Pseudoangiomatous stromal hyperplasia - PASH

I'm glad you are happy with your decision. I too was diagnosed with PASH last May. This is after multiple excisional biopsies which include papillomatosis, radial scars, sclerosing adenosis, etc... All benign but enough to scare my surgeon and radiologists. I'm 48 and mammos do NOTHING for me. They are as white as a snow storm.

My surgery in May was also a fast growing lump. I had an MRI six months prior and a month after that, I felt the lump. I didn't freak out because honestly I've been thru so much I tend to just ignore it. Saw my surgeon in March after my mammo/ultrasound and he wanted to wait another two months to make a decision. It continued to grow so in May we decided to take it out. Guess what? Dang thing is back. It's at the 9:00 position on my right breast and almost into my armpit (I'm only a 34B on a good day). It's tender and painful especially when I work out. He saw me in September and it was starting to come back at that time. He told me to keep an eye on it. Well, it's only grown since then. I'm an RN and work on the surgical floor with him so I probably should mention it next time I work.

Honestly as scarred and battered up as my breasts are, I'm leaning towards a mastectomy too. He told me insurance would cover it for sure with all my issues. Then he says, "But you can't go back once you make that decision" and it scares me.

Did you do a nipple sparing mastectomy?? Thanks for your post, btw.

Hi Kdinkle,

Just letting you know there is also 2 other threads where members are/were discussing PASH, although this one has been somewhat inactive, Mandy has revived it again.

Click Here

And here

Best wishes to you both!

The moderators

Hi. Just joined and am trying to wrap my head around everything as I have so much going on. I have a very huge family history of breast cancer (oldest sister diagnosed in late 30's-had lumpectomy,chemo & radiation & cancer free since, 2nd sister diagnosed in early 40's-had lumpectomy, chemo & radiation. Was cancer free for 15 years until just being rediagnosed a few weeks ago in Oct same side same place & just underwent double mastectomy last week. My mom diagnosed end of last year at age 88!! Even though she religiously went for mammo's every year, things were missed or overlooked and by the time someone actually caught it, she was stage 4. Had a mastectomy & radiation and that's all we can do. Dad died of Bladder cancer) For me, even with all this history, I have been quick negligent in being monitored as I have had my plate full navigating 23 surgeries over the past 19 years for my just 23 yr old daughter for 2 congenital orthopedic birth defects. Can only handle so much at once. After my mom's diagnosis, huge wake up call and I went for check up. Was decided to put me in a high risk program to be monitored closely. Went for mammo & ultrasound in March. Mammo came back fine, ultrasound had some abnormalities but radiologist said he would not make me a pin cushion yet & would wait for me to come back in 6 months as prgm protocol was for MRI. Went for MRI two weeks ago & it came back with 5 sites of concern, 3 on left, 2 on right. They needed me to go back for 2nd look ultrasound but biopsies could not be done using it so I had to go for MRI Guided biopsies on all 5 sites (I think I set the hospital record for the most amt of biopsies in a single MRI!!!)Results came back with all benign but 2 of 3 on left being PASH) Since not much known and the active family history, my breast surgeon wants to do surgery to get a better tissue sample of both of these areas to make sure there is no cancer being masked. That is scheduled for Dec 15th as I have a large hematoma from the MRI biopsy that is in the way of her getting to the one site. We will then discuss what the options are although Ithink she is leaning already to at least removing the PASH. I also had a small soft lump in my neck and a mole on my abdomen removed to be checked as well yesterday. So much going on in so many directions my head is spinning. Has anyone had any experience using your own tissue to reconstruct your breast versus having implants? My sister just had this done & I had never heard of that as an option. Trying to educate myself as best I can. Have always felt like I am a walking time bomb and all this is fueling that fire big time. The thought of doing a mastectomy terrifies me but leaving it in there and hindering the ability to monitor for cancer terrifies me even more. Then the case for just opting for a double at that point goes in play. I'm 55 and doing that once would be plenty enough for me.