When they start being so nice and rush the biopsy
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My MRI came out good as far as only finding the one tumor that we know it. The only complication now is that the veins in my lungs looked abnormal and they want to do a CT scan of my lungs asap which with the holiday weekend means next week. They want to make sure I don't have clots in my veins of my lungs. Which would explain the fatigue and maybe even the asthma that started a few months ago. Just one more factor in the big picture.
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Hang in there, ewt717. Thinking about you. Try to stay busy with the holiday. That's what I intend to do. Dec. 2nd cannot get here soon enough for me, but I try not to "wish my life away" by not enjoying the moments. SOOOO difficult under these circumstances and now you have the added stress of possible lung issues. Big hugs to you.
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Finally some good news, they were abel to get me in for the CT scan yesterday and there are no clots in my lungs. They were just granulomas that come from spores or viruses that are common where I live.
So now I'm meet with the oncologists next week. Still no decisions on my surgery, but since there is no cancer in the other breast, the options will probably depend on risk assessment after genetic testing, I think.
I'm in no hurry to have surgery, I'm still thinking it through and using the time to prepare for the downtime. I just bought a house and have a lot to do to finish the semester in my classroom and plan for being out for surgery.
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Happy to hear some good news for you Ewt717. Something to be thankful for on your Thanksgiving day.
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I am so pleased to hear you've had some good news Ewt !
Let us know how you are getting on!
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Dear Ewt717, glad the lungs are OK.
We wish you the best in gaining info on your options before making your decision regarding treatment process, it is a big decision, whatever you choose, but knowledge is power.
We wish you the best,
The Mods
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they did a genetic test and found no genetic link, so that was good news. I decided to have a lumpectomy with sentinel node dissection, followed by radiation. they did find some cancer in one of the lymph nodes, so this week I'll find out how that factors into the treatment plan.
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Wow, followed this thread just now to the end, see it was back in early Nov you posted….intrigued by the heading "when they start being really nice…and rush the biopsy…" Thank god they do that, both in your case and mine.
When are you planning to have your surgery?
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Hi Ewt717... Are stories are so similar, I was DX with IDC on Nov 4th, had a lumpectomy on Nov 25th, I to had ITC in one node. I'm 47 married with an 11, 8, and 7 yr old. I live in Arizona also Lake Havasu area. I know all about the lung issues here, glad to hear everything else was clear. Make sure your MO does the Oncotype DX test, I'm still waiting for my results to come back, so I haven't started any treatments yet. Stay positive! While your waiting for all your results learn all you can about all your treatment options. I'm so glad you have family to help. Sending good thoughts your way. ((Hugs))
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hotrodmommy- how long did they say to get results for the oncotype test?
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Well it normally takes about 2 weeks, but there was an issues sending the request out on mine so I've been waiting since Dec 4th, the waiting part really SUCKS! Unfortunately I might go for the chemo no matter what my score is cause those darn cells that went into my node, and having LVI really scares me. I'm still hoping for a low number, you never know. Have you had your surgrey yet? Make sure your MO requests the test. I know this stuff is all new to the both of us, but if I can share anything I've learned I'm there for you.
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Yes, I might have to do it too because of those darn cells. Actually, might was more than a few cells, it was 4mm. Which is "tiny" to the surgeon, who is only concerned about having to do more surgery, but is significantly more than "micromets" or "ITC". SO I see my oncologist on monday, as see what he says.
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Ok, so you just had your surgrey. I hope your healing well. Sorry to hear there were cells in a node. You know I haven't been mad about all this, but after surgrey when I heard there was cancer in one node I was PISSED!!!!! I guess we have to fight harder. Why do you need more surgrey? If I do chemo my MO wants to go with CMF chemo, it is considered chemo lite. I guess he doesn't think I need the more powerful chemo treatments. Research all you can before you go on Monday. Knowledge will give you more control and understanding of your treatment options. I'll be praying for you.
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Hotrod...I am sorry to hear that you will need chemo but trust me, cmf is still chemo. I am halfway through cmf 4 of 8 treatments done. Best of Luck to you.
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hottod, I see you got your oncotype score back. Did you decide to go with chemo? The 12 is a pretty good score so maybe not. Mine is an 18, which means that I have a 12% chance of reoccurrence with or without chemo. It's right on the border. So now the question is do we want to treat aggressively because I'm 40 or trust the statistics? With the oncotype test I have the option to say no to chemo and I have very good data to support that. But if I have a recurrence, there will always be the question of whether or not we should have treated. And the doctor explained me that a recurrence means somewhere else in the body that will be treatable but not curable, So basically at my age, I recurrence would mean most likely eventually dying of breast cancer before anything else. That's why age is always a factor., That and knowing that I'm otherwise healthy, with no health problems that would indicate that I wouldn't get through chemotherapy and recover without any long-term effects.
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Hi Ewt717.... Have you made your decision on chemo yet? My MO said no to chemo for me. My BS said do chemo, be aggressive because of my age, both my MO and RO said chemo is not enough of a benefit for me, that oncotype is reliable, it gave me an 8% recurrence with tamoxifen only. The weird thing is the recurrence % for 1-3 nodes positive page gave me a 10% with tam and 11% with chemo, so chemo made it worse... even my MO was confused by that. Believe me I did not want to go thru chemo, but everyday I hope that was the right decision even though I didn't have to make it. I hope you go with whatever you feel is the best for you, being healthy is a plus. I'll always be scared of the unknown, but I will keep being positive.
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yes I'm going to do TC chemotherapy. It's only four cycles three weeks apart. And I'm going to start on Thursday just to get it over with and so that one of the cycles of time does my spring break. And the last is timed with Easter. They have a lot of things to manage side effects, my hair will fall out and I can live with that. I talked to my brother who is a doctor and a lot of people in my life and I feel good about it. I really thought that I would not get chemotherapy I thought I had caught it soon enough. That it would still be stage one. But I'm glad that I thought that way because there's no sense in stressing earlier about something that might not happen, and now that it's happening, I'm at a good place for accepting the fact that I have cancer and I have to do this kind of stuff.
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You've got a great positive attitude right now. You got this! Even though we're doing different treatments, I hope you'll keep sharing your journey with me. I'll be sending positive vibes your way on the 29th. Stay strong. ((Hugs))
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