December 2014 Surgery Sisters

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  • Smitty333
    Smitty333 Member Posts: 130
    edited November 2014

    Twolumps, I also had a complete hysterectomy and was back to work with in a week. This to me was MUCH harder than the Hyst. I was not prepared for the pain. I am not trying to scare you or anyone, I just wish I had known. I tried skipping pain pills because I did not take them after my hyst. Big mistake. Of course everyone is different and all surgeries are different. I would have help at least the first 3 days. This is a big surgery. With that being said I would not change it! The pain does not last and the piece of mind I have now makes it worth every bit of it!

  • twolumps
    twolumps Member Posts: 79
    edited November 2014

    Thanks for the warning, Smitty.  I'll just plan on taking the pain pills as prescribed for the first day or two and get some extra help in there.

    Got some awesome news at lunch!  Our local Cleaning for a Reason group is going to come in a couple times a week to do dishes and other light housework for a few weeks!  In addition, to the once monthly deep cleans.  Bless them!  I was so relieved.

  • knmtwins
    knmtwins Member Posts: 598
    edited November 2014

    Smitty, if I may ask, why a lumpectomy in January and a BMx in Sept?


  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited November 2014

    Twolumps - They may not release you from the hospital unless you have someone to spend the first night with you.

    As for being incapacitated, the mastectomy itself is fairly straightforward. Breast tissue is primarily fat and glandular tissue being removed. It's the reconstruction process that adds time in the OR, and pain afterwards. Hard-backed tissue expanders are inserted underneath pectoral muscles and nerves that have been cut and sutured.

    I was suprised at how little hand grip I had when it came to things like opening jars. And the suggestion about moving needed items to counter-level was right on.

    As for taking care of personal needs on the toilet, no worries there. You can do whatever you need to do by yourself.

    I did a ton of laundry ahead of time so that I could go for a week without wearing the same pjs twice. I also had a week's worth of camisoles, but I didn't buy all the expensive mastectomy camisoles. I just pinned my drains to my camis with diaper pins. AND - once I could take a shower, I never used the same towel twice. Again, I was just thinking of germs.

    Oh - the best jammies I got were brushed satin. Nice and warm, and the satin made it easier to move around in bed.

    A note about stripping drains: it's RARELY needed. In the beginning you'll see a lot of dark fluid coming down the tubes into the bulbs. Make sure you empty out the bulbs and log in the amounts before they get half full. This keeps the good suction going.

    In fact, you can wash your hands well or use gloves, sit on the side of the tub or on a stool, remove the cap, empty the bulb into the measuring cup, and log in the amount. Toss the fluid in the toilet and flush it down.

    Then, before you put the cap back on, take an alcohol wipe and clean all around the cap and the bulb opening. With the cap still off, flatten the bulb, start rolling it up from the bottom so all the air is squeezed out of it, THEN put the cap back on. This is how the nurse in the hospital taught me to do it.

    As you start to heal, what you see in the clear tubes will change from a dark fluid to a more pinkish straw colored fluid. You will also probably see lots of strands of gunk in the tubes. While it's not pretty, it does NOT mean that the tube has to be stripped. If your bulb is still filling up, the fluid is being drawn out of your body into the drain.

    You can try to strip your drains by pinching the tube at the top where it exits your body. Don't worry - it's stitched in there. Hold it tight against your body, and use a wet alcohol wipe to pull hard and "milk" the tube down towards the bulb. What you will probably find is that nothing really moves. I tried the tube stripping thing once or twice, then called the PS who told me to forget it as long as I was getting drainage into the bulbs.

    DH told me he was very surprised that I became as independent as I did so quickly.

  • Smitty333
    Smitty333 Member Posts: 130
    edited November 2014

    knmtwins, my lumpectomies were on my left breast. Had 3 at once and than started Tamoxofine. About a month later I woke up with a sore on my right nipple. Had a mam and ultrasound and radiologist came in a and said you have Paget's and need a mastectomy. The worst part about all of it is that my surgeon office just started a patient porthole so you can view all if your files and my very first visit before any surgeries I had a visit with a surgeon and he was very nice but any concerns or questions I had he would say, I wouldn't worry about that. I felt so dismissed and frustrated. So at the end of the visit he said he wanted me to have a MRI. I went ahead with the MRI but switched surgeons. Fast forward 3 lumpectomies a year of Dr visits and a mastectomy and I read my very first surgeon visit report and he said patient has many palpable lumps in both breast, clusters of calcifications on mam,ultrasound shows complex cysts and area of concern in both breasts, stereo biopsy shows atypical cells. He goes on to say that due to her her age (35) my recommendation to her will be a double mastectomy with or without reconstruction. MRI will be ordered first. My heart sank when I read this because if he would of been upfront with me and told me this it would of saved me a year of surgeries, medicine and worries. By the time I had my mastectomy my right nipple had flattened and was one big sore. I

  • knmtwins
    knmtwins Member Posts: 598
    edited November 2014

    Smitty - wow... I wonder what the doctor that I switched from wrote in my file. Too bad I don't have a patient porthole for that. Glad all is done now. Also, you have that you are on Aromasin. I thought that was for post menopausal. Since I did chemo first, due to the way a new drug was FDA fast tracked for HER2 cancer, I've done chemo, will have BMx in Dec, then will discuss the ER stuff, so that is all new to me.

  • Smitty333
    Smitty333 Member Posts: 130
    edited November 2014

    Knmtwins, it is your right to have access to any documents you want. You could request copies of all of your reports. I wish I would have. Aromasin is for post men. 2 years ago I had a complete hysterectomy for complex cysts and lesions on my cervix and all over my ovaries. At that time I told my gyn. that I had lumps in my breast and she told me at my age she would not worry about them and they would most likely go away after my hyst. A year later my sister-in law went in for her 40 year mam. and called with the news she had breast cancer. I went in 3 days later. By the way I found the Aromasin much more tolerable than the Tamoxofin. What I am wondering now is if I can start taking a estrogen for my hot flash's and all of the other fun symptoms that come along with menopause. Twolumps that is great that they are coming to help with cleaning. :)

  • pamusc93
    pamusc93 Member Posts: 1
    edited November 2014

    I just found out yesterday (11/20/14) that I'm having a left mastectomy with a full left axillary dissection on 12/2/14. I've had bc since 8/2013 but I also have aplastic anemia and type 2 diabetes. I've been on tamoxifen for the last year but I've stopped responding and the beastie has started growing again!

    Feel like I'm going crazy trying to squeeze in all the pre-op visits with thanksgiving coming.

    I will be starting an aromatase inhibitor plus lupron to force menopause in the near future. Fun times!!!!

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2014

    Hello pamusc93, sorry you had to find yourself here but we want to welcome you to the BCO community.

    You may find it helpful to check out/post in this forum: Hormonal therapy: Before, During and After for when you start on AI's.

    Sending our kindest thoughts and hugs to you! If you have any questions for us regarding the boards just let us know.

    The mods


  • pinkninja9560
    pinkninja9560 Member Posts: 238
    edited November 2014

    wow, thanks for all the info. I need to start reading more of what I will need prior to surgery which is dec 10

  • twolumps
    twolumps Member Posts: 79
    edited November 2014

    GREAT ADVICE, Blessing2011. I will be referring back to this post. Good to know that as longs as drains still flowing nothing else is necessary. That is a relief.

    Just ready to Get. It. Over. With! It's getting harder everyday to distract myself. I am usually a very good sleeper and nothing keeps me up. Not so much tonight, though. Oh, well. Guess my days and nights will be disturbed soon enough anyway.

    So sorry, Smitty. That really sucks.... Thank God you listened to your instincts after you got the news about your SIL

  • Bippy625
    Bippy625 Member Posts: 890
    edited November 2014

    Hi twolumps, me too! i get my date on Tuesday. gearing up already with supplies.

    I am lookin into prosthesis, anyone have suggestions on that?

  • twolumps
    twolumps Member Posts: 79
    edited November 2014

    Hi, Bippy. I've actually begun crocheting a pair. Check out knittedknockers.org. It has both knit and crochet patterns for free. Sounds crazy, but what the heck! :)

  • Funclassygal
    Funclassygal Member Posts: 105
    edited November 2014

    Surgery is set for Janurary 13th - yes I am petrified. Never been in a hospital before. They tell me going through chemo is the hardest part and this is easy. The drains are the most annoying. If any one would like to share their experiences with me I would love to read them. Thank you and a very Happy Thanksgiving to each and every one of you strong ladies! xoxo VeraAnn

  • Bippy625
    Bippy625 Member Posts: 890
    edited November 2014

    hi funclassy, I will be right with you, getting my date tomorrow for bmx. Chemo was very difficult, and I too hope surgery is different. All I can offer now is what others have shared, mostly, no major issues. Sleeping and bathing, it will suck for awhile. The issues seem to increase if TEs are placed immediately, but not always. Ladies here report minimal pain, hard to believe but true. My PS agrees that recon is the painful part. This is all speculative on my part, just sharing some from the boards that I have read here. But it at least sounds better than the hell of chemo

  • Funclassygal
    Funclassygal Member Posts: 105
    edited November 2014

    Bippy625, thank you so much! Hoping yours goes very easy as well! xoxo

  • Robinmich9
    Robinmich9 Member Posts: 10
    edited November 2014

    I was diagnosed with BC the day after my 46th birthday. I believe I am still in shock, but need to snap out of it because I will be having a double mastectomy some time in December. I am reading all of your posts about the surgery and some of it I expected and some of it scares the **** out of me. How long is the recovery period? I was expecting to only be off of work for one to two weeks. But from the sounds of it, I think I am way off base.

    My best to all of you on you surgeries and recovery!!!

  • knmtwins
    knmtwins Member Posts: 598
    edited November 2014

    Funclassy and Robinmich9 - If you want you can add a 'signature' line. Go to the top right and select My Profile, then Diagnosis and Treatments. It helps all of us know where we all are, but not a requirement, up to you.

  • Michelle42
    Michelle42 Member Posts: 8
    edited November 2014

    Skin Sparing Mastectomy Dec 3, 2014 includingleft prophylactic for right IDC and DCIS. Will use tissue expanders and then implants. Finished 6 rounds of TCHP and will continue herceptin until July, 2015. Doing great so far but so nervous for surgery!

  • Funclassygal
    Funclassygal Member Posts: 105
    edited November 2014

    Good Luck to you PerAngusta - please let us know how it went! VeraAnn

  • clmtootie
    clmtootie Member Posts: 63
    edited November 2014

    Robinmich9 - I was told by my BS 4 weeks recovery after my BMX.  I was feeling pretty good at 3 weeks though, but I stayed out for the full 4 weeks.  Although, I sat back with my laptop and logged into the office and worked from home during those 4 weeks.  When I did return to the office the first few days I was exhausted by the end of the day! 

    Good luck in your surgery.  Happy Thanksgiving.

  • Robinmich9
    Robinmich9 Member Posts: 10
    edited November 2014

    Thanks clmtootie! I just found out today that my surgery will be 12/16. My surgeon told me two to three weeks for recovery. Then I will start treatment after the surgery.

  • Bippy625
    Bippy625 Member Posts: 890
    edited November 2014

    My surgery will be in 3 weeks, no set date yet, to recover fully from chemo. My BS said the pain is very minimal, and he does not do loads of restrictions. Says most are up and about in a few days, back to normal in a few weeks. I know we are all different but this is encouraging. Will stay one night in hospital.

    I am so glad to be done with chemo, it has been very hard at times. At one point I did not want to finish. I am lookin forward to being able to have some normalcy returned. No more feelin like chit!

    Happy thanksgiving all

  • knmtwins
    knmtwins Member Posts: 598
    edited November 2014

    As PerAngusta started, how many 'sleeps' we have with our breasts... I have 7 more sleeps. Starting to get scared about pain of recovery and if there is any cancer left, therefore, will I have to do more chemo... (OK not starting, but continuing) oops - just saw this, therefore must not have hit the 'submit' button. OOPS - now only 6 more sleeps.


  • Felecity1202
    Felecity1202 Member Posts: 3
    edited November 2014

    I am not sure of a date, but know that my surgery will take place in December.

  • Smitty333
    Smitty333 Member Posts: 130
    edited November 2014

    Good luck to all of you ladies getting ready for your mastectomies. It will be here and gone before you know it. I felt like the 3 months with the tissue expanders was a lifetime but it actually flew by and I am week off of my exchange. The waiting and unknown is usually always the worst!! Happy Thanksgiving :)

  • twolumps
    twolumps Member Posts: 79
    edited November 2014

    Six more sleeps and a wakeup as we used to say in the Navy.  I was just thinking at lunch how happy I would be to see the old things out of my way.  So looking forward to being flat!  Flat, flat, flat!  For the first time in nearly 50 years I will be as flat as can be and I won't have to wear a BRA!!!!.  Yay!  So glad I opted for a delayed reconstruction.  I've had big boobs all my life and they are such a hassle. It will really be nice to not have to worry about whether a top will fit or not or if the buttons are going to gape or not being able to wear a top because of my bra straps, or the hassle of shopping for bras.  I might even be able to sleep on my stomach after I heal.  The compressed nerve in my neck might bother me less when I'm not being pulled forward from the weight all the time.  Tuesday, Dec. 2nd can't get here fast enough for me!

  • stfne
    stfne Member Posts: 70
    edited November 2014

    Hi December girls. I will be having a revision on the 9th that will include the exchange of round implants to shaped implants.

    Two lumps- If you have a smart phone there are some apps for taking medication. It can be very helpful when you are on pain meds and are taking those, antibiotics and probiotics and muscle relaxers all at different time intervals.

    As far as sleeping goes, I spent a ton of money on a wedge for the bed and hated it. The recliner was best at first but then the couch with lots and lots of small pillows that can be tucked in here and there where support is needed.

    Best of luck with all of your surgeries and Happy thanksgiving!

  • Straitlover
    Straitlover Member Posts: 124
    edited November 2014

    Smitty, I haven't hsd my exchange yet. Just got my date today - 12/19. Doc said I'd probably need to be out of work a week, maybe a little more since he is also doing some fat grafting. Sx on the 3rd and traveling on the 14th may be OK if it's nothing too bouncy. Careful on the luggage! After my mx, I over did it on the lifting 2 weeks after and partially pulled a drain out.

  • revup-65
    revup-65 Member Posts: 94
    edited November 2014

    Hello ladies, I will be joining you. I was told by my surgeon  it will be in the next 2 weeks. BMX with no recon. This is the second time for me, had DCIS in 1995, found a lump Oct in same breast and here I am again. Things have changed a lot but feelings have not. I am part of the Oct surgerys and that has helped, still with them but they are beyond were I am, they have helped a lot, still will stay with them but you all are were I am now. Sandra, great gal, posted some good info on what you need supply wise. She has been through 5 breast  surgerys, just look for the animated cat on the computer. Even with all the great info I still have fear and a lot of concerns. Now I am sitting on the bench with all of you waiting and appreciating the company.

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