Calling all TNs

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited November 2014

    Jeni, - Try to take a deep breath and not jump to conclusions! You may simply have an irritation from something! (a tiny stone, or even intercourse, can cause a urinary irritation.)

    MomMom, - My first bs wanted me to have an mri every year, alternating with mammo every 6 months. Unfortunately, my insurance company denied my mri requests after 2 years. Several years later, my onc FINALLY got approval for one, and it was then that my 2nd BC was discovered. I had been going for yearly mammo/sono, but did not have 3D mammo. Perhaps that would have picked it up sooner.



  • eileenpg
    eileenpg Member Posts: 467
    edited November 2014

    My genetic counsler told me Braca + are linked to pancreatic,ovarian,mylenoma,and breast. Nothing was mentioned about the bladder. There now is a new genetic test for breast to pancreatic. It is supposed to be approved shortly.

    Mommom=Yes,Hopkins. I live 10 minutes away. Went for my pet scan today. Tech took me in the back to show me my results 100% clear. I can breath again.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2014

    Eileen, congrats on the clear PET!!!!

  • MomMom
    MomMom Member Posts: 523
    edited November 2014

    Eileen, Yes! Huge congrats for a clean PET Scan!!! Doing the happy dance for you.

    That makes me feel better that you are going to Hopkins and they aren't insisting on an MRI. I do think they are more definitive, but I think the docs really have to advocate for one to be approved by insurance, ie, supporting letter.

  • MomMom
    MomMom Member Posts: 523
    edited November 2014

    Nettie, I'm 67 and still, and always will, have very dense breast tissue. However, until the bc diagnosis, I never got the go ahead for an ultrasound pre-emptivelly. I would just get one from time to time if they found something on the mammo and needed to see if the mass was fluid filled or not. This first time post treatment mammo, my BS added the ultrasound. Now my radiology center is proudly touting the ABUS Ultrasound for dense breast tissue - it's supposed to pick areas out better for dense tissue. I read the brochure prior to my ultrasound on Friday and asked the tech about it. She referred to it as ultrasound "light" and said the one she was doing was much more thorough. Who knows!

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    congrats on clear PET!

    Jen, I take cranberry tablets also. Am on lasix for heart, but ever since I started tx I feel like I don't urinate as much as I should at all. I have a really good gut feeling on this. Will keep yiu in my prayers

    I got approved today for free cleaning, once a month for 4 months! Check out cleaningforareason .....can't wait!

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2014

    Toby, yay for you for free cleaning! That's awesome!!

  • simplelife4real
    simplelife4real Member Posts: 563
    edited November 2014

    Toby, that is cool about the cleaning. I am okay right now and don't need it, but I want to check out the site for a friend of mine that just started chemo. Thanks for the info!

  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2014

    I saw my Onc yesterday. She has released me! I am done. Said to come back to see her anytime I felt the need or if a new concern should pop up. Reminded me to get a colonoscopy every 5 years, keep going to the gym, work at keeping stress levels at a minimum and continue with my PCP for stuff like high blood pressure, high cholesterol, diabetes and heart disease. Yep, I got all 4 of those biggies.

    We talked about recurrence for a few minutes and she told me that she has only had 2 TN recur after the 5 year mark.

    I know I will never totally be "done" with cancer. But I really want to put it on the back burner. Just be happy and grateful for getting this far out and appreciate all the good things in my life.

  • breastcancerhusband
    breastcancerhusband Member Posts: 85
    edited November 2014

    NavyMom - may I say that is wonderful news! Well done for getting through this,  all the best to you and your family for the future! 

  • MomMom
    MomMom Member Posts: 523
    edited November 2014

    Navymom, Wonderful news! That's the message we all want to get!

  • slv58
    slv58 Member Posts: 1,216
    edited November 2014

    NavyMom, Congratluations! This is such great news for all of us to hear, thank you! Hope you go celebrate ;-)

  • jenjenl
    jenjenl Member Posts: 948
    edited November 2014

    So happy for you navymom. xo

  • simplelife4real
    simplelife4real Member Posts: 563
    edited November 2014

    Hooray NavyMom!! You are where I want to be four years from now!

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2014

    Congrats Navymom!!!!

  • JAN69
    JAN69 Member Posts: 947
    edited November 2014

    NavyMom Happy dancing....

  • adagio
    adagio Member Posts: 982
    edited November 2014

    navymom - fabulous news - exactly what we are all hoping to hear one day. Thanks for sharing with us. Celebrate, celebrate, celebrate!!!!

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited November 2014

    NavyMom, Fantastic news! Congratulations! Doing the happy dance for you!

  • VerukaNY
    VerukaNY Member Posts: 57
    edited November 2014

    congratulations navy mom!! I think we all want to be where you are right now. Cannot wait!!!!

  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited November 2014

    So happy for you Navymom! 5 years is indeed supposed to be the tn goal...it's all the other ladies on high alert for 10 years I suppose....

    Regardless, you're alert level has gone from red to yellow to green. I can't wait for mote of us to join you!


  • Lisaj514
    Lisaj514 Member Posts: 719
    edited November 2014

    navymom, congratulations and I second everyone above!so nice to hear!!!!!!!

  • KSteve
    KSteve Member Posts: 486
    edited November 2014

    Navymom - Congrats to you!  That is great news and makes me smile.  Talk about a good Thanksgiving :)   One more year for me to get to the 5-year mark.  However, I can honestly say, it's not on my mind nearly like it used to be.  Time heals!

    Kathy

  • eileenpg
    eileenpg Member Posts: 467
    edited November 2014

    NavyMom+ YEAH YOU!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I hope the same is true for all of us. Cannot wait to join you in 5 years.

  • Tobycc
    Tobycc Member Posts: 789
    edited November 2014

    WOOOOT wooooot !!!!! ,


  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2014

    Navy congratulations.  You deserve every second of this wonderful news. Time for celebrations girl and I hope you get to do it with your wonderful son as well.  Go celebrate and as they say 'break a leg' but not literally.  

  • melissa119
    melissa119 Member Posts: 172
    edited November 2014

    So happy for you NavyMom!! Such great news!! Go celebrate!!! I am looking forward to that day!!

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2014

    Navy Mom first of all congratulations. Secondly, you have been a consistent force in this thread and it is wonderful to read your good news. I have been away from this thread for a bit but reached my 3 year mark and my 60th birthday this month.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited November 2014

    Congrats on your three year mark paintingmywaythru!! And Happy Birthday!! Three years is huge!!

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2014

    Julz4 I completely agree on a second opinion for pathology. When I read the pathology by MGH, it indicated I had one margin that was less than .1mm ~ unacceptable essentially ~ but the surgeon who did the surgery ....and I had a mess- 3 surgeries for a stage 1 lumpectomy, said there was no way to do it any better~ REALLY! REALLY! I have trouble with that but now it is what it is.

    Saskia, I am sorry for your Rx but also love reading your posts as you have an incredible attitude. One thought for possible inquiry is a place that does take people from all over the world....Cancer Centers of America...sometimes they will fly people out and cover the cost of their treatments and flights and hotel. I know it doesn't change the stage but they have been know to have remarkable success.

    Love to all on this board. When I was diagnosed this was my lifeline and I can't thank you all enough for the support and love you provide to anyone with this diagnosis.

  • JAN69
    JAN69 Member Posts: 947
    edited November 2014

    Susan Good to see you again. I remember your beautiful chicken paintings; are you painting and showing? Jan

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