Surgery done--Chemo next--Scared
It all started with a tiny pebble shaped lump in my left breast that radiology said, "Oh there are too many and they are shaped too perfectly to be cancer just follow up with your yearly mammogram. On my out one of the nurses pulled me to the side and told me to please get a 2nd opinion....thank God for her! I found a wonderful breast surgeon/oncologist that did a sonogram and he thought cancer was unlikely however let's look again in 6 months.....
October 16th, I knew in my gut, and after the sonogram the head radiologist came in and said, "I don't like how it looks, it's grown and it's different";she immediately ordered a core-biopsy and on Oct. 21st I was diagnosed with breast cancer. After that the days and weeks became a blur...on Nov. 13th I had a double mastectomy, lat flap and reconstructive in 1 surgery lasting 11 & 1/2 hours long.
I'm 46; my grandmother was 49 when she was diagnosed and i watched her wither away and die; I know I will beat this but I am so scared! I've always been so strong and tough but this has humbled me and brought me to my knees. I am not one to complain or whine but God what I'd do to have my life back before the cancer!!
Every time my doctors look at the stitches and bandages they rave about how well I'm doing...and all I see are' Frankenboobies"! Sometimes that makes me laugh, sometimes not so much. I'm surrounded by family and my boyfriend is incredibly supportive and loving; it's when I'm alone that I allow myself to break for a moment and let myself be angry and hurt and cry!!
I get my last drain out tomorrow and then they will schedule me with another oncologist on this team to discuss treatment; 6-8- rounds of chemo and radiation since they also found the cancer had spread to my lymph nodes. I hate the idea of losing my hair as silly as that sounds at this point, but it's always been somewhat of my security blanket as I have a port wine stain birthmark on the right side of my face.
I felt this was the best place to share my feelings and fears as I am hoping to hear from others that have already been here and survived and are either going through it with me or on the other side....what should I expect? What vitamins or food should I take/eat to keep me strong.
The pain from the nerves coming back to life on my left side where they took all the lymph nodes and did the lat flap can be excruciating!!
God bless all of you in your fight; cancer just plain sucks!!
Comments
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lch, there are many, many of us here that have done chemo. I just finished, and am here to say, it is not pleasant but doable. Shortly your doc will give you specifics on which protocol is for you...they all have possible side effects and benefits.
You can do it! I know it is scary. You already are so far along. The key to chemo is prep in my opinion. Good advice is here, and ask any questions, help is always available. Ladies here get it and will guide you through. The next phase is another whirlwind. I have no doubts that you can make it
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Thank you Bippy625, this site is such a blessing as we are all in a fight we never asked for and are members of a club we din't want to be in....I see the blessings through the dark clouds as it could be so much worse. Today, I just needed to release some of the fear.
Bless you for your response!
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lch033, so sorry that you found yourself here. It is so frightening. For me, once I had my TX plan in place, I felt better knowing that I was fighting back. I had chemo and as Bippy said, prep is crucial. Drink plenty of water, before, during and after chemo, call your MO at the first sign of any SE, no matter how minor you think it is; be good to yourself, rest and let others pamper you; take walks when you can and BREATHE! You can do this. I was lucky and had minor SE's, worked PT and never had any complications. For me, it was manageable and much easier than I thought it would be. Wishing you the best! If you are inclined, there is another thread called "Hill Country Warriors" that you might want to check out. Most of us are from the Central TX area and we get together now and then. All ages and all stages! You are welcome to join us.
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I just finished 2nd of 4 rounds of chemo, so I'm right in the middle of it. I've always been a generally healthy person (no allergies, no flu, not many colds), so the worst for me has been the unwell feeling that I have the week following the chemo treatment. I wear my hair short anyway, so the loss of hair was not as traumatic as it could have been. On the upside, I don't have to shave, and I'm on the way to the Brazilian Wax look without actually having someone pluck hairs from my nether region. Definitely join one of the Chemo threads when you get started. You'll see them on the Chemotherapy - Before, During, and After board. There are a lot of great tips there.
It is totally normal to be scared of chemo, you have no idea what to expect. Everyone has different experiences. Once you go through one round, you'll know what you're in for. My second round went much better because I was prepared and I changed some behaviors to compensate for SEs. They give you a lot of meds to help prevent side effects. As my MO said when she gave me a list of SEs to expect: "These are the possible side effects. You will not experience all of these, but you will experience some."
Good luck!
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So sorry you have to go through all of this too. You don't have to lose your hair. Many women here have saved their hair with cold caps. I used them and they worked for me.
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Thank you all for your posts; I feel this site helps keep me somewhat sane among the fear and unknown confusion. I have heard many different opinions on the cold caps;I would be willing to at least initially try to keep my hair if at all possible. I have long thick hair so would it make sense to cut it short in the beginning? And what cold caps are the best?
I am starting a journal more for myself and the ability to write what maybe I cant put into words or have no one to listen to; something to look back at once this nightmare is over to see how even through the fear and confusion, I won! I beat this evil monster called cancer....and to maybe help someone just beginning their struggle too as you ladies have done for me!
God Bless You All!!
Lara
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I don't know anything about cold caps; but either way I would say yes, get a shorter hair cut now. I wore a wig (which looked very, very cute). I went to a salon that specialized in that sort of thing before I started chemo and they helped me pick one out that would match my color/style etc. that way it was ready when I needed it. Two weeks after my first chemo, just like they said, it started to shed. I went in, had them buzz my hair, and came out wearing the wig. Even my husband couldn't tell the difference. What you do about 'hair' is really a personal preference. I know other people who wore caps, turbans, or went commando and were very comfortable with their decisions too. (That route was not for me, because without hair I looked like an escaped convict!
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hi lch, my onco does not endorse cold caps. I did not want to chance any cancer cell escaping the chemo, so, would not have used it anyway. This is a very personal decision, and many ladies do cold caps and ice their toes and fingers too. I would say research it and ask your onco, then decide.
As far as hair, it was less traumatic than i would have thought losing it. I was consumed with chemo and it was a non issue for me. Wigs are actually fun and cheap these days and i wear three or go commando, or use hats. Hair is coming back already, so again, up to you but if you do not use cold caps, cut it, then shave it when it starts to fall out, it is just easier and less drama/trauma, because losin it in clumps is upsetting and freaky. And...it is fun to scare people by whippin it off now and then! My DH offered to shave his constantly but i said one kojak was enough in our house.
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Frankenboob was exactly how I felt at that point. I briefly wondered why I was bothering with reconstruction, when that was the result. It fades. It gets much better. Getting the drains out helps a lot!
Most people are afraid of chemo. You are not alone. The thought of putting something that toxic through your body is scarey. And not knowing exactly what to expect before the first time is torture. I sat in my MO's office balling my eyes out telling him that I couldn't do it, just before we did it. You can do it. When I had bad SEs, I kept imagining that is was because the chemo was looking for cancer to attack but couldn't find any. Agreed that you should tell your MO even about the smallest SE, and do not hesitate to do so during an infusion or calling them at 2am if you need to. Sometimes a SE means more than you realize. Plus, they usually can do something to make it better. Losing your hair is a huge deal at first, but even that fades. I invested in a bunch of hats and wigs to feel in control before I lost my hair, and found that headcovers.com had a great assortment. I didn't want to cut my long hair short for the "cancer hair cut" so instead waited until it began coming out in the shower and had my brother shave my head. My MO asked me if I was trying to make a statement when he saw me, as he thought that I wouldn't lose my hair for awhile yet. Maybe I did it before I needed to, but the important part was that I waited until I was ready. Then I found myself going bald many days, after swearing I'd never do so. Chemo is not easy, but you will be amazed at how strong you are. Your mindset is important.
But I agree, even though this is life saving stuff, it still seems unfair that they cut off your boobs, then you lose your hair, and with my chemo steroids I gained weight. Cancer sure felt ugly. But it does get better. You will make it to the other side and learn new things about your inner strength. Last word of advice - pamper yourself whenever given the opportunity. A hand rub, a new lotion, a bath, marathons on Netflix, someone offering to make dinner for your family... Take the opportunities without guilt, as you will need them and can pay it forward in the future. Our support will be with you the whole way.
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Thank you, all of you for your input; I believe I have decided to go ahead and get a a cute short haircut so maybe it won't be so devastating to lose it as my hair is long to the center of my back and thick and something I was proud of....but it's just hair it grows back; can't exactly say "it's just cancer, it'll go away".....I still have to meet with my Oncology Doc to discuss treatment(s); I have already been told 6-8 chemo treatments then radiation however that will still be a tough appointment...if it wasn't real enough to cut off my boobs now I get to fry my insides. I know a day will come when this is behind me and I can say I fought, I won and survived; right now I bounce between anger, fear, pain and sadness.
And the people that love you and support you, yes, they love you and are there; but true Understanding can only come from those that have been here;Right Here; and have felt this on a personal level; so I thank God for each of you for listening and commenting and supporting me as we all have our own battles with this evil illness called cancer....How I've grown to hate that word!!!
God Bless You All!!
Lara
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Lara, I did the same thing with my long hair and donated it. Kind of selfish in a way, I guess, but it made me feel better about losing it. I never lost all of my hair; just couldn't shave it completely. We are all different and there is no right or wrong way...
You can ask American Cancer Society to get you a free wig if you want one and there are a couple of sites online that offer a free hat/scarf also.
ACS also has a program called "look good, feel better" that you might be interested in.
I hope your treatments go well!
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I donated my long hair as well. Made me feel ever so better that it would go help some poor child facing a cancer diagnosis. It took a bit of time for everything to grow back, but I LOVE the way my hair looks now. What I did was have them cut it similar to the wigs I chose which gave me an idea of what my ultimate "look" would be. It's a bit different than the initial cut, but it was nice seeing the endpoint in advance.
Chemo was no fun, but hardly the end of the world. I describe that time as "dialing things down". I did everything I normally do, but not with as much intensity nor with as much stamina. I felt better after the first infusion when all went well. Doing 12 instead of 8 infusions, I thought it would never end. But I was fine towards the end of Taxol.....just was itching to be DONE!
Looking back, I am so glad I did chemo. Even more glad that I am here and thankful for every day. Good luck with everything. You should know that I also had cancer in my lymph nodes and I am just fine.
One tip with wigs. I did one plain black one and another with red streaks in it. Not something I will do again in my life, but made things fun. So I would go for fun as well as something you can wear to a formal occasion. And wore with berets over, so they were secure on my winter walks. It worked, and I still use the wool helmet liner I got for cycling. Again, good luck! - Claire
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