Taxol side effects

Hi

EVERYONE IS DIFFERENT, but

1. I get mild diarrhea on after Taxol, Day 3. But, I'm getting it with Herceptiin and sometimes Perjeta, So, it's hard to say which substance to blame. I manage it with Immodium AD.

2. Otherwise, the worst side effect with Taxol for me is that it makes everything taste bad except for sweet things (like fruit flavored Yoplait and various fruits like pineapple, blackberries, raspberries, etc.).

2. My doctor has put me on Dexamethsone, two pills the night before and two pills the morning of treatment. It is a steroid and is designed to help prevent reactions like neuropathy.

3. I didn't really get headaches or nausea on AC. AC made me feel very very spacey, though, and I felt much more unsteady on my feet. I have more energy on Taxol and feel much more mentally alert.

4. The first time you get Taxol, it will take a longer (maybe two hours), because they are checking for reactions. I never got a reaction, so now it takes me about an hour to go through my bag of Taxol. One thing: because so many people do get reactions to Taxol, one of the premeds is Benedryl which makes some people sleepy and they just doze through their Taxol infusion. If you get woozy on Benedryl, you may want to make sure that you have someone to drive you home after an infusion.

I just finished Taxol #7 and so far so good. My blood work is taking a dive but that doesn't happen to everyone. I will probably have to take neupogen shots at some point. I definitely have lost my sense of taste as well. Just recently I developed some mouth sores - not too bad and probably because I didn't use the biotene mouthwash as diligently as I should. I admit I slacked off with it. I have some minor aches and pains, but so far no neuropathy. I do take l- glutamine though. I feel better than when I was on AC but I do get tired in the afternoons and usually go to bed pretty early.

Nancy

Oh winningsofar reminded me of the bloody stuffy nose - how can I forget that one? Sheesh must be used to it now.

hi how was your treatment a neebie

Sometimes I don't know if something is a se, or if it's just old age (i am70). I would say the worse se is fatigue, and secondly joint pain, which is bearable. I have had 6 treatments, am finishing a two week break, go back Monday. Also, things do have a funny taste, except for sweete, which I don't need to be eating a lot of. I will have scans early January, then we can see how it's working. I had good results with Abraxane, two years ago, with fewer se's. Good luck to you, let us know how it's going.

i just had first round of dd taxol Friday. Having a lot of muscle pain headaches and hand/feet tingling. I've been taking a vitamin b complex .have been reading about l glutamine think ill give it a try as long as oncologist is okay with it.

I hardly had any se with AC and was told this drug is "easier" for most ....feel like it's kicking my butt... also have a 3 week old baby now and don't sleep well during AC I was still pregnant and could sleep whenever...