Winter rads 2014-2015

Thank you beachbaby. My mind was worrying thinking did they see something on the left. I hope your feeling more better about the situation. Hugs

Looks like my iPad froze again.Welcome MagicalBean!

I think all of you are amazing!

Hello All, I just finished compiling our current Winter 14/15 Rad Group. In our July Start Chemo group we posted it at the top of the discussion board. I think it helped us keep together.  If we, as a group, are interested in that, I will post it and find out how to move it to the top - or ILCMom can add it to her original post and add to the list as we grow. (This is what Mags did in our July group) Right now, there are 20 of us who have posted so far.  8 of us are currently getting rad treatments. The rest of us are just around the corner.  What do you think?

Going for treatment in a bit. It seems to be an all day event because of the 3+ hours of drive time.

LMVerna I agree with you too- I found during the three weeks off between Taxol and radiation that I lost some of my forward drive- either way we all have side effects to deal with- I had #5 of 32 radiation's yesterday and so far the only thing I've really noticed is I sleep through the night now- which I have not for 5 months of chemo so it's a welcome change.

CoyoteNv I hate that you have such a commute! I'd drive you if I could! The group idea is great, I think!

Question: do any of you feel as if you get support from the other ladies you are in treatment with or is it all moving so quickly that you really have not even met?

CoyoteNV, I like the idea of posting information at the top of the board.  I start radiation Monday the 17th.  What a commute for you!!!  I am almost embarrassed to tell you that I have a two minute drive and am going to have the radiation treatment on my lunch hour. 

CoyoteNV, I like the idea of posting the group at the top. I am new to posting, but it seems like a new idea.

CAS4, I hope that I will start sleeping through the night. I hate how I am so tired but can't get a good night sleep.

I did feel a bond with some of my chemo buddies. There were a couple other women dealing with breast cancer and we did share some of our stories and issues with each other. However, it seemed like they were at different points in their lives than me (one was very young and the other was much older) so we didn't really have some of the same issues outside of chemo, etc. I did find a few other ladies in my community who I knew but didn't realize they had been through breast cancer that I am trying to connect with. It is good to be able to talk with others, commiserate, and share tips for things that help.

Hello yikes, I got the same prescription and my insurance didn't cover it. I went ahead and got one tube of it and I think it was around $32. I have just had 7 rads so far. It is not as greasy as some of the others. It should last me a bit. Thought I would use that more during the day and the aquaphor at night.

I wish you well as you start. So far for me I'm tired but some of that is still recovering from chemo. I have noticed the last 2 days the side they are doing is getting a little tender. Not bad though.

hello yikes1, I use something called Callendula cream that you can find at stores that have a health food section. My RO swears by it and so far it's been great. Aquafor is also something she suggested if I started having skin issues. It's number 7 for me since do to bizarre weather I had to miss yesterday. I drive an hour each way and we were under a winter advisory with pockets of sleet and freezing rain! Go figure. PerfectlyImperfect39 I feel a lot better about the nodule on my lung thank you for the hugs it helped!

LMVerna, I have expanders since January 29. Geesh, in 2 months it will be a year. OMG! Finished #10 rads today.

Not knowing anything different, at this point I can't feel anything specific that would be different with TE. I am starting to get pink. The past couple of days I started to get fatigued late afternoon. Having said that, work has been extremely busy so it may be that. But I think it's rads....remembering the chemo fatigue and how I felt then.

My RO office gave me cream to use. I posted it somewhere. Maybe not on this thread?

I think the time has come for me to join - I start my rads this Tuesday, the 18th. 16 treatments I'm told. I've been reading this thread as well as the fall rads thread and found a lot of helpful information. Thank you. I breezed through the sim and tattoos just because I read all about them here, although the tech said it would feel like a mosquito bite! I don't think he had ever had a mosquito bite or he wouldn't have described it that way. Possibly a bee sting!

Hi,

I am fairly new to posting, but I followed the forums during my treatments.

I started radiotherapy 3 weeks ago and had 11 up to now (the device was broken for 3 days last week). But this weekend I feel terrible. I can not lay on my right side (operation side). I started rads just 15 days after surgery and the drain for my axilla was just removed. And now it is reddish and my surgeon tells me that its OK. But I feel otherwise.

Anyways I worked through all chemo and had a week off for the surgery and keep working through radiotherapy too. But rads are making me exhausted and I wish Wednesdays are holidays too. 5 weekdays feel too long. Taxol felt a lot easier. Tiredness that comes with rads is making me feel sick, just at the time when everybody told me that the hard part is over. Plus hot flashes aren't sparing much.

It nice to find a place to talk this with women who can relate and feel not so alone. Everyone supporting me is very sympathetic to my condition but they rarely understand.

Welcome Menek, We are sorry that you are dealing with side effects of treatment but so glad that you reached out to this community where as you can see there are so many who can provide support, encouragement and understanding as they walk a similar path. We send you a warm welcome and hope that you will stay connected. The Mods

Beachlady, the rads go pretty quick. Hopefully you will have some great techs that will help make it as comfortable for you as possible. I have 4 tattoos. I've had 8 rads so far. I lay there and hold on to these bars behind my head. It takes longer to get undressed and dressed again than the actual rad it seems. I'm tender on my right side and a little pink but not to bad so far. I cut up with my techs and that helps distract me. I see the RO each week and will have X-rays weekly to make sure everything is lined up fine still. I put on cream 3 times a day. I went and got me some cami's to wear if I start getting burned.

Beachlady how are you doing on the new drug? I start same thing in 3 weeks. I'm very anxious about it.

Katie I agree more like a bee sting.

Looks like I'll be joining you all. My RO consult is 11/20, then simulation 12/1, and I think my first rad will be 12/9.

Linda