BRCA1 postive what's my next move?

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mommy32
mommy32 Member Posts: 4
edited November 2014 in Genetic Testing
BRCA1 postive what's my next move?
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  • mommy32
    mommy32 Member Posts: 4
    edited November 2014

    Hi, I'm 32 and BRCA1 positive.  My doctor wants me to have a hysterectomy and/or ovaries removed a early as next month!  I just don't know what to do.  While we are done having kids, I am worried of the side effects.  I don't want to go through menopause this young.  I don't want a bladder sling.  I am worried about the recovery time.  then there is time off work.  So much to think about!  I am looking for advise from people who are or have been in my situation.  Thanks ladies.

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  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited November 2014

    Please be sure to check out www.facingourrisk.org, the FORCE website - facing our risk of cancer empowered. You will find lots of info and forums for BRCA+ people. So sorry you are joining us.

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  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited November 2014

    You will find age guidelines for preventative measures there as well. Do not rush into anything. You have time to research and plan and make important choices.

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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2014

    Welcome to the BCO community.

    You have joined a terrific group of supportive and knowledgeable people who can offer wisdom, information and their own experiences.

    You may find one of the many articles on BRCA1 on our main site breastcancer.org of interest, such as Women With Abnormal BRCA1 Gene Benefit From Having Ovaries ...

    We wish you all the best n this difficult time but knowledge is power and helps make the best decision for YOU.

    The Mods

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  • labelle
    labelle Member Posts: 721
    edited November 2014

    I'm so sorry you are here too. I gave a lot of thought to what I'd do if my tests came back positive, but I'm a lot older than you, so no advice from me other than to say you might want to consult a genetic counselor if you haven't done so already. They can explain a lot of things to you, things you need to know and things your surgeons probably don't think about telling you.

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  • Radical2Squared
    Radical2Squared Member Posts: 460
    edited November 2014

    I mommy,

    I am 36 and BRCA1 pos. My bs and geneticist both agree that I need to have my ovaries out, but they said any time before age 40 is fine. You may want to look for a second opinion or just make an informed choice NOT to do it yet even though your doc said to.

    I second FORCE being a great resource!

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  • Nara19
    Nara19 Member Posts: 17
    edited November 2014

    Thank you for your information. I just noticed that you and I have the same DX AND TREATMENT.

    Do you know if it is still possible to have children after our kind of treatment ?

    Thank you so much

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