Can we have a forum for "older" people with bc?

17457467487507511404

Comments

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2014

    Forgot to mention -- I had lumpectomy, 6 mos. of chemo once every three weeks -- A/C first, then Taxotere, then 7 full weeks of external rads.  After that, 5 yrs. of Arimidex.  Some was fairly bumpy and some was ok. The chemo was of course the most difficult.  I really thought I could not handle it and a couple of times and started to dread it, but somehow that lightened up and I went the rest of the way w/o the dire feelings.  Was very proud of myself for getting through it all.  You I hope will be proud too when you see just what you are able to do.

    Jackie

  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014

    Thank you Jackie for your kind words and for welcoming me.  I've read a lot of the posts on this thread and loved the humor and positive energy reflected in everyone's posts.

    When I was first diagnosed 23 years ago, I was asked to join support groups and opted out.  I thought I would be so over-empathetic with everyone else's cancer that I wouldn't stop thinking about it.

    It's different now and I'm older. My heart is much more charitable.

    Thanks again for your warm welcome. I feel very comfortable being here.

    Catherine aka nancydrew :)

  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014

    Thank you for welcoming me, Blondie.  I'm realizing that there's no rhyme nor reason why this happens to us and it's best to go along and do what we have to do.  One step at a time.  Tomorrow night this time, I will be done with the Biopsy and snoogied up with my three small dogs and two cats.  And, oh yeah, my dear husband, too.  :)

    Thank you.

    Catherine

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited November 2014
  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014

    Hugs back to you, Blondie. You're an inspiration.

    Love,

    Catherine

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited November 2014

    Thanks catherine i dont think so, mine was 1996 >2009 14 years n it ha been almost 5 years, although i took myself off of chemo in july.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2014

    Blondie you are an inspiration though you might think not.  You are doing what is right for you and smiling and laughing with all of us no matter how rocky your road.  I wouldn't tell stories about important things and I wouldn't say things I didn't mean ( well maybe if I really was joking )  and I'm here to say that you bring something special to our little group of older ladies -- your a treasure and it was our lucky day when you chose to come be a part of this group and us. 

    Now, I have to go get something to eat.....doing everything backward tonight -- was doing a lot of work in the house, dirty and didn't want to eat that way to I took my shower, jumped into clean pj's and now I'll have a nibble. 

    Blessings

    Jackie

    p.s. Catherine -- Sunday evenings could be quiet -- there should be more ladies turning up tomorrow to say hi and welcome you. 


     

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Sandra, yes, Avatar and Franklin!

    Anne, pleased that brother is doing OK.

    Jackie, I wish all feral cats could be neutered or spayed.

    Catherine, try to have a restful night then tomorrow good results from Biopsy!

    Time to recline and watch the new 2 hour *Finding Bigfoot* show!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited November 2014

    Welcome NancyDrew,

    Those were my favorite books as a young girl, by the way, so I love your name. One summer when I was about 11, I met a lady who had an original complete set of the Nancy Drew series. She let me borrow one at a time and I spent the whole summer in Nancy-land. That was 54 years ago and I still remember how magical it was. (sigh)

    We are glad you are here with us. We treasure every single one of our members. I often describe this thread as my dessert. It's almost delicious to come here and visit with my friends. By the way, stressed spelled backwards is desserts. Smile

  • Wren44
    Wren44 Member Posts: 8,585
    edited November 2014

    Welcome Nancy Drew. It's quite possible you might not need chemo. If it is small and low grade, they may not need to get out the big guns. I had a mx and anastrasole, no chemo or rads. In any case, the biopsy will tell and you'll soon know your path. Just knowing what's next makes it a little easier. With eating right and exercising, you're probably very healthy which gives you a head start. We'll be with you in spirit tomorrow.

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    Welcome Catherine: so sorry you find yourself having to fight this battle again. I think you'll find the doctors have a lot more tools at their disposal now than they did 23 years ago. Prayers for your biopsy tomorrow. I was diagnosed this spring at the age of 62, 5 weeks after a rotator cuff repair - almost couldn't do the mammogram because I couldn't position my arm but had a patient technician who worked with me. I had a lumpectomy, my sentinel nodes were clear. My tumor was sent for oncotyping to see how effective chemo would be for me. My score came back high enough to warrant chemo, which I had July, August & Sept - there are very effective drugs given prior to chemo, I had no trouble with nausea or vomiting. Had some side effects that were manageable, main problem was tiredness and weakness. I've now finished radiation and tomorrow I start 5 years of Arimidex as my cancer was estrogen +.

    If you have the ability to record with your smart phone or an iPod, I highly recommend recording your sessions with your surgeon and your oncology team. My 3 docs have all been agreeable with my recording, and it's been very helpful to listen to the tapes again after I get home, they cover so much it makes my head spin.

  • Joan811
    Joan811 Member Posts: 2,672
    edited November 2014


    Hi forum friends,
    I have been away for a week with no computer and really busy with grandkids...
    I had my phone but it is hard to read much on that little screen.
    Just saying hi - I have about 4 pages to read back but tomorrow is my busiest day at work.
    I was at Disney with DD#3 and my 2 granddaughters (3 and 7) - it was the  7 year old's birthday.  She met 12 friends there and I went along for the nice weather, great hotel, and to help her with anything.  Turned out I had a great time and they "fast-passed" me in sync so I could join them on the shows and rides.  I made it to Space Mountain and a few other coasters with the kids. 
    I got home Wednesday and went right to work from the airport...then Friday DH and I drove to Washington DC to visit DD#1 and my 2 grandsons (5 and 9).  Just got in tonight after 6 hours of driving.  Whew! 
    I had two espressos on the way home so cannot sleep...but will try to catch a few hours now.
    Anyway, I look forward to catching up with everyone here.
    It was very cool in Florida until our last day.  It really feels like fall in NY.
    Holiday plans are shaping up...but I am still resisting the music and décor in the stores since October.
    Back soon,

    Joan

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited November 2014

    Joan  u r the best, dw pix plz..

    Jackie, if u say so

    Hey puff, how r u feeling

    I never got the ocono type either time, and sfter lumpectomy the 1st time, it only was positive  in1 out of 14, then 14 years later it showed up on the chest wall same side n nodules in the lung n the lining of the lungs.  

    Hey happy Monday 


  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014

    Thank you to each and every one of you for your encouragement and support. It means so much to me. I'm so fortunate to have found you.

    My best friend, Mary, picks me up at 10 for an 11:30 procedure.  It takes time to get to anywhere from where we live.  Gen, the Breast Navigator, told me to take 1/2 an Ativan when I leave home and another one when I get there. Apart from the sting of the needle to anesthetize, the rest should be uneventful.

    I'm so ashamed to be such a coward compared to what you all have endured.  I'll get better at it, I know.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Nancy! You are not a coward....! Nope, we are all scared to pieces when this happens. I had the MammoSite device...

    http://www.mammosite.com/breast-lumpectomy/view-a-...

    This worked for me, but it depends on where your cancer is, and how close to the chest wall... So it just depends on a lot of things, but ask your surgeon about it! This form or radiation only takes about a week.... twice a day. I did not have chemo either.... My Onco score was 19... "a low intermediate" but I was more afraid of chemo, than I was the type of cancer I had removed.

    But at my age, if I had to do it all over again, I'm thinking I would just have them removed... That way you don't need either radiation or chemo. Am I right girls?

    Everything also has to be considered after your surgery, about how many nodes, etc. were involved...And the Grade and Stage, etc.

    Wasn't Nancy Drew an Author? Or where do I know that name from.... At MY age, I've likely heard of EVERYthing, somewhere, Ha!

    Thinking of you! Let us know....!

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Also, you have all these cords, tubes hanging out of you for about a week... You have to go a few times to get it adjusted, filled, and when it is in the right place, THEN they can start your treatment...

    And they would give you Anti-biotics because your body does not take kindly to these new "things" hanging out of your body... But that's minor. Then when they "remove" it.... "easily".... I say 'HAH! Man that hurt! It was like yanking out a garden hose ! But it only lasted for a second... And after you catch your breath, and get up off the floor, you are DONE! But yes, I would do it all over again.... so ask about it.....

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    Visited my Dad near Minneapolis this weekend and we made a big turkey dinner (I'll be going to Lew's family for Thanksgiving). Met Granddaughter and 2 year old gt granddaughter at Perkins. I'd taken one of those books with the perforated pictures to lift up to see the animals on the farm - big hit, kept the little one busy the whole hour. Everyone going by the table commented on how charming she was.

    Minneapolis is supposed to get around 9" of snow today and tomorrow so we timed the trip perfectly.

  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014

    Nancydrew was the name of a series of mystery books designed for 10-13 year old girls to read back in the 50/60's. They were wonderful and if anyone kept theirs they would cost a fortune on eBay. I think the boy's version were called the Hardy boys.

    Chevyboy this growth showed up on the mammogram in the same breast that had a lumpectomy with radiation 23 years ago. It was my 23rd annual screening.  It's on the side of the scar and the surgeon said small and he is certain as is the radiologist that it's a primary.

    The skin on this radiated breast is very thick, so that frightens me about inserting the needle. The reason I questioned about "internal" radiation is because I read that they could do that on an already radiated breast.  I don't know, I'll have to wait and see.

    But, in thinking through all this, if it is a primary, and the way I feel (victimized) I will have both breasts removed. At age 70 it is not an issue for me and not for my husband as well. 

    Most of the accounts I've read on these threads leads me to think, that while uncomfortable, it is manageable.  The hanging bags are a nuisance, but you know they're temporary.

    My mind is whirling around hitting a thousand different targets.  Someone wake me up, it's a bad dream.

    Catherine

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Busy day, Husband and I heading out for 6-month PCP visit and flu shot.

    image

  • Teacher64
    Teacher64 Member Posts: 840
    edited November 2014

    Nancy - there is no rhyme or reason to what you area experiencing now, but we will be here for you. Enjoy your snuggle time with your dogs and cats. My dog just left my lap for a sunbeam

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2014

    Most of our possessions arrive in our lives almost by accident.  Gradually, like falling snow, they accumulate around us until they form the basis for our identity.  We do not intend for this to happen.  Most things we acquire are meant to increase our happiness and sense of fulfillment.  But their uniqueness is quickly subsumed into the ordinariness of daily affairs.  We wake up one day and find ourselves surrounded by possessions that mean nothing to us.  Our freedom is gone; our lightness of being is gone.  In their place is a sense of responsibility and ownership.  We have become curators of our own cluttered reality.
     
    Kent Nerburn

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2014

    Good Morning everyone,

    We are bracing for cold here.  The few leaves still on the trees will likely be making a fast exit.  It won't arrive fully until tomorrow, but it is causing that "feeling of change" that gets stirred up inside when a major difference in things is about to happen.

    Joan, sounds like you had such a delightful time.  As I recall ( my recall as you all know is almost non-existent ) you thought you'd pretty much be a third wheel, but seems to have worked out just fine.  I do know sometimes ( how many times can you do it though since you never know when it will actually work out that way ) when we are able to have no expectations one way or the other -- and just go with the flow -- actually be the will 'o' the wisp, almost magical things seem to occur and life falls into a fantastic place -- one we almost would have never hoped for. 

    Puff -- how great to "beat" the weather system and have a grand 'early' Thanksgiving.  In my book, the only thing better than Thanksgiving is getting to have a second one.  That way, the pie you didn't have for the first one -- you can make for the second.  Last yr. for the first time I had Cranberry pie and it was just scrumptious.  I hope to learn how to make it.  Also, I think you can make a cheesecake layer on your pumpkin pie ( have to google that ) to give some of the old favorites a boost.  Glad you beat that nasty old weather and had a good time.

    Chevy -- what can you say -- I'm so glad you had that Mammosite so that yo9u can share with others about how they work.  We have come a long way in 23 years and hopefully newer things yet will be turning up soon.  I can't imagine looking back to here in 23 yrs. and maybe thinking -- wow, we were just a little backward, weren't we. 

    Teka -- hope all goes well for you on your Dr. visit today.  Also good you are getting a flu shot.  I think the winter this yr. may be rough.  I usually just get one every other yr. but maybe will get myself into the Mt. Vernon office of the V.A. and do it again this yr.  I think you have more coverage over-all when you don't skip. 

    Catherine -- you ( as Chevy put it so well ) are not a coward -- you are just terrifically apprehensive.  Big difference!!!! I think most of us ( were we in your shoes ) would pretty much feel just the same.  After 23 yrs. getting a new primary is just a real blow and I would think  that nearly anyone would be feeling so many different emotions  -- contributing to your feeling some inability to feel any sense at the moment of stability. 

    You will know more I think after this biopsy and you will hopefully be able to fully discuss any fears, upsets, diagnostic information, tx. options and begin to get the feeling that you are in charge, your abilities are great, and you can deal with this easier than it feels right now. 

    I'll see you all later on.  Hope you are going to have a marvelous day -- bring on the sun.

    Blessings

    Jackie

     

     

      

  • MomMom
    MomMom Member Posts: 523
    edited November 2014

    Catherine, Welcome!  You are in my thoughts and hoping that the biopsy goes well.  Your treatment can vary widely depending on so many factors, eg, type of cancer, staging, etc.  I went through 5 months of chemo at age 67, followed by 7 weeks of radiation.  All of this was very doable for me, for which I am grateful.  I exercised every day through treatment.  There were some side effects that were not debilitating, more annoyances.  You can see there are many of us on this thread who did OK with chemo. 

    Catherine, was a huge Nancy Drew fan when I was a kid.  Loved, loved those books! 

    Sandra,  I know what you mean about having a lessened desire to read.  I've been an avid reader all my life and have belonged to a book club for many years.  (It's a pretty "serious" group - some of those selections I would never have read on my own, but being in a club kind of "forces" you to read more.  However, my non-book club reading has really slacked off in the last 3-4 years, so I can definitely NOT blame it on the bc.  In order for me to rip through a book with great joy, it has to be extremely appealing to me.  The last example of that was "Goldfinch" by Donna Tartt. 

    By the way, if anyone on this thread has experience with continuing clogged tear ducts and extremely watering eyes, I would love to know how you dealt with it.  That was a parting gift from Taxol:-). 

    Paula


     

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited November 2014

    Morning all-

    Welcome Catherine. I was and am an avid reader from as far back as I can remember- and I remember many happy hours reading both Nancy Drew and the Hardy Boys. Also the Cherry Ames nursing series.

    I am glad you will not be reading this until after your biopsy, because that was the most painful procedure I have ever been through. Good luck, and I hope your pathology requires minimum treatment.

    Chevy, just want to let you know I had a dbl mastectomy with chemo before the surgery, so I was officially cancer-free by the time of surgery, but had 33 radiation treatments as follow-up. The treatment just depends on so many different factors. I also chose not to have any reconstruction.

    My cousin's daughter, with the pancreatic cancer has been sent home, with a follow-up appt with an Onc later this week, and my brother, though still in the hospital, is doing well. Because he is 70, and has had both knees replaced, they want to do some physical therapy with him before he leaves.

    My daughter took me and her son to "The Melting Pot" for dinner last night as a celebration of our birthdays. For those who may not have heard of them, they are a fondue restaurant. It was very good. Dougie enjoyed "cooking" his meat, but didn't like the cheese appetizer. He ate the bread, veggies and apples without coating them with cheese, and did the same with dessert- ate the fruits, cakes, brownies, etc without dipping them in chocolate. I thought it was all delicious.

    Have a great Mon, everyone and Catherine- we are all waiting to hear how your biopsy went

    Anne

  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014

    Hi everyone, my Biopsy was uneventful - no pain. None what so ever. I hardly even felt the novacaine needle. But this is what's bothering me about today.  Last Wednesday when I walked out of mammography and ultra sound it was confirmed that there was a growth close to the scar - a small one - and was confirmed by the radiologist, the surgeon and the Cancer Breast navigator to be a primary.

    Today, when another radiologist came in - a female readiologist, very professional and friendly and explained the processes but said she was going to take samples from two different sites. 

    She explained and drew a picture of original scar and what it looks like on the ultra sound. The scar has a little but of a fuzz on top.  The small tumor, a couple of centimeters away also has a little bit of fuzz on it. I expressed my concern and asked if this then is a spread.  Why didn't the other two doctors notice this.  She said something, I said something and she finally said, she just take samples of the tumor itself.

    No now my mind is everywhere.  I have a call into the BC Navigator to explain things to me.

    Once again terrified. 

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited November 2014

    Nancy/Catherine -- take slow deep breaths.  No two Dr.'s see things the same way.    I have never heard anyone ( I have to say though that I don't visit other threads and forums but on rare occasion )  refer to fuzz on top of anything having to do with biopsies and or tumor etc. 

    Hopefully, your Navigator can clear this up.  I'm sure there is a very reasonable and non-threatening explanation for this "new difference" and that nothing much will have actually changed but maybe "descriptive terms " used for your condition.  It would be nice if Dr.'s would or could find  ways of talking to you by pretty much the same 'terms' all the time -- but they seem to develop a style of speaking which is comfortable for them -- no matter how much it might frighten you. 

    Just know that you are not alone, and that though I know it is one of the hardest things you can do -- do your best to do as little worrying and fretting as possible till you are completely clear about what you are actually fretting about, if anything.    I guess that used to be said as -- " Don't put the cart before the horse " and I do know that for almost all of us -- anything that has much of anything to do with cancer is rather terrifying.  Just breathe, go to an island of peace where calm relaxation soothes your concerns and know that the Universe loves and cares for you along with all of us. 

    Jackie

  • SallyS70
    SallyS70 Member Posts: 947
    edited November 2014

    Anne


    Anne, I also liked the Cherry Ames nursing series. Trouble with iPad ... Bbl

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited November 2014

    Catherine, glad you had no pain with your biopsy, hope the results come back quickly and that a plan is developed for you. It's all so much easier once you have "The Plan"

    I too was an avid reader of the Nancy Drew, Hardy Boys and Cherry Ames series. I remember trying to read in the in the bathroom after I was supposed to be in bed, and while trying to slip a night-light into the socket to read by, my fingernails went into the socket and I got a shock instead. My yelping gave me away and I had to go back to bed.


  • nancydrew8
    nancydrew8 Member Posts: 55
    edited November 2014


    I smiled reading your post, Puffin, as I used to read mine under the blanket with a flashlight. As if no one would notice walking by my bedroom. We were always supposed to be in bed by 9 PM regardless of the time of the year. Summer made sneaking reading easier.

    Now kids have hand-held gizmos surfing the web.

    Catherine

  • Wren44
    Wren44 Member Posts: 8,585
    edited November 2014

    I loved Cherry Ames too. My clock had a night light. I could read by it if it was all the way down to the page.

    Puffin, I loved the picture in my mind of that incident.

Categories