How Many Are We?

Well, I know it's a very exclusive club but I belong here too.  If you are still adding to the list please include me: bex-boobs, stage IV for, I dunno, over 5 years and yes, I think I was a member in April 2013.  I just don't say that much (because I have a mouth like a sailor).

i am one- just started the process. Started type IIA and two weeks later they discovered it in my bones and lungs

Me, too. No wading pool, just plunged into the deep end with instant stage IV. Mets to pleura, sternum and various chest nodes (I'm not even sure, really. Just, I saw a constellation of pretty blue spots on my PET scan.) Haven't updated my profile yet, but the first line tx is Tamoxifen, Zometa and oophorectomy. My parents are 90 and 85, and I hope they never have to go to my funeral.

add me to the list as well. Stage IV now with mets to bones, left plural space, and left outer lining of lung.

frances

joined the Stage 4 group exactly 2 years from BM when I was  95% cured!! Oops...how does this happen. Nasty damn cancer.

add another stage 4 (4 years - 3 months)

I am a new member. Diagnosed with bone mets 10/22/14: spine, bilateral humerus and femurs, ribs, hips/pelvis, sacrum. All this was an incidental finding from  CT scan for a bad gallbladder that had to be removed. Never had any symptoms including pain. Bone biopsy confirmed. Now heading for a clinical trial with eye exemestane and entinosint. First diagnosed with stage 1 with bilateral mastectomy 2006. So much for beating the big C.

Another newbie here. First post. I've been lurking since my dx in August. Just waiting for the right time to jump in, I guess. You ladies have been a source of inspiration and strength to me as I have struggled to come to terms with all of this.

Dx at 41 in August after years of mammograms for benign cysts. About a month after my January 2014 mammogram I noticed a lump which I thought was another cyst (although it was large!). In June I started to notice hip pain in my left hip that I dismissed as sciatica because it was similar to what I had experienced previously on the right side. I thought I was exercising too much or pulled a muscle gardening. It would go away and come back slightly different. I was just beginning to worry that it was something more than a pulled muscle when I had my 6 mo. follow-up mammogram. Wham-o! Stage IV. Still in shock.

Radiation helped my back pain considerably, except for one area in the hip which is aggravated by the Xgeva that I get every 6 weeks. It also makes me break out something terrible!

Ever thankful for my supportive husband, and family and friends who show their love daily, even from afar. Holding onto my doctor's words that this is "manageable".

who was ur doctor in LA when u were originally diagnosed? thanks

Add me to the list....stage 4 as of last week.  Confirmed in marrow, waiting PET results.

Hello Mets Ladies;

I just shared m story on Metastatic area here, under Marcia M. I have had stage 3a, and 7/20 positive lymph nodes. I had a brain turmor went undiagnosed till it took out my right hand .I had asked for a scan many times. No scan. I had MRI of the neck showed nothing. I had brain surgery and then rads in 2012. I m doing well. Eating a strict diet, vegan juicing and also follow up with Onco every 3 months. Be careful of mets in your brain. I would as k them to scan there. No other known recurrence anywhere .I believe the diet helps. I hope you all find healing stay well as you can. Explore reiki for wellness, mine helped a great deal.

care,

Marcia

Unfortunately you can add me to the list! Two weeks ago Thursday they found mets to the lungs. I saw the Ct Scan and they are so small I was told he can't even biopsy them. Lungs looked peppered with tiny white spots. And The onc took a vacation, so I have to wait until Friday to meet and get a treatment plan. I am battling severe depression, quit my job already and plan to move home. This has changed everything for me. I don't feel very strong to go through this again. You ladies have great up beat energy and good attitudes. I am trying, but just can't. Wishing you all well

Robin

Anyone still up--can't sleep. I am stage 4 from diagnosis this summer . Lung mets and end of Sept had tremors before chemo started and brain mets were found. Craniotomy on Oct 1 followed by cyberknife followed by chemo every 3 weeks. Still shocked but overwhelmed by kindness of others.

Hello! How have you been coping? This summer I was on a cruise with my husband and 17 year old daughter and now I am here. I am on disability from teaching for many years and am uncertain about what to do about my career! I am sure you were equally shocked as well. As for treatment, it has not been horrible. I have had 4 with a catscan on Thursday to track progress. Side affects have varied: since no nose hairs I have had numerous nosebleeds. I have on and off diarrhea, with the urgency to get to a bathroom the worst. I have fatigue on and off but that is about it so far. My hair gone but at this point I still have eyelashes and eyebrows.How about you?

I wish us much luck as we travel this new path.

Hi All,

I'm new, joined this week. Stage IV. Mets to Liver and Lungs. Dec 2014.

Being newly diagnosed I was googling the sad statistics and then I came to this site. You guys give me hope.

I'm having a port put in and starting 6 cycles/18 sessions of GemTaxol.

I'm really glad I found this site, i think you all know more than my family and friends how I feel.