (as Ariom stated too) as any Dx is life changing and involves major decisions as to surgery and treatments.
The more you ask questions on this forum, the more you will build your knowledge and thereby make more informed decisions, in conjunction with advice from your medical team.
All the best
The Mods
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Karidh, i know you are nervous and scared, so was I. I am still scare of doing the chemo,,but i stay strong and keep busy. plus i pray to myself and i have an amazing boyfriend and family that live in another state, they are still with me. plus i have all these amazing women here to talk too. all i can say is pray and GOD and all of us will be here for you, to get through this awful disease.
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hello,
I'm here 39 and in the same boat
. It's hard to sometimes be positive, but Karen you are right you have to keep busy and keep on going. My surgery is 12/11.. So nervouse, I have a toddler at home and that's is going to be a challenge. I thank God I have a lot of support and I just keep my faith in the Lord! Every doctor I have gone too has said you can beat this and you have remain positive. I have faith in God and remind myself to stay positive!
Philippians 4:13 I can do all things through Christ who strengthens me.
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hi angiem12, welcome to this site. good luck and keep the faith and be strong, you can do it especially for your baby. that baby needs it's mommy.
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I too have been recently diagnosed-10/08/2014 w/ IDC. At the DX I was 43, but turned 44 last month. My surgery for a lumpectomy is scheduled for 12/11- next Thusday. I am nervous, but glad to be moving forward! The diagnosis is very shocking , as I have no family history. Now that I have read more about BC I have found that this is becoming more common. I do remember the sonographer telling me that there has to be a 1st in every family for BC. This of course wasn't a good thing to hear! I have 2 children, a son 13 and a daughter 10. I am a counselor at the elementary where my daughter goes to school. If I didn't work there I would have my daughter see the counselor, just as I have had my son see his. Working at the same campus that my daughter attends has added some fears for her coping when I am out.
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Annie88: i am glad you joined this post and site.i know it is a terrible thing to deal with especially it dealing with children. just remember to stay strong, have faith and fight. fight it for your,everyone else espically for your babies. good luck next week. i will be thinking of you.
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I just turned 39 and was diagnosed this past Wed. 12/3. My surgery consult is on Monday. I have a 6 year old daughter myself and have not told her yet. You are not alone and please lean on people/ myself included if needed.
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Karen and Kris thank you! I am glad to have found this group for support. There have been so many supportive people like you. I feel reassured knowing that I am not alone. Kris, it is hard having little ones during this journey. I worry mostly for my children. I want them to have hope and reassurance that everything will be okay. We continue to have strong faith throughout this. I will tell my daughter more after the surgery, when I know more about the treatment and prognosis. At this time she only knows that I am having surgery.
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