How Do I get my life back?
Comments
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hi,
All very true and real feelings. Why do we all change so much during the experience, Is it a new sense of life and how precious it is?
I've spent 8 years building a business and now it all feels futile, I do long for some of my old self back. I'm sure she's in there somewhere waiting to get out! I liked the old me, the new me is difficult to understand, has a short temper, feel frustrated but on the flip side I appreciate the small things more and dont Rush them ie getting infrom work and bathing my little boys and loving life more rather than rushing it.
A balance of the old and new me would be good 😃
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Parts of the old and new me would be good 😄
Both have qualities I like in myself, to much of the new me makes old friends feel lost around me.
So a balance would be good, the old me is just abit happier than the new me, hopefully both will live in harmony one day!
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You know runner... tend to split it into old me/New me as well. I like the way you said you'd like the two of them to live in harmony. That would be nice!
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It has been a long year for me but I finally feel I can stop focusing on my breasts. I have done all I need to do and will continue to take AI's for the next four years. I appreciate each day more and no longer believe I will live forever. I make better choices about what is important in my life.
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on Monday I have an interview for the new job. It is a 2nd interview, and they are flying me to Indianapolis for it. I am excited but nervous.
I moved my scheduled PET Scan to Wednesday November 26th (instead of on December 17). That way if they offer me the job I will at least have some assurance that I am still cancer free.
I really want this job. It will pay more & be less stressful. The work is right up my alley too.
I hope I have a couple more things to be Thankful for on Thanksgiving.
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Dear Smurf..... I am so thrilled you are going for a second interview! I would also like to say that you never know what opportunities life will bring. You will come to this job with a new perspective, and I would look at this as an opportunity to rebuild my life into something new and wonderful.
No, we don't ever get our old life back, but I don't think this is a negative. The people I know who are truly miserable are those who were unwilling/unable to change and they wonder what happened to their world. I am not talking about cancer patients here, but people I have known. Most become bitter, and life is no fun for them. They are not much fun to be around either.
It did take work, but I would say that my life is better than ever five years out from diagnosis. I have reshaped my career, and rebuilt my image which was due for an upgrade anyway. Nothing like not having any hair to get you to rethink things. I have new friends, and very rewarding work. I am able to give back through work with a brain tumor patient support organization. I just attended a major conference. A thrilling and exciting time indeed.
I also have a new love....a very interesting and younger man. So life is great in that respect as well. I am fit and healthy.
My counsel to you would be to imagine yourself in this position and the new possibilities it will bring to your life. You will interview well, and then it becomes a question of execution. A few props (makeover, some new clothes) will make a difference as well. I did the new clothes for the conference, and can't believe the difference they made. I felt truly on my game and that I was a convincing representative for my company. (I got an unbelievable sale on some serious designer duds.) A note back from one of the attendees made it clear that I hit the mark exactly.
I am expecting that your next post will be that you got the job offer, and what perks do you ask for. Good luck, and I want you to know that I am thrilled for you. Now, go knock 'em dead! - Claire
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Smurf,
Congrats on the job interview. What an exciting prospect to look forward to! I think a bit of nervous energy can work in your favor. Good luck and enjoy.
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Smurf,
AWESOME to hear you got the interview! Confidence is very attractive so use that going in, but overconfidence tends to grate on people so don't be afraid of some of those inevitable nerves showing their. Be professional, but relaxed...in general be you because you sound like the kind of person people like!
You wouldn't be going all the way out there if the employer didn't already know you are qualified! Try to research and know what you would be doing and go into the interview speaking of your plans for the job as if you've already started it!
You'll be awesome!
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I feel kind of stuck between the old me and the me I'm supposed to have become. I haven't seen huge changes, like so many people say they've experienced. I do feel different, though. I feel like I need to figure out who I am now, I guess. It's all still so surreal. Thanks for listening
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Each of you present such motivating viewpoints! Thank you for sharing from your hearts. You will never know how many people your words have touched
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My advice would be to take things one day at a time. Try to live the fullness of one day. Then do it again tomorrow. Don't put unrealistic expectations on yourself. It is okay to take some time to reevaluate your life. Take it one step at a time. You don't have to immediately have all the answers right now. It is okay to live with some uncertainty.
Do more of what you love. Do less of what you feel obligated to do. It's okay to stop doing some things that you used to love but your heart is on longer in it. For several years after the bc dx, I stopped buying things for the house, no longer did the flower gardening and started traveling more and going to see more entertainment like concerts and shows. Then it came back around that I became interested in gardening again and fussing over the house. I just needed a break from it.
It's not that your life didn't have meaning before, it is just that you are digging for deeper meaning and that's okay.
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"Do more of what you love. Do less of what you feel obligated to do."
Best advice of all, thanks MrsM.
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Thank you for the positive thoughts & excellent advice. Yesterday was a little trying...flight delay caused me to miss my next flight, then the rebook was delayed. I got to my interview 2 hours late! In the past I would have been so stressed out. I decided there was nothing I could do about it, and rolled with the punches. The interview went well, but of course went to late for my flight back...so they took me to dinner & put me up for the night. I guess that gave me extra time to get to know them.
I got to the airport this morning, and a TSA agent complimented my hairstyle...curly 2" growth. Ha. Now I am delayed for my next flight, but ok with whatever. Ready to be home & get some rest. I should hear something in a couple weeks.
Tomorrow morning is my PET Scan. My fingers are crossed.
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Smurf....All things happen for a reason. That extra time is just what you needed.
I also find I no longer freak out about things like flight delays, traffic etc. It used to feel like the end of the world!
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Actually Smurf you get extra time with your new team. I can't wait to hear how well you did! Frustrating day with needing to get a Thanksgiving mailing out and website blocked due to malware which our web guy can't find. I have everything ready to hit "send" now, but just need permission.
(I have not been cured of hitting the panic button over stuff like this, and I do have to say that waiting in 30 degree temps for an hour due to a taxi snafu after starting the day in Miami last week sort of got me going as well. Talk about "bracing"!)
Back to you Smurf. Just in time for Thanksgiving, and I for one am extremely thankful. Good luck with it all. - Claire
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I have had a few dark days; wondering, crying, ok...some pouting, making frantic phone calls, and finally crawling back out.
I got my PET Scan results back on Monday. There are some nodules and some patchy infiltrate (and some other words) in my upper right lung. The PET results say that it cannot be ruled out as metastases, but may also be radiation pneumonitis. I got my results from the nurse navigator, who consulted with a radiation oncologist, but not my radiation oncologist (mine was not in that day). I didn't know if he looked at my records, or just went with a general "that is what this usually is." The nurse told me not to freak out, and I tried...I honestly tried.
So, after looking things up on the internet (somewhat helpful), I was able to email my RO, and she got back to me on Tuesday. She indicated that the field of radiation matches up with the area of concern, and she is almost certain it is radiation pneumonitis, and not metastases. Of course she cannot give guarantees, but...I can live with their best certainty if I know they looked at my previous scans, my treatment plan, and my current scan. I cannot live with a best guess based on statistics. I get a new CT scan in 2 months, and am hoping for the best. I am going to put my positive energy out there and try not to be paralyzed with fear.
I haven't heard anything back on the job yet, but my husband and I have talked, and decided that I will still go forward with the job if offered. It is less stress and more money...the rest will have to work itself out. On a positive note, I had my cardiology appointment today, and my heart function has rebounded a little in the last three months
. That was good news.
I hope you all had wonderful Thanksgivings and were able to enjoy time with family and friends. The holidays are already upon us...we have our two Christmas Trees up and decorated. They look beautiful, I just love the lights. Now we are just playing defense for the next few weeks with our cat Hadley, to keep them up & decorated. Stinker. She has already spent some time in the "naughty room" for her inability to look with just her eyes.
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smartasssmurf - your last lines about the cat and the Christmas tree made me laugh out loud - just wanted you to know that! We occasionally struggle with our dog using his "inside voice" - especially if anyone has a birthday cake with candles and is singing Happy Birthday - he feels a strong and immovable need to alert us to the imminent fire disaster. Certainly hoping that what your scan is showing is pneumonitis, but it sounds like your RO is on it and feeling optimistic. Hold that thought.
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see...now I am the one actually laughing out loud about BOTH of your pets! Th for that! Positive energy goes a LONG way and you both just fueled mine#
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I Recently found out an acquaintance who is also 42 has breast cancer. She is almost exactly a year behind me in this terrible disease. I want to be supportive. I have offered support & sincerely mean it. I do not want anyone's struggle to be difficult & certainly do not want her to h
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I think all feelings are valid. I too wondered "what now" after my diagnosis, biopsy, and double mastectomy. Felt like I should have been grateful that I did. not have to have chemotherapy, and there was medication available to lower my risk of recurrence. But I was very angry.. Angry that I had cancer, angry that a lot of people thought I was done after the mastectomy. Also found myself crying all the time. Finally spoke with my Oncologist who put me on Effexor for the mood swings. Been on the medication for a week and it has really helped stabilize my mood.
It is ok to use medication for at least a little while. I would encourage anyone suffering mood swings after their cancer to at least consider Effexor.
My best to all in their journey through cancer.
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i'm kind of amazed to hear other people expressing that they don't want the same stressful job anymore. That's me! Not that I have a choice.
I started treatment at the beginning of 2014 and have just finished. It was really important to me not to have any doctors appointments in January. My doctor even canceled one Herceptin treatment so that I could have the psychological boost from knowing that it ends with 2014.
Then after my second to last Herceptin treatment, I didn't get well. I have never felt like I've recovered from it. My oncologist was all for doing heart scans to make sure that I could take the Herceptin. But now that I'm left with possible heart problems, she will not order a heart scan! She canceled my last Herceptin treatment. I feel like I'm out of breath my heart hurts it seems really obvious to me. However, my oncologist didn't listen to me. She is making me go see my PCP to see if there could be some reason for my symptoms besides a side effect from Herceptin. That means I have to be off work to go see a doctor in January. I know this sounds crazy, but she actually seemed defensive about having caused heart damage with Herceptin treatment. Then, I have to go back to the oncologist after I see the other doctor. So far, three doctors appointments in January!
Like someone else mentioned, my support system is gone. They are all tired of cancer. All I ever hear now is that I should be back to "normal" now that my treatment is over. My boss says I shouldn't need to miss work anymore now that my treatment is over. Frankly, I'm feeling pressured to get back to normal when I really don't feel okay, and I'm back to Feeling too weak and sickly to care for myself.
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i'm kind of amazed to hear other people expressing that they don't want the same stressful job anymore. That's me! Not that I have a choice.
I started treatment at the beginning of 2014 and have just finished. It was really important to me not to have any doctors appointments in January. My doctor even canceled one Herceptin treatment so that I could have the psychological boost from knowing that it ends with 2014.
Then after my second to last Herceptin treatment, I didn't get well. I have never felt like I've recovered from it. My oncologist was all for doing heart scans to make sure that I could take the Herceptin. But now that I'm left with possible heart problems, she will not order a heart scan! She canceled my last Herceptin treatment. I feel like I'm out of breath my heart hurts it seems really obvious to me. However, my oncologist didn't listen to me. She is making me go see my PCP to see if there could be some reason for my symptoms besides a side effect from Herceptin. That means I have to be off work to go see a doctor in January. I know this sounds crazy, but she actually seemed defensive about having caused heart damage with Herceptin treatment. Then, I have to go back to the oncologist after I see the other doctor. So far, three doctors appointments in January!
Like someone else mentioned, my support system is gone. They are all tired of cancer. All I ever hear now is that I should be back to "normal" now that my treatment is over. My boss says I shouldn't need to miss work anymore now that my treatment is over. Frankly, I'm feeling pressured to get back to normal when I really don't feel okay, and I'm back to Feeling too weak and sickly to care for myself.
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Msqueen57- I agree that medication can help. I have been prescribed Zoloft & I think it helps. I am using melatonin to help me sleep, because my anxiety was so bad I could not sleep through the night. Better sleep has helped me be less angry, but I still need to figure that part out.
Baballou - I am sorry to hear about your heart trouble on Herceptin. My heart has not lover it either. I dropped from a 67 to around 50 for the ejection fraction. They have me do an echocardiogram every 3 months & started a med called metroprol. They told me it would help protect my heart from here forward. I wonder why your MO is defensive?
I scheduled an appointment for tomorrow to check on my lung. I feel short of breath this past few weeks. I am not sure what my MO can really do about that, but they told me to come in if I felt that way. Hoping they can just do my follow up ct on the lung early & I can find out what is going on. The shortness of breath could just be anxiety...or radiation pneumonitis...or Mets. It sucks.
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http://www.greenmedinfo.com/blog/magnesium-deficiency-symptoms-and-diagnosis
Many heart type symptoms can be magnesium deficiency, might be worth taking a supplement to see?
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My Medical Oncologist thinks the shortness of breath is anxiety. She said my lungs sound good. I am so glad of that. She prescribed me Xanax and I have to admit it has been helping these last few days.
I also moved up my follow up CT scan to January 22nd. So that makes me feel better too.
I went to a cancer support group that just started this week at my clinic. I planning to go to yoga on Wednesdays starting next week.
I hope all of this makes me a little more calm & centered.
Wishing you all peace and wellness.
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Smurff - I felt like I had shortness of breath too. About two months out I went to my PCP about it, he did a CT scan to check things out, and happened to discover that I had fluid surrounding my lungs (not in them). He surmised it was from the mastectomies and that it would resolved on its own. It did, but I was also highly anxious, and having near day long panic attacks. It was horrible. I too hope you find your calm very soon.
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Thanks farmerlucy, I will keep the fluid thing in mind when I talk to my docs after the CT scan on the 22nd. -
Anxiety is one of the after effect it seems of breast cancer. I Think I have carried a black anxiety cloud over my head for the past year, I was diagnosed on the 10th feb 2014.
I think in the last few weeks I'm starting to come through it, I'm still occasional obsessed with cancer stories in the news, survival rates and my cancer returning, but with a three year old to bring back I'm sure this is normal.
Ive grown to realise that the cancer experience has made me appreciate everyday more and life feels more richer and intense. I've made some major stands in the last few months against a situation arising at work that wasn't right, so the new me Has become bolder and less excepting of bad behavior by people around me. I started this page in October and four months Later feel brighter, thank you ladies for posting, it's wonderful to read all the stories
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just realised it wasn't this link I started but another one, but have added to this one
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Runner - your thoughts are inspiring. I continue to strive to remember to take each day as a gift and not take them for granted. That is the part of my cancer experience that I don't want to forget
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