Dcis high grade 3 with micro invasion, comedo, 30mm ER+

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Spark3033
Spark3033 Member Posts: 3

Hi everyone

I was diagnosed with BC on 9/9/2014. I have found this discussion board extremely helpful and have now plucked up the courage to ask some questions myself!

I was as shocked as all the doctors and nurses who examed me in the weeks leading up to my confirmed diagnoses of bc, with being only 26 years old and having no family history of any cancer in my family. After many tests, scans, biopsies it was confirmed DCIS. As I was small breasted 32b and the Dcis was large my surgeon suggested a mastectomy, this frightened me so I opted for lumpectomy, with snb and radiotherapy.

My surgery was carried out on the 11/7/2014, things didn't go quite to plan. I didn't recover well from the anesthetic and had to be kept in hospital, a few hours later I was rushed back in to theatre for an emergency evacuation of a huge haematoma. I was eventually allowed out of hospital 4 days later. The haematoma came back and I've had to have my wound drained 3 times in 3 weeks!

Anyways, my histology report came back with a high grade 3 comedo large 30mm DCIS with micro invasion and ER+. I had 8 lymph nodes removed all of which were negative. My question is should a be worried about the micro invasion ? I asked my oncologist and he brushed it off saying 'oh it's nothing for you to worry about'. If I have this micro invasion is it still classed as DCIS? Due to my histology report and young age I am also worried about reoccurrence ...

My oncologist has left it to me whether I go on tamoxifen as due to my age/background I am a 'rare' case ....not sure what to do?


Thanks for listening :-)

Comments

  • Annette47
    Annette47 Member Posts: 957
    edited December 2014

    As long as the lymph nodes were clear, then the micro-invasion doesn't really change your treatment and barely affects your prognosis, so your doctor is right to tell you not to worry about it ... although as someone who also had one, it is hard not to do, but it gets easier with time! Your diagnosis would be DCIS with micro-invasion, and it does move you from Stage 0 (pure DCIS) to Stage 1A which indicates a small amount of invasive cancer. Other than that, the treatments you have done for the DCIS should take care of the micro-invasion as well.

    I'm very sorry that you've had such a rough time so far and also that you are going through this so young! As for the Tamoxifen, you could ask for a second opinion, but as long as you have no issues that would increase the risk of the more serious side effects (uterine cancer - which is more a concern for post-menopausal women on Tamoxifen and blood clots), then it is always possible to try it and see how you tolerate it. The so called quality of life side effects (hot flashes, etc) go away as soon as you stop the drug, so if they get too bad you could always stop. My oncologist also said it was up to me so I decided to give it a go and see, and it really hasn't been too bad. I've heard, but I don't know how true it is that the further you are from menopause at the time you take it, the fewer side effects you are likely to have. Honestly, at your age, I would think there would be even more reason to take it rather than less as you are presumably nowhere near menopause and still pumping out lots of estrogen. If at any point though, you decide you want to conceive a child, you would have to go off of it, which may or may not be a consideration for you at this time.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Welcome to BCO and we are so sorry that someone so young has to go through this. Your team seems to have your treatment plan in hand.

    We hope that you have an easier time now with minimal SEs and great results. Look after yourself and keep all of us informed of progress.

    All the best

    The Mods

  • momallthetime
    momallthetime Member Posts: 1,575
    edited December 2014

    Hi Spark3033, sorry that you had to join us. But it's a very informative and nice group of sisters. My daughter was also diagnosed at this age, she was 25. And btw, her obgyn refused to send her for a mamo, even thou there was a nice size palpable mass on her breast. I took her to my own rad, pd out of pocket and the rest is history. If i may give you advise, be diligent, do what you are doing here, by contacting people, but for sure to get a second opinion. I can't tell you what's right for you or not. I know my daughter did go on Tamoxifen, was a little hard, she had chemo also, it was invasive. But, we did go for a 2nd opinion to another onc. For peace of mind, o you know you covered all bases, i would strongly suggest you get recommendations (i don't know if you you are in a big city or not) and go see if it's the correct path you are on. Make sure also you keep your own records, blood test, scans, copy of pathology report etc...Good luck, wish you the best

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