INSOMNIACS place to talk in the wee hours

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2014


    Rose, while on any medications that increase blood sugar, the best practice is to check HBA1c, every three months. If a patient has no issues a HBA1c should be checked once a year with the yearly labs.

    Usually yearly labs are CBC, CMET(CNP), TSH,FreeT4 &FreeT3, B12, Folate, Iron panel. urinalysis. Tumor markers. HBA1c, Vita D (see next paragraph), Plan other test in the same way. This Jan I need an update Echo, carotid Doppler, Ekg. Ultrasound for the next. Will determine if I need any other diagnostics and I will get them scheduled. I,e Cat scan(last done 1 1/2 years ago, Last liver MRI> 1year ago. for brain too. Lock down when next colonoscopy is scheduled.

    I have a urine test for cytology once a year to check for bladder cancer BECAUSE the chemo  & RAI 131 have predispose me to bladder cancer.. You that have had chemo consider asking for a "urine for cytology"

    Consider a hemacult once a year also. That tests the stool.

    I'm trying to coordinate that all these test are done in Jan. Reason: If something is abnormal, then It's at the beginning of the year and new deductibles. AND I' fresh to start to attack whomever to fix things.

    It's all done at once, not piecemeal. Easy to sit and determine how the whole bodies doing at ONE time.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2014

    Chevy I did do that LOL years ago. The Mods even pinned it. Please, try reading it when you can. :) The name of it is JUST DIAGNOSED-GET PREPARED

    https://community.breastcancer.org/forum/5/topic/748296?page=1

    Chevy I did a Constipation thread and Jill Thut did a Rectal issue thread.The link to Jill's thread is in the Constipations topic box.  Please, read from the beginning. There's also the appropriate joke. Couldn't resist. Can't be talking about poop all the time and not pun
    CONSTIPATION

    https://community.breastcancer.org/forum/6/topic/781867?page=1

     

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2014

    Chevy, that's really hot what ever kind of guy he is --yummy. My DBF looks like the dirt part. He's always covered in DIRT. Cleans up well, but he is a STICK. But I love my STICKMAN hmmmmmmmm.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2014

    mom that shows on my labs, blood for tumor markers

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2014


    Tang, Tell your doc b/c your body responds so differently to medications, you would like your genetics done. They would include in a package deal 2D6, 2c9, 2c19,3a4,3a5 and VROKC1. On life time test. It will make all future drug choice safer.

    My 2's are normal. My 3's and VROK1c are all abnormal. 50% of all drugs go through the three's. Coumadin is specific to VROK!c

    Check out Genelex website and even give them a call. They will help :) 1-800-test-dna.

    Tang very healthy to take a break , please, just let us know. Except for the ban, I have multiple times taken a break over the years. A great time to take a break is over the holidays :)

    Tang, I have a bias against the ovaries in ER+ bc. This is based on Evidenced Based Research. Unless another child is planned, I think they should come out. For Me, when my twin sister was dx'd with ER+ BC in 1996. I had the works out. Had her do it too.It wasn't recommended treatment at the time, but I new the treatment of tamox and evista wasn't absolute. HINT: Remember your doc saying she didn't know everything. SO, out ovaries, tubes, ute. NEVER regretted it. One less thing to worry about

    2008, I was in the pipeline for bilateral prohpy, Mammo was NED, doc lied to get the MRI approved--said he felt something Nada---bingo moon and it's ring on MRI.  Lot's of story after that. But the bottom line, I got them off. The CA was very very very aggressive, Onco 30. Then b/c of my genetic abnormal 3's not being known yet, I was given a relative overdoes, Then the hopitalist put me into renal failure and the chemo couldn't be peed out.  Overdosed + circulating for longer than it should have, I believe had a part in killing my aggressive BC. In this case a wrong did make a right. YAY

    MY being proactive, plus the screw ups saved my life YAY.  Isn't that a story The bad part is the nurses didn't check urine output. I was in retention b/c of the pain med. The chemo stayed too long in the bladder. That's why I have to have urine cytology once a year. High risk for bladder CA.

    Tang very healthy to take a break , please, just let us know. Except for the ban, I have multiple times taken a break over the years. A great time to take a break is over the holidays :) Many do. Then pop in over the holidays of T-Day and XMAS with a holiday message :)

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2014

    Mommy, Spookie's right

    Dutchy YAY and POOP. I get what you mean :)

  • dutchiris
    dutchiris Member Posts: 855
    edited November 2014

    Ya, I hate a fuss being made over me but I guess denying I have pain is not in my best interest. My labs are all normal.

    Tang, taking a break is what you need.  I hope you can find other thing to occupy your mind.

    Sas, you write volumes.  You have a wealth of knowledge.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited November 2014

    Thanks guys. Now that I know what that is, I won't be freaking out that something is wrong.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2014

    DUTCHY,you should be with me after the second glass of wine - motor mouth versus second toke if mj. Quiet as a mouse  ;)

  • dutchiris
    dutchiris Member Posts: 855
    edited November 2014

    I don't do either but I can spew forth a lot of nervous chatter.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2014

    Spookie..... this is for you, dear one.....

    https://www.youtube.com/watch?v=M8AeV8Jbx6M

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Chevy, no better song!

  • Teka
    Teka Member Posts: 10,052
    edited November 2014
  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited November 2014

    That cartoon is wonderful! What a hoot.

    Sassy- I will muster up the gumption to "ask" for labs.... got to tell you that my track record for getting anyone with an MD after their name to run anything is nearly zero. I know what they should run. I get the absolute BARE MINIMUM of anything. Half assed, or not at all. They know I used to be a nurse and if I dare request anything - the eyebrows go up, the silence echos and any answers I want about things disappear. This happens NO MATTER WHO I see. Onc.PCP cardiologist any MD. I have learned just to accept what ever I do get offered is all they will do, so shush. I was actually surprised PCP ran the UA. I know the PCP did a C&S with the last UA and no idea if they ran one this time. I just accept what I get. Don't bother asking for more, so I don't ask.

    My oncologist refused to do tumor markers. I had to ask for them. He would do a CBC and a CMP and that's it. I asked and he said that was enough. I asked about the A1C when I took afinitor, shot down. No. Then I quit taking the afinitor against his advice because of edema and heart effects. So out of the blue he does the markers for ovarian cancer and they come back at 100. No comment, his assistant just handed me my labs. No tests, see you in 6 weeks. Makes me mad. Like fine- see if I let you take any labs then. If I get nothing, then you can get nothing. I can live with uncertainty I have had to for 8 years!! I am a champ at living with zero information, side effects, infections and weird unexplained crap. Or the flip side explanations that are so insane that you throw in the towel and refuse explanations so perverse. I should stop bitching because it does me no good. Let nature run its course, except for treating pain and UTI's.

    I wish my body had a built in "Turkey Done Button" so if the UTI comes back we get a little "check engine light" That would be nice and convenient.

    Got some great pictures of egrets this morning! Lovely graceful birds. Stayed in the 60s all day!

  • Teka
    Teka Member Posts: 10,052
    edited November 2014
    Foots, feeling better from cold?
  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    I was in the clinic, have chronic broncitis

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    I was right, cold and bronchitis season!

    Hope you're feeling better.

    Hows Faith?

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Mom had chronic bronchitis.

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    She is doing better and loved all the nurses there.

    Thanks for caring, I don't like predisone I grain weight

    on it

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Faith must be a sweetie pie.

    How long on predisone?

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    They also told me to call my sleep to about not using my

    sleep machine cause it blows everything to my lungs. plus

    wake up. Life is good

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    till I see my other Dr a week

    so I will gain weight

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Never thought of that happening!

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Maybe, rest better tonight!

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    I will awake a lot, How are You doing my friend

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    OK, so far no sickness that's making the rounds. I got the Fall outdoor clean-up done before the weather turned nasty. I'm now planning Thanksgiving dinner menu.

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    That will be wonderful Thankgiving , I have not had family

    ( My 2 brother) since my parents passed, So I go to Dennys

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    If we were neighbors, I would join You and Faith at Dennys!

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited November 2014

    I would love that, I pray it not raining hard. Are you

    having any big  Thankgiving?

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Husband and I are having, Son, Daughter and BF, for Thanksgiving dinner on the 23rd then Daughter having Thanksgiving dinner on the 27th with BF and Family.

    I'm hoping to eat out with Husband and Son on Thanksgiving the 27th!

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