Experience with Ixempra?

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JTilCT
JTilCT Member Posts: 32
edited December 2014 in Chemotherapy - Before, During, and After

Anybody have any experience with Ixempra?  I did it on Oct. 22 and it has kicked my ass!  I'm used to feeling bad for 2-3 days max after chemo and/or Neulasta but this sh** has had me in bed with muscle and bone pain every day since.  And I'm so tired this time!  I cannot live my life like this- I even turned down an invitation to my favorite restaurant because I felt so bad.  Next treatment Nov. 12.  Any hope for improvement?

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  • bestock
    bestock Member Posts: 322
    edited November 2014

    I am on ixelmpra. I have the same side effects as you severe fatigue constipation,..1st time, second round not not too bad... no appetite  bone pain not too bad (I do claritin with neulasta)  I think it  will improve I know of a few people who do okay with this chemo, my chemo was yesterday, I wil pray for you wednesday

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  • JTilCT
    JTilCT Member Posts: 32
    edited November 2014

    Thank you, bestock, I tried the Claritin in the past and it didn't seem to work but I will give it a try again.  I'm willing to try (almost) anything.  I called the Dr. and all they offered was Vicodin, which does not work for my job and lifestyle.  I thank you for your prayers, praying for you as well.

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  • bestock
    bestock Member Posts: 322
    edited November 2014

    I am going t take some iboprophen, ..got neulasta at 11 am... it is 5 pm now...I do not have any vicodin. I just Hurt (even with claritin)


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  • bestock
    bestock Member Posts: 322
    edited November 2014

    my tumor markers went up 50 points after one chemo anyone else with this problem with Ixempra, with so many ses I would think it would be going down.....I have to get another scan before we continue. Oh i have have 100 ???small liver mets.. Please any advise is welcome.


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  • lilylady
    lilylady Member Posts: 1,079
    edited November 2014

    Anybody else doing the Ixempra? Sure doesn't seem to be much info on the boards about this. I get my 3rd one next Tuesday. I haven't had any real issues yet other than taste buds and acid reflux. Sometimes it seems like it is later on that the SEs start to pile up. I did lose my hair after the first tx but it is coming back in-but itnot fast enough for it to be any help for keeping warn this winter. I have never had that happen before-this is my fourth time to go bald and it usually didn't start growing til I had moved on to another drug.

    I will be scanning later in the  month to see if it is working.

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  • bestock
    bestock Member Posts: 322
    edited December 2014

    Hi Lilylady, I have been on Ixempra for 3 dosages, yesterday was my 3rd....I have not been feeling good very often, first time had constipation, and nausea, a lot of abdominal pain two cycles that lasted most of the time.I have very little hair, it is quite thin, I have been bald about 3 yrs in my life so I should be okay with it..... I had rising tumor markers after one session then scan showed Ixempra is doing something..so I am grateful I can endure I it keeps reducing my mets in the liver....

    .the very worst for me is fatique, I get extremely tired (I am 64 and used to exercise a lot but too tired) tomorrow i get neulasta that adds to the pain but very temporary....I just trust the Lord He is always faithful.

    becky

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  • lilylady
    lilylady Member Posts: 1,079
    edited December 2014

    Betock,

      I am sorry you are having such a hard time with this. I am finding it pretty tolerable compared to the one I just came off of. Glad to hear it is working for you.I will find out later this week. I am scanning Thursday.

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  • bestock
    bestock Member Posts: 322
    edited December 2014

    lily lady


    I guess everyone has different side effects, What durg were you on before ixempra

    the worse se is Fatigue, and bad constipation. and abdominal pain.now it has been 15 days since the last dose, I feel better daily..

    . I will keep you in prayer , I go for scan on dec 22 PET, my tumor marker has been going up how is yours??

    becky

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  • lilylady
    lilylady Member Posts: 1,079
    edited December 2014

    I got a PET scan on Dec 18-mixed results. Some bigger, some smaller some the same. In the old days we would have moved on but since I am about out of drugs we will stay the course for 3 more months. My tumor markers are totally unresponsive-they never really move much from being full of cancer to hardly any. I wish they would work-that way we would be able to check in between scans. I get the brain MRI Jan 5-more worried about that.

     How did your scan work out?

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  • bestock
    bestock Member Posts: 322
    edited December 2014

    LILYLADYI will get results on tues 30?? I hope all is stable but do not know??????????

    . I am trusting The Lord, Who IS in control. I have not had a brain MRI for 2 yrs, I hope that is okay.I will pray for yours

    Since you are HER2+ are there any drugs that work specificaly for that ..I am that too, I want to get into Stanford Immunotherapy clinical trial. if I am healthy enough it is for specific her2 +

    becky

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  • lilylady
    lilylady Member Posts: 1,079
    edited December 2014

    There are lots of drugs for Her2+-we are lucky in that. WE had 2 new drugs in the last couple of years-Perjeta and Kadcyla. I have already done both of those. I got almost a year out of the Perjeta. I had to stop the Kadcyla because the SEs were so harsh.

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