Diagnosed 3 days ago. Here is my pathology report...

Options
rosiesgirl
rosiesgirl Member Posts: 89
edited November 2014 in Just Diagnosed

Diagnosis: 3.2cm mass, Grade 3 tumor (score 9 out of 9). Invasive Ductal Carcinoma. No evidence of in situ carcinoma. No evidence of angiolymphatic invasion.

Prognostic Panel Results: ER Positive (95%), PR Positive (94%) Ki67 Marker HIGH (82%) Her2 Positive.

My husband is freaking out over the Ki67 and Her2. I know that both indicate aggressive cancer, but I have read that Her2 responds to treatment. I am not familiar with Ki67, and am reading mixed things about it. I sounds like it is pretty aggressive.


Any thoughts? I am having an MRI on Monday and appt with surgeon on Wednesday.


· Share on FacebookShare on Twitter

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2014

    Sorry to hear you have been diagnosed - I know it is a scary time.  It is common for Her2+ to be both grade 3 and have a high Ki67.  No LVI is a good thing.  Come on over to the Triple Positive thread, lots of us who have been through treatment, or are having it now:

    https://community.breastcancer.org/forum/80/topic/764183?page=873#idx_26174

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited November 2014

    Hi Rosie-

    This information about Ki-67 is from our main site: http://www.breastcancer.org/symptoms/diagnosis/rat...

    "Although the (...) Ki-67 level may provide you and your doctor with useful information, experts don't yet agree on how to use the results when making treatment decisions. Therefore, not all doctors order these tests routinely, so they may not appear in your pathology report. The other results in your report will be much more important in making informed choices."

    Have you had a chance to visit our HER2 boards? There's some great info there, and lots of members who may be able to add some insight: https://community.breastcancer.org/forum/80.

    The Mods

    · Share on FacebookShare on Twitter
  • LittleFlower
    LittleFlower Member Posts: 405
    edited November 2014

    rosiesgirl, so sorry about your recent diagnosis. I remember feeling mixed emotions about being her pos. but ultimately, since the invention of targeted treatments like herceptin, I see it as a positive thing that it increases treatment options. I don't remember anything about Ki 67 results. Glad to see things are moving along quickly for you. Once you have a plan you'll be closer to getting this behind you, and move on with life...seems hard to fathom right now but you will. Come back often for support.

    Hugs, littleflower


    · Share on FacebookShare on Twitter
  • RebzAmy
    RebzAmy Member Posts: 322
    edited November 2014

    Hi Rosiesgirl

    I was HER2+ 7 years ago and had Herceptin - I also had lymph node involvement.

    Seven years on and doing fine

    As one of the ladies above mentioned that there is a triple positive group with people going through what you're going through who I'm sure will provide some much needed support and be very informative.

    Big hugs

    RebzAmy

    · Share on FacebookShare on Twitter
  • running-the-race
    running-the-race Member Posts: 1
    edited November 2014

    I just got diagnosed a week ago. Are u bring treated in Visalia area? I am curious why u are getting an MRI? If u are in this area, do u feel comfortable sharing dr u are seeing? I am struggling with whether to stay in area or go outside area... Your thoughts?

    Thank u so much for sharing.


    · Share on FacebookShare on Twitter
  • rosiesgirl
    rosiesgirl Member Posts: 89
    edited November 2014

    Thanks for all of the responses. I have been reading all of the recommended links and the Triple Positive thread. I am not in Visalia area, sorry. I never dreamed that there was so many different factors that could affect my treatment. It can be so confusing, but the information here has helped so much. Since investigating my pathology information I have decided that I want to go to a comprehensive cancer center for treatment. I am going to call my primary care doctor and ask her to refer me to the University of Michigan Cancer Center. She told me that if I have a preference on where to go she would refer me. I feel more comfortable based on what I have been reading to go there for treatment. I hope I don't face too much of a delay. In any case, that is what I am comfortable with.

    Thanks again to all!

    · Share on FacebookShare on Twitter
  • Obxflygirl1
    Obxflygirl1 Member Posts: 377
    edited November 2014

    I think you'll be happy about going to a cancer institute. I went to a NCI designated center as that's what my PCP recommended and I was very pleased with the standard of care. Not that others are any less excellent, but I wanted to send you positive reinforcement on choosing the path you are on. I remember how much it meant to me to have someone say yes, that's what they did and they were comfortable and happy with the doctors. You will find a wealth of information along with constant support during your journey on these boards. Good luck and keep us posted.


    · Share on FacebookShare on Twitter
  • ExpatriateGirl
    ExpatriateGirl Member Posts: 23
    edited November 2014

    Hi Rosiesgirl,

    I'm so sorry to hear about your dx. All my best wishes and strength to you and your family. Your bravery to share your journey on here is commendable and I want you to know we're all rooting for you. Greetings from CT.

    · Share on FacebookShare on Twitter

Categories