Anyone with a "Good" lumpectomy? Please.
I've been reading these forums since being diagnosed w BC the end of Sept. and have a lumpectomy scheduled for Thursday the 13th. Anyway, I keep reading other's treatments. So many seem to start out with a lumpectomy only to have a mastectomy, sometimes within months. So now I'm getting worried about my choice. Does anyone have a good lumpectomy, one that doesn't turn into a mastectomy a little while down the road and one with cosmetic results they don't find disturbing.
I have a smallish tumor, about 1.5 cm and 3 cm of dcis clustered around it in a full c-cup. Surgeon seems confident in his ability to remove it all without leaving me a mess. Will also have SN done on Thursday but they don't expect to find anything. My cancer is tubular, low grade and unlikely to have spread, per the surgeon and oncologist. Had a breast MRI, everything is fine in the other breast (R), nothing unexpected in the left (the one w cancer) on the MRI. BRCA 1 & 2 testing done and both normal so I'm not going to get any surprises there that would later make me want a BMX.
I'm just hoping for a good lumpectomy, radiation (onco score 11 so no chemo for me unless they find something in the nodes) and maybe some hormone therapy and then to move on. Plastic surgery for symmetry in the future, maybe if needed, but hopefully not. Does this ever happen? Can this ever go that well? Some one tell me "yes" please!
Comments
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labelle, I notice that no one has answered to you, so I am stopping by to say hi. This will bump your post to the first page. My lumpectomy, so far, has not distorted my breast noticeably
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Thanks, the quiet was deafening.
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Hmm. I'm close to someone whose LX came out ok. I was a B cup and am still one. But my tumor was right beside my nipple and that had to go. I've had reconstruction for the nipple and a tattooed areola. I chose to not have much more than that. If I'd been more aggressive with the type of reconstruction I'd be very happy. Losing my nipple was tough, but I'm relatively happy.
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hi Labelle
I had a lumpectomy and my tumor was 2.8cm. My surgeon did a great job. The only thing I notice is the 2 inch incision, but it will fade overtime. My lumpectomy breast is a little higher than my other breast, but only I would notice it. I am very happy with my results. They even had to cut into the muscle to get the nasty tumor out.
Nancy
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I had two lumpectomies on a breast that does not fill a C cup, one incision above the nipple, one below. Except for a very nice scar line, you cannot tell anything happened. Of the people I've spoken with, all have been happy with their surgeries. To tell the truth, most of us have been ecstatic because our expectations had been so low. Your surgeon can really tell you what you ought to expect.
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My tumor was very small, 4 mm, but it was very deep. My BS removed tissue 4 x 5 x 1.5 cm - a pretty good chuck of tissue - and I have had a very good cosmetic result. I am a full C cup also.
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My tumor was 1.5cm at 10 o'clock right breast and the size of the tissue removed was approx 6cm by 5 cm by 2+cm. I am only a B cup and you would never know that much was removed, just a 1 1/2" scar and a slight reduction in fullness and size but not really noticable. The breast was lifted just slightly and DH agreed with me that it looked better than the good one, a little less droopy!! Hoping and praying that nothing more gets found down the road and things can be left as they are.
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I had a good lumpectomy 14 years ago. Complication lead to a flap last month but all in all the lumpectomy was good.
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MIne was fine! About the size of yours - I had clean margins, but it did spread to one lymph node, so I am doing chemo (even though three doctors said they would go either way with me) I dont have size difference issues that bother me in the least - it is noticeable a bit to me, but certainly not if Im not naked and that is not normally an issue!
Did they do the oncotype just based on the biopsy? Im curious as without knowing if it did or did not go to a lymph node, which graph are they basing results on? Mine was lobular and not expected to have spread either They also dont know true size of tumor until taken out, which may also change diagnosis
Im sure it will be fine!!! I just think that until you have the lumpectomy and pathology reports, there are a few uncertain issues that will need to be discussed
Best of luck to you!
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I had a lumpectmy . Mine was 4mm it was right next to the nipple. The scare is on the inside edge of the nipple on my left breast so it doesn't show very much. Iam finishing my 33 radiation treatments tomorrow.Yea!! You have definetly come to the right place. These women on here will help you through this and make you feel very welcome. I will be thinking about you. Susu
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Mine was 6 o'clock..deep inside, close to chest wall. Doctor got great margins,and left a scar so small that the mammography technicians have to look real hard to find it. It must be there, somewhere, but I couldn't find it unless I did a head stand in front of a mirror! Good luck! I wish you well!
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I had a much bigger tumor than yours but still had a very good result. I was (and still am) thrilled that it was an option for me! A quicker recovery time, I didn't have to deal with being flat or reconstruction surgeries and all the time, pain, money & potential negative side effects involved with any surgery.....it was absolutely the right decision for me!
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labelle,
I had a small tumor, but lots of cancer in the axillary. My lumpectomy was pretty easy. Not real thrilled with the effects of the SNLD. That side is weak & always sore. Starting physical therapy this week, hopefully get stronger.
I am happy that I my surgeon recommended the lx. I have read too many scary reconstruction stories.
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opps, Good Luck on Thursday.
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Thanks all. I so much needed to read testimonials like these.
Ready, my onco test was done using materials from my stereoscopic biopsy which showed receptor status, rate of cell division, got slapped with a Nottingham score (1 in all 3 parts for a total of 3) ,etc. Amazing what they can do with a core sample! LOL.
I think they are basing estimated tumor size upon the breast MRI I had done and are telling me it probably hasn't spread to the nodes based on seeing nothing in that area on the breast MRI and because this cancer is tubular type (also per stereoscopic biopsy), apparently a very slow growing monster that seldom spreads to areas outside the breast particularly if caught when relatively small, but they are doing the SNB just to be sure. I know surgery can sometimes lead to different pathologies but I'm hoping for no bad surprises.
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Im hoping for no surprises for you either, Iabelle!!! Best wishes!
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My tumor was a little over 2cm in the upper-outer quadrant of my left breast. I got a great surgical result; I don't even need to pad my bra. It's been three years now and the scar has faded to a thin, line that is barely noticeable. I'm very pleased.
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Mine came out pretty good after two surgeries (re excision due to close margin) so am pleased I went that route. Best of luck tomorrow!
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Remember, when you come out of surgery, it will look a lot worse than the final result will be.......just so you aren't shocked (with I was because nobody told me about that beforehand!). Good luck!
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Labelle, I am definitely one who had a good lumpectomy (upper outer quadrant), with size and grade stats similar to yours, including the tubular cells, although the surgical pathology showed that the tumor had broken through and wasn't DCIS as the biopsy path had said. But all went smoothly, and two days after surgery I felt fine and was back at the gym (just doing leg work and no arm work, of course). The only "hitch" in recovery was that my sensitive northern-European skin was pretty bruised from the surgery, but it was only a matter of time until it healed and I was on my way to radiation. Rads went smoothly, no side effects--just a little more redness after the boost started, but no pain or discomfort, and blissfully no fatigue at all. Basically I now feel as great as I felt before the diagnosis.
My scar was almost invisible when I went for my one-year-post-surgery mammo (the technician had to hunt for it), and I am not misshapen at all. (Being a non-smoker helps in the healing process, my physician friends tell me.) Last year's mammo was clean, and I am expecting tomorrow's 2-year mammo to be the same.
It's good that you asked this question, since many--nay, most--of the ladies here have a lot worse things on their plate to deal with than you and I have to deal with. So go off to your lumpectomy feeling positive about it, knowing that some of us have had "a good lumpectomy." TG
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When you are on the boards, it is important to remember that the people who have had trouble with any given aspect of treatment are, quite naturally, the ones who are posting about it. So what you read here doesn't necessarily reflect what happens for most people. Many of those who have done well are just out enjoying their lives.
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Count me in! Mine was about the same size as yours, but I (used to) wear sometimes a D cup, sometimes a C. that reminds me: in my notes, my (old) BS, whom i could not stand after a while for some very good reasons, in her clinic notes sometimes described my breasts as being small, and sometimes as large. Is a C and D cup large or small? she has kept me confused over that and many other things. It was midway between the nip and my chest wall, but she did go all the way to the chest wall including the fascia. inner upper quadrant. two nodes were bigger than the 1.5 cm tumor itself, being 2.5 cms each, gross, huh? Cosmetically i am pretty happy, and did make it through rads pretty well too. I used miaderm and maderma. one was for lotioning, the other for scar. both once a day. but i used aloe straight from my plants, all day long! it cools, and really my skin looks the same as the other. there is a dent when i bend over, but i don't bend over him naked anymore, so only i know that. they do try to "re-approximate" the tissue for a natural breast shape as much as they can. Anti hormonals however, have made me gain some weight, which all seems to be in my waist and good breast. I am just considering asking them to do a reduction on her.
Sacnaillady: You look really familiar to me. Did you go to ARC? Do you know about the stucco factory? Did you make art? I am from Sacra, been living in LA for 15 years. If it is you, hello! I am a different kind of nail lady! The Nail gun or hammer type nail lady!
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Hi labelle, I also had tubular--there is a thread for tubular but as it is fairly rare it doesn't get much traffic. I have had two lumpectomies (actually both of mine were excisional biopsy with clear margins so I didn't need any other surgery) different times and different breast each time. Both are good at least so far--four years out on the first and two years out on the second. Good Luck!
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Good luck tomorrow, too! I saw this on another thread:
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Hi. i was also diagnosed in the beginning of October. I had my surgery yesterday.I had a lumpectomy and Sentinel node dissection. My mass was approximately 2- 1/2 cm. I am a B cup. my incision is about 2 inches long near the outside of my breast around 11 o'clock. At this time, my breast looks almost like normal. I was in the operating room for approximately one hour and the recovery has been pretty good. I slept most of yesterday but today I'm feeling much better. although I will need to wait a week or so for my final pathology report, the doctor seemed very happy with the surgery and my lymph nodes look normal. Hoping and praying that I get a good results next week. I'm also happy that I decided on a lumpectomy at this point. good luck with your surgery tomorrow. If you have any questions, I'm here. Its always nice to be able to go here to see what other people are going through and not feel so alone. Best of luck.
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Thank you so much. You have no idea how reassuring these posts have been. I haven't always made good decisions in my life and I'm pretty sure I need to get this one right and I really do think I'm making a good choice for myself, just needed to read something good by others who've made the same choice I guess.
TGTG, did you do any hormone therapy? My oncologist is pretty hot on tamoxifen, but I've looked up and run models online and I don't see that it does much for me that removing my ovaries won't take care of. At 51 they are on their way out anyway and I tend to feel w tubular cancer the side effects of Tamoxifen or AIs might be overkill. Any thoughts on that.
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Labelle,
Glad our responses to your question have helped put you at ease for tomorrow--and the future. As for your question to me about tamoxifen, I declined the opportunity to mess around with my hormones (such as they are at 73 (dx came at 71). At this age, my biggest sources of estrogen are fat and carbohydrates like sugar and processed starches, both of which I can control with wise diet choIces without playing around with, and trying to fool, Mother Nature (besides, cancer cells are smart and they mutate, so there's no guarantee that they can be fooled as easily as the drug companies want us to believe.)
Besides, I read many medical journal articles about the fatal co-morbidity problems that tamoxifen causes, and quite frankly, a stroke or blood clots/deep vein thrombosis are bigger threats (both invisible until they wreak their havoc) to my longevity than something a mammo and/or a clinical exam can find, should it occur again. By the way, I also have lost the 12+ pounds that I had put on in the year and a half before my diagnosis, and am keeping it off, and am getting enough sunshine to keep my vitamin D levels high. I also questioned the logic, by the way, of taking a drug that causes weight gain, when the best natural way to curb estrogen at my age is to lose weight.
My medical team is fine with my decision. My breast surgeon was fine with my decision, since he knows that I do 90 mins. at the gym (resistance, abs, and cardio workouts) 3 times a week and am hardly sedentary when not at the gym. I saw a medical oncologist once, and while she favored tamoxifen, when she saw the research data I had collected, she offered to order an Oncotype test to get a more personal genetic view of my status. When she reported it as a # 12, she was okay with my declining the drug, as long as I would be able to live with my decision (I am), Her role in follow-up is being taken by my surgeon, who will continue to monitor me long-term after my 6-month checkup schedule goes down to yearly checks after year 3 or 4 post-op. My rad onc was the one least on board with my decision, but she has accepted it as long as I am faithful about vigilant monitoring (I am). As an aside, AI's were off the table even faster than tamoxifen for me, since my husband and I are hikers, and joint and muscle pain and osteoporosis would put an end to that happy part of our lives.
But right now, don't even think about hormonal therapy. Just concentrate on recovering from the surgery--hopefully with nothing stronger than Tylenol--and getting back to full strength as quickly as possible, and staying fit so that rads will not fatigue you. Best, TG
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I just had my lumpectomy yesterday too. I went in at 7:30 and was home by 11:30. The actual surgery was about an hour. I have two extremely small incisions with steri strips. My breast is slightly swollen but I don't see any type of deformity. I am pretty bruised as well, but pain is minimal. My surgeon was very confident she got it all and felt the two sentinel nodes she took looked good as well. Three weeks ago I swore I wanted a mastectomy, but I have to say I'm now quite satisfied with my decision. Good luck!!
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kathec-I took one class at ARC in 1979! Math. I use to do tons of sewing and crafts but not a lot of art per say. I lived in Sac 1978 to 1980 and now for the past 3 years. Most my life has been in Vacaville. I do finger nails. Anyway, nice to meet you!
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I'm a double D. My lumpectomy was uncomplicated and other than a hairline scar, you can't tell. Recovery was a breeze with very little discomfort. Good luck on your surgery. You are in our thoughts and prayers.
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