Starting Chemo in March 2014

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  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited September 2014

    yes, I did bowel prep.  I didn't know I had to until my pre-op appointment.  I only had to drink a 10oz bottle of magnesium something or other, not as much as my husband had to do for his colonoscopy.   

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  • Macintx
    Macintx Member Posts: 118
    edited September 2014

    Jen, I had a feeling that they would spring that on me at the pre-op visit.  Good to know so I'll be prepared.

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  • Sinsin
    Sinsin Member Posts: 358
    edited September 2014

    Jen, grats on surgery! Hope recovery is smooth for you! I'm due to get mine out in November after my family trip in the end of October. I finish rads at the end of this month so this gives me time to heal as well.

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  • Sinsin
    Sinsin Member Posts: 358
    edited September 2014

    Just checking in and seeing how everyone is doing! I am almost done with rads with less than 2 weeks left. My skin tried to hang in there but it's peeling with the raw layer beneath it peeling and my blisters have started to bleed! Yea! But my RO and his staff are pretty awesome and I have been given lots of things to help me get through this last bit. The best item he gave me was a nonadhesive pad from Sweden called Mepiplex or the manufacturer is named that. It is great and really helps with the pain as it covers the raw nerve endings! If anyone has issues with pain, I highly recommend asking your RO for it! 

    Hope everyone is faring well in their journeys!

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  • Generation3
    Generation3 Member Posts: 45
    edited September 2014

    Sinsin,

    So glad to hear that you are almost done with rads. I have an appointment with my RO on Thursday for plan and simulation. Probably starting rads next week??? I was delayed due to a second lumpectomy for clear margins. My BS wanted me to get chemo asap after, unexpectedly(my MRI showed normal sized nodes) finding a 1cm tumor in my sentinal node. So I had lumpectomy, then chemo, then lumpectomy for clear margins, now rads. Thanks for the tip for the swedish pad! Hope your skin feels better real soon. Wendy

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited September 2014

    Final reconstruction surgery tomorrow. Left tissue expander being replaced by implant and right side being lifted and reduced. Port also coming out.

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  • jbdayton
    jbdayton Member Posts: 700
    edited September 2014

    xrayalli hope everything goes smoothly with your exchange and lift.  

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  • Generation3
    Generation3 Member Posts: 45
    edited September 2014

    Good luck tomorrow Alli, hope everything goes well for you!

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  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited September 2014

    Good Luck, Alli!

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  • cmp106
    cmp106 Member Posts: 48
    edited September 2014

    good luck, Alli!

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  • Sinsin
    Sinsin Member Posts: 358
    edited October 2014

    Hope everything went well for you Alli!!

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited October 2014

    Sorry it's been so long since I checked in here. My surgery went great, although I was sick post surgery from the anesthesia. For the first 2 weeks after I felt great! Then I spiked a fever and got an infection at the drain site. Started antibiotics, had the drain for 23 days. I now have lymphedema, it might have been slightly there pre surgery but has gotten worse since having the surgery. I go to a lymphatic PT session tomorrow, I hope it is reversible. The other issue is it feels like there is fluid under or around my implant. If my body doesn't reabsorb it I don't know what will happen.

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited October 2014

    I hope it works out for you Alli! Sorry you are goimg through such a hard time. 

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  • Sinsin
    Sinsin Member Posts: 358
    edited October 2014

    Ali, they can probably drain the fluid if your body doesn't absorb it. Sorry about all your troubles but I hope the PT helps with the lymphadema!! 

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  • agatha6
    agatha6 Member Posts: 22
    edited November 2014

    new to this thread! I started chemo in March 2014 too! Finished radiation end of Oct. I hope everyone is doing well!

    Agatha

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited November 2014

    Welcome, Agatha! Congrats on finishing, you are strong! A bunch of us are still doing radiation, some of us are dealing with lymphedema....but we are all fighters to the end!

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited November 2014

    It's my Cancerversary today!! One year ago today I was told I had breast cancer. I am forever a changed woman. I was remembering how I felt when I heard those words, it actually made my stomach turn. But I'm gonna be okay! 

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited November 2014

    congrats on your Cancerversary. Mines not till Jan. Glad your doing good.

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  • Sinsin
    Sinsin Member Posts: 358
    edited November 2014

    Congrats Alli! May you have many more Cancer free years and Cancerversaries! Mine isn't until January like Lorbgoo


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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited November 2014

    sinsin I can't believe it's almost a year. Are you done with everything

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  • Sinsin
    Sinsin Member Posts: 358
    edited November 2014

    Lorbgoo, done with all treatment except the Aromatose Inhibitor of course. I am on Arimidex for the next 5 years at least. I go in December 9th to have my ovaries and tubes removed but that is a more voluntary or elective surgery. And then eventually, my reconstruction. But that's it. What a relief! How are you doing? How was your reconstruction?

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited November 2014

    sinsin. I'm doing good. I'm done with everything except tattoos. My reconstruction went well. I am anxious to get him to look at it cause it looks like I have fat on my upper fob near my underarms. Anyone else have this

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  • Sinsin
    Sinsin Member Posts: 358
    edited November 2014

    I am debating about getting a tattoo done on my mastectomy scar. There is a renowned tattoo artists here in Seattle that if I did it, I would go to her.

    http://www.madamelazongastattoo.com/

    As to the possible fat, sorry I cannot help there.

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  • JoTro
    JoTro Member Posts: 57
    edited April 2015

    Just popping into to let everyone know we lost a dear friend today, SusieM from San Francisco.

    Susan was an extremly clever and wonderful lady. She had great insights about treatments and her experience with cancer. It has been a wonderful thing meeting her here and without this thread or website we would have never have met.

    I hope everyone from this thread is doing ok and still fighting this battle.

    I'd like to think Susan might be able to tell the boss that there needs to be a cure. We cannot suffer this anymore.

    RIP Sweet Susie.

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  • Sinsin
    Sinsin Member Posts: 358
    edited April 2015


    RIP Sweet Susie. Missing your warmth, humor, and smile already. 💔 Sister Sabes forever.

    image

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited April 2015

    RIP sweet Susan!

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  • AKJ
    AKJ Member Posts: 190
    edited April 2015

    Fly with the angels, Susie

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited April 2015

    Sigh, insomnia big time, thinking about our sweet Susan. But I cannot stop thinking that she will be guiding all of us, tapping us on the shoulder when we need a clue, to learn from her experience. Big love, big hug, Susan Modlin. image

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  • WifeWBC
    WifeWBC Member Posts: 53
    edited December 2015

    My update

    My 2 year anniversary from diagnosis is a few days away. Wow! It's today according to my treatment schedule below. 2 years out I guess. :)

    My TE reconstruction failed because I had rads and the incision site became compromised. I just had my Lat Dorsi op on Nov 27 with TE. My breast already looks and feels more natural. Could have saved time had I opted for Lat Dorsi earlier in 2015. Will get current TE replaced in May, 2016, and my other breast reduced to match some time after. Hope everyone is well...

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  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited December 2015

    thanks for the update. I'm glad your doing well.

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