My Cancer is back...any help is appreciated

I am so sorry that this happened, but not surprised with the back pain you have been having. I sent you a lot of information in an email, but one comment I will make here is it's time to get the best minds you can find on this problem. That said, I am convinced you will be just fine. But you have made a life transition and a major speed bump.

The good news is that a lot of new therapies and clinical trials out there since both of us were diagnosed. I am expecting that you will be just fine. So here's to zapping those tumors to kingdom come.

Sending you a big hug and much love. - Claire

hi there, I am sorry to hear of this, You will need to regroup and put your big girl pants back on. There are truly so many advances for ladies who have progresses. I know personally of 3 who were diagnosed with me, and progressed who are all stable almost 10 years. I know your news was not something you wanted to hear, but you will be OK.

Pure, I'm so sorry. You asked for survivor stories so... I've mentioned this on the board before -- my mother-in-law lived almost 15 years (from 1995-2009) with stage 4 BC, and most of that time she just took AIs. She worked (and then retired), saw her children get married, her grandchildren born, traveled, read lots and lots of books and had a great life. There are even more treatments available now so there is lots and lots of hope. (((Many gentle hugs)))

Pure-

We are so, so sorry to hear this. Sending you love, and keeping you in our thoughts. Also, head over to the Stage IV forums, lots of stories of survival there, You're not alone.

The Mods

Dear Jen—I saw your post on FB, but thought this would be a more discreet place to post my support, such as it is. Being so distant, I can only offer the cyber support of good thoughts and lots of prayers. But you've got them in spades

Jen,

There is now way around this information -it just stinks.  Find your way when you are ready, to the stage 4 board.  There are many of us living happy and full lives.  There is much info and support.  Find the thread "Life does not end with stage 4 dx"  

nel

Jen, reading this felt like a big kick in my gut. You have done everything to keep yourself healthy. So unfair.

It reminds us all that stage 3 slides into stage 4 at times. We all need to heed pain in our backs and hips.

Take comfort that Diana and Lindalou are doing so well.

Jen...I have no words of wisdom to offer that the other ladies haven't said....go join the stage 4 boards...there are many gals there who are long time stage 4 survivors who can offer you hope, courage and sage words of wisdom.

Please keep us posted on how we can help, most of us from afar. Hugs from Denver...Karen

Jen, when I first saw your name, "Pure," I thought what a beautiful name!  And it fits you well. 

I'm so sorry you've been diagnosed with progression.  There are just no words to express how my heart goes out to you, but please know that you're in my prayers. 

Pure, your posts have always been such a source of strength for me, I am so sorry to hear that you are having to deal with this. You are in my thoughts and prayers. I also want to let you know that I personally know someone who was diagnosed with liver and bone mets 11 years back. She is still stable, on AIs and has a great quality of life.

So wish we could do a sister group hug with you!! But, I do hope you feel all our love, support, encouragement, hope and prayers!! Remember the strength you had to go through treatment while carrying your sweet son...you fought hard and you both are here...you'll continue to be here by living each day one at a time!

I come here to encourage those behind me and seek the wisdom of those before me. I have gathered some ideas as to what I would do if I should progress; first seek wisdom of my stage 3& 4 sisters, have a biopsy of my mets, have a chemo sensitivity test, research the most promising trails and never give up my right to HOPE!!! We have some of the most brilliant stage 3 and 4 sisters...I am so thankful!!

Stay with us stage 3 sisters for as long as you need for you will always be one of us, but when you are ready seek stage 4 sisters for the encouragement only this amazing sisters can give!!

Please keep us posted and know that you are not alone, we're all in this with you!

Hi Pure, Just read about your progression. My thoughts and prayers are with you. SharonM

Just checking in on you Pure. Think of you often and pray you have found a great treatment plan that displaces some of the fear with hope!! Your stage 3 sisters are always here for you!

I've been in touch with Jen on FB. She's back in NC and beginning tx. Her entire family will join her at some point, but heartbreaking to learn she is unable to fly back to Maui (for now) to say goodbye because of the blood clot (now resolved) they found in Texas.

I hope she doesn't mind me giving you a brief update. I know she thinks the world of this place, as do I.

Love,

Sharon