What is false negative rate of bone scan

Options
Cookies
Cookies Member Posts: 41
edited November 2014 in Not Diagnosed With a Recurrence or Metastases but Concerned

Hi - I am 41 and was misdiagnosed 3 with metaplastic spindel cell BC.   I has been having bone pain in my shoulders and upper arm and both wrists for 3 weeks - it is at night and feels stiff or achy.  I had a bone scan that was read as negative and my alk phos is normal.  - can the bone scan be wrong - what's the false negative rate?  Should I request a whole body pet/CT? 

· Share on FacebookShare on Twitter

Comments

  • bevin
    bevin Member Posts: 1,902
    edited November 2014

    Hi I dont have any experience with what you are going through but I know others will be along soon to give input. I hope you are holding up okau

    · Share on FacebookShare on Twitter
  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited November 2014

    I'm told the bone scan is very sensitive.  I had one recently (stabbing pain in my hips when standing) and, while it thankfully showed no mets, it did show arthritis basically everywhere that did not hurt.  Was your scan also negative for arthritis?  At any rate, as my hips showed up squeaky clean, they referred me to PT, which determined that my problem was plain old everyday bursitis.  After a couple of weeks, my pain went away and all was fine.

    In other words, have you grilled your onc and/or pcp about arthritis and bursitis and tendonitis and any other stuff I haven't thought of? 

    · Share on FacebookShare on Twitter
  • Cookies
    Cookies Member Posts: 41
    edited November 2014

    I haven't asked -, thank you

    · Share on FacebookShare on Twitter
  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited November 2014

    Remember when a pain was just a pain? Those were the good old days.

    · Share on FacebookShare on Twitter

Categories