Radiation with tissue expander
Comments
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karen1959 = Thank you!
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Hello Carolyn2008,
I saw your post from December 2009 on the TE with rads thread. I am new to the discussion boards, just found them several days ago. They are so so helpful.
I have a question- how did you do with the TE after you finished the radiation? Did you feel any tightness on that side? Did you feel any pulling of the radiated breast upwards?
I feel a tightening of the pectoralis muscle tendon. The tendon where the pec muscle attaches to the humerus has become tighter, and is bothering me somewhat all the time. Did you experience this?
I was diagnosed with DCIS 12/09, had bilat Mx with TE 1/20/10. Then found out i needed rads, finished rads 4/12/10, so almost 3 months ago.
Thank you fo ryour time.
Donna
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Trytostaypositive: I would be happy to answer your question - Yes, the muscles do tighten. It is very normal. Especially after the exchange surgery. You may see that the radiated side is a little higher and the implant is not as soft because the muscle tightens around it. The pain does not last forever. You get used to it and I have been doing important stretching exercises. They help alot and I plan on trying some Yoga to loosen up that muscle and all those around it (and for the rest of my body too!).
Good luck with everything and if you have more questions...ask away! this site was a HUGE help to me and i could not have felt as positive if I did not have these girls helping me through it all.
Kerry
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Kerry,
Thank you for the info. What type of stretching exercises do you do ?
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Hello trytostaypositive sorry i have not been on line for quite some time now but I would be more then happy to answer your post I have had some tightening of the muscle as well it will loosen over time i have been going to physio and feel this is really helping with the tightness and also lots of massages and stretching the stretches i do are from my physio and i use a band. feel free to pm me any time and i could scan you my sheet from physio if you would like.
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I had a bilteral mastectemy in May 2010, post chemo, and radiation began the end of July. I also had radiation with tissue espanders. I had complications, major swelling (500cc of fluid drained from right breast) and then developed a staph bacteria infection, which after two rounds of anti-biotics is still an issue. Don't know if radiation was the cause but I was fine the two months prior to radiation. I was in so much pain that I did not finish radiation. If my infection and swelling don;t go away my expanders will have to be removed
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I am so sorry churley that you are going through this I really don't know much about the infections but i did see something posted on the org talking about it I will have a look around for you and if i see anything i will let you know take care
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My surg onc said, gray area, chemo and ps said didn't need, or at least if they were me, they wouldn't. Rad onc, I don't trust her. My first meeting she tried to convince me to do lumpectomy instead of bilateral mx. I have just called to get a second opinion from a rad onc. But for some reason, I have to wait for the original to give me her advice. My docs were a team but apparently are not talking to each other. I can not get a straight answer from the rad onc. I was told I am running out of time to make my decision, which is weighing heavy. I want to do what is best, but I have no idea what is. I have TE right now. One lymph node positive, clean margins. I am also having problems with lympheda now. This should not be this hard.
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LADIES.... I have posted the rest of my pictures on the picture forum...... I keep this part of my life PRIVATE.. and do NOT talk about it here.... but you can look at pictures there.... it is PRIVATE
Rads girls..... my thread is a good thread for you to look through.....I am in the WELL BURNT area......
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Hi Spunky,
Did you have any surgery after the RAD's? If so how is the skin healing?
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anyone still talking about this ??? I have the same question but all the posts I'm finding are many years old. Would love to get recent feedback. Thank
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it's been many years...but I am happy to answer any questions I can. I had radiation with tissue expanders in 2009 and exchange surgery in 2010. All went great. I'll answer whatever I can. Good luck
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thank you so much for your reply
I have to have a double mastectomy and would prefer to have a skin sparing type with tissue expanders but am really scared to have radiation with them in. I have heard that as your skin and tissue tightens with the radiation that the expanders become very painful. Also, my doctors said I would have to keep them in place for at least 8 months following radiation prior to reconstructive surgery. Are they tolerable enough that women keep the in that long ? And could you sleep on your sides at night? Thank you for any help you can give me.
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The pain was tolerable. It was not bad at all and yes I was able to sleep on my side. I also waited more than 6 months for the exchange. Of course the implants are way more comfortable than the expanders but it was all o
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good to hear that it is tolerable. I am having so much anxiety over this that I really appreciate hearing encouraging words. Also that you could sleep on your affected side. I worry about quality of sleep over that period of waiting after radiation. Part of your last message cut off. Are you happy with your results? Any capsular contracture or ongoing tightness? Again thank you for sharing your experienc
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InGodshands - be sure to check out fat grafting before having your exchange surgery. It does wonders to help improve the integrity of your skin after rads. Many of us here have had fewer difficulties after rads, if we have the fat grafting either prior to exchange or at time of exchange to permanent implants.
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thank you for the advice, I appreciate it. How long did you guys have between surgery (placement of tissue expanders) and starting radiation? Any trouble getting your arm above your head for positioning purposes because of pain with the expanders?
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Great thread. I have had TEs since BMX Jan 29, 2014. Chemo April til end of August and #6 rads tomorrow. Been a lot longer journey than what I had expected. Damn lymph node!
It will be Juneor July before I exchange. Having the turtle shells for 9 months I can tell you all it does get better.
No pain, really used to how they look with clothes and hoping the implants are similar. Really, really miss the feeling of real breasts, though.
My PS would have preferred second stage before rads but my Mo disagreed and we all agreed in advance that what he said we would do. I can't feel any issues with the expanders yet with rads .. I will keep you informed, though.
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mmtagirl
Great to hear, thank you. Please do keep me posted on how it's going. The support on this board is so wonderful. Good luck on rads. At least your a week in. I look forward to getting that behind me too
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