axillary web syndrome

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skbrown
skbrown Member Posts: 40
edited November 2014 in Surgery - Before, During, and After

did anyone have this or has it now.  I really believe I have it, but can't get in for physical therapy until Nov. 25.  can any one help with things I can do to relieve the pain and discomfort?

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  • inks
    inks Member Posts: 746
    edited November 2014

    Mine was very obvious and visible in the armpit. Just do the regular range of motion exercises and stretches if you were cleared by your surgeon. I was given a booklet to follow. You'll see a difference in 2 days if you do the stretches twice a day.

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited November 2014

    That's ridiculous - your surgeon should have provided you with a referral prior to surgery so that you could schedule an appt. as soon as cleared for exercise. I'm sorry that wasn't the case. 

    I'd call back and ask about any cancellations and stress that the need is fairly urgent. Also try calling the surgeon or nurse navigator for a) exercises you can safely do until appt. and b) some help in getting that appt. moved up. 

    Good luck!

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  • skbrown
    skbrown Member Posts: 40
    edited November 2014

    already did that.  they called at 11:30 am and wanted me to come in at 1pm.  I had a meeting with the boss at that time.  I called surgeons office and she basically said if you can't do today, you will just have to wait.  they are pretty booked.  so much for sympathy.  huh?

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  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited November 2014

    here is some info om AWS

     AWS

    http://www.stepup-speakout.org/Cording_and_Axillary_Web_Syndrome.htm 

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  • agatha6
    agatha6 Member Posts: 22
    edited November 2014

    make sure you get a physical therapist that specializes in lymphadema! Big difference! My first PT had no clue what it was, my second one told me all about it. Contrary to what the above article link says, she said it is lymph tissue that needs redirected because it has no where to go. She showed me how to manually drain it, she did it for me and it felt great! She said with stretching some people have a "pop" and their range of motion returns. Why my surgeon didn't tell me what this was I will never know. 

    Agatha

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