Starting Chemo in April 2014

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  • clarrn
    clarrn Member Posts: 557
    edited November 2014

    Stay warm Sharon! !

    Today I saw my oncologist and pointed out a new lump in my armpit.  Thought he would say it was nothing to worry about, but he said it needs to have an ultrasound and possible biopsy.  I am still in radiation.   YUCK!  Not a good feeling.   Just feel angry,  that I was almost done treatment and could be heading back to the beginning, or maybe nothing at all.   BOO to you breast cancer and the games you play with my poor mind! !

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

    It still may be nothing,  I know this stinks but try not to panic, ha!  My dr just called me a "panicker".

    I think we're entitled to panic at this point, better than letting things go.  But this may just be an infection or something  I had a lump under my arm when I was pregnant with my daughter and it turned out to be nothing,

    Try to wait until you know more,  Easier said than done!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited November 2014

    clarrn. I had something similar last time and it was a stitch.  I hope you get the b9 soon. 

  • clarrn
    clarrn Member Posts: 557
    edited November 2014

    Thanks ladies!!  I knew you would keep me sane  :)  Yeah I am hoping that it is just a normal lymph node compensating for the ones I am now missing!  Before cancer it took me 3 weeks to get in for an ultrasound, now I get in at 8 am tomorrow morning...lol #cancerperk

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited November 2014

    clarrn, while I doubt sincerely something would pop up so soon and suspect it is rads related lymph issues, I would be panicking as well. Heck, I will panic with you until you get the all clear tomorrow. Big hugs, lady.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

      While we're in panic mode....my big toe has been infected since Friday.  I've been on antibiotics since Sunday.

    And as I sit here I'm watching the whole foot turn crimson.  Has anyone else had this happen?

    I'm freaking out and going to the dr 8:30 tomorrow.  I tink I may be on the wrong antibiotic.  Missing nodes, diabetes and post chemo infection=panic!

    Just took a Xanax.  

  • clarrn
    clarrn Member Posts: 557
    edited November 2014

    I am worried about your foot Timbuktu.  Glad you have an appt tomorrow too!!  Sounds like you may need a different antibiotic :(  

  • mmtagirl
    mmtagirl Member Posts: 509
    edited November 2014

    Hugs, Clarnn and Timbuktu.  Check in tomorrow please so we aren't worrying about you!

  • SharonDe
    SharonDe Member Posts: 222
    edited November 2014

    Good thoughts going out to Clarrn and Timbuktu

  • EverForward
    EverForward Member Posts: 242
    edited November 2014

    Hoping we hear good news from Clarrn and Timbuktu today. 

    I'm two months PFC and have noticed mild tingling in my feet recently. I had no signs of neuropathy during chemo. My toenails are in bad shape and haven't grown at all since August. My new MO is practically useless. I guess the next stop is a podiatrist.

  • linda505
    linda505 Member Posts: 847
    edited November 2014

    Thinking positive thoughts for Clarrn and Timbuktu.   Hate these detours that BC puts us on.

    Everforward - Herceptin can cause tingling in the feet and hands.  How long is your infusion?  If it isn't over 90 minutes ask to change it to that and see if that helps.

  • EverForward
    EverForward Member Posts: 242
    edited November 2014

    Thanks, Linda. I've been getting the 30 minute Herceptin since April and only now noticed mild tingling. If it gets worse, I'll ask about slowing it down.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

    Relief!  Just got back from the dr.  He said the toe is no longer infected.  I had a piece of toenail that was irritating the sore part of the toe so he cut it away.  The foot turning red is just a normal vascular difference.  I probably never noticed it before.  Hmmm, not too sure about that but anyway he said he's happy to give good news and I'm AOK.  He's so nice.  He said he was so glad I came in, that he much prefers to treat things early than to have people come in with huge problems that they've been ignoring.

    So, let's hope this is just the first of a series of good news on this thread.  

  • clarrn
    clarrn Member Posts: 557
    edited November 2014

    Woohoo Timbuktu!!!  So glad it's good news and a great doc!!  My appt got moved, so I am just sitting in the waiting room now.   :) 

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

    It will be good news for you too!  I'm praying.

    I just got my tumor marker results.  LOW!  Yay!

    Let us know.

  • clarrn
    clarrn Member Posts: 557
    edited November 2014

    And the verdict is MUSCLE!  :)  :)  A weird little pea sized bit of muscle.  They aren't sure why it's there or why it hurts but I am so glad :)

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

    Ha!!!!  hOORAY FOR YOU!!!!

  • mmtagirl
    mmtagirl Member Posts: 509
    edited November 2014

    Yay to Clarn and Timbuktu!  So happy for you both.

    Anyone one else having tongue neuropathy? Mine is getting worse, not better.  And, that awful metallic taste in my mouth has returned. It gets worse as the day goes one.

    I know I shouldn't Dr Google but I did and Burning Mouth Syndrome sounds similar to what I am feeling.  Could be chemo pause induced.  Haven't called the onc yet.  Was hoping it was a phase that would go away.

    Still have a little neuropathy left in my index fingers and toes once in awhile.  Otherwise I feel great and got some good workouts in as well.  Oh and day 4 of rads!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

    That's amazing, that you have energy while on rads.  Good going!

    Has anyone had wavy sight?  I've had it twice now and the dr wants me to have a carotid artery ultrasound.  But it occurred to me that every nerve in my body has been damaged by the chemo, why not my eyes?

  • linda505
    linda505 Member Posts: 847
    edited November 2014

    Woo hoo for muscles and irritating toenails!!!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited November 2014

    clarrn glad it's a piece of muscle. 

    Timbuktu my eyes are still not right. It drives me batty.  Glad those numbers are staying low. 

    As for me I am still healing from chemo and rads. My feet are still just cold all the time which drives me crazy. I have started this past week working out. It's not pretty but I have been getting thru it and it's been helping me with sleeping at night. I go to bed and I fall asleep super quick. My rads skin is starting to peel and leave pretty new pink skin. I am now just hoping that my reconstructed breast doesn't shrink too much. 

  • Sunshine36
    Sunshine36 Member Posts: 88
    edited November 2014

    Hey girls!!!

    Sorry I don't get a chance to come around too much and check in!!! But I wanted to extend the invitation to a closed/private fb group we created for some of us girls from this april chemo thread who became close and chat often (outside of this site). The fb group just seems to make it easy to all stay connnected and in touch - there's about 10 of us now but if anyone else would like to join, just send me a message or request to join the group. It's called My Sweet Survivor Sisters . Just an easy way for us to update our journey and keep in touch!

    And to the other girls doing their year of hereception - I too have mild tingling in my hands and fingers. It's very mild so I can't complain, but I do notice from time to time.

    Hoping everyone has a great weekend!!!

    Ps - finally got my date for my exhange surgery! Jan 22nd !!!

    Xoxo

    Jen

  • mmtagirl
    mmtagirl Member Posts: 509
    edited November 2014

    thanks for the invitation, Jen.. I just sent my fb request in.

    Yay for your exchange Jan 22.

    What a year we have had!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited November 2014

    Jen I sent a request to join. :).

  • Swissmiss
    Swissmiss Member Posts: 111
    edited November 2014

    Sunshine...I just sent my request to join your FB group :) Thank you for creating it...FB is much easier for me ! Trin

  • Sunshine36
    Sunshine36 Member Posts: 88
    edited November 2014

    Trina - the request didn't come through - can you try again? Or find me on fb and I'll add you (Jen Elkins Massinger) :-)

  • EverForward
    EverForward Member Posts: 242
    edited November 2014

    I WANT MY HAIR BACK!

    I can't do the wig at work for too much longer, it's getting to itchy. This weekend I'll try coloring the short pixie cut and hopefully it will do and I can start going topless next week.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited November 2014

    EF- I am with you. I want mine back I am tired of the looks and stares. I go topless all the time except to events that I photograph. Even a pixie cut will do...

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited November 2014

    My hair is over an inch long now and still stands straight up. I look kind of punk and I'm liking it! lol

    I don't have to comb it. It never looks messy. And at 65 I think I look kind of "cool". I keep asking my husband and daughter what I should do with it and they both say it looks fine so I'm going with it. I'm not working, which helps. And it's FREEZING in Chicago so I don't look unusual with a hat on.

  • mmtagirl
    mmtagirl Member Posts: 509
    edited November 2014

    this is my second week without a wig at work. Feels soooo good! And, liberating! Really don't care too much any more about what others think about it. Typically, it has turned into a non-event. Go for it!

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