Questions on "wire insertion" prior to Lumpectomy

MoJim
MoJim Member Posts: 34

Hi Everyone!  I just found this group yesterday after being on a couple of other BC sites that weren't too "active."  I was diagnosed w/ DCIS about a month ago & my surgery (Lumpectomy) is next week - Wed. Nov. 19.  I've already been told I'll require radiation afterwards. My cancer was caught on a yearly mammo.  I'm high risk for colon & esophageal cancer, but the BC kind of came out of "the blue!"

I was on here reading last night & women were talking about how painful & horrific the insertion of the "wire" was prior to surgery.  It sounded like they just "jabbed it" into their chest & left them in dire pain before even being wheeled into the O.R.  One woman even said she suffered from PTSD flashbacks afterwards.  Now, I'm terrified of those 3 hours in Nuclear Medicine.  Has anyone asked for a Xanax or something beforehand & received that to take the "edge" off??  I also have severe neck & back issues/pain, so being contorted in the mammogram machine for any length of time will wreck havoc on that part of my body.  I'm afraid I will be so miserable before I even have the actual surgery.  Any advice or suggestions are encouraged & appreciated!!!!

Maureen

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Comments

  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2014

    have to confess that my 3 lumpies were pain free and no big deal.  Never took the pain meds that were sent home with me.  Not sure what you mean by wire insertion, they knocked me out, I woke up when it was over

    the biopsies were less fun, the boob hanging down the hole is not a delight~~but if you think you will need Xanax, then ask for it and I am sure they will give it to you

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks proudtospin.  I will be totally AWAKE during the "wire insertion" that they say takes 3 hours in Nuclear Medicine prior to the actual Lumpectomy. When they did my needle biopsy, they inserted a titanium chip in my cancerous breast & they place this "wire" in that spot & then inject nuclear dye into the area so the surgeon knows where to go. I won't be "under" until they roll me onto the O.R. table, so these 3 hours in Nuclear Medicine sound like a nightmare!!

  • DiZoe
    DiZoe Member Posts: 5
    edited November 2014

    Hi MoJim,

    I don't know if my experience was typical, but I had no issues with the wire insertion at all (it was at VGH in September). The scan that morning was a bit uncomfortable (had to lie with my arm up over my head and my arms fell asleep), and the mammogram after the wire was not the most pleasant one that I've had, but it was all ok. I had pain for a number of days after surgery, but it calmed down in about a week. The swelling and discomfort lingered for about three weeks.

    Hopefully yours goes smoothly as well.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited November 2014

    It was no problem.  There are several mammograms as part of the procedure, but they are gentle, as they only need to show the wire is in the correct place. 

    Most of us found the wire insertion to be no big deal, probably less so than the biopsy, as by the time we get to surgery, we're pretty blase about needles in our boobs!  In my case, the radiologist used lidocaine to numb my breast, and it was fine.  As I was having two lumpectomies, she placed two wires.  I assure you, if there were any problems with the first one, the second one would not have happened!

  • daisylover
    daisylover Member Posts: 310
    edited November 2014

    Hi Maureen,

    This is a great site for learning about others' experiences. I am glad you found it and sorry for the reason that you are looking.

    I have neck and back issues as well - I understand your concern. My wire insertion was done while I was seated (upright) with limited twisting. The compression was more memorable. I mentioned my concerns about my neck to the technicians and they were considerate. It did not seem difficult in that way. However, equipment and tumor location will affect that. I would definitely let speak with the technician. I had the insertion/surgery twice, and both times it was fairly uncomfortable when they inserted the wire. I did mention to my husband that I felt that if they had waited for the local anesthesia to take effect, it would probably have been much easier! Overall, it was not too bad, though. I focused on staying in my happy place, the beach. That helped a lot.

    Waiting for surgery is tough. Once it is complete, you can move on to treatment. I wish you a smooth surgery and good results.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2014

    guessing I did not have wire insertions, as no memory of this but mine were in 08 so...not sure

    but have found that all involved were incredibly caring and helpful so...yell for meds if you want them!

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks everyone! They did my needle biopsy in a seated position as well. I had 3 nurses in the room along w/ the Radiologist.  They did their best to make me as comfortable as possible. I still don't understand WHY they have to jab a wire into our breasts now days??? Sounds like a few years ago, they didn't even do that. Have we really "Come a LONG Ways, Baby???" ;)

  • dsj
    dsj Member Posts: 277
    edited November 2014

    There is a very brief sting when they numb your breast--kind of like a bee sting. But if you count to five in your head, by the time you get to 5 (or before) the pain is over. 8'read this somewhere on this board and it worked for me

  • Ridley
    Ridley Member Posts: 634
    edited November 2014

    Hi MoJim,

    I had wires inserted for my lumpectomy -- one done twice because the technician moved it my mistake (most people only have one inserted -- I had more because I had multiple areas of BC).  I had freezing, the same as for the biopsies, so after that I felt some pressure, but no pain.  The radiologist was great about ensuring that I wasn't feeling any pain. 

    I had the radioactive dye inserted twice as well -- mine was for sentinel node biopsy location.  It sounds like yours is more for locating the DCIS.  In any case, that stung for a couple of seconds -- the second time I had it done more than the first, but for me it was not a big deal.  I had to wait for 30 minutes or so after the injection and before I was scanned, and I remember I read a book while I waited the first time.

    I'm not suggesting that I'd want to do either again, but to me it they were both like a lot of the medical tests I've been through -- a little bit of pain and then it was over.  I definitely didn't have any lingering pain with either procedure.

    If you are worried, I would check about taking Xanax or something else before -- certainly can't hurt!

    Good luck with surgery

     


     

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    Hi, MoJim - the wires are basically a glidepath for the surgeon. Sometimes there will be 2 wires rather than one, to really pin down the location of the tumor. My understanding is that it pinpoints the exact location of the tumor and results in less damage to the rest of the tissue. They are very fine wires.

    Do insist that they wait until the lidocaine has taken effect. Ask for any additional pain relief or anti-anxiety medications you need.

    The procedure does not take 3 hours but it takes a while for the radioactive tracers to move through the tissue, thus the length of time in nuclear med. unit.

    It's doesn't always involve a mammogram; I'll have ultrasound instead, due to the location of my tumor. You could ask if this is an option for you.

    Good luck with all of it!

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks Hopeful, Ridley & dsj - all your comments & experiences are most helpful. I don't have a "tumor" ... what I have is a bunch of clusters of micro-calcifications that are cancerous. Who knows how many wires I'll end up with as there are a lot of them!!!

  • slv58
    slv58 Member Posts: 1,216
    edited November 2014

    MoJim, I have learned (the hard way) that if I am faced with a procedure that I honestly feel nervous about- ask for Ativan! I had the wire localization and dye injected into the nipple the morning of my LX but was aware that I would be "worked up" over the whole thing. My Dr. gladly gave me Ativan prior to the procedure and I couldn't believe how relaxed I was. I asked if they numb the nipple prior to injection but was told that it would be like having 2 times as many injections. The Ativan really took the edge off and I honestly didn't perceive pain at all. From now on I will ask for something to help prior to procedures or biopsies etc. there is medicine there to help you so why not ask for it. The procedures really only takes a few minutes, but most of the time your sitting waiting for the tracers to work through the tissue. The wire is very thin and was taped to my breast as I waited. Positive thoughts!

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks, Shari!  I'm calling TODAY & making sure I have either Ativan or Xanax prior to all this Pre-LX stuff!  I will be "worked up" enough the way it is & I can't help my highly anxious personality. 

  • tracyn
    tracyn Member Posts: 22
    edited November 2014

    I literally just had this done a week ago. I was scared too!!! Just so you know it didn't hurt at all :) I just asked the Dr to give me extra numbing medicine because I had read some of the same things. All I felt was a little bit of pressure. Here is how they did it if it helps... They put my breast in the mammogram (that was the worst part) They gave me a shot of numbing with a very small needle. They said itwould feel like a bee sting (not even close!) Didn't hurt! Then the inserted wire. Again no pain but a little pressure. Then they injected some blue dye. They said that the dye might sting going in but it didn't! Afterwards I asked for something to relax me... This by far was the best part of the day :) Oh boy! Whatever they gave me made me puddy in their hands, lol! Good luck honey! Let us know how it goes!!! Xxoo 


  • tracyn
    tracyn Member Posts: 22
    edited November 2014

    Oh and it might take 3 hrs only because they make you wait in the waiting room. It only took them about 15 min to do mine and I had the same thing. They need you totally alert for this only because you might need to stand for the mammogram. Get the drugs right after :) 

  • Mouche
    Mouche Member Posts: 63
    edited November 2014

    @Mojim, I can tell you before my wire insertion I was like you, very very scared as my stereotactic biopsy was very painful, (something I pray to never have to do again) with that being said the wire insertion was a breeze and I felt nothing. I let them know I was scared and that I had a bad time with the biopsy and to give me EXTRA numbing med.

    I kept waiting and waiting for the needle to go in until I finally asked how much longer. She informed me that she was all done, I DID NOT feel a thing, it did freak me out a little to look at the wire poking out of my breast. But it was not a big deal, I would gladly do that again over that biopsy.

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks, tracyn! I want the Xanax/Ativan (whatever) before I go into Nuclear Med. for all this - not after! They've already arranged it so I will be "seated" & not standing due to my neck & back pain issues.  They did my core needle biopsy seated as well. I will be FULLY ALERT as I have a high tolerance to these med's.  It takes ALOT to bring me "down."  So glad it was still fresh in your memory so you could relay your experience w/ me :)!

  • dsj
    dsj Member Posts: 277
    edited November 2014

    I had calcifications too--they were in a cluster. I honestly can't remember now how many wires I had. But it was not a big deal,I do remember that. You will get through it, and it will then be over. hugs

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks Mouche!  I see you are another NC gal! What part of the state do you live in? I'm in Hickory which is about an hour north of Charlotte.  My stereotactic needle biopsy was uncomfortable, but not as bad as I had imaged it would be. And, they let me do it seated due to my back & neck issues.  I just know on the day of the actual surgery, I will be more apprehensive along w/ being dehydrated, etc. after being NPO since Midnight.  My actual surgery is not schedule until 1 or 2PM Wed.

  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    Thanks dsj! Your comments ease my anxiety a lot Winking!!

  • Iniah
    Iniah Member Posts: 70
    edited November 2014

    Mojim I had this done and it was not painful and was over very quickly. I was in nuclear medicine maybe 40 minutes and had no pain, no anxiety (I did have a Xanax) but felt fine, was very present and thought it was just strange to sit there with your breast all wired up etc. but it was not a big deal for me. Surgery went very well and I was out walking two days later. Maybe a small dose of Xanax will help take the edge off. Honestly, for me it was totally okay.


    Good luck!!!

  • dsj
    dsj Member Posts: 277
    edited November 2014

    yes, I had a Xanax too. they asked me if Imwanted one, and I said sure!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    I remember some pinching with the numbing medication, but after that it wasn't painful, just a lot of pulling and tugging pressure sensations. It was hard on my neck and back, to be sitting so long (an hour) in one position with my head turned so far to one side.

    Anne

  • shuf
    shuf Member Posts: 94
    edited November 2014

    Mojim, I'm shuf. I am fixing to set my lumpectomy as well. They seem very reponsive to discomfort. But I am very concerned as well. I am 59 and could use a friend.

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited November 2014

    I just wanted to say that I did not take anything before the wire insertion because I did not want to mess up any drugs they were going to give me during surgery. I realize it could be traumatic for some people so I am only telling my story as another experience. For me, I went into my surgeons office, had the wires inserted, and then drove to my office to work for a couple hours while I waited until my surgery (wire insertion at 7:00AM, surgery at 12 noon, checkin for surgery at 10:30AM). They taped the wires to my chest good and tight, and I did not really even notice them. I had a very traumatic first biopsy, I had a second vacumn biopsy, and for that one I did take valium (it made it much better).

    I wish you the best of luck.

  • labelle
    labelle Member Posts: 721
    edited November 2014

    I just had this done yesterday prior to my lumpectomy. My experience was similar to Brookside's, several mammogram pictures taken, then they numbed my breast with lidociane, felt a pinch like at the dentist when they give you novocaine. I didn't watch while the put the needle or wires in (I don't watch when I have blood drawn either, yuck) but I didn't feel a thing, they taped the wires in place and wheeled me off to surgery shortly thereafter. I was dreading the wire placement too, because I knew I'd be conscious for it and didn't dare take any Xanax beforehand (forgot to ask if I could) but it turned out not to be nearly as bad as I'd thought.

  • MagicalBean
    MagicalBean Member Posts: 362
    edited November 2014

    Hi MoJim,

    I had my needle localization in September and it was a non-issue. I worked myself up for days, but it was wasted drama and energy. It was over before I knew it. You'll be just fine.


  • MoJim
    MoJim Member Posts: 34
    edited November 2014

    OK - I had a really bad fall last week - slipped & fell backwards & hit my head HARD! I already had neck & back issues before that, but the fall really messed my neck up even more.  I talked w/ the Nurse Navigator yesterday & specifically requested they give me Ativan or Xanax prior to all this Nuclear Medicine stuff happening.  She promised me it would be there for me!  Now, after reading about your head being contorted for an hour, I'm like "UGH" even more!  My neck is the weakest point in my body & when I'm "stressed" over anything, that's where it all goes.  I don't care if I'm "loopy" w/ the surgery med's ... I won't be driving & just want to be in an "I don't care" kind of mind set thru this whole thing.  THANK YOU ALL for your kind responses & posts on here!!

    Maureen

  • slv58
    slv58 Member Posts: 1,216
    edited November 2014

    MoJim, wishing you a quick recovery from your fall! I just want you to know, when I took the Ativan all my fears and uneasiness disappeared. I also don't watch blood draws and especially not needles in my nipple, but my husband was with me and was flinching-I didn't care at all! Now that I have experienced how much easier it was with Ativan, if I am ever up against a stressful procedure (I was a suck for the core biopsy as well) I will request it. It's nice to know that I don't have to be a hero and that there are meds to help if needed. As far as head positioning, the way it was done for me was I was seated for nipple injection and voluntarily turned my head and then the normal head turning during the mammograms.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited November 2014

    I had my wire insertion/lumpectomy back in June. You know I honestly don't remember much about it. I remember the time before insertion and them taping the wire down, but I honestly don't remember them putting it in. Must not have been too terrible because then I would remember. Good luck you'll do fine.

    Nancy

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