August 2014 Surgery
Comments
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Ah Quilti...big hugs for having to worry up to Christmas!
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So what do you all think? 4 out of 5 okay? I really don't want to go tomorrow. In addition to various expected side effects I've got shortness of breath, which concerns me. The technicians say they can email the oncologist, but you know her concept of timelines for returning calls. I tried to get my GP office to check me, but they suggested making an appointment for next week...
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Gosh, Milaandra-- Personally, I don't think I'd do that. Of course I've never had to deal with the kind of side effects or symptoms you're dealing with now, and really know nothing about the spinal rads, so who knows what I'd decide in your actual situation. Can they delay the last rad and do it after you get a break (and treatment, if necessary for whatever is causing the breathing issue)? For breast rads they give breaks if needed but don't know if they can do that with the spinal rads. Did you get to talk to the RO or only the rad techs? I wish they would have offered to CALL the oncologist rather than e-mail, or sent you directly to see some doctor to control you NOW. Can you get the techs to call the RO to see you immediately or tomorrow before your scheduled rad tiime? Did they offer an explanation for the shortness of breath? Does the radiation aimed at your lumbar spine hit your lungs in any way? (I thought lung issues as a direct result of radiation would occur only for radiation in the thoracic area? -- or are you getting irradiated there too?) Do you think maybe the shortness of breath could be due to extremely severe fatigue rather than something relating truly to your lungs? Do you think you might have inhaled vomit?
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Thorasic 7, also, though they radiate one above and one below. I haven't thrown up...taking major anti-nausea meds prescribed because of the lumbar radiation through the GI system. I still get waves of nausea now and then. Cramps right where they are radiating in the front, that sort of thing. But I'm an asthmatic. It could be GI related, but I don't like the sensation. Climbing the stairs at the rail station made my legs feel weak.
seriously...what happens if you only get 80% of your treatment? Does anyone know?
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In the bag, Quilty! We will not panic. We will standby you and wait for results. There are so many things it could be. Sending you hugs. XOXO
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Milaandra, I hope your docs listen to your question and are able to give you a real response about how interuption at this point would impact you considering the specific fractionation protocol they are using on you, the nature of your bone mets, the other therapies you are doing, and the goals they hope to achieve and the bad side effect you are getting. And I really really hope that the shortness of breath goes away soon! Sorry you haven't yet gotten the info you are searcing for, and that I can't offer anything but support.
(P.S: - Are they doing CBC to check your rbc count or is it too early for the bone radiation to affect that??)
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Alrignt, I went. But the universe didn't want me to...a train broke down, so I was over an hour late, then the trains stopped running back and I had to go some convoluted way home...
They did, however, tell me that the field on the thorasic was so narrow it can't be the problem.
What's a CBC and an RBC count?
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Milaandra, Sorry you had to deal with that added stress.
My question about CBC (=Complete Blood Count) /RBC (=red blood cells) was just because I was wondering if maybe your feeling of not getting enough oxygen when you breath could be due to the radiation suppressing your bone marrow production of red blood cells and causing you to become anemic. But it was a question based on ignorance, not knowledge--- I don't know if an anemia would manifest itself so soon after the start of radiotherapy (seems unlikely, actually) or if irradiation of just a few vertebrae would be sufficient to cause that.at all.
I do think that if your shortness of breath continues you should mention it to your oncologist. Hopefuly it's just fatigue and stress causing your asthma to kick in, and things will go back to normal soon.
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Went today to do blood work for my Dec. 10th exchange surgery..getting nervous..SO tired of being uncomfortable with these tissue expanders..pain comes and goes..now I'm getting emotional about the exchange..reality is sinking in...no more breast..but hey, I'm ALIVE!! Damn Cancer!
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Hang in there Angel faith! I hear that it will feel so much better after your exchange. I am December 19th -- pre-op this week. I'm nervous too! {{Angel faith}}
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Bobo and Angel good luck on your surgeries. Wishing you the best and quick healing.Hugs ladies
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Angelfaith, I'm glad that your exchange date is arriving. (and wishing you an easy healing up from the surgery!) I hope that afterwards you will be so comfortable that you will be abe to forget for much of time that you have given up your breasts. May the damn cancer never come back, may you never have any scares that make you even consider the possibility that it might have, and may you start to heal emotionally as well as physically!
Bobogirl, courage for your upcoming surgery! I think I understand that you think this one could be the last one, and you hope that it is, so it's safe to say that I hope it is?
Quiltlibrarian, sending you courage as you wait to arrive to your biopsy date.
(Must be irritating that a person who has so far gotten off easy with this thing has so much excess courage to spread around.)
Ganzgirl, Ganzgirl, You are so on my mind! Hoping so hard that you got a happy clean path report on those removed ovaries!
Mandy- Have those blood clots resolved? You doing OK?
Milaandra, I sure hope the breathing issues are resolving!! Do your Oncos still want to do the breast irradiation soon?
Allydp, Hope all is in place (including insurance cooperation!) for your upcoming surgery and that all goes well!
As for me, Today is my last day of radiotherapy. (I think) The boost that I'm doing these last five days is giving me more discomfort than the previous whole breast irradiation-- I think I understand that the boost is a higher dose than the full breast treatments, and one of the beams is aimed right at my nipple, and that's getting a bit painful with the skin breaking down at the nipple root. Experiencing now also bit of nerve irritation pains (like after surgery) , but that doesn't last long. But really, my side effects of the radiation have been minimal and totally tolerable. I've heard that things continue to degrade also after the treatments stop, but hopefully won't get too bad. I think it will all heal up quickly. (The itchy rash I had on underside of breast at end of week 2 actually has mostly healed up (no cortisone or other drugs needed) , despite the continued bombardment. -- That was mainly caused by the bolus, which concentrated the rays more on the skin, which they did on me only for the first 10 days)
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Imheretoo - I can hear you ringing the bell already! Congratulations on finishing up radiotherapy. Hoping that your skin will continue to improve.
The blood clots have resolved and for that, I am truly thankful. My MO is just trying to get my Coumadin levels to even out.
My third chemo treatment is this Friday! Only 5 more to go.
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Hooray I'm here too! And hooray ml! I hear bells ringing
Ally, we need an update! We have so many sx coming up in our little group -- I wonder if you feel like posting them up at the top of our thread! For some reason I cannot make paragraphs, so forgive me if this comes out in a whoosh. Quilty, when is the biopsy? Many thanks for your kind words.
Okay, sisters! Circling the wagons for December! -
Bobo it is Dec 12 8 am in the morning and hopefully we don't have a big snow storm that day. Crossed fingers. We had this last Saturday - 31 with wind chill of -41. darn cold
I am wishing everyone a HEALTHY New year enough of this.
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Clean path report on my oophorectomy !! Exchange surgery is next on the menu ...January 7th, god knows I cant wait to get these tissue expanders out of me ! Im looking forward to not being in pain/discomfort anymore
Got my last fill a couple days ago..omg do my breast hurt ! And too think, when I got to the apt my ps asked me how many more fills and how much I wanted. I told him I wanted 100cc's in each side today and another 100 when I come for my preop on the 16th. Umm I think Im done with fills ! Lol...I don't think my skin can handle anymore fills. So I have a total of 480cc's. I'll take it !
I saw my pcp yesterday and she almost fell on the floor when I told her I started tamoxifen. She told me to stop taking it immediately. She says my onc should NEVER have me on that because of the blood clot risk and the fact that I am a smoker makes that risk much higher and because fam history of clots. So..now Im on nothing..She called my onc to discuss and is supposed to get back to me about what they want me on
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Thank Goodness for the clean Path report, Ganzgirl!! It's nice to hear you seeming happy and a bit more relaxed. Good thing your pcp was on the ball about the inadvisability of you taking Tamoxifen! I've been taking an AI for about 2 and 1/2 months now, and so far not experiencing any side effects. My situation is a bit different than yours, since I've been in menopause for a long time, but If you end up on one of those drugs, I hope you will have an easy time of it, too.
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Hi ladies, please forgive me for my long absence here. I have been super busy the last month, which feels great. I'm able to do all the things I used to do pre cancer - except for exercise - my body's still super out of shape. I'm not worrying about that though until after theses next two surgeries. I'm thinking spring I'll get back into a routine. Anyway, my ooph/hyster is tomorrow morning. I'm nervous and sad, but more so just ready to get the all clear and put one more hurdle behind me. I'm so glad to see this thread still active and it was great to catch up on everyone! I hope you all had a lovely Thanksgiving for those who celebrate.
Ganz - so glad you decided to go for the BSO/hyst and a HUGE WOOHOO for a clean path report!!! How has the recovery been for you? I'm nervous about it.
Bobo - Hope this next surgery on the 9th is the final, final one! Sending you lots of good thoughts and prayers!
Angel - thinking of you as you gear up for your next surgery on the 10th! Yay for graduating to the squishy side!
Mandy - so very sorry to hear about the blood clots, but glad they're resolving and you're able to continue chemo. Sending you prayers.
Couture - have you heard anything on results yet?
Inhere - so sorry you're having side effects from rads. Are you almost done at this point?
Nancy - so sorry to hear about your neck. I hope the clots break up soon. Sending you lots of good thoughts.
Mil - what beautiful pictures! Your dress is gorgeous! You are an amazing seamstress!!! So thrilled for you that you were able to have such a nice getaway! You more than deserve it!
Quilt - sending you lots of prayers. It's not fair you're having to go through this over the holidays. Please keep us posted.
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Ally - Sending prayers up for your surgery tomorrow..I know all will go well..God's got this for you!! {{{HUGGSS}}}
ganz - glad for the clear report! You deserve it!
Bobo- Hope all goes well for you on the 9th! {{HUGGS}}
Mandy - hope you are feeling better!
Coutoure - how is it going?
Imhere - hope the rads are over for you soon!
Mil - I'm jealous! I need a getaway too!
Quilt - prayers going up for you!
I've had some pain these last few days...felt like I was still having chemo treatments!! I've read on these boards that your body can take months to years to recover from chemo..Even with my physical therapy, my joints, legs, etc was in pain..But I'm hanging in there..
I, too, am getting nervous for my exchange surgery..I can't wait to get these tissue expanders out!!! They have not been comfortable for me..
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Thanks for your kind thoughts angel and ally! My sx is actually the 15th now. Meantime, I'm in the bag for Ally for tomorrow! You can do it, Ally! We'll be with you every minute. XXXXOOOO
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Good luck Ally! We are with you in spirit!
I had my 3rd infusion on Friday and it hit me harder than the first two. Not feeling well at all today but back at work because I have no time off left. Oh well...we do what we have to do.
Love you ladies!
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We are with you Mandy! That sucks that you have to be at work. Take small breaks and give yourself little treats!
Ally, I am in the bag for your surgery and wishing you a perfect and completely pain-free outcome. XOXO
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Ally, Wishing you an easy and quick surgery recovery!
Mandy, That must be really tough to work when you feel chemo sick! I hope the worst of this cycle's effects pass quickly.
Angelfaith, So sorry to hear you've got this lingering joint pain issue! Happy that at least very soon you'll be getting rid of those TE's!
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Angelfaith wishing you all the best for your surgery tomorrow!! Hope you heal up soon and feel much more comfortable!
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Hi!
Surgery went well..check back in later..
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Hooray Angelfaith! Hope you are home and cozy. XXX
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Angelfaith - Glad you are home and that the surgery went well. I hope your recovery is quick.
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Thanks so much, ladies! Surgery went great and I already got a clear path report! I'm in a bit of pain, but nothing too crazy.
Angelfish - so glad surgery went well! Rest up and keep us posted.
Bobo - good luck on the 15th! Will be thinking of you and sending you lots of good thoughts!
Ml - I'm so sorry this chemo is harder on you. I hope you're able to get some rest and get through the worst of it quickly.
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Hooray! Ally! I have been waiting to hear from you. Clear path report is what we want to hear! What have you got going for pain relief? So glad you are not in much pain.
Angel: How you doin?
ml: Thinking of you and sending you hugs. XOXO
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Good to hear that surgery went well and got good results Ally. Angel glad that you are home again.
They took 9 core biopsies this morning, and not too painful at all after the freezing went out. Now just the waiting.
Hugs to all.
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