Architectural Distortion

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CerebralChic
CerebralChic Member Posts: 3
edited October 2018 in Not Diagnosed But Worried

Hello,

I recently had my yearly mammogram and have been called back for additional views and an ultrasound. The report says there is an architectural distortion in the left breast. Much of my research indicates that over 75% of the time this is caused by breast cancer. Radial scarring being another cause but I have had no surgeries on my breasts. Needless to say I am very worried. My husband is currently awaiting surgery for his second recurence of thyroid cancer so I am also hyper sensitive.

Can anyone give me advice on good questions to ask the radiologist during my ultrasound? I have learned from my husband's battle that understanding the terminally and using what I call "doctor speak" seems to get you more detailed information. I know that radiologists sometimes are not very forthcoming about what they see so I'm trying to learn what to ask so I can leave the appointment with detailed information. Is it important to ask about the edges of the area; are they defined? What else is important to ask?

Any help or advice would be welcomed

Comments

  • ExpatriateGirl
    ExpatriateGirl Member Posts: 23
    edited November 2014

    Hi CerebralChic,

    I am going through a similar experience as you at the moment. I too have a (very vague) architectural distortion, but in my right breast. I'm not sure about the 75% though...ad can also indicate a whole range of benign breast conditions. My first question to the radiologists was if that had to do/was connected with the dense breast tissue I have. Since the distortion I have doesn't show up/correlates on the ultrasounds and MRI I've had to follow up, my next question would be what the flow of 'problem solving'/treatment is. In my case, they'll do a 'stereotactic biopsy' and then what ever the results are a surgical procedure. So, if I was you I'd ask the following questions:

    *Do I have dense breasts?

    *Exactly what does ad mean? Does it indicate speculation? Can you show me on the mammogram what my ad looks like? (in comparison to where there isn't an ad?)

    *What cancers/benign conditions can a 'architectural distortion' indicate? If taking birth control pills, I'd ask if that is related to 'distortion'

    *Is mammography ad always seen/correlates on follow up US/MRI? Is US better at 'picking up' mass or ad/lesions?

    *What is the baseline work up for ad?

    *If my ad shows malignancy, what kind of treatment can I expect?


    These are just some questions. It's important to be a true inquirer when it comes to these things. Another idea is to talk to your breast surgeon/specialist about this and stay strong and calm. Everyone on this forum is VERY supportive! Kindly, Di



  • Manu14
    Manu14 Member Posts: 153
    edited November 2014

    Did the mammogram actually pick up a "mass" with an architectural distortion? If so, then you might want to ask if the shape is "spiculated" or "indistinct" as opposed to oval, round, etc. I would expect that an ultrasound tech would do the procedure and may or may not call the radiologist into the room at the time depending on what's seen on the ultrasound and the availability of the radiologist. A radiologist will then assign a Bi-rad number to the ultrasound findings indicating the level of suspicion for a malignancy.

    And I agree . . . the more you appear to have a grasp and familiarity of some of the terminology; the more information and conversation there may be from medical staff. I am sorry you are going through all this. The testing and waiting for results is always unnerving. Hopefully, they are just being extra cautious and you will get a good report.

  • CerebralChic
    CerebralChic Member Posts: 3
    edited November 2014

    Thanks for the replies.

    ExpatriateGirl: Those are great questions and I will be asking them.

    Manu14: Spiculated is a word I've seen pop up in research and will ask.

    Here is my report (I'm assuming "suspect" means suspected malignancy?):

    Any thoughts on dissecting this report are welcome. :)

    FINDINGS: Comparison is made with the prior study of 09/30/2013.

    The breasts are composed of scattered fibroglandular densities. No discrete mass or clustered microcalcification is identified. A suspect architectural distortion is seen in the left central breast on CC view only. Recommend additional spot compression view, rolled view and ultrasound for further evaluation.

    IMPRESSION:

    SUSPECT ARCHITECTURAL DISTORTION IN THE LEFT CENTRAL BREAST. RECOMMEND ADDITIONAL SPOT COMPRESSION VIEW, ROLLED VIEW AND ULTRASOUND FOR FURTHER EVALUATION.

    BIRADS ASSESSMENT: CATEGORY 0 - Incomplete. Need additional imaging evaluation and/or prior mammograms for comparison.

  • ExpatriateGirl
    ExpatriateGirl Member Posts: 23
    edited November 2014

    You report is almost identical to my first one, although they used the word 'questionable' instead of suspect. Suspect means that they have to keep going to find out exactly what they are looking at. Suspect indicates that the area looks a little different from the other part of the tissue. I think it's good that they are being thorough and asking you to do the additional imaging. When I did the 2nd spot compression, my area was still vague not fully dissipating. As yours it was in the cc view. So I did the 2nd ultrasound and nothing correlated. The radiologist then recommended a breast MRI which also came back clean. But because there has been a vague ad in my breast for the past 6 months, the next step is core biopsy guided by mammogram. I hope your next screening gives you positive feedback. Keep us posted.

  • ye74204541
    ye74204541 Member Posts: 28
    edited November 2014


    I had a similar case as yours back in August. Architectural distortion with associated microcalcifications and no mass. Had a called back and a needle biopsy and it turned out to be a radial scar. I also had no history of any previous surgery so no reason for the radial scar but it could happens. Hope yours turns out nothing.

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2014

    You are so right that having the right questions going into a meeting is much better than coming out with questions coming out or afterwards. The answers above are very relevant and we're glad you have had a great quality response from our members (as usual).

    Knowledge is power and we hope it follows the "umbrella principle - if you have it, you won't need it" and your results are benign. Having the knowledge is so important, as is someone with you, if possible, for both moral support and as another pair of ears to hear what is said and discuss afterwards. Also, hopefully, someone to celebrate a reiving benign result.

    We wish you the best

    The Mods

  • MandyP
    MandyP Member Posts: 20
    edited November 2014

    I had this happen and it was a radial scar. Radial scars have nothing to do with a previous surgery or scarring.

  • afreshjoy
    afreshjoy Member Posts: 4
    edited October 2018

    Hi, I have had an architectural distortion / radial scar /complex sclerosing lesion for 4 years now that they've been testing and watching. I have had 2 biopsies where they aspirated the cells and showed no evidence of malignancy. They put those little clips in there after each biopsy to mark where the biopsies happened.

    I had my diagnostic 3D mammogram yesterday and just like every year, they took more mammogram images. Then the tech did an ultrasound for a long time and then the doctor came and did one for like 15 minutes. I will be having my 3rd biopsy on Monday. 😕

    The doctor said he's never seen this situation before in his 20 years. I was watching his face and when he got to the suspicious area he took a deep breath. He said "man, I just don't know what to do. I mean you've been at this for 4 years now. It's not changed on the mammogram which means it doesn't appear to be growing and that's a good thing. But I can't explain it and I just can't say if it's cancer or not. I have to biopsy it again. The marker is not where it should be but they can also move so I can't say for sure that they've gotten cells from the actual area or not. I could surgically remove it, but that would take a month or longer to get scheduled and it's more invasive. I could do an MRI but that can give us false positives all over the breasts that we'd be chasing bc an MRI picks up everything and you have a very dense breast. We really a need pathology. I think we should do another biopsy and go from there. I don't think it's cancer, my gut really says its not but I can't say for sure without more data"

    When I asked if this biopsy was going to be definitive (bc the other 2 produced a Birad 3 instead of 2), he said "I hope so"

    So now. I'm back at a Birad 4. They said 7 cm, but I'm not sure if that means the area is 7cm or if the area is located 7cm from the nipple. I remember last year the size was 3.2cm and they used the word spiculated. I have heterogeneously dense breasts (4).

    What questions should I ask? Should I get a second opinion? His face showed concern. I wish I had asked him what specifically he hadn't seen in his 20 years and if it was still the same size on us and if it was still apiculated. Does he mean the radial scar, I know it's rare but certainly he's seen a radial scar in his lifetime?

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